Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 > > My son has had recurring skin lesions that started around the same time > he was first diognosed PDD-NOS. A dermatologist ran some blood test > which came back as positive for Epstein Barr. Doc diognosed the lesions > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year and > look alot like chicken pox. He has to take antibiotics for it to clear > up. I'm not sure if this is the right diognosis. Anyone know anything > about this? >My son gets these odd blister type lesions on his cheek when ever his immune system is compromised by things like colds and such We first noticed them when he stopped talking at 2 he has been tested for everything under the sun by the Ped by the dermatologist and by the Neurologist and no one has a clue but i have pics of what it looks like when it shows up if you would like to see them to see if they look like what your son is getting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 > >My son gets these odd blister type lesions on his cheek when ever his > immune system is compromised by things like colds and such We first > noticed them when he stopped talking at 2 he has been tested for > everything under the sun by the Ped by the dermatologist and by the > Neurologist and no one has a clue but i have pics of what it looks like > when it shows up if you would like to see them to see if they look like > what your son is getting > If you would not mind sending me a pic that would be very nice of you to share. Thanks. My sons break outs are mostly on his legs but also gets some scattered on the rest of his body. It also itches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Have you all ruled out herpes? Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 I thought this was interesting, VACCINES are listed as a cause more than once: http://www.emedicine.com/ped/topic2555.htm Background: Gianotti-Crosti syndrome (GCS) is a distinct infectious exanthem with associated lymphadenopathy and acute anicteric hepatitis. Gianotti and Crosti initially described GCS as associated with a hepatitis B virus exanthem, which they termed papular acrodermatitis of childhood. A similar constellation of characteristics was later found to be associated with several infectious agents and immunizations that were called papulovesicular acrolocated syndromes. Subsequent retrospective studies have shown that these 2 entities are indistinguishable from one another, and they are now consolidated under the unifying title of GCS. Pathophysiology: The most likely explanation for the exanthem is a local type IV hypersensitivity reaction to the offending viral or bacterial antigen within the dermis. This is based on the immunohistochemical characterization of the cutaneous inflammatory infiltrate. Findings on direct immunofluorescence examination of the skin are always negative. Electron microscopy has never revealed virus particles that suggested a reactive process other than an autoimmune phenomenon or direct infection of the skin. Inciting factors include various viral and bacterial infections, as well as recent immunizations. The rarity of GCS in adults suggests lifelong immunity to a common viral triggering agent. GCS is more common among children with atopic dermatitis, suggesting an immune mechanism. However, more information is needed in order to define the precise mechanism involved. Frequency: * In the US: Because of the benign self-limited nature of GCS, most cases are not reported, and the overall incidence is unknown. Frequency probably parallels the incidence of a precipitating infection in a specific geographic region. * Internationally: The underlying infection correlates with the endemic pathogens of a specific geographic region. For example, in Japan and Mediterranean countries, GCS is more commonly associated with hepatitis B virus infection. With the advent of more universal hepatitis B immunization, Epstein-Barr virus is now the most common etiologic factor worldwide. Mortality/Morbidity: * The mere presence of a rash elicits some degree of social morbidity, depending on the age of the affected child. * Although typically nonpruritic, some reports document pruritus in the later stages of the rash. * The only significant morbidity involves the underlying infectious process, particularly the hepatitis B virus. Race: No racial predilection has been noted; however, the underlying infection correlates with the endemic pathogens of a specific geographic region. Sex: In the pediatric population, GCS affects males and females with equal frequency. However, affected adults have been exclusively female. Age: GCS primarily occurs in children aged 3 months to 15 years, with a peak in children aged 1-6 years. More than 90% of patients are younger than 4 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Try homeopathic sulphur , say 30 c Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? > >My son gets these odd blister type lesions on his cheek when ever his > immune system is compromised by things like colds and such We first > noticed them when he stopped talking at 2 he has been tested for > everything under the sun by the Ped by the dermatologist and by the > Neurologist and no one has a clue but i have pics of what it looks like > when it shows up if you would like to see them to see if they look like > what your son is getting>If you would not mind sending me a pic that would be very nice of you to share. Thanks. My sons break outs are mostly on his legs but also gets some scattered on the rest of his body. It