Re: Question regarding L-Glutathione

[Guest guest]

We started with IV’s once a week and then I added the pills daily. The only thing different we saw was increase speech and understanding, etc.

Not sure what you should try- good luck.

Are you on the autism treatment list? They might know too.

On 9/24/07 9:22 PM, " snowhite6503 " <gentsandgems@...> wrote:

My son just started taking L-Glutathione 100 mg. yesterday. Has anyone

else tried this and if so, did you see any initial side effects?

Changes in behavior? Did this stop within a short period of time?

His behavior has been VERY aggresive the past 2 days and this is the

ONLY thing that has changed! I am with a D.A.N. doctor now but

unfortunately I have not had much help from this particular doctor.

Any past experience with this that you can share would be greatly

appreciated!!!

Thank you!

Tammy McNair

Mommy of 11

Proud mommy of someone with Autism!

www.letsbeatautismnow.com

[Guest guest]

Thank you. Could you send me the link to the autism treatment list? I

am really concerned. The lutathione and glutamine were the 2 supps

that concerned me the most when I started down this path. (I did the

DAN protocol for 16 months prior to getting a DAN doctor).

I asked my DAN doctor which one I needed and she went to her office

and came back and said both. I asked her which one I should start

first and she said either.

I had to request bloodwork to test the level of vitamins and

minerals. She told me I could not get a complete work up done unless

I went through a specific lab and that medicaid would not cover it.

But I know of others that have had this test run and medicaid covered

it. Instead we are waiting on the results of the bloodwork we

did get done. She asked me what I wanted tested!!! I told her

everything that they would allow.

Sorry to rant on. I am just very unhappy with what I am getting from

her right now. And I had waited for such a long time to get in with a

DAN doctor, ya know? I just thought that she would be telling me what

we needed to do.....not me telling her. I guess I expected too

much.

Thank you again!

Tammy McNair

Mommy of 11

Proud mommy of someone with Autism!

www.letsbeatautismnow.com

>

> >

> >

> >

> >

> > My son just started taking L-Glutathione 100 mg. yesterday. Has

anyone

> > else tried this and if so, did you see any initial side effects?

> > Changes in behavior? Did this stop within a short period of time?

> >

> > His behavior has been VERY aggresive the past 2 days and this is

the

> > ONLY thing that has changed! I am with a D.A.N. doctor now but

> > unfortunately I have not had much help from this particular

doctor.

> >

> > Any past experience with this that you can share would be greatly

> > appreciated!!!

> >

> > Thank you!

> > Tammy McNair

> > Mommy of 11

> > Proud mommy of someone with Autism!

> > www.letsbeatautismnow.com

> >

> >

> >

>

[Guest guest]

Thank you so much for posting this Dr. Stoller!!! I feel much better!

I know that she has the medical training but I think she is just too

busy with her regular practice.

And I am guilty of knowing much more than what she expected....she

herself stated this! I requested a parasite test and she asked

why and I explained that he is on potato milk. Potatoes being night

shade vegetables, parasites would feed on them. She gave a smirk and

wrote out the Rx for the test.

I will talk to her some more in depth this week. I waited so long to

find a DAN doctor that would take medicaid (after fighting to get

it), and I am really hoping that this will eventually work out.

I even " considered " going to medical school and every conference in

between and then any training so that I could become a DAN

doctor! But at the age of 42 and not knowing for sure what my

son's future might hold, I think I will leave the medical aspect in

the hands of the experts. But also take your advice and go with my

heart and intuition.

Thank you again so much!!!

Tammy McNair

Mommy of 11

Proud mommy of someone with Autism!

www.letsbeatautismnow.com

>

> As a " DAN " doc...let me point out that just being a DAN doc is no

guarantee of being anything more than someone who took the training

offered by the ARI at sometime in the past several years.

>

> Being up-to-date in treating autistic children means having very

current knowledge of what is taking place as interventions change

slightly every few months (MONTHS!). For example, only now is m B12

and HBOT getting into the books that are coming out, such as the 3rd

ed of Children with Starving Brains, or the new Jepson book.

>

> When I see a new patient I tell the parents that they are going to

be the doc...I am going to be the facilitator. THey get a reading

list of four of the latest books (required reading). And we start

peeling the layers back and go down the rabbit hole of biomedical

intervention. It is a lot of work for me but even more for parents.

