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Re: Autism Speaks - A Serious New Problem

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Is anything forming in Illinois or even Wisconsin?

> >> >

> >> > We ARE working together in a new group called ³Autism United².

> > It¹s

> >> > starting in NY and going to spread across the country like a

> > wildfire in

> >> > California.

> >> >

> >> > I¹m very excited about our Long Island walk in September.

> >> >

> >> >

> >> >

>

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Kathleen,

All of the information, including the website, is being worked on as we speak. I don’t have anything I can give you now.

I’m sure as soon as it’s available, it will be posted on EOH.

In the past I’ve said things I shouldn’t have- so this time I’m just going to wait until it’s officially announced.

Thanks,

On 6/7/07 11:03 AM, " Kathleen Anne " <child_book_writer@...> wrote:

, can you send me information on this group?

Thanks, Kathleen

The world is not yet exhausted; let me see something tomorrow which I never saw before.

-

*************************************************************************

Re: Re: Autism Speaks - A Serious New Problem

We ARE working together in a new group called “Autism United”. It’s starting in NY and going to spread across the country like a wildfire in California.

I’m very excited about our Long Island walk in September.

On 6/7/07 9:05 AM, " hhofher@... " <hhofher@...> wrote:

This is incredible. What hubris these people have to rip off the autism community, and the society at large, in such a manner.

I am sending this information out to everyone I know to make sure they know what a bunch of thieves Autism Speaks is.

$57,000 to fly a celebrity around? They should be flogged.

The only way they will be stopped is if the rest of the autism community bonds together and fights them. At the recent Autism One conference I heard a recurring theme, Unity.

The smaller groups need to work together for our common goal, to fight the Autism Speaks corporate mentality. AS and their assimilated drone CAN, have defined autism in the minds of too many in society. We must come together and redefine what has and is happening to children all over the world

My family left CAN a couple of years ago after raising many thousands for their first 2 Chicago walks. My wife and daughter worked on the 2nd Walk Now committee and were disgusted at the pettiness of some in the group. I refused to give them a penny until they acknowledged my son was damaged by the number of vaccines he got, and the toxic waste they put in those vaccines. I'm still waiting, but not holding my breath.

Harry Hofherr

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I will get a hold of .

I will do the web site if you don't have any one yet.

christine wrote:

Ginger,

So you know, Autism United is already formed. We are working on a

fundraising walk on Long Island for September 30th, 2007. So far,

there are about 10 different groups, organizations, companies, agencies

and schools who have come together for this event. Part of the money

will go back into the community. Another part is for treatment-based

research.

Contact Gilmore if you want to help. More info on this will be

posted when available.

On 6/7/07 10:32 AM, "Ginger " <lawebdesign>

wrote:

Bob Krakow of A-CHAMP is was talking

about putting together a coalition of organizations and calling it

Autism United.

If you guys are serious about this talk to him. He has put some

thought into this already.

Nanstiel wrote:

There are considerable obstacles to joining forces... and I'm not sure

that merging

organizations is the way to go... but a multi-organizational

committee can be formed that

would be goal-specific and a fund could be started for committee

initiatives.

That way, smaller organizations can remain regional and do what they do

best... but

contribute to more national concerns without losing their identities.

>

> This is incredible. What hubris these people have to rip off the

autism

> community, and the society at large, in such a manner.

>

> I am sending this information out to everyone I know to make sure

they know

> what a bunch of thieves Autism Speaks is.

>

> $57,000 to fly a celebrity around? They should be flogged.

>

> The only way they will be stopped is if the rest of the autism

community

> bonds together and fights them. At the recent Autism One

conference I heard a

> recurring theme, Unity.

>

> The smaller groups need to work together for our common goal, to

fight the

> Autism Speaks corporate mentality. AS and their assimilated drone

CAN, have

> defined autism in the minds of too many in society. We must come

together and

> redefine what has and is happening to children all over the world

>

> My family left CAN a couple of years ago after raising many

thousands for

> their first 2 Chicago walks. My wife and daughter worked on the

2nd Walk Now

> committee and were disgusted at the pettiness of some in the

group. I refused

> to give them a penny until they acknowledged my son was damaged by

the number

> of vaccines he got, and the toxic waste they put in those

vaccines. I'm still

> waiting, but not holding my breath.

>

> Harry Hofherr

>

>

>

>

>

> ************************************** See what's

free at http://www.aol.com.

