Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 > > The French Lab recommends that you stop chelation for > two weeks to one month prior to doing the urinary > porphyrins test for accurate results. If you are > actively chelating then the results will likely show a > higher burden of metals since the test looks at what > is passing thru the kidneys and liver. FWIW! > This point bothers me a lot. If mercury trapped in the brain is causing some/many of the problems in kids with autism, or other mercury-related syndromes, then a test of the level of porphyrins in urine soon after a round of chelation with ALA would seem to me to be more reflective of the total body burden, as mercury that is trapped in the brain or other places besides the kidney would then be mobilized and therefore moving through the kidneys to cause the porphyrin profile characteristic of mercury toxicity. I suspect that Nataf and Geier did not find evidence of high mercury toxicity in Asperger's kids because those kids might be more able to clear mercury from their bodies (due to genetics, or more likely (imo) due to more fortunate timing of their exposures--i.e. they got less tylenol, had fewer or no antibiotics, or viral infections, or other factors that would have reduced their mercury excretion rates immediately post exposure.) Yet, in spite of their good excretion, some mercury got into their brains and/or other organs is still stuck there causing vision problems, motor problems, social deficits, literal thinking, asthma, etc. This might explain why many Asperger's kids seem to improve post chelation with ALA--at least in my mind. Has anyone done the French test on an Asperger's or mildly autistic child prior to any chelation and again following a couple of rounds of dmsa/ala or dmps/ala, or ala alone? If so, I would be very interested in your results! Did the porphyrin levels increase post-chelation (as 's post suggests they would)? If no one has done this, I think this needs to be done in a standard way for a sizable sample of kids. Otherwise, folks could test their kids and get negative results from the porphyrin test, when in fact their kids might truly have significant mercury trapped in their brains. OTOH could one get porphyrin numbers that only indicated toxicity (post-chelation) because the reference ranges are based on tests done far from any chelation? IMO This problem is potentially similar to the provoked urine test results wherein the reference ranges are based on non- provoked urine samples which makes it really difficult to judge if out of range results are trulyl significant, or not. I do tend to think any body burden of mercury is unlikely to be a good thing, but I would like to have a test method that truly reflects the total body/brain burden, not just the mercury that happens to be moving through the kidneys at a given moment. It seems to me that the UPPA test, post-ALA-provocation, could possibly provide this. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 I hate to be a thorn in anyone's side but I would not waste my precious money with labcorp at this point for the urinary porphrins test.....the French Lab is the only lab at this point that is accurate. I am sure the Metameterix and Great Plains will eventually come up with accurate labs but at this point if you have limited dollars use caution. --- Maurine Meleck <maurine_meleck@...> wrote: > It's been posted on our list that Lab Corp's testing > is ok, but does not interpret it for you like the > french lab. I wanted to get my NT grandson > tested(for the other child we used the french Lab) > and had planned to go to Lab Corps. > maurine > > Fund <susan_fund@...> wrote: > Lab Corp does not do the urinary > porphyrins test > accurately!!!!! It does not test for mercury. The > only > company that does it accurately is The French Lab. > Great Plains and Metametrix just offerred it and > hopefully it will be accurate....Bradstreets group > is > testing the accuracy of those 2 labs. > > > --- Weinmaster <lweinmaster@...> > wrote: > > > I have 2 NT boys that are 18 and 20 years old that > > had normal UPP test through Lab Corp. All 3 of my > > boys have high testosterone and 2 polymorphisms in > > the MTHFR. I did not receive RhoGAM during my > first > > two pregnancies only the day after birth. All > three > > boys had Rah and ABU incompatibility with their A+ > > blood type vs. my O- type. My middle son had RH > > disease which was much easier to deal with > compared > > to ASD. > > Posted by: " King " medfordkings1@... > > medfordkings1 > > Wed Jun 13, 2007 10:44 am (PST) > > I don't know about NT results for children (don't > > have any NT kids!), but my two children > > tested diferently. My 8yr old was mild to > moderately > > toxic, and my 7yr old was extremely > > toxic. So I don't think that the results are > always > > high levels. Not that ANY levels are good! > > > > __________________________________________________________ > Take the Internet to Go: Go puts the Internet > in your pocket: mail, news, photos & more. > http://mobile./go?refer=1GNXIC > > > > > > --------------------------------- > The fish are biting. > Get more visitors on your site using Search Marketing. ________________________________________________________________________________\ ____ oneSearch: Finally, mobile search that gives answers, not web links. http://mobile./mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Well , I guess you know something Mark Geier doesn't because he is recommending labcorp. Perhaps you should let him know what data you have so that he can stop. Lenny > > > It's been posted on our list that Lab Corp's testing > > is ok, but does not interpret it for you like the > > french lab. I wanted to get my NT grandson > > tested(for the other child we used the french Lab) > > and had planned to go to Lab Corps. > > maurine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Sounds like your son has some kind of gut/ upper G.I. issues. Maybe bacterial, yeast, fungus, parasites? Have you ever done any testing for these things? Medications/ antibotic's? Well, you said you were taking him to a DAN DR. You might want to do a bi- line of all his history this will help the DR understand whats going on with him. I would also include what kinds of foods your son ate in the past and currently ie: any fish too. Dental work, and parts of the country you've lived in - or near any Factories, types of homes/apts - heat source and so on. In EOHarm , LFMleczko@... wrote: > > I don't know..my son is not aspergers.. he is hyperlexic with verbal > apraxia.. he never toe walked... hand flapped .. had normal play... potty trained > himself in both areas at age 3... he was not rigid ... but had the diahrrea,.. > mystery rashes... self eliminated foods... lost eye contact... I am seeing > dr. Prociuk.. DAN! doctor in a couple of weeks.. I am anxious to see his UPPA > results.. he is 15.. he went from eating nothing.. to a picky eater .. then > to a kid.. that tries new foods and likes greens.. salads... ect...does this > mean..he had the ability early on to detoxify better than some? like the > aspergers? who knows... Lia > > > > ************************************** See what's free at http://www.aol.com. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hi, thanks for the link. While the site does offer some info, it doesn’t discuss any of the questions I was asking so I am still hoping for her to answer. J Holly From: EOHarm [mailto:EOHarm ] On Behalf Of texjur2000 Sent: Wednesday, June 13, 2007 11:31 PM EOHarm Subject: Re: UPP Test Go to this site for more information on both tests (french and labcorp) there is a link on the left. http://www.mercury-freedrugs.org/ > > > I have 2 NT boys that are 18 and 20 years old that > > had normal UPP test through Lab Corp. All 3 of my > > boys have high testosterone and 2 polymorphisms in > > the MTHFR. I did not receive RhoGAM during my first > > two pregnancies only the day after birth. All three > > boys had Rah and ABU incompatibility with their A+ > > blood type vs. my O- type. My middle son had RH > > disease which was much easier to deal with compared > > to ASD. > > Posted by: " King " medfordkings1@ > <mailto:medfordkings1%40> > > medfordkings1 > > Wed Jun 13, 2007 10:44 am (PST) > > I don't know about NT results for children (don't > > have any NT kids!), but my two children > > tested diferently. My 8yr old was mild to moderately > > toxic, and my 7yr old was extremely > > toxic. So I don't think that the results are always > > high levels. Not that ANY levels are good! > > > > __________________________________________________________ > Take the Internet to Go: Go puts the Internet in your pocket: mail, > news, photos & more. > http://mobile. <http://mobile./go?refer=1GNXIC> > /go?refer=1GNXIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Our Family's results: NT 4 year old daughter: "possible slight mercury toxicity" Husband (early 40 ies): "slight mercury toxicity -- very toxic in pesticides" Me (21 years if age): "Moderate lead toxicity" (yes I use a lap top computer a lot) and elevated mercury; I was higher in lead than my son who has been chelating for over 1 year; line was all the way to the top of the page ASD recovering son 6yr old - "noticeable mercury toxic affect on body physiology"woknwoll4ever <woknwoll4ever@...> wrote: Mark,We used the French lab. My NT 8 yo daughter, who has breathing issues, had test results "lack or slightly Mercury toxicity." I'm 45 yo, no remarkable health issues, with results "mildly mercury toxic effect on bodily physiology." My 6 yo ASD son had "noticeable mercury toxic effect on bodily physiology."Randi>> What are the UPP test results from NT kids? Do their test results > show high levels of mercury also or is there a big difference > between NT and ASD kids? I just hate to do a test like this if 80 or > 90% of the results shows high levels of mercury whether you have > autism or not.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 , Who did you get this information from? Just curious. Our doctor, who is the only doctor we have trusted in a long while, and a reputable DAN!, told me that LAbcorp was as reliable in accuracy as the french test, only they don't test for precoproporphyrins. In your previous post you state that Labcorp's test does not test for mercury- I would like to know where you heard this information as well. I also have spoken to Dr. King regarding this, and I consider CoMed to be my best resource for info. regarding the UPPA very much. Thanks, > > > > > I have 2 NT boys that are 18 and 20 years old that > > > had normal UPP test through Lab Corp. All 3 of my > > > boys have high testosterone and 2 polymorphisms in > > > the MTHFR. I did not receive RhoGAM during my > > first > > > two pregnancies only the day