also itches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 When detoxing my son, my NT 12 year old was diagnosed with this, I AM POSITIVE his detoxing aggravates the outbreaks on her. > > My son has had recurring skin lesions that started around the same time > he was first diognosed PDD-NOS. A dermatologist ran some blood test > which came back as positive for Epstein Barr. Doc diognosed the lesions > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year and > look alot like chicken pox. He has to take antibiotics for it to clear > up. I'm not sure if this is the right diognosis. Anyone know anything > about this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Ruled out. > > Have you all ruled out herpes? > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Thank you Debi. Making a copy because it does say Vaccines can be the culprit. That was good info although the pictures in that article are different. My sons breakouts are much worse than that child. > > I thought this was interesting, VACCINES are listed as a cause more > than once: > > http://www.emedicine.com/ped/topic2555.htm > > Background: Gianotti-Crosti syndrome (GCS) is a distinct infectious > exanthem with associated lymphadenopathy and acute anicteric > hepatitis. Gianotti and Crosti initially described GCS as associated > with a hepatitis B virus exanthem, which they termed papular > acrodermatitis of childhood. A similar constellation of > characteristics was later found to be associated with several > infectious agents and immunizations that were called papulovesicular > acrolocated syndromes. Subsequent retrospective studies have shown > that these 2 entities are indistinguishable from one another, and they > are now consolidated under the unifying title of GCS. > > Pathophysiology: The most likely explanation for the exanthem is a > local type IV hypersensitivity reaction to the offending viral or > bacterial antigen within the dermis. This is based on the > immunohistochemical characterization of the cutaneous inflammatory > infiltrate. Findings on direct immunofluorescence examination of the > skin are always negative. Electron microscopy has never revealed virus > particles that suggested a reactive process other than an autoimmune > phenomenon or direct infection of the skin. Inciting factors include > various viral and bacterial infections, as well as recent > immunizations. The rarity of GCS in adults suggests lifelong immunity > to a common viral triggering agent. GCS is more common among children > with atopic dermatitis, suggesting an immune mechanism. However, more > information is needed in order to define the precise mechanism involved. > > Frequency: > > * In the US: Because of the benign self-limited nature of GCS, > most cases are not reported, and the overall incidence is unknown. > Frequency probably parallels the incidence of a precipitating > infection in a specific geographic region. > > * Internationally: The underlying infection correlates with the > endemic pathogens of a specific geographic region. > For example, in Japan and Mediterranean countries, GCS is more > commonly associated with hepatitis B virus infection. With the advent > of more universal hepatitis B immunization, Epstein-Barr virus is now > the most common etiologic factor worldwide. > > Mortality/Morbidity: > > * The mere presence of a rash elicits some degree of social > morbidity, depending on the age of the affected child. > > * Although typically nonpruritic, some reports document pruritus > in the later stages of the rash. > > * The only significant morbidity involves the underlying > infectious process, particularly the hepatitis B virus. > > Race: No racial predilection has been noted; however, the underlying > infection correlates with the endemic pathogens of a specific > geographic region. > > Sex: In the pediatric population, GCS affects males and females with > equal frequency. However, affected adults have been exclusively female. > > Age: GCS primarily occurs in children aged 3 months to 15 years, with > a peak in children aged 1-6 years. More than 90% of patients are > younger than 4 years. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Scroll down to " Associated immunizations: " http://www.emedicine.com/ped/topic2555.htm > > > > My son has had recurring skin lesions that started around the same > time > > he was first diognosed PDD-NOS. A dermatologist ran some blood test > > which came back as positive for Epstein Barr. Doc diognosed the > lesions > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year > and > > look alot like chicken pox. He has to take antibiotics for it to > clear > > up. I'm not sure if this is the right diognosis. Anyone know anything > > about this? > >My son gets these odd blister type lesions on his cheek when ever his > immune system is compromised by things like colds and such We first > noticed them when he stopped talking at 2 he has been tested for > everything under the sun by the Ped by the dermatologist and by the > Neurologist and no one has a clue but i have pics of what it looks like > when it shows up if you would like to see them to see if they look like > what your son is getting > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 I noticed the same thing in my son after epsom salt baths. Caroly > > > > My son has had recurring skin lesions that started around the same > time > > he was first diognosed PDD-NOS. A dermatologist ran some blood test > > which came back as positive for Epstein Barr. Doc diognosed the > lesions > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year > and > > look alot like chicken pox. He has to take antibiotics for it to > clear > > up. I'm not sure if this is the right diognosis. Anyone know anything > > about this? