Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

[Guest guest]

Henry, I did a little poking around last night, and I am NO

Kirby, but what I wrote about is that Hollander, AS Treatment

Chair has had the " Orphan Drug Designation " for Fluoxetine since 1998

for autism. And he was a founding consultant to Neuropharm, you can

find him on their site. He saw using Prozac for autism a decade

ago. Orphan Drug status is given by FDA for drugs to treat RARE

illnesses, so rare that no company would have a finanical reason to

pursue drugs for them. I can't see how Prozac, with hundreds of

millions of scrips written could ever qualify for Orphan drug status.

I wrote the Rescue Post piece in a tongue in cheek manner, as is my

personal style. It's a Kim piece, not an " editor " piece. That's qhy

my name and photo are on it. www.rescuepost.com

I would LOVE to have fellow EOHers do their own digging and please

share any additional info you may find. I may be dead wrong, that

the connection is nefarious. If so, I'm happy to learn that.

KIM

> > > > Why is a pharma clinical trial even being advertised here?

> > > For reference, who is " searchingforserenity111 " ?

> > > >

> > > > Eichenberger

> > > >

> > >

> >

>

[Guest guest]

Okay, gotcha. I was like...... Lenny's gone off the deep end, when I

read that. LOL.

Pick up your flag -- stiff wind blowing in from New York.

> > > > Why is a pharma clinical trial even being advertised

here?

> > > For reference, who is " searchingforserenity111 " ?

> > > >

> > > > Eichenberger

> > > >

> > >

> >

>

[Guest guest]

Please stop. I've had to clean my screen off about 10x between this

and the suppository comments.

HAHAHAHHAHHA

-- In EOHarm , " anacat_11 " <anacat_11@...> wrote:

>

> You mean a Sponge Bob cherry flavored " fluox-let " like the

> Risperdal " Quicklet " lozenge? ROTFL. Make sure it has a

> gluten/dairy/soy base with a little melamine and aspartame.

>

>

>

>

> >

> > But medications will be in a quick release delivery system like the

> > Listerine breath strips. They could even make each tablet into fun

> > shapes for the youngsters like the autism puzzle piece, the awareness

> > ribbon or even the shape of Bob s head. The possibilities are

> > endless.

> >

> >

>

[Guest guest]

Please do not give these companies any ideas.

>From: " krstagliano " <KRStagliano@...>

>Reply-EOHarm

>EOHarm

>Subject: Re: Neuropharm Group Signs Collaboration Deal With Autism

>Speaks

>Date: Thu, 05 Jul 2007 22:33:30 -0000

>

>Perhaps it will be a suppository so they can really stick our kids in

>the ass......

>

>, who has NOT had her evening cocktail....yet.

>

>

> > >

> > > But medications will be in a quick release delivery system like

>the

> > > Listerine breath strips. They could even make each tablet into fun

> > > shapes for the youngsters like the autism puzzle piece, the

>awareness

> > > ribbon or even the shape of Bob s head. The possibilities

>are

> > > endless.

> > >

> >

>

>

_________________________________________________________________

http://newlivehotmail.com

[Guest guest]

Well, I'll be...just when you think you know a person. You may not

give a @#$%!! what I think, but I have to admit, Henry, that is a

very coherent and insightful opinion you have just laid before us. I

gotta admit, I didn't think you had it in you.

I take back anything negative I may have said about you in the past,

apologize, and am now having a big slice of crow pie.

> > > Why is a pharma clinical trial even being advertised here?

> > For reference, who is " searchingforserenity111 " ?

> > >

> > > Eichenberger

> > >

> >

>

[Guest guest]

....and it sort of rhymes with " cash " ?

Don't you see that autism *has* to involve serotonin in some way

because they've got this poor orphaned drug which needs a patent for

new application?

> > >

> > > But medications will be in a quick release delivery system

like the

> > > Listerine breath strips. They could even make each tablet into

fun

> > > shapes for the youngsters like the autism puzzle piece, the

> awareness

> > > ribbon or even the shape of Bob s head. The

possibilities are

> > > endless.

> > >

> > >

> >

>

[Guest guest]

This is just further evidence of the allopathic bias. Most of these studies (and deals) get done through personal relationships.

No surprise there.

I'm unimpressed with the use of prozac for treating autism symptoms, but this is how research gets done. We see why it was first however.

From this, I see a misplaced emphasis on pharmacological intervention when alternative therapies might be/are much, much more useful.

If Hollander and Neuropharm had a relationship with Eli Lilly (I can't find one- maybe someone else has more information), I would be much, much more concerned. For example, if Eli Lilly was backdooring this research through a relationship with Neuropharm using AS and their relationship with the autism community to conduct these studies, that would tell you that much of the aggressive criticism of AS on this board is less opinion, more fact.

Instead, I just see people with medical bias (Hollander) doing what they know best using their personal relationship. It may not be the best therapy, it may be unseemly, it's just what they know, how they've been trained and how things get done.

More institutional bias.