>

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Perwork? Pencil dick? It still fits. LOL The world is not yet exhausted; let me see something tomorrow which I never saw before.- *************************************************************************

RE: Re: Autism Speaks - A Serious New Problem

It¢s on some of their financial papers. (not the penis part, that¢s just a mean rumor I am spreading for fun because he¢s a jerk)

From: EOHarm [mailto: EOHarm ] On Behalf Of NanstielSent: Thursday, June 07, 2007 8:36 AMEOHarm Subject: Re: Autism Speaks - A Serious New Problem

Holly, I gotta ask. How do you know? :-P>> Bell, and his tiny penis, makes $240K from AS.>

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LOLOLOLOL!

Dare I ask my sweet Holly how you come to know this information ??

(I'm not talking about the salary!!!!

Baxter's mom

>

> Bell, and his tiny penis, makes $240K from AS.

>

>

>

> _____

>

> From: EOHarm [mailto:EOHarm ] On

Behalf Of

> hcoleman

> Sent: Thursday, June 07, 2007 5:52 AM

> EOHarm

> Subject: Re: Autism Speaks - A Serious New Problem

>

>

>

> Er, we do have an idea about Bell.

>

>

>

>

>

> Autism Speaks - A Serious New Problem

>

>

>

> I am a professional that has reviewed many non profit organization's

> IRS Form 990s. Autism Speaks Form 990 raises serious red flags.

> Serious. This is all from the official filing for 2006.

>

> 1. Three members of the Board of Directors received $2.5 million for

> their own organizations.

>

> 2. The President Mark Rothmeyer, just received a 5 year contract for

> about $2,000,000 including bonuses with no prior background with

autism.

>

> 3. The grants are primarily going to those representing institutions

> that are reviewing the grants. There is no indication that these

> conflicts are independently reviewed

>

> 4. The location of this small and new foundation is in very

expensive

> downtown New York facilities rented for $200,000 by the institution

> that is run by the Chairman of Autism Speaks.

>

> 5. A expense of a Private Jet plane for $57,000 was noted. This is

> very unusual for a new non profit groups.

>

> 6. The head of the scientific review received the majority of the

> funds for 2005 for his institution for a data base - almost $3

million

>

> Since the funding is now from the public - and the advertising and

> promotion tugs at the publics heart strings with images of families

in

> need - the funds collected MUST be about those it raises the money

for.

>

> The following are all taken from the Form 990 filing

>

> Web Site $830,000

> Software for the computer $514,000

> Lawyers $440,000

> Computers $337,000

> Public relations $285,000

> Office annual rent $200,000

> HR consultant $110,000

> Editorial Consultant $76,000

> Private Jet Plane for someone that entertained $57,000

>

>

> Mark Rothmeyer* $360,000

> Bell unknown

> Alison Singer $168,000

> Mr Ringall $150,000

> Andy Shik $110,000

>

> Remember all the above also gets significant fring benefits that

> probably add.

>

> Mark Rothmayer also can get $50,000 more with a bonus a year

benefits -

>

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that should be paperwork. my keyboard is still sticky from pepsi products thanks to Kim yesterday! The world is not yet exhausted; let me see something tomorrow which I never saw before.- *************************************************************************

RE: Re: Autism Speaks - A Serious New Problem

It¢s on some of their financial papers. (not the penis part, that¢s just a mean rumor I am spreading for fun because he¢s a jerk)

From: EOHarm [mailto: EOHarm ] On Behalf Of NanstielSent: Thursday, June 07, 2007 8:36 AMEOHarm Subject: Re: Autism Speaks - A Serious New Problem

Holly, I gotta ask. How do you know? :-P>> Bell, and his tiny penis, makes $240K from AS.>

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The name should be " Autism Spends. "

That would make an interesting logo.

Co-opting pity is the American way.

Corporatize it and sell it.

- Hokkanen

>

> This is incredible. What hubris these people have to rip off the

autism

> community, and the society at large, in such a manner.

>

> I am sending this information out to everyone I know to make sure

they know

> what a bunch of thieves Autism Speaks is.

>

> $57,000 to fly a celebrity around? They should be flogged.

>

> The only way they will be stopped is if the rest of the autism

community

> bonds together and fights them. At the recent Autism One conference

I heard a

> recurring theme, Unity.

