RE: visits to pediatrician during fevers

[Guest guest]

Even though we don't have a dx yet, our peds doc wants our son in

when he is having a fever if for no other reason than to make sure

there isn't something else that could be causing the fever.

God bless,

a

>

> Hello,

>

> My daughter Carina is due to have her fifth fever episode on July

> fifth. She is taking cimetidine so hopefully we'll get lucky and

it

> won't happen this time. My question is should my local

pediatrician

> be seeing Carina during each episode. During her last episode, my

> pediatrician felt to was unneccesary to see her. I'm wondering if

> this is typical. We're new to this, so we certainly don't have a

> definite diagnosis. I was just surprised the doctor wouldn't want

to

> see her to make sure there weren't new symptoms, check her spleen

etc.

> (So far her spleen has never been enlarged.)

>

> Thank you and best wishes,

> Carmela

> mother of Carina 3 1/2 ??

>

[Guest guest]

ABSOLUTELY insist that your PED see her during a flare-AND be sure to tell them

you want labs done!!! This is pertinent information when being seen by a

specialist, and especially at the NIH. Dr. Kastner likes very much to have labs

drawn during a flare.....don't give up, insist that your child be seen.

Lori

carmelaanng <carmela_ann@...> wrote:

Hello,

My daughter Carina is due to have her fifth fever episode on July

fifth. She is taking cimetidine so hopefully we'll get lucky and it

won't happen this time. My question is should my local pediatrician

be seeing Carina during each episode. During her last episode, my

pediatrician felt to was unneccesary to see her. I'm wondering if

this is typical. We're new to this, so we certainly don't have a

definite diagnosis. I was just surprised the doctor wouldn't want to

see her to make sure there weren't new symptoms, check her spleen etc.

(So far her spleen has never been enlarged.)

Thank you and best wishes,

Carmela

mother of Carina 3 1/2 ??

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

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[Guest guest]

Once we were diagnosed. We wait the 3 day rule. Because by day 3, the fevers

start to go down or more undercontrol. And, i know it is one of her usual

fevers. If the fevers remain high, and the throat is getting worse, than i take

her it. But, there is no point for us, because the they strep her (which she

HATES) and I make her seem like she is more sickly. I now, try to just dose her

up and be on our happy way.

Hope that helps.

Fern (mom to julia, age 7, diagosed at 3 1/2)

Lori Todaro <loritodaro@...> wrote:

ABSOLUTELY insist that your PED see her during a flare-AND be sure to

tell them you want labs done!!! This is pertinent information when being seen by

a specialist, and especially at the NIH. Dr. Kastner likes very much to have

labs drawn during a flare.....don't give up, insist that your child be seen.

Lori

carmelaanng <carmela_ann@...> wrote:

Hello,

My daughter Carina is due to have her fifth fever episode on July

fifth. She is taking cimetidine so hopefully we'll get lucky and it

won't happen this time. My question is should my local pediatrician

be seeing Carina during each episode. During her last episode, my

pediatrician felt to was unneccesary to see her. I'm wondering if

this is typical. We're new to this, so we certainly don't have a

definite diagnosis. I was just surprised the doctor wouldn't want to

see her to make sure there weren't new symptoms, check her spleen etc.

(So far her spleen has never been enlarged.)

Thank you and best wishes,

Carmela

mother of Carina 3 1/2 ??

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

After 4 years of dealing with , I too try not to take my 7 year old son in

unless I know things just seem out of control, or it doesn't seem to be the

. He too hates the strep tests to be done, and really stresses over blood

work and especially when we can't see our regular pediatrician, they always

insist on doing blood work, and it never shows anything different. His CRP level

is always elevated, but other than that, the blood work always looks like it's a

virus. I got really tired of putting my son through the same thing time after

time after time. It gets to the point where you know. Our son always starts with

a low grade fever, then the fever spikes on day 2, his throat is always red, his

breath is yucky, and we know. We can tell if the fever doesn't spike to the 104

to 105, then it's not , if it stays as a low grade fever, then we know it's

something else. We use prednisone once the fever has spiked. Our pediatrician

has recommended doing 2 tsp of

prednisone 3 times the day the fever spikes, and that has really shortened the

duration of the fevers. If the fever still persists, we know it's not and

then we take him in. You'll be able to read the symptoms in a very short time.

THere are my thoughts.....

Patti Mother of 7yr old Brady

fern rosenstein <ferniespecial@...> wrote:

Once we were diagnosed. We wait the 3 day rule. Because by day 3, the

fevers start to go down or more undercontrol. And, i know it is one of her usual

fevers. If the fevers remain high, and the throat is getting worse, than i take

her it. But, there is no point for us, because the they strep her (which she

HATES) and I make her seem like she is more sickly. I now, try to just dose her

up and be on our happy way.

Hope that helps.

