Re: UPP Test

[Guest guest]

The Lab Corp test is $118.

My daughter's SSI Medicaid paid for it. Thankfully.

~

>

> Was wondering if anyone on here has had a negative Urinary porphyrin

> profiles test? (Or whatever would show no mercury?)

>

> We haven't done the test (yet) and was just curious. How much is the

> test now? I would like to test both kids.

>

>

> Diane

>

[Guest guest]

$138 approximately************************************** See what's free at http://www.aol.com.

[Guest guest]

- Dr. Megson wanted us to use the lab in France: Laboratoire de Biologie Medicale, 119 ave Philippe Auguste, 75011 Paris (France) Tel: 0-1-43-67-5700. E-mail contact@...

I kept putting it off becasue of the cost...Now that Great Plains is doing it, I feel that insurance may cover it with these codes.

Kath************************************** See what's free at http://www.aol.com.

[Guest guest]

Not to freak anyone out but we sent had two tests, same sample and one

said high levels of mercury and the other said normal ranges.

I am perplexed about these tests.

In EOHarm , kahybl@... wrote:

>

> $138 approximately

>

>

> **************************************

> See what's free at

> http://www.aol.com.

>

[Guest guest]

Which lab did you use?

> >

> > $138 approximately

> >

> >

> > **************************************

> > See what's free at

> > http://www.aol.com.

> >

>

[Guest guest]

The urinary porphyrins test is about $120. I have not

heard on any of the lists of an ASD kid showing no

mercury. In the beginning there were some false

negatives do to low creatinines but the lab has since

fixed this problem ( you may need to do a free retest

if the creatinine were to be very low).

--- dpowell605 <POWDER914@...> wrote:

> Was wondering if anyone on here has had a negative

> Urinary porphyrin

> profiles test? (Or whatever would show no mercury?)

>

> We haven't done the test (yet) and was just curious.

> How much is the

> test now? I would like to test both kids.

>

>

> Diane

>

>

________________________________________________________________________________\

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[Guest guest]

In NC, Medicaid covered the cost of the U.S. test for my 3 boys. I had

heard there were sometimes false negatives, but all 3 results showed heavy

metal intoxication. As we begin to use chelation protocols other than

natural, we may do the French test too.

BTW, Dr. Haley and Drs. Geier are urging all families to have this test done

if you haven't already. It is so easy for Drs. to send out, it's reliable,

the reg. medical community and most insurance plans accept it.

>From: Fund <susan_fund@...>

>Reply-EOHarm

>EOHarm

>Subject: Re: UPP Test

>Date: Wed, 13 Jun 2007 09:37:26 -0700 (PDT)

>

>The urinary porphyrins test is about $120. I have not

>heard on any of the lists of an ASD kid showing no

>mercury. In the beginning there were some false

>negatives do to low creatinines but the lab has since

>fixed this problem ( you may need to do a free retest

>if the creatinine were to be very low).

>

>--- dpowell605 <POWDER914@...> wrote:

>

> > Was wondering if anyone on here has had a negative

> > Urinary porphyrin

> > profiles test? (Or whatever would show no mercury?)

> >

> > We haven't done the test (yet) and was just curious.

> > How much is the

> > test now? I would like to test both kids.

> >

> >

> > Diane

> >

> >

>

>

>

>

>_______________________________________________________________________________\

_____

>Get the free toolbar and rest assured with the added security of

>spyware protection.

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_________________________________________________________________

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[Guest guest]

What are the UPP test results from NT kids? Do their test results

show high levels of mercury also or is there a big difference

between NT and ASD kids? I just hate to do a test like this if 80 or

90% of the results shows high levels of mercury whether you have

autism or not.

>

> > Was wondering if anyone on here has had a negative

> > Urinary porphyrin

> > profiles test? (Or whatever would show no mercury?)

> >

> > We haven't done the test (yet) and was just curious.

> > How much is the

> > test now? I would like to test both kids.

> >

> >

> > Diane

> >

> >

>

>

>

>

>

_____________________________________________________________________

_______________

> Get the free toolbar and rest assured with the added

security of spyware protection.

