Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 My son started fevering on Boxing Day after a break of eight weeks. We gave him 30mg of Prednisone as we had a family party to get through the following day. We have it in hand to cope with 'occasions' such as birthdays, holidays and Christmas. The fever stopped after half an hour (as was expected) but came back with a vengeance two days later - it is almost worse than ever and we have been dealing with this for nearly three years. Our experience with Prednisone is that it brings the attacks closer together, but a break of just two days is awful. Has this happened to anyone else? Coralie, mother to Henry (age 3, diagnosed with probable ) London, UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi, My daughters both have HIDs which is different from . but it seems to respond similarily to prednisone. My daughters always need 2 doses on 2 consecutive days (1mg/kg on day 1 then 1/2 mg/kg on day 2) to keep their fevers from coming back. Hana started fevering on Dec 23 so we dosed her as usual. Since all the symptoms disappeared completely, I made the very unwise decision to not give her the second dose. Then on Christmas day, she started the fever again and I had forgotten the prednisone back in NJ. (we went to my folk's cabin in upstate NY for Xmas) Needless to say, Christmas was over abruptly for all of us. I recommend you try the 2 dose method. Although it's not for everyone, prednisone has given us incredible relief and some more normalcy in our lives. (not complete normalcy, mind you, but at least SOME!) Good Luck! WIlke > > My son started fevering on Boxing Day after a break of eight weeks. > We gave him 30mg of Prednisone as we had a family party to get > through the following day. We have it in hand to cope > with 'occasions' such as birthdays, holidays and Christmas. The > fever stopped after half an hour (as was expected) but came back > with a vengeance two days later - it is almost worse than ever and > we have been dealing with this for nearly three years. Our > experience with Prednisone is that it brings the attacks closer > together, but a break of just two days is awful. Has this happened > to anyone else? > > Coralie, mother to Henry (age 3, diagnosed with probable ) > London, UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hi Coralie, Sorry to hear that your child was sick over the holiday. There is no good time for the children to be sick but somehow it's worse over the holidays. I was told by a pediatric Rheumatologist at Shriners who knows about to give your child the prednisone when your child is the sickest. So when your child's temperature is at the highest and he is throwing up and feeling the absolute worst, that is when you give it to them. I was told that timing is everything when administering the prednisone. When given at the right time, it will completely knock it out. I try to give the pred at the right time. Sometimes I miss the mark. If I give it too soon then it just prolongs it and he will get sick a few days later. He may not be as sick, but you can tell that he isn't feeling good. If I give it to him too late, it helps but again, it doesn't knock it out. I hope this helps and that you have a good new year. Beverly Roseville, CA : Prednisone > > > My son started fevering on Boxing Day after a break of eight weeks. > We gave him 30mg of Prednisone as we had a family party to get > through the following day. We have it in hand to cope > with 'occasions' such as birthdays, holidays and Christmas. The > fever stopped after half an hour (as was expected) but came back > with a vengeance two days later - it is almost worse than ever and > we have been dealing with this for nearly three years. Our > experience with Prednisone is that it brings the attacks closer > together, but a break of just two days is awful. Has this happened > to anyone else? > > Coralie, mother to Henry (age 3, diagnosed with probable ) > London, UK > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Hi, Breana is a little different than the 'average ' child. But the Prednisone increased her fevers also. She went from every 25 days to every 12 days. But Breana's fevers also responded to the Prednisone very quickly 107.6 to 101-99 within 45 minutes. BUT she had to take it for 6 days with weaning of the dose on the 4th day. So while she responded to the Prednisone she also did not follow the normal kids course with Prednisone. Many of the families on this board have reported an increase in frequency from the Prednisone. Hope this helps! mom to Breana 4 and 14! : Prednisone My son started fevering on Boxing Day after a break of eight weeks. We gave him 30mg of Prednisone as we had a family party to get through the following day. We have it in hand to cope with 'occasions' such as birthdays, holidays and Christmas. The fever stopped after half an hour (as was expected) but came back with a vengeance two days later - it is almost worse than ever and we have been dealing with this for nearly three years. Our experience with Prednisone is that it brings the attacks closer together, but a break of just two days is awful. Has this happened to anyone else? Coralie, mother to Henry (age 3, diagnosed with probable ) London, UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 AHHHHHH I am so sorry for your xmas ending. Been there and done that and I am sure will proberly do it again! TRacy Re: : Prednisone Hi, My daughters both have HIDs which is different from . but it seems to respond similarily to prednisone. My daughters always need 2 doses on 2 consecutive days (1mg/kg on day 1 then 1/2 mg/kg on day 2) to keep their fevers from coming back. Hana started fevering on Dec 23 so we dosed her as usual. Since all the symptoms disappeared completely, I made the very unwise decision to not give her the second dose. Then on Christmas day, she started the fever again and I had forgotten the prednisone back in NJ. (we went to my folk's cabin in upstate NY for Xmas) Needless to say, Christmas was over abruptly for all of us. I recommend you try the 2 dose method. Although it's not for everyone, prednisone has given us incredible relief and some more normalcy in our lives. (not complete normalcy, mind you, but at least SOME!) Good Luck! WIlke > > My son started fevering on Boxing Day after a break of eight weeks. > We gave him 30mg of Prednisone as we had a family party to get > through the following day. We have it in hand to cope > with 'occasions' such as birthdays, holidays and Christmas. The > fever stopped after half an hour (as was expected) but came back > with a vengeance two days later - it is almost worse than ever and > we have been dealing with this for nearly three years. Our > experience with Prednisone is that it brings the attacks closer > together, but a break of just two days is awful. Has this happened > to anyone else? > > Coralie, mother to Henry (age 3, diagnosed with probable ) > London, UK Quote Link to comment Share on other sites More sharing options...
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