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Of course coming out of Germany. Klin Padiatr. 2005 Sep-Oct;217(5):297-9. Related Articles, Links [Gianotti-Crosti syndrome in an infant following immunization] [Article in German] Schwerk N, Schwerk C, Vogler L, Schuster V. Universitätsklinik und Poliklinik für Kinder und Jugendliche Leipzig. nicolaus.schwerk@... Gianotti-Crosti syndrome (GCS), first described by F. Gianotti in 1955, was originally reported to be associated with hepatitis B virus infection in children. The typical clinical picture allows diagnosis of GCS at first glance. The pathogenesis is still unknown. Besides HBV infection, a large number of infectious agents, mostly viruses, have been described as a trigger of GCS. Here we report the occurrence of GCS in an infant five days after the fourth immunization against poliomyelitis, DTPa, Hib, hepatitis B and Streptococcus pneumoniae. Our data and review of the literature suggest that GCS is rarely associated with immunizations, especially when performed with inactivated vaccines. Publication Types: Case Reports Comparative Study English Abstract > > My son has had recurring skin lesions that started around the same time > he was first diognosed PDD-NOS. A dermatologist ran some blood test > which came back as positive for Epstein Barr. Doc diognosed the lesions > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year and > look alot like chicken pox. He has to take antibiotics for it to clear > up. I'm not sure if this is the right diognosis. Anyone know anything > about this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 This is from the chicken pox vaccine, your child needs to be tested for all strains of the herpes virus, the Epstein barr is from this out of all 6 strains, my son had four… we are now on Nexavir, which works better than Valtrex… the epsom salts are simply trying to detox the body since the lesions are already inside all areas of the body… Hope this helps.. Corinne From: EOHarm [mailto:EOHarm ] On Behalf Of thefitzenreiterfamily Sent: Saturday, July 14, 2007 8:49 PM EOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? I noticed the same thing in my son after epsom salt baths. Caroly > > > > My son has had recurring skin lesions that started around the same > time > > he was first diognosed PDD-NOS. A dermatologist ran some blood test > > which came back as positive for Epstein Barr. Doc diognosed the > lesions > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a year > and > > look alot like chicken pox. He has to take antibiotics for it to > clear > > up. I'm not sure if this is the right diognosis. Anyone know anything > > about this? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 How did you find out this came from the chicken pox vaccine? This doctor told me EB was very common and that most people have been exposed to it at some point in their life. The new primary doctor is sendnig him to a different dermatologist. AND he actually admitted that vaccines CAN cause skin conditions. Could you send me some more information about the epsom salts and the detoxing? > > > > > > My son has had recurring skin lesions that started around the > same > > time > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > test > > > which came back as positive for Epstein Barr. Doc diognosed the > > lesions > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > year > > and > > > look alot like chicken pox. He has to take antibiotics for it to > > clear > > > up. I'm not sure if this is the right diognosis. Anyone know > anything > > > about this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 Where do you live and are you going to a Dan Dr. or someone who is familiar with a mercury poisoned vaccine damaged child or teenager, we did the herpus virus panel and he came up with all of these sicknesses, our Dr. basically said his body is basically equivalent to Aids, let me know where you live and maybe any of us on the list could refer you to someone who knows what to test for… O.K. anytime something is coming out on the skin, it means that there is a problem internally… I don’t believe the dermatologist is going to tell you this, they are simply going to counteract the outside of the skin with probably a cream with sterioids in it.. You have to find out what the herpes virus titters are and my guess is they are off the charts, just as my son;s were…. The epsoms salts are used for detoxing the body from toxins and the vaccines… we use them everynight along with baking soda… You are trying to create a sauna effect.. Use a cup of epsom salts along with one cup of baking soda in a full tub of water, trying to get the water as hot as they can stand it, try to soak for 20 to 30 minutes, pouring the water over your child.. we use this time for singing , songs, listening to music, reading books , talking, or just playing with toys, use this as your quiet time before bed…. Have you read (CHILDREN WITH STARVING BRAINS, BY JACQUELYNN MAC CANDLESS’S ?) I THINK THIS WILL HELP WITH A LOT OF YOUR QUESTIONS.. ORDER FROM HER WEBSITE AND THEN YOU QUALIFY TO BELONG TO HER WEBSITE AND SHE CAN ANSWER QUESTIONS FOR YOU, BUT YOU MUST BUY THE BOOK FROM HER IN ORDER TO ASK…. HOPE THIS HELPS AND ALWAYS KEEP LOOKING WHEN IN DOUBT…. HAVE A GREAT WEEK… Corinne (Try using Boudreaux’s Butte Paste on the lesions) it is the only one without