Its for these reasons that changes in the workings of the FDA and CDC are called for.

Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

I written a piece today for The Rescue Post that discusses AS Treatment Chair's long standing relationship with Neuropharm and his receiving Orphan Drug Status for Prozoc back in 1999. It ties Harry Potter, Dark Magic and AS together.This announcement by AS about "SOFIA" (such a pretty name, almost makes me want to have another baby girl) must be the his baby. Mazel tov....Head over to www.rescuepost.com KIM

[Guest guest]

A large cup of coffee later I sometimes can come up with stuff.

Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

Well, I'll be...just when you think you know a person. You may not give a @#$%!! what I think, but I have to admit, Henry, that is a very coherent and insightful opinion you have just laid before us. I gotta admit, I didn't think you had it in you.I take back anything negative I may have said about you in the past, apologize, and am now having a big slice of crow pie.> > > Why is a pharma clinical trial even being advertised here?> > For reference, who is "searchingforserenity111"?> > > > > > Eichenberger> > >> >>

[Guest guest]

Also, don't completely discount the lottery mentality which often enters the mindset of those seeking to do deals in the medical/pharmaceutical community.

I'd be surprised if Hollander didn't have significant stock/options in Neuropharm.

Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

I written a piece today for The Rescue Post that discusses AS Treatment Chair's long standing relationship with Neuropharm and his receiving Orphan Drug Status for Prozoc back in 1999. It ties Harry Potter, Dark Magic and AS together.This announcement by AS about "SOFIA" (such a pretty name, almost makes me want to have another baby girl) must be the his baby. Mazel tov....Head over to www.rescuepost.com KIM

[Guest guest]

Since my daughter has been a fantastic responder of SSRIs, I think

there is a place, only after diet, supps, and behavioral interventions

have failed. Allie has never taken prozac, but I know a little guy,

about 5-6 yrs old, who was in therapy for nearly a year, suddenly he

stopped hitting his therapist, mom, stopped screaming, etc. He made a

HUGE amount of progress in a very short time. It was prozac.

But, all that said, it only helps I think around 30% of the ASD

population, which seems to be a fairly low no of kids. While it's good

to see those kids be helped, I'd rather see studies on something like

gfcf diet, that's shown a higher percentage of success and is safe. Or

chelation, which seems to have among the highest success rate.

Debi

>

> The intersection of an Eli Lilly drug, prozac, and its putative use

to treat autism and Lilly's involvement in thimerosal poisoning of

children makes this testing ab initio extremely disturbing at best.

>

> It is also the reason why AS is so heavily criticized as a Pharma

front.

>

> Do we know if Neuropharm is a sub of Eli Lilly or Lilly has

substantial investment in Neuropharm?

>

> That would be much, much worse.

>

>

[Guest guest]

Some children get worse on SSRI's...much worse. Along with Risperdal

Prozac will be the " go to " drug to use in autism. It is as someone

said either here, or on another list. This is just guaranteed money

for pharma. It legitamizes using meds w/ children who carry the label

autism. So maybe as you said 30% will be helped what about the other

70 who may become worse? I'm sure we will never hear about those.

Only how wonderful Prozac is for autism.

Most doctors don't think diets and supplements work (urban mythes)

but countless thousands will be put on Prozac beacuse Autism Speaks

conducted a study that said it was the right thing to do. This will

be the first of many drug trials I'm sure they plan on funding.

Don't bother looking any further for the answer than a pill. Fits

right into our culture's way of thinking.

> >

> > The intersection of an Eli Lilly drug, prozac, and its putative

use

> to treat autism and Lilly's involvement in thimerosal poisoning of

> children makes this testing ab initio extremely disturbing at

best.

> >

> > It is also the reason why AS is so heavily criticized as a Pharma

> front.

> >

> > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has

> substantial investment in Neuropharm?

> >

> > That would be much, much worse.

> >

> >

>

[Guest guest]

A reason why the allopaths often can't/don't help.

Perhaps some of the better doctors include those who utilize allopathic, naturopathic and nutritional approaches.

Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

Some children get worse on SSRI's...much worse. Along with Risperdal Prozac will be the "go to" drug to use in autism. It is as someone said either here, or on another list. This is just guaranteed money for pharma. It legitamizes using meds w/ children who carry the label autism. So maybe as you said 30% will be helped what about the other 70 who may become worse? I'm sure we will never hear about those. Only how wonderful Prozac is for autism.Most doctors don't think diets and supplements work (urban mythes) but countless thousands will be put on Prozac beacuse Autism Speaks conducted a study that said it was the right thing to do. This will be the first of many drug trials I'm sure they plan on funding.Don't bother looking any further for the answer than a pill. Fits right into our culture's way of thinking.> >> > The intersection of an Eli Lilly drug, prozac, and its putative use> to treat autism and Lilly's involvement in thimerosal poisoning of> children makes this testing ab initio extremely disturbing at best. > > > > It is also the reason why AS is so heavily criticized as a Pharma> front. > > > > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has> substantial investment in Neuropharm? > > > > That would be much, much worse. > > > >>

[Guest guest]

ARI did some polls on the effectiveness of various interventions and

drugs apparently always lost out to diet, supplements and chelation.

