Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi, I am trying to get as much research on Pfapas as possible. My 15mth old daughter has been getting sick every 2-3 weeks for the past 6 months and I have been fed up with my Dr. telling me it was just a virus. I finally made him listen and he agreed once he reviewed her chart that something is wrong. He doesn't have any answers for me so he is sending me to Childrens Hospital in PA, he suggested that she may have Pfapas but he isn't very familiar with it so I have been doing research and from what I have learned it fits my daughters symptoms exactly. I was both relieved and still upset if this does turn out to be what is wrong. I will be glad that she doesn't have something life threatning yet at the same time this can be so disabling to someone who has this especially if it continues for years. If anyone has any suggestions for me during this time I would appreciate it. I just want some answers!!!!!!!!!!!!!!! Tammielee --------------------------------- Sneak preview the all-new .com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
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