Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 I have MCTD..lupus and RA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 Hi Bev - You'll be hearing from several from this list who have MCTD. It is a mixture of the rheumatic diseases and varies. The symptoms are much the same no matter what and they all cross over which is why it's so hard to diagnose. My Mom has MCTD and her's actually is scleroderma, lupus and myositis. I'll think you'll hear from others in this group who have a different combo. I think it's RTC who has some excellent information on MCTD (brain fog - so I'm not sure). If you were on minocin when your doctor thought you had RA, I'm suprized he has changed your meds. AP is still the best treatment choice. My Mom has taken only oral doxycycline for hers and has done very well. Let us know. Judy rheumatic MCTD > Hello All! > > As I posted in an earlier post to the group, my new RD has told me I have > MCTD and I don't know much about it. Apparently I don't have RA now. Who > knew it would disappear and leave this mess?? > Any thoughts or support would be appreciated. I am supposed to take Vioxx > and Metho and no Minocin. Are there many on the list with this disease? > > Bev > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 In a message dated 10/03/2000 7:52:40 PM Eastern Daylight Time, deejay@... writes: << My Mom has MCTD and her's actually is scleroderma, lupus and myositis. I'll think you'll hear from others in this group who have a different combo. I think it's RTC who has some excellent information on MCTD (brain fog - so I'm not sure). If you were on minocin when your doctor thought you had RA, I'm suprized he has changed your meds. AP is still the best treatment choice. My Mom has taken only oral doxycycline for hers and has done very well. Let us know. Judy >> Hi Judy, Thanks so much for the reply. My original RD said RA or PA and hated me on the AP so I had my gp treating me. Originally when I had my bloodword done, they were throwing around an idea it might be lupis but when I saw the RD he said RA. This is a completely new RD, one that I'd never seen before and taking a fresh look. I wouldn't have thought the RA could just disappear, but she says I don't have it, and this is just by a physical exam. We'll see when the bloodwork comes back. She said definitely no more Minocin, but I don't know if she would accept Doxy. I've thought for awhile I would rather take the Doxy anyway, after all the fungus problems and the darned constant stuffy nose. My gp looked at me like I was nuts when I suggested Doxy, so I just dropped it. It is hard enough to get a regular doctor inthe rural areas in Canada and getting one to prescribe the Doxy seemed against all odds. I'll do some more homework and see what I can come up with. Sure appreciate your post. :>) Makes me feel a lot better and no so panicky. Hugs Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 In a message dated 10/04/2000 7:15:59 AM Eastern Daylight Time, cadlard@... writes: << Dear Bev, Janene has a diagnosis of 'scleroderma, possibly mixed connective tissue disease (MCTD)' and that's the closest to a diagnosis she ever got. From her symptoms she has scleroderma, RA and polymyositis/fibromyalgia (CPK level is up). So it's a mixture of several types of rheumatic disease, or often a catch-all phrase because the doctor can't make up his mind what you have. You're not really in any different position than you were when the diagnosis was RA, if that makes you feel any better If there is any lupus component in your case, you would be better off taking doxycycline or erythromycin. There have been a very small number of cases where lupus symptoms have been made worse by minocycline - so small that many doctors still use minocycline. But doxycycline or erythromycin avoid that small risk. Doxycycline is taken at the same dose as you were on with minocycline and is probably the next best antibiotic to use. So the antibiotics plus herbals/acidophilus/etc. that we all talk about is still the approach for MCTD. Perhaps your doctor would phone Dr. Armstrong in Ontario as she would explain the rationale for the therapy? Or you might like to talk to her yourself? Her phone number is Canada 613-721-9800. >> Dear Thank you so much for your prompt reply. I have the same feeling as when I was first diagnosed and feel so uninformed and in the dark. I appreciate your suggestions and it's good to know you people in the group are here. When I mentioned to this RD, Dr. Janet Pope, in London, Ontario, I had been on Minocycline she didn't seem too surprised or upset as my previous RD had been, but was more concerned why I had stopped the Metho. I told her my gp wanted me to stop the Metho to see if the Minocycline was working. I am hoping she will go for the Doxy and will ask her about it. I was contemplating calling Armstrong also, but it is a nine hour drive to see her. If I have to I'll do it. Thanks again, Chris. