Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 a The study at NIH is wonderful. Qualifications is a diagnosis of Periodic Fever Syndrome. of some sort! If your child already has been seen and diagnosed with probable they would qualify. There is a long waiting list and may take months to get in. You complete paperwork sent to you by Plass the Research RN and need to fax a letter from your pediatrician or specialist indicating the periodic fevers. Along with this you need to get pertinent lab data done during febrile episodes as well as in between and send that. Then you wait. Email for is plassn@... Also go to the file sections and bookmarks and you will find the actual study information. read read read. Fran A Bulone Mom to ph 7 yrs old Waxhaw, NC Owner & Moderator Group <> __ Quote Link to comment Share on other sites More sharing options...
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