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>

[Guest guest]

I definitely prefer Philippe Auguste, but Labcorp's is covered by insurance for

many. Our

Doc told us they are both accurate, but that Labcorp leaves out one of the

porphyrin

markers (precoproporphyrin) in their reports. I also liked the fact that the

French test sent

us the results via e-mail (PDF attachement) the same time that our doctor

received them.

>

> - Dr. Megson wanted us to use the lab in France: Laboratoire de

> Biologie Medicale, 119 ave Philippe Auguste, 75011 Paris (France) Tel:

> 0-1-43-67-5700. E-mail contact@...

>

> I kept putting it off becasue of the cost...Now that Great Plains is doing

> it, I feel that insurance may cover it with these codes.

>

> Kath

>

>

> **************************************

> See what's free at

> http://www.aol.com.

>

[Guest guest]

Our DAN! doc told us she thought her son was presenting for ADD. So she

gave him a bunch of tests including the UPP test. Nothing. No metals.

Alison

>From: " markautismcharge " <mark.connolly.cgb5@...>

>Reply-EOHarm

>EOHarm

>Subject: Re: UPP Test

>Date: Wed, 13 Jun 2007 17:21:52 -0000

>

>What are the UPP test results from NT kids? Do their test results

>show high levels of mercury also or is there a big difference

>between NT and ASD kids? I just hate to do a test like this if 80 or

>90% of the results shows high levels of mercury whether you have

>autism or not.

>

>

>

> >

> > > Was wondering if anyone on here has had a negative

> > > Urinary porphyrin

> > > profiles test? (Or whatever would show no mercury?)

> > >

> > > We haven't done the test (yet) and was just curious.

> > > How much is the

> > > test now? I would like to test both kids.

> > >

> > >

> > > Diane

> > >

> > >

> >

> >

> >

> >

> >

>_____________________________________________________________________

>_______________

> > Get the free toolbar and rest assured with the added

>security of spyware protection.

> > http://new.toolbar./toolbar/features/norton/index.php

> >

>

>

_________________________________________________________________

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[Guest guest]

I don't know about NT results for children (don't have any NT kids!), but my two

children

tested diferently. My 8yr old was mild to moderately toxic, and my 7yr old was

extremely

toxic. So I don't think that the results are always high levels. Not that ANY

levels are good!

> >

> > > Was wondering if anyone on here has had a negative

> > > Urinary porphyrin

> > > profiles test? (Or whatever would show no mercury?)

> > >

> > > We haven't done the test (yet) and was just curious.

> > > How much is the

> > > test now? I would like to test both kids.

> > >

> > >

> > > Diane

> > >

> > >

> >

> >

> >

> >

> >

> _____________________________________________________________________

> _______________

> > Get the free toolbar and rest assured with the added

> security of spyware protection.

> > http://new.toolbar./toolbar/features/norton/index.php

> >

>

[Guest guest]

:

Is your 7 year-old more severe than your 8 year-old? Just wondering.

Alison

>From: " King " <medfordkings1@...>

>Reply-EOHarm

>EOHarm

>Subject: Re: UPP Test

>Date: Wed, 13 Jun 2007 17:42:59 -0000

>

>I don't know about NT results for children (don't have any NT kids!), but

>my two children

>tested diferently. My 8yr old was mild to moderately toxic, and my 7yr old

>was extremely

>toxic. So I don't think that the results are always high levels. Not that

>ANY levels are good!

>

>

>

>

> > >

> > > > Was wondering if anyone on here has had a negative

> > > > Urinary porphyrin

> > > > profiles test? (Or whatever would show no mercury?)

> > > >

> > > > We haven't done the test (yet) and was just curious.

> > > > How much is the

> > > > test now? I would like to test both kids.

> > > >

> > > >

> > > > Diane

> > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > _____________________________________________________________________

> > _______________

> > > Get the free toolbar and rest assured with the added

> > security of spyware protection.

> > > http://new.toolbar./toolbar/features/norton/index.php

> > >

> >

>

>

_________________________________________________________________

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_mini_pcmag_0507

[Guest guest]

Yes-my 7yr old is severely affected. My 8yr old is (now) high functioning.