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 Dear Bev, Janene has a diagnosis of 'scleroderma, possibly mixed connective tissue disease (MCTD)' and that's the closest to a diagnosis she ever got. From her symptoms she has scleroderma, RA and polymyositis/fibromyalgia (CPK level is up). So it's a mixture of several types of rheumatic disease, or often a catch-all phrase because the doctor can't make up his mind what you have. You're not really in any different position than you were when the diagnosis was RA, if that makes you feel any better If there is any lupus component in your case, you would be better off taking doxycycline or erythromycin. There have been a very small number of cases where lupus symptoms have been made worse by minocycline - so small that many doctors still use minocycline. But doxycycline or erythromycin avoid that small risk. Doxycycline is taken at the same dose as you were on with minocycline and is probably the next best antibiotic to use. So the antibiotics plus herbals/acidophilus/etc. that we all talk about is still the approach for MCTD. Perhaps your doctor would phone Dr. Armstrong in Ontario as she would explain the rationale for the therapy? Or you might like to talk to her yourself? Her phone number is Canada 613-721-9800. And, just to stir up more discussion ( you can get the doxycycline legally from the net if that's the only way. Let me know if you need the contacts. Chris. On Tue, 3 Oct 2000 Bryarwoode@... wrote: > Hello All! > > As I posted in an earlier post to the group, my new RD has told me I have > MCTD and I don't know much about it. Apparently I don't have RA now. Who > knew it would disappear and leave this mess?? > Any thoughts or support would be appreciated. I am supposed to take Vioxx > and Metho and no Minocin. Are there many on the list with this disease? > > Bev > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 Bev, I have dermatomyositis and in mid 1999 I had a complete hematology done by oncology and was told by the oncologist that I have MCTD as well. Since I am taking minocycline he did not mention taking anything else. I also have lymphoma and am undergoing chemo at the present time so that may have been one reason why he did not persue the MCTD diagnosis. My rheumie left to teach in Minneapolis and I have an appointment with a new one on Oct. 23rd and will mention it to him and find out more then. My GP figured that the mino should help with MCTD as well as the dm. HTH Carol/piney rheumatic MCTD > Hello All! > > As I posted in an earlier post to the group, my new RD has told me I have > MCTD and I don't know much about it. Apparently I don't have RA now. Who > knew it would disappear and leave this mess?? > Any thoughts or support would be appreciated. I am supposed to take Vioxx > and Metho and no Minocin. Are there many on the list with this disease? > > Bev > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2000 Report Share Posted October 4, 2000 In a message dated 10/04/2000 3:41:15 PM Eastern Daylight Time, bzarn@... writes: << Bev, I have dermatomyositis and in mid 1999 I had a complete hematology done by oncology and was told by the oncologist that I have MCTD as well. Since I am taking minocycline he did not mention taking anything else. I also have lymphoma and am undergoing chemo at the present time so that may have been one reason why he did not persue the MCTD diagnosis. My rheumie left to teach in Minneapolis and I have an appointment with a new one on Oct. 23rd and will mention it to him and find out more then. My GP figured that the mino should help with MCTD as well as the dm. HTH Carol/piney >> Hi Carol, Thanks so much for the reply. You seem to be going through a lot right now. I hope your new RD is a good one and doesn't change your meds if they are working. I just woke up short of breath and don't know if it is because we had such a busy day yesterday or I have a urine infection or my disease. I hate that feeling. Carol, are you on Minocycline only? What about Methotrexate or an anti inflammatory? I was supposed to start my Metho last night but put it off til Friday. I wished I didn't have the fungus problem which I put down to the Minocycline, or I would be on it still also. Good luck with the chemo, Carol. Please let me know what the new RD says. Hugs Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 In a