Re: Shestack, board member of Autism Speaks Responds

[Guest guest]

Ginger, You see the glass half full-I see it half empty. MaurineGinger <@...> wrote: Sorry for the cross postingI have posted his remarks and my response here.http://adventuresinautism.blogspot.com/2007/06/jon-shestack-of-can-and-autism-speaks.htmlplease come and offer your comments to him.I am cautiously optomistic that this could be the beginning of some change for good if we handle this well.Ginger Adventures In Autism

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[Guest guest]

I hate his tone.

i am soooo tired of people who imply that we are so F*( & %#@ "desperate" --that that is why we look into all sorts of "crazy" claims.

I am not deperate.

Let one person say that to my face just one time...

they will spend the rest of the picking their own ass up off the ground.

Shestack... what crap is this??? that we don't want everyone looking in the same place??? NO ONE IS LOOKING in this place... no one is funding it anyone --those who are looking are being called fringe loons. Those who are looking are defending their medical licenses.

SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop thinking you speak for me or my child.

.

----- Original Message -

..

[Guest guest]

Uhm, I'm desperate.

Sorry to point out the obvious.

>

> I hate his tone.

> i am soooo tired of people who imply that we are so F*( & %#@

" desperate " --that that is why we look into all sorts of " crazy " claims.

>

> I am not deperate.

>

> Let one person say that to my face just one time...

> they will spend the rest of the picking their own ass up off the ground.

>

> Shestack... what crap is this??? that we don't want everyone

looking in the same place??? NO ONE IS LOOKING in this place... no one

is funding it anyone --those who are looking are being called fringe

loons. Those who are looking are defending their medical licenses.

> SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop

thinking you speak for me or my child.

>

> .

> ----- Original Message -

> .

>

[Guest guest]

Please ask him why they have a AS board member testifying against our

kids, Fonbonne(the psychologist who try to pass himself off as a

toxicologist and mercury expert).

I will no longer give AS the benefit of the doubt after finding out

they have someone on their payroll testifying against sick autistic

kids that need help.

>

> I hate his tone.

> i am soooo tired of people who imply that we are so F*( & %

#@ " desperate " --that that is why we look into all sorts of " crazy "

claims.

>

> I am not deperate.

>

> Let one person say that to my face just one time...

> they will spend the rest of the picking their own ass up off the

ground.

>

> Shestack... what crap is this??? that we don't want everyone

looking in the same place??? NO ONE IS LOOKING in this place... no

one is funding it anyone --those who are looking are being called

fringe loons. Those who are looking are defending their medical

licenses.

> SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop

thinking you speak for me or my child.

>

> .

> ----- Original Message -

> .

>

[Guest guest]

Yep, $500 dollars an hour he made\makes working for pharma.

> >

> > I hate his tone.

> > i am soooo tired of people who imply that we are so F*( & %

> #@ " desperate " --that that is why we look into all sorts

of " crazy "

> claims.

> >

> > I am not deperate.

> >

> > Let one person say that to my face just one time...

> > they will spend the rest of the picking their own ass up off the

> ground.

> >

> > Shestack... what crap is this??? that we don't want

everyone

> looking in the same place??? NO ONE IS LOOKING in this place... no

> one is funding it anyone --those who are looking are being called

> fringe loons. Those who are looking are defending their medical

> licenses.

> > SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop

> thinking you speak for me or my child.

> >

> > .

> > ----- Original Message -

> > .

> >

>

[Guest guest]

I am sure he means well. However, they do not want

their squeaky clean image tarnished by our disparaging

remarks. Yes, it would be nice if we could all work

towards the common good of our children, but that is

not happening.

When people knowingly hide information that benefits

or even helps recover other children i.e. biomedical-

they cannot be given the benefit of the doubt. I can

understand not wanting to promote DAN!'s as they are

not all equal, however, at least give children a

chance by pointing their parents in the right

direction i.e. biomedical- Even if they posted

something like this: " While we do not endorse or blah

blah- there are parents who swear by the foloowing

interventions...... It's crazy they would probably

promote ritalin and other anticonvulsants over a diet!

The past research has only put dollars in people's

pockets and given a name to others by getting their

materials published so they could go work for pharma

-obviously these old ideas have not worked and has

done nothing for our kids as we are now at 1 in 136-

SO CHANGE YOUR THINKING!!!!!!!!!!!!!!! TIME IS OF THE

ESSENCE - !

--- markautismcharge

<mark.connolly.cgb5@...> wrote:

> Yep, $500 dollars an hour he made\makes working for

> pharma.

>

>

> > >

> > > I hate his tone.

> > > i am soooo tired of people who imply that we are

> so F*( & %

> > #@ " desperate " --that that is why we look into all

> sorts

> of " crazy "

> > claims.

> > >

> > > I am not deperate.

> > >

> > > Let one person say that to my face just one

> time...

> > > they will spend the rest of the picking their

> own ass up off the

> > ground.

> > >

> > > Shestack... what crap is this??? that we

> don't want

> everyone

> > looking in the same place??? NO ONE IS LOOKING in

> this place... no

> > one is funding it anyone --those who are looking

> are being called

> > fringe loons. Those who are looking are defending

> their medical

> > licenses.

> > > SHUT UP JOHN. No one cares what you have to

> say. SHUT UP. stop

> > thinking you speak for me or my child.

> > >

> > > .

> > > ----- Original Message -

> > > .

> > >

> >

>

>

>

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[Guest guest]

I forgot to mention dr andy Zimmerman of the Krieger institute which

AS also funds is testifying against sick autistic kids at the VICP

hearings.

Fool me once shame on you, fool me twice shame on me

> >

> > I hate his tone.

> > i am soooo tired of people who imply that we are so F*( & %

> #@ " desperate " --that that is why we look into all sorts of " crazy "

> claims.

> >

> > I am not deperate.

> >

> > Let one person say that to my face just one time...

> > they will spend the rest of the picking their own ass up off the

> ground.

> >

> > Shestack... what crap is this??? that we don't want everyone

> looking in the same place??? NO ONE IS LOOKING in this place... no

> one is funding it anyone --those who are looking are being called

> fringe loons. Those who are looking are defending their medical

> licenses.

> > SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop

> thinking you speak for me or my child.

> >

> > .

> > ----- Original Message -

> > .

> >

>

[Guest guest]

I'm so very glad he's not on our local ASA professional advisory board

any more. If he is, I'm gonna quit.

Debi

> > >

> > > I hate his tone.

> > > i am soooo tired of people who imply that we are so F*( & %

> > #@ " desperate " --that that is why we look into all sorts of " crazy "

> > claims.

> > >

> > > I am not deperate.

> > >

> > > Let one person say that to my face just one time...

> > > they will spend the rest of the picking their own ass up off the

> > ground.

> > >

> > > Shestack... what crap is this??? that we don't want everyone

> > looking in the same place??? NO ONE IS LOOKING in this place... no

> > one is funding it anyone --those who are looking are being called

> > fringe loons. Those who are looking are defending their medical

> > licenses.

> > > SHUT UP JOHN. No one cares what you have to say. SHUT UP. stop

> > thinking you speak for me or my child.

> > >

> > > .

> > > ----- Original Message -

> > > .

> > >

> >

>