mercury in it, can be used for mosquitoe bites, heat rashes, eczema, psoriasis or just about anything, can be found in the diaper rash isle..) From: EOHarm [mailto:EOHarm ] On Behalf Of tscott3332 Sent: Wednesday, July 18, 2007 12:21 AM EOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? How did you find out this came from the chicken pox vaccine? This doctor told me EB was very common and that most people have been exposed to it at some point in their life. The new primary doctor is sendnig him to a different dermatologist. AND he actually admitted that vaccines CAN cause skin conditions. Could you send me some more information about the epsom salts and the detoxing? > > > > > > My son has had recurring skin lesions that started around the > same > > time > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > test > > > which came back as positive for Epstein Barr. Doc diognosed the > > lesions > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > year > > and > > > look alot like chicken pox. He has to take antibiotics for it to > > clear > > > up. I'm not sure if this is the right diognosis. Anyone know > anything > > > about this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 To add to this. There is a CLES bath that I’ve have used many times for my son. Natasa might have the protocal, I can’t find it at the moment. But along with the Epsom salt and baking soda you put buffered vitamin C (if not buffered mix with baking soda separately to buffer it) and then I add 500mgs of lysine to the bath as well. Lysine should really help with the herpes strains as well. Obviously taking something orally is needed to address what’s going on in the body. As a natural I love OLE for the herpes strains but as with all of the antiviral type protocals yeast must be addressed as well. But I totally agree you need to have a DAN on board, more specifically a DAN who has lots of viral experience. I’ll keep looking for the CLES bath protocal if you are interested. - From: EOHarm [mailto:EOHarm ] On Behalf Of Corinne Vela Sent: Wednesday, July 18, 2007 1:35 AM EOHarm Subject: RE: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? Where do you live and are you going to a Dan Dr. or someone who is familiar with a mercury poisoned vaccine damaged child or teenager, we did the herpus virus panel and he came up with all of these sicknesses, our Dr. basically said his body is basically equivalent to Aids, let me know where you live and maybe any of us on the list could refer you to someone who knows what to test for… O.K. anytime something is coming out on the skin, it means that there is a problem internally… I don’t believe the dermatologist is going to tell you this, they are simply going to counteract the outside of the skin with probably a cream with sterioids in it.. You have to find out what the herpes virus titters are and my guess is they are off the charts, just as my son;s were…. The epsoms salts are used for detoxing the body from toxins and the vaccines… we use them everynight along with baking soda… You are trying to create a sauna effect.. Use a cup of epsom salts along with one cup of baking soda in a full tub of water, trying to get the water as hot as they can stand it, try to soak for 20 to 30 minutes, pouring the water over your child.. we use this time for singing , songs, listening to music, reading books , talking, or just playing with toys, use this as your quiet time before bed…. Have you read (CHILDREN WITH STARVING BRAINS, BY JACQUELYNN MAC CANDLESS’S ?) I THINK THIS WILL HELP WITH A LOT OF YOUR QUESTIONS.. ORDER FROM HER WEBSITE AND THEN YOU QUALIFY TO BELONG TO HER WEBSITE AND SHE CAN ANSWER QUESTIONS FOR YOU, BUT YOU MUST BUY THE BOOK FROM HER IN ORDER TO ASK…. HOPE THIS HELPS AND ALWAYS KEEP LOOKING WHEN IN DOUBT…. HAVE A GREAT WEEK… Corinne (Try using Boudreaux’s Butte Paste on the lesions) it is the only one without mercury in it, can be used for mosquitoe bites, heat rashes, eczema, psoriasis or just about anything, can be found in the diaper rash isle..) From: EOHarm [mailto:EOHarm ] On Behalf Of tscott3332 Sent: Wednesday, July 18, 2007 12:21 AM EOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? How did you find out this came from the chicken pox vaccine? This doctor told me EB was very common and that most people have been exposed to it at some point in their life. The new primary doctor is sendnig him to a different dermatologist. AND he actually admitted that vaccines CAN cause skin conditions. Could you send me some more information about the epsom salts and the detoxing? > > > > > > My son has had recurring skin lesions that started around the > same > > time > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > test > > > which came back as positive for Epstein Barr. Doc diognosed the > > lesions > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > year > > and > > > look alot like chicken pox. He has to take antibiotics for it to > > clear > > > up. I'm not sure if this is the right diognosis. Anyone know > anything > > > about this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 allison, i am interested in the CLES bath protocol also. thanks, maurineChap 'n Ali <chapnalli@...