message dated 10/05/2000 12:34:55 PM Eastern Daylight Time, slfain@... writes: << Bev, You would probably have the fungus problem with or without the antibiotics. Over at the scleraderma digest, only maybe one per cent of us there are on antibiotic therapy but 100 per cent of them are bubbling over with yeast and fungus. I have been thinking of this for a long time - the chicken and the egg theory. You just have to fight the fungus and yeast more aggressively. I take aloe vera and colloidal silver, grapefruit seed extract and primadolphalis twice daily. Actually I do the grapefruit seed extract three times a day. And I do the tea tree oil twice daily FAITHFULLY. Your question about why I put the oil on the soles of my feet:: The soles of the feet make the best recepticale for the oil in that within seconds, the oil penetrates into the blood stream and gets to throughout te body. Occasionally, my sinuses will be sort of stopped up and if I place peppermint on my forehead or behind my ears, I am quickly open and breathing well, or if I feel the heaviness in my chest - not ever any trouble breathing - then I will put a couple of drops on my chest. Hope this helps, Bev. Hugs, >> , It could be that I would have the fungus with or without AP, but because of the serious problems I had with it and because it has eased so much I do put it down to the Minocycline. Even my brown fungal toenail is growing in normally and this is after stopping the Minocycline. So that is a good case for blaming the Mino. There are other antibiotics I can take so it is not that I'm throwing in the towel. Just that I am very leary of taking anything right now. I have lost 20% of thehearing in my ear and my nose on that side is always stuffed up. I never had the operation because I want to find out what is going on there before they patch my ear. I sure don't want to cover up a problem and have it festering away. So I have to wear an ear plug when I wash my hair or have a shower but that's okay with me and I am always saying " what did you say " to people who talk to me on that side of me. As for the Tea tree oil, I did put it on my toe one time and it was so strong, I was worried about it getting into the bloodsteam because I had a cut right across the nail, so I didn't use it again. I am so leary of meds and treatments that are new. The peppermint oil sounds good though. I am looking into it. Thanks for the information . Love Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Hi Liz, Thanks for the nice post. You are certainly right about the overlapping symptoms. I didn't feel so bad when I didn't know I had this. Weird, eh! I wonder if it is suggestive conditioning because she did ask me several times if I had shortness of breath and I said a little but then added I think I have a urine infection and also thyroid, so shortness of breath isn't new to me, but I haven't had it for a long time. It actually woke me up during the night and I did the e-mail thing at 5 a.m. Then went back to sleep and slept like a log til 7:30. I didn't know fibro would interupt your sleep. That is interesting. I used to go to sleep and not wake up til morning but now I wake up several times a night. I ended up sleeping on the couch downstairs and have the tv on and when I awaken I watch tv and get sleepy again, and this is repeated several times. Get to watch a lot of good tv tho because everything good is on late at night. :>) I am on no meds except my thyroid meds and the only x-rays she ordered are of my feet and hands which are the main things limiting me. I will call her about the shortness of breath tho and see what she says. I have had it many times over the years, especially when I used to get panic attacks, which yu can relate to and also when I had undiagnosed thyroid disease. Also, has a cold and I have a phlegmy throat on and off, so it could be from many things. It will all get sorted out eventually. Maybe you shouldn't take metho or Vioxx if you have breathing problems. I'll check with her. Thanks again Liz for offering such caring support. Love Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Bev, You would probably have the fungus problem with or without the antibiotics. Over at the scleraderma digest, only maybe one per cent of us there are on antibiotic therapy but 100 per cent of them are bubbling over with yeast and fungus. I have been thinking of this for a long time - the chicken and the egg theory. You just have to fight the fungus and yeast more aggressively. I take aloe vera and colloidal silver, grapefruit seed extract and primadolphalis twice daily. Actually I do the grapefruit seed extract three times a day. And I