Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 <P> Gail, Have you checked with the county? has had an advocate who will be with him to age 21.She has gone to several iep meetings and has been a tremendous help to us thru the last 9 years. Does ny have something like that ? & nbsp; it may be state not county but every child has their own advocate from birth to twenty one.Carole <P> & nbsp; <B><I>smilinggail@...</I></B> wrote: <BLOCKQUOTE style= " BORDER-LEFT: #1010ff 2px solid; MARGIN-LEFT: 5px; PADDING-LEFT: 5px " ><TT>In a message dated 8/29/01 5:25:03 PM Pacific Daylight Time, <BR>carole9545@... writes:<BR><BR> & lt; & lt; & nbsp; Hi Gail,When was in pre-school his mom talked to the teacher about <BR>him having a one to one aide and she was in agreement that it was needed. <BR>They went to the iep meeting and she did not back her up at all ..Talk about <BR>stunned! Worse yet when his daily notebook came home she had ripped out the <BR>pages where they had talked about it in the notebook.That was the first iep <BR>that did not get signed .I am sorry you are going through this & nbsp; ,just take <BR>all this great advice, study the law and go get " em.They will back down once <BR>they know that YOU know they are in the wrong. Good luck. Carole & gt; & gt;<BR>Oh that is AWFUL!!!!! & nbsp; I think that's the worst. & nbsp; To be let down like that by <BR>a person you trust. & nbsp; I thought 3 of the people at that meeting were friends <BR>watching out for Seth's and my rights and welfare. & nbsp; I wouldn't want anyone to <BR>jeopardize their job, but they should say they won't back you when push comes <BR>to shove, not let you believe they will back you up. & nbsp; I'm just not a fighter <BR>and would love to take Terry's advice and hire an advocate. & nbsp; I don't like to <BR>get emotional because I just sit there and cry and get mad. & nbsp; Tho' true to my <BR>name, I am usually smiling the whole time. & nbsp; What a jelly fish I am. & nbsp; If <BR>anyone has some extra backbone I'll pay the shipping! & nbsp; LOL<BR>Gail<BR></TT><BR><!-- |**|begin egp html banner|**| --> <TABLE border=0 cellPadding=2 cellSpacing=0> <TBODY> <TR bgColor=#ffffcc> <TD align=middle><FONT color=#003399 size=-1><B> Groups Sponsor</B></FONT></TD></TR> <TR bgColor=#ffffff> <TD align=middle width=470> <TABLE border=0 cellPadding=0 cellSpacing=0 width=300> <TBODY> <TR> <TD width=300> <TABLE border=0 cellPadding=0 cellSpacing=0 width=300> <TBODY> <TR vAlign=top> <TD colSpan=2 width=184><IMG alt= " " border=0 height=70 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/itapeorgn4_11_5.gif " width=154></TD> <TD rowSpan=2 width=116><IMG alt= " " border=0 height=221 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/1111.jpg " width=146></TD></TR> <FORM action=http://rd./M=210544.1579977.3132570.1261774/D=egroupweb/S=170501\ 3481:HM/A=776687/R=0/*http://ads.track-star.com/adspace.ts method=get> <TR vAlign=bottom> <TD bgColor=#ff6600 width=1><IMG alt= " " border=0 height=151 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/orgline.gif " width=1></TD> <TD align=middle bgColor=#ffcc00 width=183><INPUT name=ts type=hidden value=1;2;217;107_227_105_264><INPUT name=startApplication type=hidden value=%20> <FONT style= " FONT-FAMILY: Times New Roman,Times,serif; FONT-SIZE: 12px; FONT-WEIGHT: bold " >Start here...<BR><IMG alt= " " border=0 height=5 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif " width=5><BR>Height:<BR><SELECT name=feet size=1 maxlength= " 1 " > <OPTION value=3>3<OPTION value=4>4<OPTION selected value=5>5<OPTION value=6>6<OPTION value=7>7<OPTION value=8>8</OPTION></SELECT> ft & nbsp; & nbsp; & nbsp; & nbsp; <SELECT name=inches size=1 maxlength= " 2 " > <OPTION value=00>0<OPTION value=1>1<OPTION value=2>2<OPTION value=3>3<OPTION selected value=4>4<OPTION value=5>5<OPTION value=6>6<OPTION value=7>7<OPTION value=8>8<OPTION value=9>9<OPTION value=10>10<OPTION value=11>11</OPTION></SELECT>in<BR><IMG alt= " " border=0 height=5 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif " width=5><BR>Weight:<BR><INPUT CHECKED name=weightUnit style= " BACKGROUND: #ffcc00; COLOR: #000001 " type=radio value=pounds>lbs. <INPUT name=weightUnit style= " BACKGROUND: #ffcc00; COLOR: #000001 " type=radio value=kilograms>kg.