Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Sara? Is he in any type of exercise program? Any sports or anything? Can you have a friend come and *work out* with him? If the meds are working so good, seems a shame to upset the apple cart. Hope you find a solution. Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Sara, I think I would find it very difficult to take Elie off Seroquel if he is doing so well on it despite the weight gain. I know the weight issue can of course be very difficult also. I don't know if you've said before, but do you think he eats more than he should or is it just a metabolism problem, exacerbated by the Seroquel? I think I would try to deal with the weight issue by diet and exercise before taking him off the Seroquel. When Brook was on Depakote he gained weight and wasn't really eating very much at all. He has always been a terribly picky eater and we usually had to distract him to get him to eat. Despite this he was still a little chubby when he was on the Depakote. After he stopped taking the Depakote we noticed a big weight drop. Marisa Mom to Miles 14, Brook 11yrs and Genevieve 4yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 Doctor?? Opinion on drugs for children with disabilities?? Surely you jest???? The doctor didn't even know what Seroquel was until I showed him the literature. As to weight gain - since last year, he first lost 10 pounds gained when on Risperidal, but has since gained 15. So his weight at 4'8 " is now 165 lbs. Doc's opinion ?? What ever I want to try. He has no suggestion on other meds. He actually said to try a break during Xmas but I won't do that as we want to enjoy break time from school. Still soliciting foods. Sara, Elie's Mom - 16 yo and just discovering friends ----Original Message Follows---- From: duffey48@... Reply- Subject: Sara, seroquel Date: Wed, 7 Nov 2001 13:31:12 EST MIME-Version: 1.0 Received: from [216.115.96.65] by hotmail.com (3.2) with ESMTP id MHotMailBDB2C85000494136E814D87360416B27114; Wed, 07 Nov 2001 10:32:21 -0800 Received: from [10.1.4.56] by n15. with NNFMP; 07 Nov 2001 18:32:25 -0000 Received: (EGP: mail-8_0_0_1); 7 Nov 2001 18:31:20 -0000 Received: (qmail 21224 invoked from network); 7 Nov 2001 18:31:20 -0000 Received: from unknown (216.115.97.172) by m12.grp.snv. with QMQP; 7 Nov 2001 18:31:20 -0000 Received: from unknown (HELO imo-r08.mx.aol.com) (152.163.225.104) by mta2.grp.snv. with SMTP; 7 Nov 2001 18:31:18 -0000 Received: from Duffey48@... imo-r08.mx.aol.com (mail_out_v31_r1.8.) id r.104.bd93a12 (4340) for < >; Wed, 7 Nov 2001 13:31:12 -0500 (EST) From sentto-410305-22796-1005157881-pastmidvale Wed, 07 Nov 2001 10:32:48 -0800 X-eGroups-Return: sentto-410305-22796-1005157881-pastmidvale=hotmail.com@... X-Sender: Duffey48@... X-Apparently- Message-ID: <104.bd93a12.291ad7f0@...> X-Mailer: AOL 6.0 for Windows US sub 10540 X--Profile: duffey48 Mailing-List: list ; contact -owner Delivered-mailing list Precedence: bulk List-Unsubscribe: <mailto:-unsubscribe > In a message dated 11/6/01 9:38:31 PM Eastern Standard Time, pastmidvale@... writes: > But he has startd to gain weight again on Sroquel. Now the question - do I > do a trial WITHOUT Seroquel - he has been on it > exactly a year at Thanksgiving- to see if sleep habits change and behavior > changes so that we can get a handle on the weight, or > do we leave well enough alone. Any opinions?? Hey Sara, Why is it that he would suddenly start to gain weight after being on it for so long? Are docs positive that it is the Seroquel? I think if it were me, I'd gauge how much he's gaining. If it's small amounts, maybe you can cut back somewhere else, or step up a little more exercise. If it's really helping him with sleep, that's a tough call to make!! Did the doc give you any opinion on it?? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2001 Report Share Posted November 7, 2001 I guess was lucky. He gained with Risperdal (14 pounds in 5 weeks), but didn't with Seroquel. Do you think he's having a growth spurt? I've heard of kids (knew a few) who got chunky right before they shot up. Of course they weren't DS, though. Loriann Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2 years and Strong Willed Both homeschooled. Quote Link to comment Share on other sites More sharing options...
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