>

> Do not trust doctors trust yourself. Read everything you can,

attend conferences or download the lectures which is possible for

both DAN and USAAA meetings.

>

> It is a lot to ask a parent to get up to speed on biochemistry, but

this is what must be done for now.

>

>

>

>

>

>

> KP Stoller, MD

> President, International Hyperbaric Medical Assoc

> Medical Director, Hyperbaric Medical Center of New Mexico

> www.hbotnm.com

>

> Please note: message attached

>

>

> _____________________________________________________________

> Garage overflowing? Click for steel buildings that are durable and

easy to install.

>

http://3rdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4uigf5UU9EUXlvIGex4

gbEeoploO30EX2uG8eyWBleoNkW6Q/

>

[Guest guest]

>

> As a " DAN " doc...let me point out that just being a DAN doc is no

guarantee of being anything more than someone who took the training

offered by the ARI at sometime in the past several years.

>

I have to agree with Dr. Stoller on this. Any doctor can become a

DAN! doctor. You can find the full spectrum of quality: great ones

and not so good ones. Parents still must do their " due diligence " ,

ask around, google, get referrals, etc.

This is why local biomedical parent support lists are so important.

There are over 2800 listing on alone that have something

to do with autism. Many of those are local support groups that have

sprung up over the last five years or so. You should be able to find

a support list not too far away geographically from where ever you

live in the US.

Not all parents, however, are at high education levels and simply

cannot do the " required reading " and get self-taught in medical

science to be one of Dr. Stoller's patients. The children of less

educated parents deserve a chance at recovery, too. We have not only

children from less educated, economically disadvantaged families, but

also untold number of abandoned autistic foster children who have no

loving parents to advocate for them. Are they less any deserving at a

chance for recovery?

This is in no way a criticism of who Dr. Stoller choses to serve as

his patient base, but only to say that families, like the children,

come in a spectrum of need. The solutions go beyond what one or a

dozen heroic doctors like Stoller can do.

We must have political solutions to help children and families across

the board of needs and abilities.

Lenny

[Guest guest]

And that my dear friend Lenny, is the crux of the problem. The

children without advocates will continue without advocates, without

treatment, without voices, without help, until the message, the

methodology, and the treatments and recovery are mainstream.

Until it is recognized in the mainstream that our children are

damaged and not born defective and hence it is completely or

partially reversible, nothing will change.

That is our mission. It is what thousands of us have been screaming

for years and years, nearly unheard, and what McCarthy is

voicing to the world for us, since no one found our voices valid or

important. I am filled with so much hope these days, that we are

finally taking the tiny steps to recognition, legitimacy, and hence

action. I do admit though I still have my fingers crossed behind my

back.

Kendra

> >

> > As a " DAN " doc...let me point out that just being a DAN doc is no

> guarantee of being anything more than someone who took the training

> offered by the ARI at sometime in the past several years.

> >

>

> I have to agree with Dr. Stoller on this. Any doctor can become a

> DAN! doctor. You can find the full spectrum of quality: great ones

> and not so good ones. Parents still must do their " due diligence " ,

> ask around, google, get referrals, etc.

>

> This is why local biomedical parent support lists are so

important.

> There are over 2800 listing on alone that have

something

> to do with autism. Many of those are local support groups that

have

> sprung up over the last five years or so. You should be able to

find

> a support list not too far away geographically from where ever you

> live in the US.

>

> Not all parents, however, are at high education levels and simply

> cannot do the " required reading " and get self-taught in medical

> science to be one of Dr. Stoller's patients. The children of less

> educated parents deserve a chance at recovery, too. We have not

only

> children from less educated, economically disadvantaged families,

but

> also untold number of abandoned autistic foster children who have

no

> loving parents to advocate for them. Are they less any deserving

at a

> chance for recovery?

>

> This is in no way a criticism of who Dr. Stoller choses to serve as

> his patient base, but only to say that families, like the children,

> come in a spectrum of need. The solutions go beyond what one or a

> dozen heroic doctors like Stoller can do.

>

> We must have political solutions to help children and families

across

> the board of needs and abilities.

>

> Lenny

>

[Guest guest]

WITH INSURANCE COVERAGE so parents don't have to choose between putting

food on the table and treating their child.

>

> Amen, Kendra. You got me thinking.

>

>

>

> Imagine if just ONE typical biomed approach to treating autism could

> become mainstream right now.