>

> The smaller groups need to work together for our common goal, to

fight the

> Autism Speaks corporate mentality. AS and their assimilated drone

CAN, have

> defined autism in the minds of too many in society. We must come

together and

> redefine what has and is happening to children all over the world

>

> My family left CAN a couple of years ago after raising many

thousands for

> their first 2 Chicago walks. My wife and daughter worked on the 2nd

Walk Now

> committee and were disgusted at the pettiness of some in the

group. I refused

> to give them a penny until they acknowledged my son was damaged by

the number

> of vaccines he got, and the toxic waste they put in those

vaccines. I'm still

> waiting, but not holding my breath.

>

> Harry Hofherr

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

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And otherwise never get anything done.

Re: Autism Speaks - A Serious New Problem

The name should be "Autism Spends."That would make an interesting logo.Co-opting pity is the American way. Corporatize it and sell it.- Hokkanen>> This is incredible. What hubris these people have to rip off the autism > community, and the society at large, in such a manner. > > I am sending this information out to everyone I know to make sure they know > what a bunch of thieves Autism Speaks is. > > $57,000 to fly a celebrity around? They should be flogged. > > The only way they will be stopped is if the rest of the autism community > bonds together and fights them. At the recent Autism One conference I heard a > recurring theme, Unity.> > The smaller groups need to work together for our common goal, to fight the > Autism Speaks corporate mentality. AS and their assimilated drone CAN, have > defined autism in the minds of too many in society. We must come together and > redefine what has and is happening to children all over the world> > My family left CAN a couple of years ago after raising many thousands for > their first 2 Chicago walks. My wife and daughter worked on the 2nd Walk Now > committee and were disgusted at the pettiness of some in the group. I refused > to give them a penny until they acknowledged my son was damaged by the number > of vaccines he got, and the toxic waste they put in those vaccines. I'm still > waiting, but not holding my breath.> > Harry Hofherr> > > > > > ************************************** See what's free at http://www.aol.com.>

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Who here can run real fast?

Col

> >

> > Wonder what they would do if we put this information on a flyer and

> passed it out at their fundraisers? Oh, but that would be sweet!

> > Kathleen

> >

> > The world is not yet exhausted; let me see something tomorrow which

> I never saw before.

> > -

> >

> >

> *************************************************************************

> >

> >

> >

> > Autism Speaks - A Serious New Problem

> >

> >

> > I am a professional that has reviewed many non profit organization's

> > IRS Form 990s. Autism Speaks Form 990 raises serious red flags.

> > Serious. This is all from the official filing for 2006.

> >

> > 1. Three members of the Board of Directors received $2.5 million for

> > their own organizations.

> >

> > 2. The President Mark Rothmeyer, just received a 5 year contract for

> > about $2,000,000 including bonuses with no prior background with autism.

> >

> > 3. The grants are primarily going to those representing institutions

> > that are reviewing the grants. There is no indication that these

> > conflicts are independently reviewed

> >

> > 4. The location of this small and new foundation is in very expensive

> > downtown New York facilities rented for $200,000 by the institution

> > that is run by the Chairman of Autism Speaks.

> >

> > 5. A expense of a Private Jet plane for $57,000 was noted. This is

> > very unusual for a new non profit groups.

> >

> > 6. The head of the scientific review received the majority of the

> > funds for 2005 for his institution for a data base - almost $3 million

> >

> > Since the funding is now from the public - and the advertising and

> > promotion tugs at the publics heart strings with images of families in

> > need - the funds collected MUST be about those it raises the money for.

> >

> > The following are all taken from the Form 990 filing

> >

> >

> >

> > Web Site $830,000

> > Software for the computer $514,000

> > Lawyers $440,000

> > Computers $337,000

> > Public relations $285,000

> > Office annual rent $200,000

> > HR consultant $110,000

> > Editorial Consultant $76,000

> > Private Jet Plane for someone that entertained $57,000

> >

> >

> > Mark Rothmeyer* $360,000

> > Bell unknown

> > Alison Singer $168,000

> > Mr Ringall $150,000

> > Andy Shik $110,000

> >

> > Remember all the above also gets significant fring benefits that

> > probably add.

> >

> > Mark Rothmayer also can get $50,000 more with a bonus a year benefits –

> >

> >

> >

> >

> >

> >

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I, for one, was pretty bothered by CAN having a booth at the DAN

conference last spring (06).

