CHOP

[Guest guest]

I have met a lady in my local library whose son has bowel problems so badly that he has just had to have part of his colon removed. She said he had a really severe reaction to the MMR and the doctor poo pood it every time she mentioned it. She is seeing specialists at Children hospital of philadelphia and has asked them about the vaccine connection ( promted by info by me) they tell her it is nothing , not relevant , cannot be and not so and will not enter dialog about it. They are treating the boy with B12 now as his gut is removed.

She cannot deal with it and does not know where to turn, cannot get access to a computer often and the husband is not supportive.

Wonder how many more mothers are going through this. It is criminal that the medical profession will not listen to the concerns of a parent. So arrogant.

they are actually treating with B12 now , probably going to publish the results and get all the kudos for the idea!

I am sending her info . If anyone knows any conferences? talks in Philly in the next few weeks please keep informed I want to help her.

Ange

[Guest guest]

We are having a conference in NY in October, if that helps at all. There is a lot of biomed and it’s only $50 per day for parents who order online before October 1st.

http://www.autismfair.com

On 6/18/07 2:07 PM, " max walker " <max.walker@...> wrote:

I have met a lady in my local library whose son has bowel problems so badly that he has just had to have part of his colon removed. She said he had a really severe reaction to the MMR and the doctor poo pood it every time she mentioned it. She is seeing specialists at Children hospital of philadelphia and has asked them about the vaccine connection ( promted by info by me) they tell her it is nothing , not relevant , cannot be and not so and will not enter dialog about it. They are treating the boy with B12 now as his gut is removed.

She cannot deal with it and does not know where to turn, cannot get access to a computer often and the husband is not supportive.

Wonder how many more mothers are going through this. It is criminal that the medical profession will not listen to the concerns of a parent. So arrogant.

they are actually treating with B12 now , probably going to publish the results and get all the kudos for the idea!

I am sending her info . If anyone knows any conferences? talks in Philly in the next few weeks please keep informed I want to help her.

Ange

[Guest guest]

What about going to the Autism One web site and having her order some of the Biomed presentations? I just got my full set today in the mail, but she could order one or two of the presentations. Drs Wakefield and Krigsman, Herbert, Mumper, those are the ones I'd start with...She could also purchase a download. Regards, Marie http://www.zenworksproductions.com/ christine <christine@...> wrote: We are having a conference in NY in October, if that helps at all. There is a lot of biomed and it’s only $50 per day for parents who order online before October 1st.http://www.autismfair.comOn 6/18/07 2:07 PM, "max walker" <max.walkerverizon (DOT) net> wrote: I have met a lady in my local library whose son has bowel problems so badly that he has just had to have part of his colon removed. She said he had a really severe reaction to the MMR and the doctor poo pood it every time she mentioned it. She is seeing specialists at Children hospital of philadelphia and has asked them about the vaccine connection ( promted by info by me)

they tell her it is nothing , not relevant , cannot be and not so and will not enter dialog about it. They are treating the boy with B12 now as his gut is removed.She cannot deal with it and does not know where to turn, cannot get access to a computer often and the husband is not supportive.Wonder how many more mothers are going through this. It is criminal that the medical profession will not listen to the concerns of a parent. So arrogant.they are actually treating with B12 now , probably going to publish the results and get all the kudos for the idea!I am sending her info . If anyone knows any conferences? talks in Philly in the next few weeks please keep informed I want to help her. Ange

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.

[Guest guest]