[Guest guest]

I think the chelatingkids 2 group might be helpful too:

chelatingkids2/

We also do the IV glutathione for our 8 year old daugher with some

noticable increases in understanding language and she is following

directions wonderfully now. I have not done oral glutathione because

I am afraid it will increase her yeast (this happened when we tried

nebulized glutathione so now I try to avoid the gut as much as

possible with things that are known to raise yeast levels.)

Tina

>

> >

> >

> >

> >

> > My son just started taking L-Glutathione 100 mg. yesterday. Has

anyone

> > else tried this and if so, did you see any initial side effects?

> > Changes in behavior? Did this stop within a short period of time?

> >

> > His behavior has been VERY aggresive the past 2 days and this is

the

> > ONLY thing that has changed! I am with a D.A.N. doctor now but

> > unfortunately I have not had much help from this particular

doctor.

> >

> > Any past experience with this that you can share would be greatly

> > appreciated!!!

> >

> > Thank you!

> > Tammy McNair

> > Mommy of 11

> > Proud mommy of someone with Autism!

> > www.letsbeatautismnow.com

> >

> >

> >

>

[Guest guest]

Here-here Dr Stoller! I am always second guessing the doc's and

looking things up myself. Sometimes I tell them what I want to do

and see if they agree. I do trust the doctor that does our daughters

chelation but I still challenge somethings and I finally for the

first time feel that I AM IN CHARGE! I will never see eye to eye

with my pediatrician though--I only see him now for the yearly

physical and if ANYONE EVER come near my kid again with a syringe I

WILL RUN FOR THE HILLS (after kicking his ass first!)!!!!!!

Thank you Dr Stoller for you insight,

Tina

>

> Is is a good thing to have a doc you can trust.

>

> Having said that....doctors have lost the right to be trusted.

>

>

> KP Stoller, MD

> President, International Hyperbaric Medical Assoc

> Medical Director, Hyperbaric Medical Center of New Mexico

> www.hbotnm.com

>

>

>

> _____________________________________________________________

> Garage overflowing? Click for steel buildings that are durable

and easy to install.

>

http://3rdpartyoffers.netzero.net/TGL2221/fc/Ioyw6i4uiggy6ZSNt8Z20XvV

KHVHtu1NCouEaNreYK4cQYof4utC5W/

>

[Guest guest]

Your child could have a sulfur issue. Some kids cannot handle

Glutathione, or not every day. You may want to do this once a week.

But talk to your DR about this.

My son cannot handle lots of Glutathione, lots of kids cannot.

And not all kids can handle the Methly B-12 shots at first. You may

have to start out using Hydroxy B-12 or Cyno B-12

In EOHarm , " snowhite6503 " <gentsandgems@...> wrote:

>

> My son just started taking L-Glutathione 100 mg. yesterday. Has

anyone

> else tried this and if so, did you see any initial side effects?

> Changes in behavior? Did this stop within a short period of time?

>

> His behavior has been VERY aggresive the past 2 days and this is

the

> ONLY thing that has changed! I am with a D.A.N. doctor now but

> unfortunately I have not had much help from this particular

doctor.

>

> Any past experience with this that you can share would be greatly

> appreciated!!!

>

>

> Thank you!

> Tammy McNair

> Mommy of 11

> Proud mommy of someone with Autism!

> www.letsbeatautismnow.com

>

[Guest guest]

Yes I was told by our DAN we were seeing then that it can stir up

yeast and boy did it! We had to go back on Diflucan for 3 weeks

because of it. But not with IV form as it bypasses the gut.

Tina

> >

> > >

> > >

> > >

> > >

> > > My son just started taking L-Glutathione 100 mg. yesterday.

Has

> anyone

> > > else tried this and if so, did you see any initial side

effects?

> > > Changes in behavior? Did this stop within a short period of

time?

> > >

> > > His behavior has been VERY aggresive the past 2 days and this

is

> the

> > > ONLY thing that has changed! I am with a D.A.N. doctor now but

> > > unfortunately I have not had much help from this particular

> doctor.

> > >

> > > Any past experience with this that you can share would be

greatly

> > > appreciated!!!

> > >

> > > Thank you!

> > > Tammy McNair

> > > Mommy of 11

> > > Proud mommy of someone with Autism!

> > > www.letsbeatautismnow.com

> > >

> > >

> > >

> >

>

>

>

>

>

>

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