RE: AS edited their statement

[Guest guest]

wow... I hope katie can get around with the knife in her back... I feel very bad for her... I always thought one can count on their own parents .. at least.. LiaSee what's free at AOL.com.

[Guest guest]

wrote:

They probably gave her the smack down. My guess is this is the lastinterview you'll see from her where she speaks her mind. Once bitten,twice shy.Then again, it depends on the person. For some it only strengthensthe resolve to speak out and be heard.------------------------------------------------------------------------------------------------------------------------------------------

It is too bad that Don Imus has been silenced by NBC. However, we can all take some comfort in knowing that Diedre Imus has joined on the board of (correct me if I am wrong) NAA.

In fact, if I had to choose between having Bob and or Diedre Imus in my foxhole when the going got rough, I would choose Diedre every time.

See what's free at AOL.com.

[Guest guest]

Oh geez.... I imagine what happened is that the NAAR creeps went

crying to the s to complain about their evil daughter, .

The s felt the need to distance themselves from the evil

due to the pressure put upon them from the " creeps " . They then

realized (or were told by their daughter) that their original message

(probably done in haste) made them look as if they were not

supportive of their daughter's views and/or made look foolish.

In order to remedy that situation... They change their message to

assure everyone that is loved. Phew! I do feel a little bit

better if only because I would hate to have a huge family war going

on here. People need their moms and dads if at all possible.

I do have to agree with your ROFL! comment though... This would make

a great soap opera.

I loved 's interview with . I really hope that she doesn't

regret doing it now

>

> ROFL!!!!!!! After we sent it out on the listserv, they edited the

1st

> paragraph!! (Of course, now I'm being accused of editing their

> statement, which is BS)

>

> New statement:

> is not a spokesperson for Autism Speaks. She is our

> daughter and we love her very much. Many of 's personal views

> differ from ours and do not represent or reflect the ongoing mission

> of Autism Speaks. Her appearance with Kirby was done without

the

> knowledge or consent of Autism Speaks.

>

> Old statement:

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby

was

> done without the knowledge or consent of Autism Speaks.

>

[Guest guest]

They probably gave her the smack down. My guess is this is the last

interview you'll see from her where she speaks her mind. Once bitten,

twice shy.

Then again, it depends on the person. For some it only strengthens

the resolve to speak out and be heard.

> >

> > ROFL!!!!!!! After we sent it out on the listserv, they edited the

> 1st

> > paragraph!! (Of course, now I'm being accused of editing their

> > statement, which is BS)

> >

> > New statement:

> > is not a spokesperson for Autism Speaks. She is our

> > daughter and we love her very much. Many of 's personal views

> > differ from ours and do not represent or reflect the ongoing mission

> > of Autism Speaks. Her appearance with Kirby was done without

> the

> > knowledge or consent of Autism Speaks.

> >

> > Old statement:

> > is not a spokesperson for Autism Speaks. Our daughter's

> > personal views differ from ours and do not represent or reflect the

> > ongoing mission of Autism Speaks. Her appearance with Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

>

[Guest guest]

Yep, 's mom and dad are being strong-armed.

> >

> > ROFL!!!!!!! After we sent it out on the listserv, they edited

the

> 1st

> > paragraph!! (Of course, now I'm being accused of editing their

> > statement, which is BS)

> >

> > New statement:

> > is not a spokesperson for Autism Speaks. She is our

> > daughter and we love her very much. Many of 's personal views

> > differ from ours and do not represent or reflect the ongoing

mission

> > of Autism Speaks. Her appearance with Kirby was done

without

> the

> > knowledge or consent of Autism Speaks.

> >

> > Old statement:

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect

the

> > ongoing mission of Autism Speaks. Her appearance with Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

>

[Guest guest]

It would be interesting if came out with her own statement on

NAA website.

> > >

> > > ROFL!!!!!!! After we sent it out on the listserv, they edited

the

> > 1st

> > > paragraph!! (Of course, now I'm being accused of editing their

> > > statement, which is BS)

> > >

> > > New statement:

> > > is not a spokesperson for Autism Speaks. She is our

> > > daughter and we love her very much. Many of 's personal

views

> > > differ from ours and do not represent or reflect the ongoing

mission

> > > of Autism Speaks. Her appearance with Kirby was done

without

> > the

> > > knowledge or consent of Autism Speaks.