after birth. All > > three > > > boys had Rah and ABU incompatibility with their A+ > > > blood type vs. my O- type. My middle son had RH > > > disease which was much easier to deal with > > compared > > > to ASD. > > > Posted by: " King " medfordkings1@... > > > medfordkings1 > > > Wed Jun 13, 2007 10:44 am (PST) > > > I don't know about NT results for children (don't > > > have any NT kids!), but my two children > > > tested diferently. My 8yr old was mild to > > moderately > > > toxic, and my 7yr old was extremely > > > toxic. So I don't think that the results are > > always > > > high levels. Not that ANY levels are good! > > > > > > > > __________________________________________________________ > > Take the Internet to Go: Go puts the Internet > > in your pocket: mail, news, photos & more. > > http://mobile./go?refer=1GNXIC > > > > > > > > > > > > --------------------------------- > > The fish are biting. > > Get more visitors on your site using Search > Marketing. > > > > > ________________________________________________________________________________\ ____ > oneSearch: Finally, mobile search > that gives answers, not web links. > http://mobile./mobileweb/onesearch?refer=1ONXIC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 > > The French Lab recommends that you stop chelation for > two weeks to one month prior to doing the urinary > porphyrins test for accurate results. If you are > actively chelating then the results will likely show a > higher burden of metals since the test looks at what > is passing thru the kidneys and liver. FWIW! > > Just to clarify. The lab told me recently that a minimum of one month should pass after the last round of chelation. Most parents don't want to wait longer than that, but should try to follow the one month guideline. Also, if you are actively chelating, but follow the guidelines the lab sets out, your results should be lower over time. In Nataf's paper there is a graph that shows how significantly the porphyrin levels dropped in the children that used DMSA for some time (not a very long time, either). Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 I'm sorry if I have been misleading...I was only reporting what Dr. Haley & the Geiers said in Atlanta and what we did due to Medicaid restrictions and the fact that I am treating 3 sons. If I need to get the french test done, I will find a way. Alison >From: Fund <susan_fund@...> >Reply-EOHarm >EOHarm >Subject: Re: Re: UPP Test >Date: Wed, 13 Jun 2007 18:54:20 -0700 (PDT) > >I hate to be a thorn in anyone's side but I would not >waste my precious money with labcorp at this point for >the urinary porphrins test.....the French Lab is the >only lab at this point that is accurate. I am sure the >Metameterix and Great Plains will eventually come up >with accurate labs but at this point if you have >limited dollars use caution. > >--- Maurine Meleck <maurine_meleck@...> wrote: > > > It's been posted on our list that Lab Corp's testing > > is ok, but does not interpret it for you like the > > french lab. I wanted to get my NT grandson > > tested(for the other child we used the french Lab) > > and had planned to go to Lab Corps. > > maurine > > > > Fund <susan_fund@...> wrote: > > Lab Corp does not do the urinary > > porphyrins test > > accurately!!!!! It does not test for mercury. The > > only > > company that does it accurately is The French Lab. > > Great Plains and Metametrix just offerred it and > > hopefully it will be accurate....Bradstreets group > > is > > testing the accuracy of those 2 labs. > > > > > > --- Weinmaster <lweinmaster@...> > > wrote: > > > > > I have 2 NT boys that are 18 and 20 years old that > > > had normal UPP test through Lab Corp. All 3 of my > > > boys have high testosterone and 2 polymorphisms in > > > the MTHFR. I did not receive RhoGAM during my > > first > > > two pregnancies only the day after birth. All > > three > > > boys had Rah and ABU incompatibility with their A+ > > > blood type vs. my O- type. My middle son had RH > > > disease which was much easier to deal with > > compared > > > to ASD. > > > Posted by: " King " medfordkings1@... > > > medfordkings1 > > > Wed Jun 13, 2007 10:44 am (PST) > > > I don't know about NT results for children (don't > > > have any NT kids!), but my two children > > > tested diferently. My 8yr old was mild to > > moderately > > > toxic, and my 7yr old was extremely > > > toxic. So I don't think that the results are > > always > > > high levels. Not that ANY levels are good! > > > > > > > >__________________________________________________________ > > Take the Internet to Go: Go puts the Internet > > in your pocket: mail, news, photos & more. > > http://mobile./go?refer=1GNXIC > > > > > > > > > > > > --------------------------------- > > The fish are biting. > > Get more visitors on your site using Search >Marketing. > > > > >_______________________________________________________________________________\ _____ > oneSearch: Finally, mobile search >that gives answers, not web links. >http://mobile./mobileweb/onesearch?refer=1ONXIC _________________________________________________________________ PC Magazine’s 2007 editors’ choice for best Web mail—award-winning Windows Live Hotmail. http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\ _mini_pcmag_0507 Quote Link to comment Share on other sites More sharing options...
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