> > > >

> > > > > Was wondering if anyone on here has had a negative

> > > > > Urinary porphyrin

> > > > > profiles test? (Or whatever would show no mercury?)

> > > > >

> > > > > We haven't done the test (yet) and was just curious.

> > > > > How much is the

> > > > > test now? I would like to test both kids.

> > > > >

> > > > >

> > > > > Diane

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > _____________________________________________________________________

> > > _______________

> > > > Get the free toolbar and rest assured with the added

> > > security of spyware protection.

> > > > http://new.toolbar./toolbar/features/norton/index.php

> > > >

> > >

> >

> >

>

> _________________________________________________________________

> PC Magazine's 2007 editors' choice for best Web mail—award-winning Windows

> Live Hotmail.

> http://imagine-windowslive.com/hotmail/?locale=en-

us & ocid=TXT_TAGHM_migration_HM_mini_pcmag_0507

>

[Guest guest]

>

> What are the UPP test results from NT kids? Do their test results

> show high levels of mercury also or is there a big difference

> between NT and ASD kids? I just hate to do a test like this if 80

or

> 90% of the results shows high levels of mercury whether you have

> autism or not.

>

Mark,

The results from Nataf's study are very interesting, IMO. Here's an

excerpt from the paper:

Unexpectedly, Asperger's disorder did not differ from either control

group in urinary

porphyrin levels. The biochemical distinction between Asperger's and

either autism or

autism with epilepsy group was of high statistical significance

(p<0.001). Other disorders

showing marginal porphyrin excess included allergy, attention

deficit, cerebral palsy, PDDNOS

and psychomotor retardation, but were of low statistical significance

(p>0.05) although

cerebral palsy was of marginal significance (p<0.1) versus the

internal control group.

I'm sure that parents of children with CP would be interested in

these findings, for example.

On a personal level, I just received my son's test results from the

French lab. My son, born in 2003, has received vax's on the Canadian

schedule (that would be NO mercury, according to the media and health

professionals you speak with) but after 61 rounds of chelation and

documented excretion on UTMs, UFMs, and hair tests, he was still

severely mercury and lead toxic. The test showed that we have had

some success addressing xenobiotic toxicity, which was reassuring.

Given my son's supposed exposure history and chelation history, I was

shocked at the levels of his toxicity. However, getting numbers like

this is certainly motivating to continue chelation. It also helps to

explain why he is still severely effected even after many

interventions.

There can be false negatives. Some people have found that negatives

became very high positives after a couple rounds of chelation (and

then waiting one month before testing--the recommended time).

I found it to be a very worthwhile test.

Anita

[Guest guest]

supposedly if your children have ever been chelated-the levels of mercury toxicity will be lower(altho I must say I have yet to see any mercury-except for small amounts) on any of 's tests, but he also tested moderately on the levels -after quite of bit of chelation and we are still doing it.(that is tested moderate levels on the Paris UPP> maurineAlison <helloknitty@...> wrote: :Is your 7 year-old more severe than your 8 year-old? Just wondering.Alison>From: " King" >Reply-EOHarm >EOHarm >Subject: Re: UPP Test>Date: Wed, 13 Jun 2007 17:42:59 -0000>>I don't know about NT results for children (don't have any NT kids!), but >my two

children>tested diferently. My 8yr old was mild to moderately toxic, and my 7yr old >was extremely>toxic. So I don't think that the results are always high levels. Not that >ANY levels are good!>>>>> > >> > > > Was wondering if anyone on here has had a negative> > > > Urinary porphyrin> > > > profiles test? (Or whatever would show no mercury?)> > > >> > > > We haven't done the test (yet) and was just curious.> > > > How much is the> > > > test now? I would like to test both kids.> > > >> > > >> > > > Diane> > > >> > > >> > >> > >> > >> > >> > >> >

_____________________________________________________________________> > _______________> > > Get the free toolbar and rest assured with the added> > security of spyware protection.> > > http://new.toolbar./toolbar/features/norton/index.php> > >> >>>_________________________________________________________________PC Magazine’s 2007 editors’ choice for best Web mail—award-winning Windows Live Hotmail. http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM_mini_pcmag_0507