do the tea tree oil twice daily FAITHFULLY. Your question about why I put the oil on the soles of my feet:: The soles of the feet make the best recepticale for the oil in that within seconds, the oil penetrates into the blood stream and gets to throughout te body. Occasionally, my sinuses will be sort of stopped up and if I place peppermint on my forehead or behind my ears, I am quickly open and breathing well, or if I feel the heaviness in my chest - not ever any trouble breathing - then I will put a couple of drops on my chest. Hope this helps, Bev. Hugs, Bryarwoode@... wrote: > In a message dated 10/04/2000 3:41:15 PM Eastern Daylight Time, > bzarn@... writes: > > << Bev, I have dermatomyositis and in mid 1999 I had a complete hematology > done > by oncology and was told by the oncologist that I have MCTD as well. Since I > am taking minocycline he did not mention taking anything else. I also have > lymphoma and am undergoing chemo at the present time so that may have been > one reason why he did not persue the MCTD diagnosis. My rheumie left to > teach in Minneapolis and I have an appointment with a new one on Oct. 23rd > and will mention it to him and find out more then. My GP figured that the > mino should help with MCTD as well as the dm. HTH Carol/piney >> > > Hi Carol, > > Thanks so much for the reply. You seem to be going through a lot right now. > I hope your new RD is a good one and doesn't change your meds if they are > working. I just woke up short of breath and don't know if it is because we > had such a busy day yesterday or I have a urine infection or my disease. I > hate that feeling. > > Carol, are you on Minocycline only? What about Methotrexate or an anti > inflammatory? I was supposed to start my Metho last night but put it off > til Friday. I wished I didn't have the fungus problem which I put down to > the Minocycline, or I would be on it still also. > > Good luck with the chemo, Carol. Please let me know what the new RD says. > > Hugs > > Bev > > > To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Bev, I wonder if we all wouldn't have one foot (figuratively speaking : ) in a similar diagnosis. I say this because I have a lot of symptom overlap with other rheumatic diseases--the sausage toes that go with PA, the reverse curvature and tendon insertion swelling that goes with AS, the sleep problems that go with fibro, and so on. I would not let the new diagnosis alarm you, rather try and see it as a just another name for the same process. I am worried about what you say about the shortness of breath though. Can you connect it with any other symptoms?--like meds or other irritants you may be having allergic reactions to, stomach pain (shortness of breath can accompany stomach problems from nsaids, etc.) Have they ordered a lung x-ray? I would ask for one, in case it is the rheumatic stuff affecting your lungs. Collar the doc about this symptom, and insist they address it. If it gets any worse with the MTX--call the doc right away and report it. MTX can affect the lungs, and I worry about them starting you on it when you already have shortness of breath--on the other hand, if you are having lung trouble from RA or MCTD, maybe it will get better--that is my hope for you. Are you doing any of the alternative things the group recommends to fight fungus--like the grapefruitseed extract? diet? and so on--it couldn't hurt and may help. Keep us posted how you are doing--I'm sending prayers, healing thoughts, and a cyber-cuppa tea your way--now find a warm spot in the sun, or tuck up in bed--and get loads of rest! {{{{{{{{{{{{{{Bev}}}}}}}}}}}} Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 - Thanks so much for sharing about the tea tree oil, and peppermint. My daughter is away at college & has a bad cold & allergies bothering her. Gonna see if I can get some to mail to her. Have a huge amount of mint in my backyard (it WAS a garden at one point.... ) Must be a way to make that into the liquid drops.... Lyn ---------------------- > >Bev, You would probably have the fungus problem with or without the >antibiotics. Over at the scleraderma digest, only maybe one per cent of >us >there are on antibiotic therapy but 100 per cent of them are bubbling over >with >yeast and fungus. I have been thinking of this for a long time - the >chicken and >the egg theory. You just have to fight the fungus and yeast more >aggressively. >I take aloe vera and colloidal silver, grapefruit seed extract and >primadolphalis >twice daily. Actually I do the grapefruit seed extract three times a day. >And I >do the tea tree oil twice daily FAITHFULLY. > Your question about why I put the oil on the soles