Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 We met Pat Winders today at Kennedy Krieger. I told her my concerns about Rochelle not jumping and not walking independently up/down stairs. She gave me lots of suggestions for at home/school. She even took a couple of snaps to show the school what an adapted tricycle looks like with Rochelle riding of course. I got so excited to see Rochelle riding independently. It was a back support and a pair of small foot pedals that attach to any tricycle. So it can grow with her. She couldn't steer it but it looked so easy. This is a child who doesn't like ride ons. She mentioned shoe inserts for added support and a lighter shoe. She had lots of ideas to help Roe strengthen her legs. She was really warm and knowledgable. I really liked her energy. I told her Hello from Joan and Donna and that I met you all on the internet. I never did ask you all how you knew her. You stay in touch with her too? I look forward to her written eval for school/home program. Now I really have no excuse to sit around with Rochelle. Looks like we will be running, bouncing and walking alot more. She said everyday would be good. Guess we need to make room for a mini trampoline. Hope it can fit under the bed. LOL Next week we see Dr. Capone. Diane (mom to Rochelle 5-ds & Danny 7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 In a message dated 10/30/01 7:31:43 PM Pacific Standard Time, dben937342@... writes: << Now I really have no excuse to sit around with Rochelle. Looks like we will be running, bouncing and walking alot more. She said everyday would be good. Guess we need to make room for a mini trampoline. Hope it can fit under the bed. LOL Next week we see Dr. Capone. Diane (mom to Rochelle 5-ds & Danny 7) >> Well HAVE FUN Diane! LOL Good luck with Dr. Capone. Do let us know how it goes....lucky! Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 In a message dated 10/30/01 7:47:30 PM Pacific Standard Time, jmedlen@... writes: << Why...we did this long questionaire together with Andy sitting on my behind danging not one, not two, but THREE jump ropes b/c the nurse twapped him out so much. >> ROTFLOL....Just.... ROTFLOL!!!!! Gail :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Glad all went well Diane . This is good news . Thanks for the update. Luck with Dr.Capone. Irma, 13,DS/ASD. > We met Pat Winders today at Kennedy Krieger. I told her my concerns about > Rochelle not jumping and not walking independently up/down stairs. She gave > me lots of suggestions for at home/school. She even took a couple of snaps to > show the school what an adapted tricycle looks like with Rochelle riding of > course. I got so excited to see Rochelle riding independently. It was a back > support and a pair of small foot pedals that attach to any tricycle. So it > can grow with her. She couldn't steer it but it looked so easy. This is a > child who doesn't like ride ons. She mentioned shoe inserts for added support > and a lighter shoe. She had lots of ideas to help Roe strengthen her legs. > She was really warm and knowledgable. I really liked her energy. > > I told her Hello from Joan and Donna and that I met you all on the internet. > I never did ask you all how you knew her. You stay in touch with her too? I > look forward to her written eval for school/home program. Now I really have > no excuse to sit around with Rochelle. Looks like we will be running, > bouncing and walking alot more. She said everyday would be good. Guess we > need to make room for a mini trampoline. Hope it can fit under the bed. LOL > Next week we see Dr. Capone. > > Diane (mom to Rochelle 5-ds & Danny 7) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hey Diane: Isn't Pat the greatest? She's my all time favorite person to be with during the Down Syndrome Medical Interest Group Meetings. I met Pat a few years ago, but really got to know her better in the last year or so. She is really invested in our kids--all of them--and has a kind, gentle heart. I didn't meet her through the clinic, though Andy went ripping through there (it's the only room on the floor with toys) on his way to see someone else. I already knew Pat--she was happy to see us even if we were a fleeting duo. Let Dr. Capone know I send my best to him as well. He is who follows Andy from afar. We saw him on our trip to Baltimore, of course. He has always treated me with respect even after meeting me under some questionable circumstances. Why...we did this long questionaire together with Andy sitting on my behind danging not one, not two, but THREE jump ropes b/c the nurse twapped him out so much. By the end of hte visit, though, Andy and were running up and down the hall together. It was fun to see the transition. Andy knew he could trust and that he was there to be a positive influence. Keep us posted! take care, j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Cool, good luck with the tricycle and all about the doctors. ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 In a message dated 10/31/01 8:27:02 AM Eastern Standard Time, duffey48@... writes: > LOLOL Diane. Hey, do what we did to get Maddie to jump; put a mattress on > the floor, that way, she can drop to sleep as soon as she's done...LOLOL We have a mattrress on the floor in Rochelle's bedroom. It was the trundle mattress from her brothers bed. We still haven't gotten her a big girl bed but I've picked it out. DH wants me to paint room before new furniture. That was a year ago. LOL She doesn't roll off it anymore so she is ready. As for jumping, my son ruined our bed by jumping so I am very wary. We encouraged it back then. Rochelle doesn't have a clue to jumping yet and doesn't even bend her knees. Talked to Sped Teacher about getting special trike. She said, they use to have them and will see about getting one. Donna, have a safe & romantic trip in the Virgin Islands. We have relatives in St. Croix but haven't been up to visit yet. Went to the islands way back during Honeymoon. It's beautiful. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 How nice to read your visit with Dr. Capone turned out to be funny , will serious too . Joan when I read this part , I laughed , my imagination had pictured this . Donna , what an answer , I too , would of cracked up if I seen that. Maddie IS a cutie pie . Have a safe and enjoyable weekend . Ooh la la , nice romantic weekend , sounds nice . Take care. Irma, 13,DS/ASD. -- In @y..., duffey48@a... wrote: > In a message dated 10/30/01 10:47:37 PM Eastern Standard Time, > jmedlen@q... writes: > > > > Why...we did this long questionaire together with Andy > > sitting on my behind danging not one, not two, but THREE jump ropes b/c the > > nurse twapped him out so much. > > LOLOLOL Joan. I remember did the questionnaire with us too, cept HE > asked every question instead of us just filling it out (which is what we had > to do with the behavior psych). When it's YOUR kid, it's hard to answer > the qeustions correctly. Like, he asked, " Does Maddie make repetitive > sounds " ...we said... " OH NO " ........he looks down and sure enough there she is > doing her 24/7 click click sound out the back of her mouth. He > goes... " Well, what's that she's doing " .....I said... " OH THAT??? She does that > all day " .....we ALL cracked up laughing!!!! Duff and I said... " Yep, I guess > that's a yes then " ....LOLOL > Donna > > > Quote Link to comment Share on other sites More sharing options...
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