About 50% of children between 10-17 will have serious adverse

reactions to Prozac, including suicidal and violent thoughts. 10% of

children in studies experienced suicidal ideation during the drug

trials, some young people became permanently psychotic and others

attempted or successfully committed suicide during trials. So I'd

really hope there would be more resources put into other approaches.

> >

> > The intersection of an Eli Lilly drug, prozac, and its putative

use

> to treat autism and Lilly's involvement in thimerosal poisoning of

> children makes this testing ab initio extremely disturbing at

best.

> >

> > It is also the reason why AS is so heavily criticized as a Pharma

> front.

> >

> > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has

> substantial investment in Neuropharm?

> >

> > That would be much, much worse.

> >

> >

>

[Guest guest]

What is the TIME LINE for results that you all consider effective, somewhat effective, not effective.

How much time goes by before you *throw in the towel* to change procedures?

4 or 5years was my time line before calling a well done protocol effective.

How long do you all hang in there for what you have each chosen to try?

If you got desired results, what was your time elapsed from begining to end.? Nora

Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

ARI did some polls on the effectiveness of various interventions and drugs apparently always lost out to diet, supplements and chelation. About 50% of children between 10-17 will have serious adverse reactions to Prozac, including suicidal and violent thoughts. 10% of children in studies experienced suicidal ideation during the drug trials, some young people became permanently psychotic and others attempted or successfully committed suicide during trials. So I'd really hope there would be more resources put into other approaches. > >> > The intersection of an Eli Lilly drug, prozac, and its putative use> to treat autism and Lilly's involvement in thimerosal poisoning of> children makes this testing ab initio extremely disturbing at best. > > > > It is also the reason why AS is so heavily criticized as a Pharma> front. > > > > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has> substantial investment in Neuropharm? > > > > That would be much, much worse. > > > >>

[Guest guest]

can you forward the study with the 50% of children between 10-17 having serious adverse reactins to prozac. I am very interested in this. thanks,MaurineNora Gottlieb <nwgott@...> wrote: What is the TIME LINE for results that you all consider effective, somewhat effective, not effective. How much time goes by before you *throw in the towel* to change procedures? 4 or

5years was my time line before calling a well done protocol effective. How long do you all hang in there for what you have each chosen to try? If you got desired results, what was your time elapsed from begining to end.? Nora Re: Neuropharm Group Signs Collaboration Deal With Autism Speaks

ARI did some polls on the effectiveness of various interventions and drugs apparently always lost out to diet, supplements and chelation. About 50% of children between 10-17 will have serious adverse reactions to Prozac, including suicidal and violent thoughts. 10% of children in studies experienced suicidal ideation during the drug trials, some young people became permanently psychotic and others attempted or successfully committed suicide during trials. So I'd really hope there would be more resources put into other approaches. > >> > The intersection of an Eli Lilly drug, prozac, and its putative use> to treat autism and Lilly's involvement in thimerosal poisoning of> children

makes this testing ab initio extremely disturbing at best. > > > > It is also the reason why AS is so heavily criticized as a Pharma> front. > > > > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has> substantial investment in Neuropharm? > > > > That would be much, much worse. > > > >>

Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit.

[Guest guest]

The Yale study directed by Mark Riddle in 1990-91 was cited in Dr.

Breggin's book, " Talking Back To Ritalin " . There's apparently

more on the studies in another of Breggin's books, " Reclaiming Our

Children " because one child in a second Yale study ( King,

1991) developed nightmares about shooting his classmates which

became difficult to distinguish from reality. This was obviously

long before the Columbine massacres and long before the link between

SSRI's and other psychiatric drugs and school shootings was

understood. You may be able to find reference to these studies

online at Breggin's site. There are several articles on Prozac and

SSRI's. Go to:

http://www.breggin.com

Also see the Null film which features interviews with

(wishing aloud that he'd known about the link between school

shootings and psych drugs before making " Bowling " ), Breggin and

others:

http://video.google.com/videoplay?docid=-3609599239524875493

For a list of over 1,500 news reports on SSRI's and violence, go to:

http://www.ssristories.com

Books by Drs. Glenmullen, Healy and Grace contain

further studies.

> > >

> > > The intersection of an Eli Lilly drug, prozac, and its

putative

> use

> > to treat autism and Lilly's involvement in thimerosal poisoning

of

> > children makes this testing ab initio extremely disturbing at

> best.

> > >

> > > It is also the reason why AS is so heavily criticized as a

Pharma

> > front.

> > >

> > > Do we know if Neuropharm is a sub of Eli Lilly or Lilly has

> > substantial investment in Neuropharm?

> > >

> > > That would be much, much worse.

> > >

> > >

> >

>

>

>

>

>

>

>

>

> ---------------------------------

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> in 45,000 destinations on Travel to find your fit.

>