[Guest guest]

My other grandson is NT-but does have some issues with ADHD---I am getting him upp tested next week and will let you know the results. maruineAnita <mysuperteach@...> wrote: >> What are the UPP test results from NT kids? Do their test results > show high levels of mercury also or is there a big difference > between NT and ASD

kids? I just hate to do a test like this if 80 or > 90% of the results shows high levels of mercury whether you have > autism or not.> Mark,The results from Nataf's study are very interesting, IMO. Here's an excerpt from the paper:Unexpectedly, Asperger's disorder did not differ from either control group in urinaryporphyrin levels. The biochemical distinction between Asperger's and either autism orautism with epilepsy group was of high statistical significance (p<0.001). Other disordersshowing marginal porphyrin excess included allergy, attention deficit, cerebral palsy, PDDNOSand psychomotor retardation, but were of low statistical significance (p>0.05) althoughcerebral palsy was of marginal significance (p<0.1) versus the internal control group.I'm sure that parents of children with CP would be interested in these findings, for example.On a

personal level, I just received my son's test results from the French lab. My son, born in 2003, has received vax's on the Canadian schedule (that would be NO mercury, according to the media and health professionals you speak with) but after 61 rounds of chelation and documented excretion on UTMs, UFMs, and hair tests, he was still severely mercury and lead toxic. The test showed that we have had some success addressing xenobiotic toxicity, which was reassuring. Given my son's supposed exposure history and chelation history, I was shocked at the levels of his toxicity. However, getting numbers like this is certainly motivating to continue chelation. It also helps to explain why he is still severely effected even after many interventions.There can be false negatives. Some people have found that negatives became very high positives after a couple rounds of chelation (and then waiting one month before testing--the

recommended time).I found it to be a very worthwhile test.Anita

Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out.

[Guest guest]

I have 2 NT boys that are 18 and 20 years old that had normal UPP test through Lab Corp. All 3 of my boys have high testosterone and 2 polymorphisms in the MTHFR. I did not receive RhoGAM during my first two pregnancies only the day after birth. All three boys had Rah and ABU incompatibility with their A+ blood type vs. my O- type. My middle son had RH disease which was much easier to deal with compared to ASD.

Posted by: " King" medfordkings1@... medfordkings1

Wed Jun 13, 2007 10:44 am (PST)

I don't know about NT results for children (don't have any NT kids!), but my two children tested diferently. My 8yr old was mild to moderately toxic, and my 7yr old was extremely toxic. So I don't think that the results are always high levels. Not that ANY levels are good!

[Guest guest]

I don't know..my son is not aspergers.. he is hyperlexic with verbal apraxia.. he never toe walked... hand flapped .. had normal play... potty trained himself in both areas at age 3... he was not rigid ... but had the diahrrea,.. mystery rashes... self eliminated foods... lost eye contact... I am seeing dr. Prociuk.. DAN! doctor in a couple of weeks.. I am anxious to see his UPPA results.. he is 15.. he went from eating nothing.. to a picky eater .. then to a kid.. that tries new foods and likes greens.. salads... ect...does this mean..he had the ability early on to detoxify better than some? like the aspergers? who knows... LiaSee what's free at AOL.com.

[Guest guest]

Lab Corp does not do the urinary porphyrins test

accurately!!!!! It does not test for mercury. The only

company that does it accurately is The French Lab.

Great Plains and Metametrix just offerred it and

hopefully it will be accurate....Bradstreets group is

testing the accuracy of those 2 labs.

--- Weinmaster <lweinmaster@...>

wrote:

> I have 2 NT boys that are 18 and 20 years old that

> had normal UPP test through Lab Corp. All 3 of my

> boys have high testosterone and 2 polymorphisms in

> the MTHFR. I did not receive RhoGAM during my first

> two pregnancies only the day after birth. All three

> boys had Rah and ABU incompatibility with their A+

> blood type vs. my O- type. My middle son had RH

> disease which was much easier to deal with compared

> to ASD.

> Posted by: " King " medfordkings1@...