A warning about CHOP, or at least a department of CHOP: we met with

the head of the allergy dept. there in May of this year, and he is

one of the biggest morons I have ever met (will provide the name upon

request via personal email). I took one of my twins there to find out

about allergies from suspected foods and environmental allergens. He

walked in to our room and the first thing he said, and in a VERY

condescending tone, was, " Why are you even here? " (I guess he had

just looked over his medical form that I filled out in the waiting

room - under the medical issues section, I ofcourse filled out that

he had ben dx'd with Hg poisoning). He continued to verbally assault

me with comments like, " Look, I don't subscribe to ANY of this... I

am an ALLOPATHIC DOCTOR... If your son had food allergies, he would

either vomit, have a obvious skin rash, have an anaphlalatic attack,

or die. " I should have walked out right then and there, but I

remained calm and gave it right back to him, telling him that he has

behavioral changes when he eats certain foods, as well as the tell-

tail sign of some sort of allergy from the dark circles under his

eyes. He negated both theories, saying he had never heard of anything

like that (!?!). I told him that I suspectd a gluten allergy, as I

myself have been tested and found to be positive - a very strong

postive allgery to gluten. He said " What the hell kind of doctor told

you that? Just what kind of doctor are you seeing? " He added

that, " If you had a gluten allgery you'd be in a lot of pain and

bloated, " to which I snottedly replied, " Well 6 months ago before I

went gluten-free I looked 6 months pregnant and was in extreme pain

when I ate wheat. " Suddenly he became a little nicer, which brough on

more bragging, and TMI about his personal life (his divorce, etc). I

know, eye rolling.

The whole visit, this doctor was extremely rude and pompous, touting

himself as " the creater of the entire allergy dept at CHOP " and, " I

used to do bench science but then I realized I could work less and

get paid more with this job " (Was that at Merk, by chance? And maybe

you could spend some of your free time reading up on allgeries...)

He went on to prescribe 4 medications for my 8 yr old son, who after

skin testing, was shown to be MILDLY allergic to grasses and trees.

He refused to test for food allergies. And he also dx'd him with

asthma due to a very VERY inaccurate assessment of his lungs. I was

blown away with how quickly those rx's were written up and handed to

me. I asked if they were safe to take all together, to which he

replied, " Absolultely. No problem at all. " We walked out of there

looking like my child was elligible for a full-time respirator and

oxygen tank in tow... the kid has *never* even had so much as even

short-of-breath after running around, I kid you not!!!

Obviously, I threw the rx's in the trash. My son doesn't have asthma,

he doesn't even exhibit one symptom. I can't believe this guy is

allowed to be practicing medicine. Not only is his bedside manner

abhorrent, but his knowledge about his own field was obsolete.

Take care,

[Guest guest]

Thanks

Re: CHOP

We are having a conference in NY in October, if that helps at all. There is a lot of biomed and it’s only $50 per day for parents who order online before October 1st.http://www.autismfair.comOn 6/18/07 2:07 PM, "max walker" <max.walkerverizon (DOT) net> wrote:

I have met a lady in my local library whose son has bowel problems so badly that he has just had to have part of his colon removed. She said he had a really severe reaction to the MMR and the doctor poo pood it every time she mentioned it. She is seeing specialists at Children hospital of philadelphia and has asked them about the vaccine connection ( promted by info by me) they tell her it is nothing , not relevant , cannot be and not so and will not enter dialog about it. They are treating the boy with B12 now as his gut is removed.She cannot deal with it and does not know where to turn, cannot get access to a computer often and the husband is not supportive.Wonder how many more mothers are going through this. It is criminal that the medical profession will not listen to the concerns of a parent. So arrogant.they are actually treating with B12 now , probably going to publish the results and get all the kudos for the idea!I am sending her info . If anyone knows any conferences? talks in Philly in the next few weeks please keep informed I want to help her. Ange

[Guest guest]

I totally agree CHOP is worthless stay away from them. The

neurologist toldme that PDD was dreamed up by a bunch of psycologists

in a sauna. My son was fine and keep him in 1/2 day preschool there

was nothing else we should be doing.

The develomental ped was so disorganized she had no testing prepared

for my daughter and toldme I need to look into my new baby's eyes and

don't park her in front of the TV.

There sleep and eating clinics are a joke!!!!!!!!!!!!!!

>

> A warning about CHOP, or at least a department of CHOP: we met with

> the head of the allergy dept. there in May of this year, and he is

> one of the biggest morons I have ever met (will provide the name

upon

> request via personal email). I took one of my twins there to find

out

> about allergies from suspected foods and environmental allergens.