of my feet:: The >soles of >the feet make the best recepticale for the oil in that within seconds, the >oil >penetrates into the blood stream and gets to throughout te body. >Occasionally, >my sinuses will be sort of stopped up and if I place peppermint on my >forehead or >behind my ears, I am quickly open and breathing well, or if I feel the >heaviness >in my chest - not ever any trouble breathing - then I will put a couple of >drops >on my chest. Hope this helps, Bev. Hugs, > >Bryarwoode@... wrote: > > > In a message dated 10/04/2000 3:41:15 PM Eastern Daylight Time, > > bzarn@... writes: > > > > << Bev, I have dermatomyositis and in mid 1999 I had a complete >hematology > > done > > by oncology and was told by the oncologist that I have MCTD as well. >Since I > > am taking minocycline he did not mention taking anything else. I also >have > > lymphoma and am undergoing chemo at the present time so that may have >been > > one reason why he did not persue the MCTD diagnosis. My rheumie left to > > teach in Minneapolis and I have an appointment with a new one on Oct. >23rd > > and will mention it to him and find out more then. My GP figured that >the > > mino should help with MCTD as well as the dm. HTH Carol/piney >> > > > > Hi Carol, > > > > Thanks so much for the reply. You seem to be going through a lot right >now. > > I hope your new RD is a good one and doesn't change your meds if they >are > > working. I just woke up short of breath and don't know if it is because >we > > had such a busy day yesterday or I have a urine infection or my disease. > I > > hate that feeling. > > > > Carol, are you on Minocycline only? What about Methotrexate or an anti > > inflammatory? I was supposed to start my Metho last night but put it >off > > til Friday. I wished I didn't have the fungus problem which I put down >to > > the Minocycline, or I would be on it still also. > > > > Good luck with the chemo, Carol. Please let me know what the new RD >says. > > > > Hugs > > > > Bev > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Hi Bev: I was wondering what was happening with you and am so sorry you are going through all this. Just wanted to mention that you are smart to take the metho on weekends since, in my experience, it really made me extremely tired the following day. With all that work you do (wow, don't know how you do it!), you might get real fatigued. We all would like our weekends to enjoy but there is nothing worse than what I use to refer to as my " metho fog " when trying to work. Hang in there, Bev. I'm saying a prayer for you. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 , Lin, That is an idea Lin. Could you make your own peppermint from the plants or would it be too much work for what you'd get. If it is possible, at least you would get pure peppermint. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 In a message dated 10/04/2000 4:16:03 AM Pacific Daylight Time, cadlard@... writes: << And, just to stir up more discussion ( you can get the Doxycycline legally from the net if that's the only way. Let me know if you need the contacts. >> Please print the contacts :-) It breaks my heart and makes me concerned people who want to try this treatment are denied the antibiotics. Around the world for some people getting antibiotics is harder than getting narcotics for the pain. This is wrong IMHO. I would like to have that web address on how to get the Doxycycline off the web. I can get mine from the pharmacy, but some people have trouble getting them prescribed. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Would this be like infusion? I am not sure how you would be able to do it but I grow mint every summer, too, so this sounds interesting. Maybe we can all slooth through herbal remedy books at the book stores and report back. First one with info is the winner.... Hugs, Bryarwoode@... wrote: > , Lin, > That is an idea Lin. Could you make your own peppermint from the plants or > would it be too much work for what you'd get. If it is possible, at least > you would get pure peppermint. > > Bev > > > To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 You could make an oil infusion. Fill a jar loosely with clean mint leaves, add a neutral oil like almond, for instance, to cover the leaves completely, and let it sit in a warm place for about 4-5 days, shaking occasionally, then strain. It would not be as strong as the essential peppermint oil, but it is usually recommended you not put mint essential oil, or any essential oil for that matter, on the skin without diluting it down in a carrier oil--it can be irritating. You could make a salve of it by adding melted beeswax to the