> medfordkings1

> Wed Jun 13, 2007 10:44 am (PST)

> I don't know about NT results for children (don't

> have any NT kids!), but my two children

> tested diferently. My 8yr old was mild to moderately

> toxic, and my 7yr old was extremely

> toxic. So I don't think that the results are always

> high levels. Not that ANY levels are good!

>

________________________________________________________________________________\

____

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[Guest guest]

My “NT”

but ADHDish, sensory issue difficult PITA 4 yo had a worse UPP test than my ASD

7 yo. He was moderate to severe in mercury and lead, issues with other toxins

besides metals and also had the inflammation issues of ASD kids. I forget which

markers tell which, I don’t have it in front of me.

His vaccines were the mercury free or “trace”

vaccines, and never got flu shots like my other child. I really serious wonder

if he would have developed autism had we not started GFCF with both kids when

he was 20 months old. He had no words-NONE, and treated other kids like

objects, and rarely responded to his name. By his second b-day his language

was where it should be (I put him in speech at 18 months) and has stayed on

track ever since.

I could probably get a Dx for ADHD if I

wanted to, but we treat him biomedically anyway and homeschool so don’t

see any benefit.

Becky

Re: UPP Test

>Date: Wed, 13 Jun 2007 17:21:52 -0000

>

>What are the UPP test results from NT kids? Do their test results

>show high levels of mercury also or is there a big difference

>between NT and ASD kids? I just hate to do a test like this if 80 or

>90% of the results shows high levels of mercury whether you have

>autism or not.

>

>

>

> >

> > > Was wondering if anyone on here has had a negative

> > > Urinary porphyrin

> > > profiles test? (Or whatever would show no mercury?)

> > >

> > > We haven't done the test (yet) and was just curious.

> > > How much is the

> > > test now? I would like to test both kids.

> > >

> > >

> > > Diane

> > >

> > >

> >

> >

> >

> >

> >

>__________________________________________________________

>_______________

> > Get the free toolbar and rest assured with the added

>security of spyware protection.

> > http://new.toolbar./toolbar/features/norton/index.php

> >

>

>

__________________________________________________________

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[Guest guest]

Hi , I am very interested in this

topic. You said “Labcorp does not do the UPP test accurately”.

What can you tell me about that statement? Where did it come from? Based on

what evidence? If it’s just Bradstreet, that’s certainly not

enough, imho. So was there split samples sent to all the labs to check for

accuracy? I know that the Paris lab’s head guy states in presentations

that aspgerers don’t show up high in UPP, but when I mentioned that to my

DAN doc (because my aspie kid came back high), she said all the aspies come

back high. So, I think we are all getting some conflicting info here and I just

want to clarify this.

Thanks in advance.

Holly

From: EOHarm [mailto:EOHarm ] On Behalf Of Fund

Sent: Wednesday, June 13, 2007

5:59 PM

EOHarm

Subject: Re: Re: UPP Test

Lab Corp

does not do the urinary porphyrins test

accurately!!!!! It does not test for mercury. The only

company that does it accurately is The French Lab.

Great Plains and Metametrix just offerred it

and

hopefully it will be accurate....Bradstreets group is

testing the accuracy of those 2 labs.

--- Weinmaster <lweinmastersunflower>

wrote:

> I have 2 NT boys that are 18 and 20 years old that

> had normal UPP test through Lab Corp. All 3 of my

> boys have high testosterone and 2 polymorphisms in

> the MTHFR. I did not receive RhoGAM during my first

> two pregnancies only the day after birth. All three

> boys had Rah and ABU incompatibility with their A+

> blood type vs. my O- type. My middle son had RH

> disease which was much easier to deal with compared

> to ASD.

> Posted by: " King " medfordkings1

> medfordkings1

> Wed Jun 13, 2007 10:44 am (PST)

> I don't know about NT results for children (don't

> have any NT kids!), but my two children

> tested diferently. My 8yr old was mild to moderately

> toxic, and my 7yr old was extremely

> toxic. So I don't think that the results are always

> high levels. Not that ANY levels are good!