I don't know if they were there this year, too, but it seems to me that

they raise a lot of money for research and don't put it toward environmental

research, but then they take advantage of a DAN conference to get their

name out there and get support from the very parents who want the kind

of research they aren't doing.

Col

>

> My family left CAN a couple of years ago after raising many thousands for

> their first 2 Chicago walks. My wife and daughter worked on the 2nd Walk Now

> committee and were disgusted at the pettiness of some in the group. I refused

> to give them a penny until they acknowledged my son was damaged by the number

> of vaccines he got, and the toxic waste they put in those vaccines. I'm still

> waiting, but not holding my breath.

>

> Harry Hofherr

>

>

>

>

>

> ************************************** See what's free at http://www.aol.com.

>

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I think they hit about every school in the country.

Our school was hit up for donations for the second year in a row. The kids, 5th

and 6th

graders, were asked to bring in money if they wanted to donate to AS.

A woman was there to 'educate' the kids on autism and my daughter said that the

woman

told them that autism is genetic.

My daughter began to laugh outloud.

Good girl!

Col

>

> And to think of how they trolled my son's very small, modest, non-profit

> school for donations..

>

>

>

> We need centers set up around the country NOW to medically treat our

> children. Parents shouldn't have to travel long distances to see a

> well-trained DAN! doctor. And they shouldn't have to pay for the medical

> treatment out of pocket when they have insurance. Cue the theme from " The

> Twilight Zone. "

>

>

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no courage unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

>

>

> _____

>

> From: EOHarm [mailto:EOHarm ] On Behalf Of

> autisminsider

> Sent: Thursday, June 07, 2007 12:37 AM

> EOHarm

> Subject: Autism Speaks - A Serious New Problem

>

>

>

> I am a professional that has reviewed many non profit organization's

> IRS Form 990s. Autism Speaks Form 990 raises serious red flags.

> Serious. This is all from the official filing for 2006.

>

> 1. Three members of the Board of Directors received $2.5 million for

> their own organizations.

>

> 2. The President Mark Rothmeyer, just received a 5 year contract for

> about $2,000,000 including bonuses with no prior background with autism.

>

> 3. The grants are primarily going to those representing institutions

> that are reviewing the grants. There is no indication that these

> conflicts are independently reviewed

>

> 4. The location of this small and new foundation is in very expensive

> downtown New York facilities rented for $200,000 by the institution

> that is run by the Chairman of Autism Speaks.

>

> 5. A expense of a Private Jet plane for $57,000 was noted. This is

> very unusual for a new non profit groups.

>

> 6. The head of the scientific review received the majority of the

> funds for 2005 for his institution for a data base - almost $3 million

>

> Since the funding is now from the public - and the advertising and

> promotion tugs at the publics heart strings with images of families in

> need - the funds collected MUST be about those it raises the money for.

>

> The following are all taken from the Form 990 filing

>

> Web Site $830,000

> Software for the computer $514,000

> Lawyers $440,000

> Computers $337,000

> Public relations $285,000

> Office annual rent $200,000

> HR consultant $110,000

> Editorial Consultant $76,000

> Private Jet Plane for someone that entertained $57,000

>

>

> Mark Rothmeyer* $360,000

> Bell unknown

> Alison Singer $168,000

> Mr Ringall $150,000

> Andy Shik $110,000

>

> Remember all the above also gets significant fring benefits that

> probably add.

>

> Mark Rothmayer also can get $50,000 more with a bonus a year benefits -

>

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CAN went to the DAN! conference to sign up families for genetic

studies and to do PR for Autism Speaks - not to talk about the purpose

of the conference - TREATMENT NOW!

Bernie Rimland banned CAN for many years from attending the DAN

conference. He would BAN them today if he were alive.

Bernie was not easily fooled.

Bell head of CAN - took his son to DAN! doctors for his medical

problems - he is much better. This is good news and common.

He is now earning from AUTISM SPEAKS $240,000 and will not talk about

his own son's treatment success. His background is a middle manager

from the pharmaceutical industry. He could learn from

It should be called CAN PETER SPEAK!

By the way he is in change of parent relations - this means you (not

advocacy)

Autism Speaks will adjust their PR - they have the best PR firm in the

world and pay them $25,000 a month to spin messages. Look for the spin

in the next few months.

The public will never know - what you know - or what you want.

