Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 Hi all, My turn to say bogus on that when I too, was told that . Whew! With to many too mention . Starting with the doctors to get an actual Dx. This is exactly what I did for 's school , I had his Ped doc to fax it directly to school , of course I have a copy . This for sure is important starting a file with every written information or jotting phone conversations to always have on handy . Part of a parents responsibility is to gather all the available information and resources we possibly can . Parents become the experts at searching out hard to find services . We need to use the diagnosis as a tool . To get the proper care,treatment, therapy , and schooling . What a journey to help our children . Once DX is confirmed it helps set up an action plan . We will often have several different diagnostic examinations for our children . Parents should be the most important members of the diagnostic team ; feelings and observations should be taken into account in making the final diagnosis . Working with the educators . Prayers that we could be able to work together for our child . Gathering infromation and study the law. Legally have your written consent before any evalutions or assessements can be done . The purpose of an assessement is to determine the child's strengths, assets,current performance levels, and educational needs . Not just their weaknessess . After assessements . It is important to have full knowledge and understanding of the diagnostic assessments. Occasionally we will need to remind people that there is a child involved , not just scores on a test . Goals written into the IEP are for the child , not the teacher . Always keep in mind that children change and so must IEP's . As we learn more about the whole special education process and gain skills we develop more self-confidence and effectiveness. I love the idea of the Pofile sheet , Gail . It shows strengths & weakness , the educational setting where our child does best in , and the type of help believe needed . Its a homes viewpoint . Shows of things your child is capable of doing . We must always share information to the teacher to understand our child . 's teacher was suprised to discover to hear the difference of things he does at home , thats just whenever we get together or when she calls me . The importantance to pray for understanding here (as when seeking a medical diagnosis). Stand up for what your child really needs . Getting the diagnosis , its hard for the parent and the teacher , as well . Sometimes its a relief getting a label for it . But the hard work starts now . If the school would like to give their own diagnosis and the parents listen to them . The first step would probably be this and that worked at home , why not at school ? . Due to this nuerological Disorder or mental retardation (excuse the word) in your school's case . Then request services needed for your child by evalutions in the areas needed . If the school still disagrees , thats were the private evalutions will have to be done and then given to the school to follow through . Sounds like " burnout " if not resolved . I'll stop here because I've done it again , yak yak . Sorry no help , just needed to vent out as I had a flashback . Luck . Irma, 13,DS/ASD. > >However yesterday I met two more > >>parents of young children with D.S. who fear they have > >>ASD and the school has told them that dual diagnosis > >>does not exist. > > We were also told this by the school. I got the doctor that dx'd JJ to put > it on a script and to write a letter. Was even told by a respected UC in my > area " Why would you want him to have another dx--isn't DS enough? Besides it > is not possible to have a dual dx. " Autism makes a difference on services, > he gets more than with just DS. > > > & Garry, parents of (11 ds), (10 ds), JJ (7 > ds/autism/celiac), (7 ds/ADHD/Celiac), and Esther (4 ds). All adopted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 --- ICANFIELD@... wrote: > Hi all, > > > > > Hi Irma and thanks for that. I think the real big difference between the U.K. and U.S.A. is that the services you get are all the same no matter what the diagnosis. So even if we do manage to get a dual diagnosis she will still only receive exactly the same services as she is now. This is possibly the reason why school isn't really that interested. The difference for me is that once I know for sure what her extra problems are I will hopefully be able to understand her better and learn how to deal appropriately with her. School is full of opposites. Her behaviour is due to her being at the lower end of the Downs spectrum yet they themselves admit that intellectually she is bright and improving to a degree that they are very pleased with. I have decided my best way forward is to find a professional who is sympathetic to dual diagnosis.Get an independent assessment and then hit the school with that. lisa mum to Rebekah 3 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 > > > Hi Irma and > thanks for that. I think the real big difference > between the U.K. and U.S.A. is that the services you > get are all the same no matter what the diagnosis. So > even if we do manage to get a dual diagnosis she will > still only receive exactly the same services as she is > now. This is possibly the reason why school isn't > really that interested. > The difference for me is that once I know for sure > what her extra problems are I will hopefully be able > to understand her better and learn how to deal > appropriately with her. > School is full of opposites. Her behaviour is due to > her being at the lower end of the Downs spectrum yet > they themselves admit that intellectually she is > bright and improving to a degree that they are very > pleased with. > I have decided my best way forward is to find a > professional who is sympathetic to dual diagnosis.Get > an independent assessment and then hit the school with > that. > lisa mum to Rebekah 3 > > > > Hi , When I had just hit the reply , I had just remembered about you living in UK . Yes, Of what I heard there is a difference . What you wrote on towards the end of your message I agree , that would be your best bet for now . Whenever I can , I 'll check with my other UK e- friends how they dealt with the dx and school issues . Luck . Irma, 13,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2001 Report Share Posted October 21, 2001 --- ICANFIELD@... wrote: > > > > >Hi Irma thanks so much for that > > lisa mum to Rebekah 3 > > > > > > > Hi , > When I had just hit the reply , I had just > remembered about you > living in UK . Yes, Of what I heard there is a > difference . What you > wrote on towards the end of your message I agree , > that would be your > best bet for now . Whenever I can , I 'll check with > my other UK e- > friends how they dealt with the dx and school issues > . Luck . > Irma, 13,DS/ASD > > > Quote Link to comment Share on other sites More sharing options...
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