>

__________________________________________________________

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[Guest guest]

It's been posted on our list that Lab Corp's testing is ok, but does not interpret it for you like the french lab. I wanted to get my NT grandson tested(for the other child we used the french Lab) and had planned to go to Lab Corps. maurine Fund <susan_fund@...> wrote: Lab Corp does not do the urinary porphyrins testaccurately!!!!! It does not test for mercury. The onlycompany that does it accurately is The French Lab. Great Plains and Metametrix just offerred it

andhopefully it will be accurate....Bradstreets group istesting the accuracy of those 2 labs.--- Weinmaster <lweinmastersunflower>wrote:> I have 2 NT boys that are 18 and 20 years old that> had normal UPP test through Lab Corp. All 3 of my> boys have high testosterone and 2 polymorphisms in> the MTHFR. I did not receive RhoGAM during my first> two pregnancies only the day after birth. All three> boys had Rah and ABU incompatibility with their A+> blood type vs. my O- type. My middle son had RH> disease which was much easier to deal with compared> to ASD. > Posted by: " King" medfordkings1 > medfordkings1 > Wed Jun 13, 2007 10:44 am (PST) > I don't know about NT results for children (don't> have

any NT kids!), but my two children > tested diferently. My 8yr old was mild to moderately> toxic, and my 7yr old was extremely > toxic. So I don't think that the results are always> high levels. Not that ANY levels are good!> __________________________________________________________Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. http://mobile./go?refer=1GNXIC

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[Guest guest]

Anita;

> On a personal level, I just received my son's test results from the

> French lab. My son, born in 2003, has received vax's on the Canadian

> schedule (that would be NO mercury, according to the media and health

> professionals you speak with) but after 61 rounds of chelation and

> documented excretion on UTMs, UFMs, and hair tests, he was still

> severely mercury and lead toxic. The test showed that we have had

> some success addressing xenobiotic toxicity, which was reassuring.

> Given my son's supposed exposure history and chelation history, I was

> shocked at the levels of his toxicity. However, getting numbers like

> this is certainly motivating to continue chelation. It also helps to

> explain why he is still severely effected even after many

> interventions.

>

Is there any research establishing how the chelation protocols you have

used affect distribution, i.e. kidney vs adipose vs brain depts?

The urinary porphyrin test measures metabolites of kidney heme synthesis

and is technically only a measure of kidney burden. The rest is inferred.

- Will

[Guest guest]

Mark,

We used the French lab. My NT 8 yo daughter, who has breathing issues,

had test results " lack or slightly Mercury toxicity. " I'm 45 yo, no

remarkable health issues, with results " mildly mercury toxic effect on

bodily physiology. " My 6 yo ASD son had " noticeable mercury toxic

effect on bodily physiology. "

Randi

>

> What are the UPP test results from NT kids? Do their test results

> show high levels of mercury also or is there a big difference

> between NT and ASD kids? I just hate to do a test like this if 80 or

> 90% of the results shows high levels of mercury whether you have

> autism or not.

>

[Guest guest]

>

> Anita;

> Is there any research establishing how the chelation protocols you

have

> used affect distribution, i.e. kidney vs adipose vs brain depts?

Will,

If there is research on that specifically, I am not aware. I use the

Cutler protocol, which takes redistribution into account though. Also,

rather than 3 day rounds, I have tended to do 4,5, and 6 day rounds

with my son (making the equivalent of 64 three day rounds to date)

therefore lessening the opportunity for redistribution. I'm not sure

if that really addresses your question, but it is common knowledge that

the mercury loves fat, and as such the brain, which is why I chose the

Cutler protocol in the first place.

>

> The urinary porphyrin test measures metabolites of kidney heme

synthesis

> and is technically only a measure of kidney burden. The rest is

inferred.

Yes, I realize that. I followed the instructions of the French lab,

which was to stop chelation for one month prior to the test. Cutler,

and doctors like Rossignol, who use the porphyrin tests as guides,

recommend chelating beyond " clean " porphyrin tests for just that reason.

In my son's case, since I did follow the lab instructions for accurate

results, and he did have normal creatinine levels, I am afraid that the

inference is accurate.

Anita

>

> - Will

>