> wrote: To add to this. There is a CLES bath that I’ve have used many times for my son. Natasa might have the protocal, I can’t find it at the moment. But along with the Epsom salt and baking soda you put buffered vitamin C (if not buffered mix with baking soda separately to buffer it) and then I add 500mgs of lysine to the bath as well. Lysine should really help with the herpes strains as well. Obviously taking something orally is needed to address what’s going on in the body. As a natural I love OLE for the herpes strains but as with all of the antiviral type protocals yeast must be addressed as well. But I totally agree you need to have a DAN on board, more specifically a DAN who has lots of viral experience. I’ll keep looking for the CLES bath protocal if you are interested. - From: EOHarm [mailto:EOHarm ] On Behalf Of Corinne VelaSent: Wednesday, July 18, 2007 1:35 AMEOHarm Subject: RE: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? Where do you live and are you going to a Dan Dr. or someone who is familiar with a mercury poisoned vaccine damaged child or teenager, we did the herpus virus panel and he came up with all of these sicknesses, our Dr. basically said his body is basically equivalent to Aids, let me know where you live and maybe any of us on the list could refer you to someone who knows what to test for… O.K. anytime something is coming out on the skin, it means that there is a problem internally… I don’t believe the dermatologist is going to tell you this, they are simply going to counteract the outside of the skin with probably a cream with sterioids in it.. You have to find out what the herpes virus titters are and my guess is they are off the charts, just as my son;s were…. The epsoms salts are used for detoxing the body from toxins and the vaccines… we use them everynight along with baking soda… You are trying to create a sauna effect.. Use a cup of epsom salts along with one cup of baking soda in a full tub of water, trying to get the water as hot as they can stand it, try to soak for 20 to 30 minutes, pouring the water over your child.. we use this time for singing , songs, listening to music, reading books , talking, or just playing with toys, use this as your quiet time before bed…. Have you read (CHILDREN WITH STARVING BRAINS, BY JACQUELYNN MAC CANDLESS’S ?) I THINK THIS WILL HELP WITH A LOT OF YOUR QUESTIONS.. ORDER FROM HER WEBSITE AND THEN YOU QUALIFY TO BELONG TO HER WEBSITE AND SHE CAN ANSWER QUESTIONS FOR YOU, BUT YOU MUST BUY THE BOOK FROM HER IN ORDER TO ASK…. HOPE THIS HELPS AND ALWAYS KEEP LOOKING WHEN IN DOUBT…. HAVE A GREAT WEEK… Corinne (Try using Boudreaux’s Butte Paste on the lesions) it is the only one without mercury in it, can be used for mosquitoe bites, heat rashes, eczema, psoriasis or just about anything, can be found in the diaper rash isle..) From: EOHarm [mailto:EOHarm ] On Behalf Of tscott3332Sent: Wednesday, July 18, 2007 12:21 AMEOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? How did you find out this came from the chicken pox vaccine? This doctor told me EB was very common and that most people have been exposed to it at some point in their life. The new primary doctor is sendnig him to a different dermatologist. AND he actually admitted that vaccines CAN cause skin conditions. Could you send me some more information about the epsom salts and the detoxing?--- In EOHarm , "Corinne Vela" <corinnevela@...> wrote:>> This is from the chicken pox vaccine, your child needs to be tested for all> strains of the herpes virus, the Epstein barr is from this out of all 6> strains, my son had four… we are now on Nexavir, which works better than> Valtrex… the epsom salts are simply trying to detox the body since the> lesions are already inside all areas of the body… Hope this helps..> > > > Corinne> > > > _____ > > From: EOHarm [mailto:EOHarm ] On Behalf Of> thefitzenreiterfamily> Sent: Saturday, July 14, 2007 8:49 PM> EOHarm > Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following> Vaccines?> > > > I noticed the same thing in my son after epsom salt baths.> Caroly> > > > >> > > My son has had recurring skin lesions that started around the > same > > time > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > test > > > which came back as positive for Epstein Barr. Doc diognosed the > > lesions > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > year > > and > > > look alot like chicken pox. He has to take antibiotics for it to > > clear > > > up. I'm not sure if this is the right diognosis. Anyone know > anything > > > about this?> > >> >> Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 I have a question. My son is 35 years old. When he was 8 years old he suddenly had lesions, like cold sores, on his lips in his mouth on his gums on the inside of his cheeks (his tongue was extremely swollen) and down his throat. He couldn't swallow. I took him to the peds office and he said it was viral and there was nothing to be done for it except to numb his throat so he could eat, but, that had its problems too, ie; being burned or chocking because of being numbed. He has never had chicken pox not even when he was in direct contact with my brother who got full blown pox the day after my son was with him. We never had his titers done. As an adult he is having progressively worse cases of these lesions to the extent that he had to be hospitalized, for what looked like an anephylactic(sp?) reaction to something, but proved not to be. His eyes swell almost closed and he gets lesions that look like open sores all over his face his lips and tongue swell to almost explosion, and crack so he is in excruciating pain. He recently told me, after an ER visit for the 3rd occurance in less than a year, (used to happen, only once a year), that the lesions and sores had become so bad they spread to his whole body including his genitalia. The desease or what ever it is is adding new body parts to attack with each new