> > >

> > > Old statement:

> > > is not a spokesperson for Autism Speaks. Our

daughter's

> > > personal views differ from ours and do not represent or reflect

the

> > > ongoing mission of Autism Speaks. Her appearance with

Kirby

> > was

> > > done without the knowledge or consent of Autism Speaks.

> > >

> >

>

[Guest guest]

The PR firm that produced the statement forgot that parents should

express love for their children in public statements.

This is a public relations production produced by one of the best and

most expensive PR firms in the world. It is a corporate maneuver that

reflects an attempt to quell internal conflict in the organization.

On Jun 2, 2007, at 3:23 PM, autismlink wrote:

ROFL!!!!!!! After we sent it out on the listserv, they edited the 1st

paragraph!! (Of course, now I'm being accused of editing their

statement, which is BS)

New statement:

is not a spokesperson for Autism Speaks. She is our

daughter and we love her very much. Many of 's personal views

differ from ours and do not represent or reflect the ongoing mission

of Autism Speaks. Her appearance with Kirby was done without the

knowledge or consent of Autism Speaks.

Old statement:

is not a spokesperson for Autism Speaks. Our daughter's

personal views differ from ours and do not represent or reflect the

ongoing mission of Autism Speaks. Her appearance with Kirby was

done without the knowledge or consent of Autism Speaks.

[Guest guest]

If anyone is interested, we got alot of feedback on this subject on

the listserv. It's all posted. (Even the ones that told me I'm a jerk.)

http://www.autismlink.com/pages/editorials/

>

> ROFL!!!!!!! After we sent it out on the listserv, they edited the 1st

> paragraph!! (Of course, now I'm being accused of editing their

> statement, which is BS)

>

> New statement:

> is not a spokesperson for Autism Speaks. She is our

> daughter and we love her very much. Many of 's personal views

> differ from ours and do not represent or reflect the ongoing mission

> of Autism Speaks. Her appearance with Kirby was done without the

> knowledge or consent of Autism Speaks.

>

> Old statement:

> is not a spokesperson for Autism Speaks. Our daughter's

> personal views differ from ours and do not represent or reflect the

> ongoing mission of Autism Speaks. Her appearance with Kirby was

> done without the knowledge or consent of Autism Speaks.

>

[Guest guest]

We need to rely on ourselves to make the case for environmental/vaccine

research, not celebrities or people with notoriety. Statements by

highly visible persons help to some extent, but if we don't organize

ourselves to get what we want, we will never get what we need.

On Jun 2, 2007, at 4:07 PM, autismlink wrote:

They probably gave her the smack down. My guess is this is the last

interview you'll see from her where she speaks her mind. Once bitten,

twice shy.

Then again, it depends on the person. For some it only strengthens

the resolve to speak out and be heard.

> >

> > ROFL!!!!!!! After we sent it out on the listserv, they edited the

> 1st

> > paragraph!! (Of course, now I'm being accused of editing their

> > statement, which is BS)

> >

> > New statement:

> > is not a spokesperson for Autism Speaks. She is our

> > daughter and we love her very much. Many of 's personal views

> > differ from ours and do not represent or reflect the ongoing

mission

> > of Autism Speaks. Her appearance with Kirby was done without

> the

> > knowledge or consent of Autism Speaks.

> >

> > Old statement:

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect the

> > ongoing mission of Autism Speaks. Her appearance with Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

>

[Guest guest]

They are grown-ups. They are grandparents. They are worldly and

successful people. Do not make excuses for them or anyone. They are

powerful enough to handle themselves. Either they stand up or they

don't. We all get strong-armed in life. The test of our character is

how we stand up to being strong-armed. If certain individuals do not

stand up for what we want, then it is fair to conclude that they do not

share our beliefs. Take their statements at face value and then move

forward to counter those statements and promote your principled

beliefs.

We all have power, but not if we keep looking to others to get the job

done. We need to do it ourselves.

On Jun 2, 2007, at 5:15 PM, markautismcharge wrote:

Yep, 's mom and dad are being strong-armed.