Fern (mom to julia, age 7, diagosed at 3 1/2)

Lori Todaro <loritodaro@...> wrote:

ABSOLUTELY insist that your PED see her during a flare-AND be sure to tell them

you want labs done!!! This is pertinent information when being seen by a

specialist, and especially at the NIH. Dr. Kastner likes very much to have labs

drawn during a flare.....don't give up, insist that your child be seen.

Lori

carmelaanng <carmela_ann@...> wrote:

Hello,

My daughter Carina is due to have her fifth fever episode on July

fifth. She is taking cimetidine so hopefully we'll get lucky and it

won't happen this time. My question is should my local pediatrician

be seeing Carina during each episode. During her last episode, my

pediatrician felt to was unneccesary to see her. I'm wondering if

this is typical. We're new to this, so we certainly don't have a

definite diagnosis. I was just surprised the doctor wouldn't want to

see her to make sure there weren't new symptoms, check her spleen etc.

(So far her spleen has never been enlarged.)

Thank you and best wishes,

Carmela

mother of Carina 3 1/2 ??

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

I strongly believe a child should be seen and evaluated when fevering

especially the infants and toddler who are unable to clearly communicate

well.

We have seen pneumonia missed as well as strep in children and

undiagnosed PFS kids.

Also if there is no diagnosis. and you are attempting to get a more accurate

diagnosis, the clinical indicators reflected in lab data will assist the

doctors who know about the different PFS's. to get a clearer picture. ph

was a pin cushion until he was almost 3.. He started fevering around 5.5

months old. and continues to do so at 7. Depending on WBC's, SED rate, and

other indicators and how they change during febrile events and in between,

assists the specialists so so much.

Besides if you miss something else you may actually be in a much worse

situation.

God Bless

Fran

Fran A Bulone

Mom to ph 7 yrs old

Waxhaw, NC

Owner & Moderator Group

<>

[Guest guest]

Patti,

I've never taken the predisone route, fearing that the fevers would happen

quicker. Our children seem to thave the EXACT symptoms. What has been your

findings with predisone? Have the episodes come a lot quicker?

fern. (mom to julia, age 7)

Patti Preston <prestonpatti@...> wrote:

After 4 years of dealing with , I too try not to take my 7 year

old son in unless I know things just seem out of control, or it doesn't seem to

be the . He too hates the strep tests to be done, and really stresses over

blood work and especially when we can't see our regular pediatrician, they

always insist on doing blood work, and it never shows anything different. His

CRP level is always elevated, but other than that, the blood work always looks

like it's a virus. I got really tired of putting my son through the same thing

time after time after time. It gets to the point where you know. Our son always

starts with a low grade fever, then the fever spikes on day 2, his throat is

always red, his breath is yucky, and we know. We can tell if the fever doesn't

spike to the 104 to 105, then it's not , if it stays as a low grade fever,

then we know it's something else. We use prednisone once the fever has spiked.

Our pediatrician has recommended doing 2

tsp of

prednisone 3 times the day the fever spikes, and that has really shortened the

duration of the fevers. If the fever still persists, we know it's not and

then we take him in. You'll be able to read the symptoms in a very short time.

THere are my thoughts.....

Patti Mother of 7yr old Brady

fern rosenstein <ferniespecial@...> wrote:

Once we were diagnosed. We wait the 3 day rule. Because by day 3, the fevers

start to go down or more undercontrol. And, i know it is one of her usual

fevers. If the fevers remain high, and the throat is getting worse, than i take

her it. But, there is no point for us, because the they strep her (which she

HATES) and I make her seem like she is more sickly. I now, try to just dose her

up and be on our happy way.

Hope that helps.

Fern (mom to julia, age 7, diagosed at 3 1/2)

Lori Todaro <loritodaro@...> wrote:

ABSOLUTELY insist that your PED see her during a flare-AND be sure to tell them

you want labs done!!! This is pertinent information when being seen by a

specialist, and especially at the NIH. Dr. Kastner likes very much to have labs

drawn during a flare.....don't give up, insist that your child be seen.

Lori

carmelaanng <carmela_ann@...> wrote:

Hello,

My daughter Carina is due to have her fifth fever episode on July

fifth. She is taking cimetidine so hopefully we'll get lucky and it

won't happen this time. My question is should my local pediatrician

be seeing Carina during each episode. During her last episode, my

pediatrician felt to was unneccesary to see her. I'm wondering if

this is typical. We're new to this, so we certainly don't have a

definite diagnosis. I was just surprised the doctor wouldn't want to

see her to make sure there weren't new symptoms, check her spleen etc.

(So far her spleen has never been enlarged.)

Thank you and best wishes,

Carmela

mother of Carina 3 1/2 ??

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

In a message dated 6/28/2006 10:16:20 P.M. Eastern Standard Time,

ferniespecial@... writes:

Once we were diagnosed. We wait the 3 day rule. Because by day 3, the fevers

start to go down or more undercontrol. And, i know it is one of her usual

fevers. If the fevers remain high, and the throat is getting worse, than i take

her it. But, there is no point for us, because the they strep her (which she

HATES) and I make her seem like she is more sickly. I now, try to just dose

her up and be on our happy way.