occurance, and his depression, anxiety and fear of THE NEXT TIME has made his life almost unbearable, at times. His job is very understanding about his condition and will send him home without question, but, without pay too. You probably wonder what the Doc's have diagnosed him with. NOTHING!!! They said he would have to come in at the earliest onset, within 24 hours of the first sign something might be happening, for them to be able to run tests to see what it is. He has almost lost jobs because he looks like a monster when it takes ahold of him. He can't talk or eat because he can't move his lips or they will crack and his tongue is so swollen it is digging into his teeth on both sides! The onset of this problem is quite subtle and, so far, there does not seem to be a specific trigger. Clearly, his occurances are becoming more frequent amd more severe as he ages. By the time he realizes that something is happening to his body it is too late to get the testing done, because, the lesions mean the episode is on it's way out and he has to wait for them to crust over to be non contagious. If anyone recognizes this as possibly a rouge chicken pox virus or the syndrome you are talking about please let me know how to help him. His depression and anxiety about this may become a contributing factor, as a trigger, in the future. Thanks for listening, Lori "B" My son's name is . > > > >> > > > My son has had recurring skin lesions that started around the > > same > > > time > > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > > test > > > > which came back as positive for Epstein Barr. Doc diognosed the > > > lesions > > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > > year > > > and > > > > look alot like chicken pox. He has to take antibiotics for it > to > > > clear > > > > up. I'm not sure if this is the right diognosis. Anyone know > > anything > > > > about this?> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 go see a homeopath Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? I have a question. My son is 35 years old. When he was 8 years old he suddenly had lesions, like cold sores, on his lips in his mouth on his gums on the inside of his cheeks (his tongue was extremely swollen) and down his throat. He couldn't swallow. I took him to the peds office and he said it was viral and there was nothing to be done for it except to numb his throat so he could eat, but, that had its problems too, ie; being burned or chocking because of being numbed. He has never had chicken pox not even when he was in direct contact with my brother who got full blown pox the day after my son was with him. We never had his titers done. As an adult he is having progressively worse cases of these lesions to the extent that he had to be hospitalized, for what looked like an anephylactic(sp?) reaction to something, but proved not to be. His eyes swell almost closed and he gets lesions that look like open sores all over his face his lips and tongue swell to almost explosion, and crack so he is in excruciating pain. He recently told me, after an ER visit for the 3rd occurance in less than a year, (used to happen, only once a year), that the lesions and sores had become so bad they spread to his whole body including his genitalia. The desease or what ever it is is adding new body parts to attack with each new occurance, and his depression, anxiety and fear of THE NEXT TIME has made his life almost unbearable, at times. His job is very understanding about his condition and will send him home without question, but, without pay too. You probably wonder what the Doc's have diagnosed him with. NOTHING!!! They said he would have to come in at the earliest onset, within 24 hours of the first sign something might be happening, for them to be able to run tests to see what it is. He has almost lost jobs because he looks like a monster when it takes ahold of him. He can't talk or eat because he can't move his lips or they will crack and his tongue is so swollen it is digging into his teeth on both sides! The onset of this problem is quite subtle and, so far, there does not seem to be a specific trigger. Clearly, his occurances are becoming more frequent amd more severe as he ages. By the time he realizes that something is happening to his body it is too late to get the testing done, because, the lesions mean the episode is on it's way out and he has to wait for them to crust over to be non contagious. If anyone recognizes this as possibly a rouge chicken pox virus or the syndrome you are talking about please let me know how to help him. His depression and anxiety about this may become a contributing factor, as a trigger, in the future. Thanks for listening, Lori "B" My son's name is . > > > >> > > > My son has had recurring skin lesions that started around the > > same > > > time > > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > > test > > > > which came back as positive for Epstein Barr. Doc diognosed the > > > lesions > > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > > year > > > and > > > > look alot like chicken pox. He has to take antibiotics for it > to > > > clear > > > > up. I'm not sure if this is the right diognosis. Anyone know > > anything > > > > about this?> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 I would take him to a Dan Dr. and have his heavy metals tested and also the herpes virus titers checked, don’t give up, help is out there, let me know where you live and anyone on this list can help you find one of these Dr’s .. Good luck… it’s never too late… Corinne From: EOHarm [mailto:EOHarm ] On Behalf Of max walker Sent: Wednesday, July 18, 2007 1:59 PM EOHarm Subject: Re: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? go see a homeopath Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? I have a question. My son is 35 years old. When he was 8 years old he suddenly had lesions, like cold sores, on his lips in his mouth on his gums on the inside of his cheeks (his tongue was extremely swollen) and down his throat. He couldn't swallow. I took him to the peds office and he said it was viral and there was nothing to be done for it except to numb his throat so he could eat, but, that had its problems too, ie; being burned or chocking because of being numbed. He has never had chicken pox not even when he was in direct contact with my brother who got full blown pox the day after my son was with him. We never had his titers done. As an adult he is having progressively worse cases of these lesions to the extent that he had to be hospitalized, for what looked like an anephylactic(sp?) reaction to something, but proved not to be. His eyes swell almost closed and he gets lesions that look like open sores all over his face his lips and tongue swell to almost explosion, and crack so he is in excruciating pain. He recently told me, after an ER visit for the 3rd occurance in less than a year, (used to happen, only once a year), that the lesions and sores had become so bad they spread to his whole body including his genitalia. The desease or what ever it is is adding new body parts to attack with each new occurance, and his depression, anxiety and fear of THE NEXT TIME has made his life almost unbearable, at times. His job is very understanding about his condition and will send him home without question, but, without pay too. You probably wonder what the Doc's have diagnosed him with. NOTHING!!! They said he would have to come in at the earliest onset, within 24 hours of the first sign something might be happening, for them to be able to run tests to see what it is. He has almost lost jobs because he looks like a monster when it takes ahold of him. He can't talk or eat because he can't move his lips or they will crack and his tongue is so swollen it is digging into his teeth on both sides! The onset of this problem is quite subtle and, so far, there does not seem to be a specific trigger. Clearly, his occurances are becoming more frequent amd more severe as he ages. By the time he realizes that something is happening to his body it is too late to get the testing done, because, the lesions mean the episode is on it's way out and he has to wait for them to crust over to be non contagious. If anyone recognizes this as possibly a rouge chicken pox virus or the syndrome you are talking about please let me know how to help him. His depression and anxiety about this may become a contributing factor, as a trigger, in the future. Thanks for listening, Lori " B " My son's name is . > > > > > > > > My son has had recurring skin lesions that started around the > > same > > > time > > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > > test > > > > which came back as positive for Epstein Barr. Doc diognosed the > > > lesions > > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > > year > > > and > > > > look alot like chicken pox. He has to take antibiotics for it > to > > > clear > > > > up. I'm not sure if this is the right diognosis. Anyone know > > anything > > > > about this? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Yes, I am interested, could you send it to me, or explain it more, please feel free to e mail me privately or on list is o.k. too , thanks so much for the information, we are all in this together… Corinne From: EOHarm [mailto:EOHarm ] On Behalf Of Chap 'n Ali Sent: Wednesday, July 18, 2007 9:41 AM EOHarm Subject: RE: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? To add to this. There is a CLES bath that I’ve have used many times for my son. Natasa might have the protocal, I can’t find it at the moment. But along with the Epsom salt and baking soda you put buffered vitamin C (if not buffered mix with baking soda separately to buffer it) and then I add 500mgs of lysine to the bath as well. Lysine should really help with the herpes strains as well. Obviously taking something orally is needed to address what’s going on in the body. As a natural I love OLE for the herpes strains but as with all of the antiviral type protocals yeast must be addressed as well. But I totally agree you need to have a DAN on board, more specifically a DAN who has lots of viral experience. I’ll keep looking for the CLES bath protocal if you are interested. - From: EOHarm [mailto:EOHarm ] On Behalf Of Corinne Vela Sent: Wednesday, July 18, 2007 1:35 AM EOHarm Subject: RE: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? Where do you live and are you going to a Dan Dr. or someone who is familiar with a mercury poisoned vaccine damaged child or teenager, we did the herpus virus panel and he came up with all of these sicknesses, our Dr. basically said his body is basically equivalent to Aids, let me know where you live and maybe any of us on the list could refer you to someone who knows what to test for… O.K. anytime something is coming out on the skin, it means that there is a problem internally… I don’t believe the dermatologist is going to tell you this, they are simply going to counteract the outside of the skin with probably a cream with sterioids in it.. You have to find out what the herpes virus titters are and my guess is they are off the charts, just as my son;s were…. The