> >

> > ROFL!!!!!!! After we sent it out on the listserv, they edited

the

> 1st

> > paragraph!! (Of course, now I'm being accused of editing their

> > statement, which is BS)

> >

> > New statement:

> > is not a spokesperson for Autism Speaks. She is our

> > daughter and we love her very much. Many of 's personal views

> > differ from ours and do not represent or reflect the ongoing

mission

> > of Autism Speaks. Her appearance with Kirby was done

without

> the

> > knowledge or consent of Autism Speaks.

> >

> > Old statement:

> > is not a spokesperson for Autism Speaks. Our

daughter's

> > personal views differ from ours and do not represent or reflect

the

> > ongoing mission of Autism Speaks. Her appearance with Kirby

> was

> > done without the knowledge or consent of Autism Speaks.

> >

>

[Guest guest]

Hear Hear!! I do believe you have honed in on one of our biggest problems:

organizing ourselves. AS is extremely efficient. But money does not

necessarily answer the question of how to get all you bright, talented, and

powerful personalities to work in tandem.

Sometimes I feel like that ditzy mother in " Poppins " - The father is

going on and on about how the home should be run like the British Empire,

etc. and she says " Dear- it's about the children! " . And he says " Yes, yes,

yes. . . now where was I? " .

But you know, we can do this. And we ARE doing it.

Alison

>From: Krakow <rkrakow@...>

>Reply-EOHarm

>EOHarm

>Subject: Re: Re: AS edited their statement

>Date: Sat, 02 Jun 2007 17:52:59 -0400

>

>We need to rely on ourselves to make the case for environmental/vaccine

>research, not celebrities or people with notoriety. Statements by highly

>visible persons help to some extent, but if we don't organize ourselves to

>get what we want, we will never get what we need.

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[Guest guest]

What needs now is our support.

And she has that all in spades!

Re: AS edited their statement

Oh geez.... I imagine what happened is that the NAAR creeps went crying to the s to complain about their evil daughter, . The s felt the need to distance themselves from the evil due to the pressure put upon them from the "creeps". They then realized (or were told by their daughter) that their original message (probably done in haste) made them look as if they were not supportive of their daughter's views and/or made look foolish. In order to remedy that situation... They change their message to assure everyone that is loved. Phew! I do feel a little bit better if only because I would hate to have a huge family war going on here. People need their moms and dads if at all possible. I do have to agree with your ROFL! comment though... This would make a great soap opera. I loved 's interview with . I really hope that she doesn't regret doing it now >> ROFL!!!!!!! After we sent it out on the listserv, they edited the 1st> paragraph!! (Of course, now I'm being accused of editing their> statement, which is BS)> > New statement:> is not a spokesperson for Autism Speaks. She is our> daughter and we love her very much. Many of 's personal views> differ from ours and do not represent or reflect the ongoing mission> of Autism Speaks. Her appearance with Kirby was done without the> knowledge or consent of Autism Speaks.> > Old statement:> is not a spokesperson for Autism Speaks. Our daughter's> personal views differ from ours and do not represent or reflect the> ongoing mission of Autism Speaks. Her appearance with Kirby was> done without the knowledge or consent of Autism Speaks.>

[Guest guest]

's foreward in "Changing the Course of Autism" is a pretty big statement...they could easily include that.

-------------- Original message -------------- From: "markautismcharge" <mark.connolly.cgb5@...>

It would be interesting if came out with her own statement on NAA website.> > >> > > ROFL!!!!!!! After we sent it out on the listserv, they edited the > > 1st> > > paragraph!! (Of course, now I'm being accused of editing their> > > statement, which is BS)> > > > > > New statement:> > > is not a spokesperson for Autism Speaks. She is our> > > daughter and we love her very much. Many of 's personal views> > > differ from ours and do not represent or reflect the ongoing mission> > > of Autism Speaks. Her appearance with Kirby was done without > > the> > > knowledge or consent of Autism Speaks.> > > > > > Old statement:> > > is not a spokesperson for Autism Speaks. Our daugh

ter's> > > personal views differ from ours and do not represent or reflect the> > > ongoing mission of Autism Speaks. Her appearance with Kirby > > was> > > done without the knowledge or consent of Autism Speaks.> > >> >>