He

> walked in to our room and the first thing he said, and in a VERY

> condescending tone, was, " Why are you even here? " (I guess he had

> just looked over his medical form that I filled out in the waiting

> room - under the medical issues section, I ofcourse filled out that

> he had ben dx'd with Hg poisoning). He continued to verbally

assault

> me with comments like, " Look, I don't subscribe to ANY of this... I

> am an ALLOPATHIC DOCTOR... If your son had food allergies, he would

> either vomit, have a obvious skin rash, have an anaphlalatic

attack,

> or die. " I should have walked out right then and there, but I

> remained calm and gave it right back to him, telling him that he

has

> behavioral changes when he eats certain foods, as well as the tell-

> tail sign of some sort of allergy from the dark circles under his

> eyes. He negated both theories, saying he had never heard of

anything

> like that (!?!). I told him that I suspectd a gluten allergy, as I

> myself have been tested and found to be positive - a very strong

> postive allgery to gluten. He said " What the hell kind of doctor

told

> you that? Just what kind of doctor are you seeing? " He added

> that, " If you had a gluten allgery you'd be in a lot of pain and

> bloated, " to which I snottedly replied, " Well 6 months ago before I

> went gluten-free I looked 6 months pregnant and was in extreme pain

> when I ate wheat. " Suddenly he became a little nicer, which brough

on

> more bragging, and TMI about his personal life (his divorce, etc).

I

> know, eye rolling.

>

> The whole visit, this doctor was extremely rude and pompous,

touting

> himself as " the creater of the entire allergy dept at CHOP " and, " I

> used to do bench science but then I realized I could work less and

> get paid more with this job " (Was that at Merk, by chance? And

maybe

> you could spend some of your free time reading up on allgeries...)

>

> He went on to prescribe 4 medications for my 8 yr old son, who

after

> skin testing, was shown to be MILDLY allergic to grasses and trees.

> He refused to test for food allergies. And he also dx'd him with

> asthma due to a very VERY inaccurate assessment of his lungs. I was

> blown away with how quickly those rx's were written up and handed

to

> me. I asked if they were safe to take all together, to which he

> replied, " Absolultely. No problem at all. " We walked out of there

> looking like my child was elligible for a full-time respirator and

> oxygen tank in tow... the kid has *never* even had so much as even

> short-of-breath after running around, I kid you not!!!

>

> Obviously, I threw the rx's in the trash. My son doesn't have

asthma,

> he doesn't even exhibit one symptom. I can't believe this guy is

> allowed to be practicing medicine. Not only is his bedside manner

> abhorrent, but his knowledge about his own field was obsolete.

>

> Take care,

>

>

>

[Guest guest]

With CHOP, it really depends upon the department in my opinion.

While I take issue to the fact that they have the original pharma

whore Dr PrOfiit on staff (who I had a run in with when my 15 yr old

was only a few months old and I hated him before I even knew what a

pharma whore he was), I can attest to the fact that at least two of

the doctors that they have on staff there, one in GI and one in

Neurosurgery,are wonderful doctors. My 15 yr old has been a patient

of the doctor in neurosurgery since she was 3 months old for

Hydrocephalus and my 11 month old who suffers from severe reflux has

been a patient of the GI doctors since he was 3 weeks old.

These 2 doctors have always treated my family with respect, have

listened to us, and have respected my right to not vaccinate my

children, never pushed and both have said more research needs to be

done before we can totally rule out the possible connection.

I know alot of parents who have had problems with the autism center

and the allergy departments at CHOP for the obvious reasons but I

have never really had a problem with Neurosurgery or GI. I even

spoke to the GI about my son 's gut issues from the MMR and

she was very receptive to the idea of inflammatory issues as a result

of vaccination. Said she was going to try to research more into it.

Just an FYI...

Ellen

> >

> > A warning about CHOP, or at least a department of CHOP: we met

with

> > the head of the allergy dept. there in May of this year, and he

is

> > one of the biggest morons I have ever met (will provide the name

> upon

> > request via personal email). I took one of my twins there to find

> out

> > about allergies from suspected foods and environmental allergens.

> He

> > walked in to our room and the first thing he said, and in a VERY

> > condescending tone, was, " Why are you even here? " (I guess he had

> > just looked over his medical form that I filled out in the

waiting

> > room - under the medical issues section, I ofcourse filled out

that

> > he had ben dx'd with Hg poisoning). He continued to verbally

> assault

> > me with comments like, " Look, I don't subscribe to ANY of this...

