Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Hello everyone, My name is mother of Jocelyn(possible ). Jocelyn had been being seen for months now for recurring fever, swollen lymphnodes and occassional mouth ulcers. Some of the doctors have been great where others have treated me like I'm some kind of crazy mother. Jocelyn was recently addmitted to the hospital because of fever, swollen nodes and upperback pain. Here blood counts (ESR, C-reactive protein and Lymphs) were all elevated and back pain in young children I was told is not normal so they sent her for bone scans. All were negative. We had the chance to see an Infectious Disease doctor who went through Jocelyns history and told us about . Most of the other docs had never heard of this. I was told to keep a journal of her fever and symptoms and he ordered a lot of other blood tests to rule out other possible diseases. We are now patiently waiting for all of these tests to come back before a diagnosis is made. The ID doc says he is certain that this is what she has. I am so happy to have found this site with all of this great info!!! San TX Quote Link to comment Share on other sites More sharing options...
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