Guest guest Posted June 28, 2005 Report Share Posted June 28, 2005 Thank you to everyone that responded to all my questions. Some of you mentioned that my son should be tested for " genetic " diseases. Does anyone have such a list so I can give it to our ID Doctor? I know he had asked me what our background is ... german, turkish, etc. and he also asked if we have any genetic diseases; however, never mentioned possibly checking into any of the genetic stuff. Are they able to test for genetic diseases via the blood or will he have to undergo more invasive procedures? I do have another question ... when this hits, does it actually make the wbc look as though the child has a virus? He's had tons of bloodwork done in the past and many times they came back saying he had a virus; however, there were also a lot of times they'd come back saying it was bacterial. For those of you with children in school, does anyone have a letter they use to describe this condition to the school officials and how do you have it handled should your child begin with fever during school hours? My son could have began kindergarten this Fall; however, we decided to not send him until the following year. I do know that I will need to get a Section 504 Plan in place, but was wondering how the school needs to handle the fevers, etc. Lastly, what is difference between a canker sore and ulcers? My son gets a mouthful of ulcers; however, I've heard others on this list mention canker sores. They sound even worse. I also find it difficult to deal with family/friends/co-workers on how often Mason gets sick with these fevers ... not to mention his other health issues. They don't seem to understand how tired and exhausting it all can be for not only me but my entire family. My daughters really don't ever get jealous over all the attention he receives; however, we make sure to also get our one-on-one time with our girls. We also keep them involved in his care which makes them feel important -- especially when its them he wants to have near him for comfort. Heidi Mommy of Mason, almost 5 years old, rectal myectomy 8/03, sigmoid colon resection to correct sigmoid volvulus 9/03, triple polypectomy 7/04, acid reflux, asthma, chronic constipation, and now possibly or cyclic neutropenia , 11 years old Amber, 9 years old and also asthmatic, anaphylactic and hearing loss and happily married to of 12 years burg, Pennsylvania Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.