I

> > am an ALLOPATHIC DOCTOR... If your son had food allergies, he

would

> > either vomit, have a obvious skin rash, have an anaphlalatic

> attack,

> > or die. " I should have walked out right then and there, but I

> > remained calm and gave it right back to him, telling him that he

> has

> > behavioral changes when he eats certain foods, as well as the

tell-

> > tail sign of some sort of allergy from the dark circles under his

> > eyes. He negated both theories, saying he had never heard of

> anything

> > like that (!?!). I told him that I suspectd a gluten allergy, as

I

> > myself have been tested and found to be positive - a very strong

> > postive allgery to gluten. He said " What the hell kind of doctor

> told

> > you that? Just what kind of doctor are you seeing? " He added

> > that, " If you had a gluten allgery you'd be in a lot of pain and

> > bloated, " to which I snottedly replied, " Well 6 months ago before

I

> > went gluten-free I looked 6 months pregnant and was in extreme

pain

> > when I ate wheat. " Suddenly he became a little nicer, which

brough

> on

> > more bragging, and TMI about his personal life (his divorce,

etc).

> I

> > know, eye rolling.

> >

> > The whole visit, this doctor was extremely rude and pompous,

> touting

> > himself as " the creater of the entire allergy dept at CHOP "

and, " I

> > used to do bench science but then I realized I could work less

and

> > get paid more with this job " (Was that at Merk, by chance? And

> maybe

> > you could spend some of your free time reading up on allgeries...)

> >

> > He went on to prescribe 4 medications for my 8 yr old son, who

> after

> > skin testing, was shown to be MILDLY allergic to grasses and

trees.

> > He refused to test for food allergies. And he also dx'd him with

> > asthma due to a very VERY inaccurate assessment of his lungs. I

was

> > blown away with how quickly those rx's were written up and handed

> to

> > me. I asked if they were safe to take all together, to which he

> > replied, " Absolultely. No problem at all. " We walked out of there

> > looking like my child was elligible for a full-time respirator

and

> > oxygen tank in tow... the kid has *never* even had so much as

even

> > short-of-breath after running around, I kid you not!!!

> >

> > Obviously, I threw the rx's in the trash. My son doesn't have

> asthma,

> > he doesn't even exhibit one symptom. I can't believe this guy is

> > allowed to be practicing medicine. Not only is his bedside manner

> > abhorrent, but his knowledge about his own field was obsolete.

> >

> > Take care,

> >

> >

> >

>

[Guest guest]

good idea

Re: CHOP

What about going to the Autism One web site and having her order some of the Biomed presentations? I just got my full set today in the mail, but she could order one or two of the presentations. Drs Wakefield and Krigsman, Herbert, Mumper, those are the ones I'd start with...She could also purchase a download.

Regards,

Marie

http://www.zenworksproductions.com/

christine <christinelighthousestudios (DOT) info> wrote:

We are having a conference in NY in October, if that helps at all. There is a lot of biomed and it’s only $50 per day for parents who order online before October 1st.http://www.autismfair.comOn 6/18/07 2:07 PM, "max walker" <max.walkerverizon (DOT) net> wrote:

I have met a lady in my local library whose son has bowel problems so badly that he has just had to have part of his colon removed. She said he had a really severe reaction to the MMR and the doctor poo pood it every time she mentioned it. She is seeing specialists at Children hospital of philadelphia and has asked them about the vaccine connection ( promted by info by me) they tell her it is nothing , not relevant , cannot be and not so and will not enter dialog about it. They are treating the boy with B12 now as his gut is removed.She cannot deal with it and does not know where to turn, cannot get access to a computer often and the husband is not supportive.Wonder how many more mothers are going through this. It is criminal that the medical profession will not listen to the concerns of a parent. So arrogant.they are actually treating with B12 now , probably going to publish the results and get all the kudos for the idea!I am sending her info . If anyone knows any conferences? talks in Philly in the next few weeks please keep informed I want to help her. Ange

Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out.