<BR><INPUT name=weight size=5></FONT><BR><IMG alt= " " border=0 height=8 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/clear.gif " width=5><BR><IMG alt= " " border=0 height=19 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/3333.gif " width=153></TD></TR> <TR> <TD colSpan=3 width=300><INPUT alt= " " border=0 height=29 src= " http://us.a1.yimg.com/us.yimg.com/a/di/dietsmart/2222.gif " type=image width=300></TD></TR></FORM></TBODY></TABLE></TD></TR></TBODY></TABLE></TD></TR> <TR> <TD><IMG alt= " " height=1 src= " http://us.adserver./l?M=210544.1579977.3132570.1261774/D=egroupmai\ l/S=1705013481:HM/A=776687/rand=177821497 " width=1></TD></TR></TBODY></TABLE><!-- |**|end egp html banner|**| --><BR><TT>--------------------------------------------------<BR>Checkout our homepage for information, bookmarks, and photos of our kids. 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Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 I feel sorry for y'alls troubles with aides, iep's etc. for the school with your child. I hope all goes and gets better for y'all, and Donna that was good for you to get a break and walk for ice cream. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 In a message dated 8/29/01 9:08:31 PM Eastern Daylight Time, smilinggail@... writes: > I don't like to > get emotional because I just sit there and cry and get mad. Tho' true to > my > name, I am usually smiling the whole time. What a jelly fish I am. If > anyone has some extra backbone I'll pay the shipping! LOL Oh Gail!!! YOU can do this too!! Trust me!!! Bring a recorder and use it (if you can...some places you can't). Bring another person with you. If you can't afford an advocate or get one for free, bring your hubby or a friend. Don't be the ONLY one in there with the same frame of mind. Have a support person with you. Bring a nice large sized picture of Seth (framed preferably). Put it in the middle of the table as a REMINDER to all there that HE is what this is all about. And tell them that. " I'm putting Seth's picture here to remind us why we're all here. " Even if you're recording the meeting, bring a pen and notepad with you. Doesn't matter if you write nothing but jibberish in it; it gives you time to collect your thoughts and remain in control of your emotions (sorta like what cigarettes do for some people) Another tip Gail. Always let the person speaking finish their sentence. This shows control. If you must, write down the OFFENSIVE words the person said, so that when you respond to them, you can keep looking at them to give you the fight you need. The other thing GAil, it's ok if you cry. Don't berate yourself. Just collect yourself and come back into focus. I did get teary eyed at Maddie's towards the end, but it was good timing. We had been back and forth for hours and they needed to see what MY investment was in this. What they did to you was not only devious and wrong, it's ILLEGAL!!!!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 In a message dated 8/29/01 10:37:41 PM Eastern Daylight Time, smilinggail@... writes: > Gosh Carole, I never thought of his advocate. She has never done school > stuff with us, but I guess I can ask and if she doesn't feel she can do it, > maybe she can help get someone for me. Thanks!!!! > Gail Gail, Even people from your local support groups are good to accompany you. I went on a couple myself, just for support. It's just helpful to have someone in your corner there. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 yes we do, nathan's casemanager is also like his advocate, she attends his meetings and gets his IEP's etc, and will let me know if the school is doing something wrong, and also helps me get what we need too, whether its school or health, respite, scl, etc. has had one since a baby, granted our last one was horrible and she left office ( I think it was our doings)but she was horrible at her job. Our new one is awesome, and so far doing a great job. Also, I think most AEA type settings also have and advocate type persnon you can get, but ive always thought it would be a conflict of interest to go that route, never tried though. And there are also many advocate type groups out there, JUst got to find them. shawna. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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