LOL--sounds like us. I just dose up Nicky and do whatever we have to. My sis

had a baby the other day--so we dosed up Nick and went all out at Babies R

US--and made a side trip to Target. He handled it well. Like it was just part

of his routine.

I stopped going to the ped for the last 3 fevers. Just sick of the stick

down the throat all for nothing. We had our back to school checkup today and I

asked him if I should continue to bring him in during the fevers and he said

not unless there were any changes or unusual symptoms. We did have a blood

test from the Ped during one of his Feb fevers and from the infectious disease

doc during another fever. Both times the results were so different. I am

counting on the rheumatologist to help me out further.

[Guest guest]

In a message dated 6/30/2006 4:44:47 A.M. Eastern Standard Time,

fbulone@... writes:

We have seen pneumonia missed as well as strep in children and

undiagnosed PFS kids.

Also if there is no diagnosis. and you are attempting to get a more accurate

diagnosis, the clinical indicators reflected in lab data will assist the

doctors who know about the different PFS's. to get a clearer picture. ph

was a pin cushion until he was almost 3.. He started fevering around 5.5

months old. and continues to do so at 7. Depending on WBC's, SED rate, and

other indicators and how they change during febrile events and in between,

assists the specialists so so much.

Besides if you miss something else you may actually be in a much worse

situation.

I figure ( and my doc as well) that since my sons fevers only last 24-36

hours, I would pretty much know to bring him in if he fevers for longer than

that or if he exhibits symptoms that aren't consistent with what I am usually

seeing.

My concern is that He had one blood test during a fever after I asked my Ped

why we are suddenly so sick this year ( and after hearing of 2 cases of Lyme

Disease with my friends kids) Our initial quest was to see if my son had Lyme

or Epstein Barre. He did have mildly elavated white cells and a slightly

elavated ESR with that blood test ( during a fever)

The second blood tests were done by infectious disease and focused on a

possible viral sinus infection. He happened to have a temp of 99.7 at that

visit

and as it turned out he was neutropenic for that blood test--which confirmed

that docs suspicions. Unfortunately the sinus infection theory was ruled out

by the ENT.

the last blood test was after our final visit to the infectious disease doc.

It was basically to recheck some of the previous tests and see if the

neutropenia was gone. All of those tests were perfectly normal.

The rheumatologist quickly glanced at all of the paperwork from my other

docs, did a physical exam and declared . No blood work , nothing.

She did request a follow-up in one month. This doc wasn't the one my ped

wanted me to see--she was a different one within the group, but the only one who

had an opening in less than 2 months--even after my ped called and asked for

the earliest appt possible.

So, now that I had a month to make an appt my ped asked me to make the

follow up with the original doc he wanted me to see--that visit will be July

10th.

And I have an awful lot to discuss with her!!!!!

[Guest guest]

Thank you for all your responses. I will make sure Carina is seen

next time, especially since we don't yet know for sure that she has

. I am in the process of switching pediatricians, hoping to find

one I feel more comfortable with. Of course I pray that the next

episode won't happen- that the cimetidine is working. Her next fever

is due on July 5th, and I have to admit I'm very frightened about what

will happen. I'm so thankful for this news group.

Best Wishes,

Carmela

mother of Carina 3 1/2 (?) and Milena 3 1/2

[Guest guest]

Actually, no, our episodes have not gotten any closer using the

prednisone. And for Brady, when he was first diagnosed, his fevers

were every 14 days, but now we are at about every 28 to 30 days. We

have been very happy with the prednisone treatment. We really have

had good luck with it, he still ends up missing a couple days of

school everytime, the day the fever starts and the day it spikes, but

then he normally can return to school the 3rd day. So, overall, it

seems to be working for us...

We have an appoitment with our pediatrician in a week again, and I

really want to discuss with him a tonsilectomy. He tells us it works

for some, but not for others. I just feel so bad for Brady, he has

missed out on so much these past over 4 years. It's just a crazy

thing.

Patti, mother of Brady (7)

> Hello,

>

> My daughter Carina is due to have her fifth fever episode on July

> fifth. She is taking cimetidine so hopefully we'll get lucky and it

> won't happen this time. My question is should my local pediatrician

> be seeing Carina during each episode. During her last episode, my

> pediatrician felt to was unneccesary to see her. I'm wondering if

> this is typical. We're new to this, so we certainly don't have a

> definite diagnosis. I was just surprised the doctor wouldn't want to

> see her to make sure there weren't new symptoms, check her spleen

etc.

> (So far her spleen has never been enlarged.)

>

> Thank you and best wishes,

> Carmela

> mother of Carina 3 1/2 ??

>

> ---------------------------------

> Sneak preview the all-new .com. It's not radically different.

Just radically better.

>

>