Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hello. I'm new to the group. I don't have any children who've been diagnosed on the spectrum. However, you could say that I've had an interest in autism since I was eight years old, and knew that there was something different about me. While other children would have to be told not to talk to their classmates, in school, I never had to be told. When I was eleven or so, I first learned of autism, and suspected that I had something related. I believe I have Aspergers, although I've not been diagnosed. I did a bit of research when I was in college at Cleveland State University, and it was there that I first became aware of the research that Dr. Rimland did at ARI. But I never really got that involved with the issue until my oldest daughter was three, and there were concerns about her development. It was her GI specialist (she would go a week to ten days without having a bowel movement) who first suggested to us that she might be autistic. She was evaluated tho and never diagnosed with autism or aspergers or pdd-nos or anything. One psychologist called her `just kind of odd', so I guess that's her diagnoses. I told the psychologist that I could live with that. is doing well enough. She was mainstreamed in school and just graduated from highschool and will attend CSU this fall. She does struggle terribly though, socially. She is terrified she will get fired from her fast food job. She quit her last one rather than stay on because she felt sure that if she didn't quit she would eventually be fired. The few friends she has have the persistence of stalkers practically. She will never initiate a phone call or a get together. But all in all she's doing alright. About four years ago I became aware of the book Evidence of Harm, and I read it, and I am one of those crazy women who is quite certain that the government not only poisoned a generation of children, but that there were people who knew exactly what happened and choose to deal with it by desperately trying to cover up the fact, even if that meant that the damage would continue to be done to more and more children. It isn't just what I read, though, that has me convinced, it is things that have happened to me. When was three, one of the first things I did when it was suggested that she might be autistic was to contact ARI. I wanted to know about vitamin B6, as I'd heard it was helpful but had also heard that it could cause problems. When the receptionist there asked me if I would like to speak with Dr. Rimland about it, I said yes, sure I would. We had a brief conversation that I will never forget. I asked him why, if B6 was so promising, it wasn't being advocated by the mainstream doctors, and he told me that he didn't know, but that it almost seemed to him that they didn't want the cause to be found. When I asked him who `they' were, he said that there were a lot of researchers getting government funds, and it was these people he was referring to. He never said anything about vaccines, but it is clear to me now that he must have been aware, or at least very suspicious of the connection, at that time. I never really gave much thought to autism in the years between that conversation, and when I read Evidence of Harm. When my daughter was about fourteen or fifteen, another incident, however, occurred which leads me to believe that there is something to the claims of vaccine damage. She was assigned a science report on the disease Porphyria. While she was researching it, she came to me and she said " mom, I think I have lead poisoning " and when I told her I didn't think she did, she paused for a moment and then she said to me " well then, I think I have mercury poisoning. I have a lot of the symptoms. " This was before either she or I had heard about mercury in vaccines. I brushed off the comment at the time. But after I read Evidence of Harm, a year or so later, I could see that she was exactly right. All of the complaints that I ever took her to the doctor for over the years were right there in the list of symptoms of mercury poisoning. I took her to the pediatrician with this information, but he would not have her tested for mercury poisoning. He said that the American Academy of Pediatrics put to rest any concerns regarding this. I, however, remain unconvinced. I must say that so far I've met with some very unfriendly behavior when I speak about my beliefs on this issue. On the internet, I've been banned from political chatrooms whether they lean to the left or the right. I was not rude, I was not hysterical, I only presented information about Thimerosal, the vaccine preservative that is half mercury. When I showed up at a recent Autism Speaks benefit concert at the House of Blues downtown to hand out flyers about Thimerosal, I was told that I had to leave or I would be arrested. I told them that as far as I was aware, I was within my rights to be on the sidewalk, which is public property, distributing information, so long as I wasn't accosting or harassing anyone. The chief of police was summoned and he told me that I could stay. But it seems to me and to many others that the organization Autism Speaks is actively working against the scientists and doctors and parents who believe that vaccines have harmed their children and only want the truth to be told, and want this looked into. I recently contacted the NAA because I knew that was putting her support behind them, and that she has been the only person to publicly state her belief that vaccines damaged her child. I met n at a recent biomedical support group with Dr. Demio, a DAN doctor who practices biomedical and chelation treatment. I am curious to meet other parents in the area here. I feel it is very important to get the word out in any way possible, as we can't rely on the media. I myself am taking supplements (B6, DMSA, NAC, caprylic acid for yeast) and I am curious to find out the experiences of others with supplements and diets. I put together this flyer some years ago and I've been distributing it whenever and wherever I can where I think parents of young children might be. http://www.wideopenwest.com/~r_nemeth/vaccine_flyer.htm I am hoping to be at one of the meetings that take place the first Tuesday of each month, soon, so that I can meet people, although I won't be able to make the July meeting. Perhaps I will be at the zoo on Monday. Wearing my `autism—it's no mystery, it's mercury' tee, and handing out my flyers. Robin Nemeth Quote Link to comment Share on other sites More sharing options...
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