> >

> > My family left CAN a couple of years ago after raising many

thousands for

> > their first 2 Chicago walks. My wife and daughter worked on the

2nd Walk Now

> > committee and were disgusted at the pettiness of some in the

group. I refused

> > to give them a penny until they acknowledged my son was damaged

by the number

> > of vaccines he got, and the toxic waste they put in those

vaccines. I'm still

> > waiting, but not holding my breath.

> >

> > Harry Hofherr

> >

> >

> >

> >

> >

> > ************************************** See what's free at

http://www.aol.com.

> >

>

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Any of our 5-9 year old children.

Autism Speaks - A Serious New Problem> > > > > > I am a professional that has reviewed many non profit organization's> > IRS Form 990s. Autism Speaks Form 990 raises serious red flags.> > Serious. This is all from the official filing for 2006.> > > > 1. Three members of the Board of Directors received $2.5 million for> > their own organizations. > > > > 2. The President Mark Rothmeyer, just received a 5 year contract for> > about $2,000,000 including bonuses with no prior background with autism.> > > > 3. The grants are primarily going to those representing institutions> > that are reviewing the grants. There is no indication that these> > conflicts are independently reviewed> > > > 4. The location of this small and new foundation is in very expensive> > downtown New York facilities rented for $200,000 by the institution> > that is run by the Chairman of Autism Speaks.> > > > 5. A expense of a Private Jet plane for $57,000 was noted. This is> > very unusual for a new non profit groups.> > > > 6. The head of the scientific review received the majority of the> > funds for 2005 for his institution for a data base - almost $3 million> > > > Since the funding is now from the public - and the advertising and> > promotion tugs at the publics heart strings with images of families in> > need - the funds collected MUST be about those it raises the money for.> > > > The following are all taken from the Form 990 filing> > > > > > > > Web Site $830,000 > > Software for the computer $514,000 > > Lawyers $440,000 > > Computers $337,000 > > Public relations $285,000> > Office annual rent $200,000 > > HR consultant $110,000 > > Editorial Consultant $76,000 > > Private Jet Plane for someone that entertained $57,000 > > > > > > Mark Rothmeyer* $360,000 > > Bell unknown> > Alison Singer $168,000 > > Mr Ringall $150,000 > > Andy Shik $110,000 > > > > Remember all the above also gets significant fring benefits that> > probably add.> > > > Mark Rothmayer also can get $50,000 more with a bonus a year benefits – > > > > > > > > > > > >

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Man, this is one busy list. I got knocked off line most of yesterday, and again this morning, due to the heavy winds blowing through the Windy City. Catching up with all the digests is a daunting task, especially when one has work to do as well.

Anyway, I'm thrilled that Autism United is going to be announced next week. I heard Bob Krackow talk about it at A1 and the need to counter the pharmaceutical/medical industry propaganda of Autism Speaks. It can't come soon enough.

The way I see it AS has defined too many of the words we use to describe our autism world. I especially fear they are writing the definition of the word "environmental" to exclude the most obvious, and detrimental, environmental assault, vaccines.

A coalition of groups under the banner of Autism United is probably the only way we can fight them. We need to sit at the table and rewrite the definitions to include the scientific facts, and I don't mean the computer science.

Harry HofherrSee what's free at AOL.com.

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Harry - I have said in the past, and I can't reiterate enough that no respectable person speaking of autism should ever use the word "environmental" with attaching the word "toxin" to it. Otherwise, it could mean that a child became autistic because of the way his mother arranged the furniture. Please, always be sure to clarify when you discuss this with anyone.Roxhhofher@... wrote: Man, this is one busy list. I got knocked off line most of

yesterday, and again this morning, due to the heavy winds blowing through the Windy City. Catching up with all the digests is a daunting task, especially when one has work to do as well. Anyway, I'm thrilled that Autism United is going to be announced next week. I heard Bob Krackow talk about it at A1 and the need to counter the pharmaceutical/medical industry propaganda of Autism Speaks. It can't come soon enough. The way I see it AS has defined too many of the words we use to describe our autism world. I especially fear they are writing the definition of the word "environmental" to exclude the most obvious, and detrimental, environmental assault, vaccines. A coalition of groups under the banner of Autism United is probably the only way we can fight them. We need to sit at the table and rewrite the definitions to include the

scientific facts, and I don't mean the computer science. Harry HofherrSee what's free at AOL.com.

Shape in your own image. Join our Network Research Panel today!

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