oil infusion. If you are going to try the salve, and need more detail, I have a book on the subject and can write more detail instructions if you ask. The essential oil is distilled, so is stronger, but a bottle of it in a health store is usually cheap, and goes a long way if you dilute it with other oils. You could also make an alcohol tincture by substituting grain alcohol, or any strong, neutral alcohol, let sit several days, strain and store in a dark place. If you are keeping it a long time, you may want to preserve it by adding some glycerine. Tinctures can be used internally, usually diluted in warm water. And of course, there is my favorite kind of mint infusion--with hot water, that is, mint tea, LOL. Put some fresh or dried leaves in a tea strainer and let it sit a few minutes. I love it and drink it a lot, especially in the winter if I have a cold or stomach flu. The book I have also gives instruction how to make lozenges with different herbs, but that involves using a lot of sugar. HTH Liz G > Would this be like infusion? I am not sure how you would be able to do it but > I grow mint every summer, too, so this sounds interesting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Bev - I've dried some - very easy, just wash the stems, like salad, then spin in salad spinner. I put all of it on a tray, & put it out of the way, like on top of the refrig. til dried. As for tea, all ya gotta do is snip some leaves, or stems, wash real good, and seep in hot water. When I get a chance, I'm going to do some research on how to make the drops. I think you are supposed to use vodka or some kind of alcohol like that. Since you use so little, the alcohol content is really insignificant. I've always read to make sure to grow mint in containers, as it spreads something awful. I didn't, because we've got so many weeds, I figure, hey, might as have something useful battle for the space out there!! Lyn ================ >, Lin, >That is an idea Lin. Could you make your own peppermint from the plants >or >would it be too much work for what you'd get. If it is possible, at least >you would get pure peppermint. > >Bev _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 Hello.. Anyone diagnosed with MCTD using LDN presently? It is hard for me to get my Dr.'s to prescribe drugs that they do not approve/discover first. How might I find a Dr. willing to do this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Is MCTD a condition for which LDN is useful? Print out the LDN home page and take to a GP who is comfortable in his own skin---doesn't need to impress anyone that he is GOD. The very nice GP who gave me a year's prescrip last Friday at local clinic said no one should have problem getting LDN. ( NOT aspirin or Motrin which cause internal bleeding,) Prescrip faxed to Skip's in Boca Raton, Fla and spoke with Skip personally. He advises avoiding specialists---they have only the expensive pharmaceuticals in their field. They are subsized by drug companies and act as spokesmen at conferences. My parents yelled loud and long that Wilford Hall, Lackland AFB, killed their friend, a retired Air Force officer who checked into Wilford Hall following a heart attack. He was about to be released after a recovery from the heart attack when he developed uncontrolable internal bleeding. My parents were visiting when my mother looked at the friend's hospital chart and saw he was receiving " Motrin " ! She showed the man's wife who told my mother to " shut up and mind her own business " ! Mom kept her mouth shut and the hapless man died of internal bleeding. My relatives have had close calls with confused orders for amputation and/or insulin. I had a heat flare last July 3-4 and was hospitalized overnite. As soon as I was in a bed, I was brought pills for " stress ulcers. " I refused them . In the morning, I was brought pills for " acid reflux " I have enough stomach acid to digest my food and NEVER have indigestion! I recall Medicare being billed for " self administered " medication. I took NOTHING!! Medical bills are out of sight and no wonder. Find a friendly General Practitioner who doesn't need to impress anyone. shylotz@... --- Amber <glenda@...> wrote: > > Hello.. > > Anyone diagnosed with MCTD using LDN presently? It > is hard for me to > get my Dr.'s to prescribe drugs that they do not > approve/discover > first. How might I find a Dr. willing to do this? > > > > __________________________________ Celebrate 's 10th Birthday! Netrospective: 100 Moments of the Web http://birthday./netrospective/ Quote Link to comment Share on other sites More sharing options...
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