epsoms salts are used for detoxing the body from toxins and the vaccines… we use them everynight along with baking soda… You are trying to create a sauna effect.. Use a cup of epsom salts along with one cup of baking soda in a full tub of water, trying to get the water as hot as they can stand it, try to soak for 20 to 30 minutes, pouring the water over your child.. we use this time for singing , songs, listening to music, reading books , talking, or just playing with toys, use this as your quiet time before bed…. Have you read (CHILDREN WITH STARVING BRAINS, BY JACQUELYNN MAC CANDLESS’S ?) I THINK THIS WILL HELP WITH A LOT OF YOUR QUESTIONS.. ORDER FROM HER WEBSITE AND THEN YOU QUALIFY TO BELONG TO HER WEBSITE AND SHE CAN ANSWER QUESTIONS FOR YOU, BUT YOU MUST BUY THE BOOK FROM HER IN ORDER TO ASK…. HOPE THIS HELPS AND ALWAYS KEEP LOOKING WHEN IN DOUBT…. HAVE A GREAT WEEK… Corinne (Try using Boudreaux’s Butte Paste on the lesions) it is the only one without mercury in it, can be used for mosquitoe bites, heat rashes, eczema, psoriasis or just about anything, can be found in the diaper rash isle..) From: EOHarm [mailto:EOHarm ] On Behalf Of tscott3332 Sent: Wednesday, July 18, 2007 12:21 AM EOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? How did you find out this came from the chicken pox vaccine? This doctor told me EB was very common and that most people have been exposed to it at some point in their life. The new primary doctor is sendnig him to a different dermatologist. AND he actually admitted that vaccines CAN cause skin conditions. Could you send me some more information about the epsom salts and the detoxing? > > > > > > My son has had recurring skin lesions that started around the > same > > time > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > test > > > which came back as positive for Epstein Barr. Doc diognosed the > > lesions > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > year > > and > > > look alot like chicken pox. He has to take antibiotics for it to > > clear > > > up. I'm not sure if this is the right diognosis. Anyone know > anything > > > about this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Please post to the list. Thanks, Carolyn > > Yes, I am interested, could you send it to me, or explain it more, please > feel free to e mail me privately or on list is o.k. too , thanks so much for > the information, we are all in this together. > > > > Corinne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Sorry I did post it the other day but I put it under another heading. This is a sight that explains the whole reason behind the CLES baths. It’s a ton of info but well worth the read. - http://www.krysalis.net/autism1.htm From: EOHarm [mailto:EOHarm ] On Behalf Of thefitzenreiterfamily Sent: Friday, July 20, 2007 10:47 AM EOHarm Subject: Re: Anyone heard of Gianotti-Crosti Syndrome following Vaccines? Please post to the list. Thanks, Carolyn > > Yes, I am interested, could you send it to me, or explain it more, please > feel free to e mail me privately or on list is o.k. too , thanks so much for > the information, we are all in this together. > > > > Corinne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Corrine, First let me say thank you for your response. I worry for my sons sanity. We live in Gurnee Illinois. Again, thank you to all, for any information you have to offer.. Lori " B " > > > > > > > > > > My son has had recurring skin lesions that started around the > > > same > > > > time > > > > > he was first diognosed PDD-NOS. A dermatologist ran some blood > > > test > > > > > which came back as positive for Epstein Barr. Doc diognosed the > > > > lesions > > > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 times a > > > year > > > > and > > > > > look alot like chicken pox. He has to take antibiotics for it > > to > > > > clear > > > > > up. I'm not sure if this is the right diognosis. Anyone know > > > anything > > > > > about this? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 , Thanks for this info. Where do you order the CLES bath from. Do you get it from Gregg? > > > > Yes, I am interested, could you send it to me, or explain it more, > please > > feel free to e mail me privately or on list is o.k. too , thanks so > much for > > the information, we are all in this together. > > > > > > > > Corinne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2007 Report Share Posted July 20, 2007 Lori, Here is a link to a list of DAN! practitioners. I noticed that there are many in Illinois, although I don't know how many are reputable. How close are you to Naperville? I have heard many good things about Anju Usman (her info is posted below) and I also noticed that ph Mercola is on the list. http://www.autism.com/ari/ari-lists/danus.html Anju Usman, M.D. True Health Medical Center 603 E. Diehl Rd., # 135 Naperville, IL 60563 ph: 630-505-4040 fax: 630-505-9847 > > > > > > > > > > > > My son has had recurring skin lesions that started around > the > > > > same > > > > > time > > > > > > he was first diognosed PDD-NOS. A dermatologist ran some > blood > > > > test > > > > > > which came back as positive for Epstein Barr. Doc diognosed > the > > > > > lesions > > > > > > as Gianotti-Crosti Syndrome. The break outs are 2 to 3 > times a > > > > year > > > > > and > > > > > > look alot like chicken pox. He has to take antibiotics for > it > > > to > > > > > clear > > > > > > up. I'm not sure if this is the right diognosis. Anyone > know > > > > anything > > > > > > about this? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.