Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 We LOVE EMLA and wouldn't go without now. We always have to use Saran Wrap or a piece cut from a baggie, since the tube of EMLA lasts us about three sticks and they only give one pair of tegaderm patches. I just make sure to place it accurately and not use too big a piece, you need the EMLA to stay pretty thick and opaque to get the effect. If it spreads out too thin it won't work. It took us some trial and error, I would put it on the wrong spot or it would spread out, etc. and it didn't work as well, but once I got my application technique fixed it's been a dream for . She smiles through her sticks and isn't scared at all now that she knows they won't hurt. (mom to , 3yrs old, polysaccharide antibody def) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 We LOVE EMLA and wouldn't go without now. We always have to use Saran Wrap or a piece cut from a baggie, since the tube of EMLA lasts us about three sticks and they only give one pair of tegaderm patches. I just make sure to place it accurately and not use too big a piece, you need the EMLA to stay pretty thick and opaque to get the effect. If it spreads out too thin it won't work. It took us some trial and error, I would put it on the wrong spot or it would spread out, etc. and it didn't work as well, but once I got my application technique fixed it's been a dream for . She smiles through her sticks and isn't scared at all now that she knows they won't hurt. (mom to , 3yrs old, polysaccharide antibody def) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 We used the Emla disc one time. Cassie could not handle the adhesive they use to put the Emla on. It is some type of foil sticky stuff. We went back to using the cream. I just squirt some on and then we are able to use as much as we need at exactly the site we need it. I think we have found the magic stuff to work for children who cannot handle tape coming off of their body (which is Cassie in a nutshell). We use the Emla with saran wrap. Then we use Hypafix tape (about $13.00 a roll). Then we found this adhesive remover that just literally just separates the tape from the skin. Absolutely no pain involved. The adhesive remover is called Detachol. It is wonderful. We got it at ER one night and it comes in a bottle that you squirt on gauze or directly on the tape. I am not sure of the price of the bottle, but I am going to be ordering it real soon. Hope all are having a wonderful weekend. Belinda Rose, Mom to Allyssa and Cassie, 8, igg immunodeficient, asthma, sinusitis, IVIG for 6 years, heart condition Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Our Emla routine, is that I put it on at home and then by the time we get to the hospital Kody is ready to go. Since Kody is horribly allergic to tegaderm, we use the Tefla pads by 3m and paper tape to hold it on. It works just fine. I have also in a pinch, used a square of plastic wrap with paper tape. My ped gives me a perscription for the Emla. I haven't heard of the emla disc. Diane, Mom to Kody Come visit my website!Sign my guestbook www.geocities.com/schmidtzoo/SNAK.index.html -- Emla Has anyone tried the Emla disc? My son's nurse mentioned something about them on Friday during IVIG. We have been using Emla cream and use 1/2 tube and wait one hour. What is your routine with Emla if you use the cream? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Our Emla routine, is that I put it on at home and then by the time we get to the hospital Kody is ready to go. Since Kody is horribly allergic to tegaderm, we use the Tefla pads by 3m and paper tape to hold it on. It works just fine. I have also in a pinch, used a square of plastic wrap with paper tape. My ped gives me a perscription for the Emla. I haven't heard of the emla disc. Diane, Mom to Kody Come visit my website!Sign my guestbook www.geocities.com/schmidtzoo/SNAK.index.html -- Emla Has anyone tried the Emla disc? My son's nurse mentioned something about them on Friday during IVIG. We have been using Emla cream and use 1/2 tube and wait one hour. What is your routine with Emla if you use the cream? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Our Emla routine is that I put it on about an hour before his nurse is to arrive, wrap saran wrap around it and put tape on the saran wrap so he doesn't have to worry about the tape hurting him Emla > > Has anyone tried the Emla disc? My son's nurse mentioned something about > them on Friday during IVIG. We have been using Emla cream and use 1/2 tube > and wait one hour. What is your routine with Emla if you use the cream? > Jan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Our Emla routine is that I put it on about an hour before his nurse is to arrive, wrap saran wrap around it and put tape on the saran wrap so he doesn't have to worry about the tape hurting him Emla > > Has anyone tried the Emla disc? My son's nurse mentioned something about > them on Friday during IVIG. We have been using Emla cream and use 1/2 tube > and wait one hour. What is your routine with Emla if you use the cream? > Jan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 I hope this takes a while to filter through to the UK. I use it before we go to the hospital and it cuts down the waiting time. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 When we did use emla ages ago our infusion nurse at the hospital would give us the tube and the tegaderm (opsite) patch for the next visit right before we left. It was taken out of their inventory and just added to our hospital (clinic) bill. We've never been able to fill an emla prescription locally at the drug store. Ursula Holleman Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 I heard about this from my pediatrician. He gave me a script for it immediately! The pharmacy told me, though, that they could whip up a homemade Emla for me if we needed more! I guess it pays to smooze your local pharmacist! Call your ped for a script for a 30g tube of Emla on Monday, Pam wife to (15 years) mother to , 9, Hannah, 6, Rebekah, 3, and Leah, 1 emla To all of you who use Emla at home, My home health company called to tell me that they would no longer be able to provide us with Emla. Apparently, a law change has been made that will only allow Emla to be dispensed in a hospital setting until the packaging has been changed. I e-mailed the company which produces Emla and this is their reply: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 What is emla? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 I went to a compounding pharmacy and they happily made me a 30 gram tube of emla. They had to put it into a ointment rather than a cream, so it runs more, but it works. Check for a compounding pharmacy in your phone book. I'm in a small city and we had one! Pam wife to (16 years) mother to , 9, Hannah, 7, Rebekah, 3, and Leah, 2 emla How are some of you dealing with the fact that they are not distributing Emla anymore? Cassie can't do her IVIG unless we have it. She would not make it. I called Astra/Zeneca and they said it might be sometime this summer before they can have it available. The only places that can get it are the inpatient hospital patients. I guess if we get desperate, we would go that route. But, it is way too inconvenient to go have IVIG as an inpatient. Let me know. Thanks Belinda Rose, Mom to Allyssa (11) and Cassie (8), igg immunodeficient, asthma, sinusitis, IVIG for 6 years, heart condition This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. To unsubscribe -unsubscribegroups (DOT) To search group archives go to: /messages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Kody has always gotten his IVIG in the hospital. He isn't listed as an inpatient, but as outpatient observation care. We get his Emla there, the nurse gives us a small tube to take home for the next time. It really isn't inconvient to do in the hospital for us, I bring a good book (which is really the only time I have to read, and I love to read!) and Kody gets to be king of the remote! I do daycare for a living, and the thought of doing the IVIG with daycare kids running around my house makes me want to break out in hives! LOL! Plus, my immuno doesn't like to do the IVIG at home, I'm not sure why exactly he just said he isn't comfortable with doing it at home. So I just hire a friend to sit with my daycare and we head to the hospital every three weeks! Maybe if you can't find Emla or an equivalent, you could just do the IVIG at the hospital until Emla becomes available again. It may be more inconvenient but maybe worth it for her peace of mind? Diane Check out Special Needs Awesome Kids at www.geocities.com/schmidtzoo/SNAK.index emla > How are some of you dealing with the fact that they are not distributing > Emla anymore? Cassie can't do her IVIG unless we have it. She would not > make it. I called Astra/Zeneca and they said it might be sometime this > summer before they can have it available. The only places that can get it > are the inpatient hospital patients. I guess if we get desperate, we would > go that route. But, it is way too inconvenient to go have IVIG as an > inpatient. Let me know. Thanks > > Belinda Rose, > Mom to Allyssa (11) and Cassie (8), igg immunodeficient, asthma, sinusitis, > IVIG for 6 years, heart condition > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 , Do the girls have mediports? Ouch, if they are getting IVIG without anything to numb the mediport. They must be very brave. We have tried to access Cassie's port without the EMLA and it really hurt. She said it hurts more going into the port than when they access her veins in her arm. Thanks for the website. I will try anything right now. Her immuno said he can do an admitting order if we have to. We used to do IVIG in the hospital outpatient center. But, it was difficult taking days off every 3 weeks and so we went to home health. I really enjoy home health because we have the nurse here all the time to ourselves. Cassie is in total control of everything on IVIG days. Anyway, they offered ElaMax. But, we have used that before and were not satisfied. It is not sold by prescription and the retail cost for a tube is $95(yikes) for something that does not really work Belinda Rose, Cassie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 We have not experienced a shortage (as of yet, anyway). gets his IVIG at Day Med at Children's Hospital in Little Rock. They just give us another small tube as we leave for the next month. If there IS a shortage, I'm hoping we have enough left overs to last us through (I keep all the tubes together in case we ever forget to ask for it when we leave). Good luck. I wouldn't want Sam to have to go without it. He's got great veins, so we've never had a problem with the veins constricting. There is an over-the-counter cream that is not supposed to constrict the veins so much, but I don't know the name of it. We wouldn't have $40 to buy a tube anyway...... God bless, Wenoka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 We had it made up at a pharmacy it is a lidocaine with an emoilent ( cream) Lucas is allergic to something in it so we made up our own. Make sure you use a cream that is very absorbent. We tried vaseline first it did not work since it did not absorb well. You need to find a " compounding pharmacy " . They mix ingredients to make up meds like in the old days. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 In a message dated 9/4/2003 5:52:21 PM Eastern Daylight Time, BROSE@... writes: Does anyone know if Emla is available yet? If so, what was the big deal with pulling it off the market.....what was the big change in the packaging? I don't know if it is available to be sold yet, I was told most likely by August so if it isn't I would think soon. The big deal is that a couple small children (in separate incidences) got ahold of Emla in the home and ate it. They died. So they changed the packaging to be childproof. This is what I was told both by my local pharmacy and by the hospital pharmacy. I haven't worried too much about it because the hospital has been giving me a small tube (it has about 3 uses each) every time we go in for IVIG to use for the next time. But it sure would be easier to not have to remember to ask for some, and to just have extra on hand just in case of those unexpected poke situations!!! Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome, Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9 (she happens to also be Dyslexic), and wife/soulmate to for 10 years. check out my website: www.geocities.com/schmidtzoo/SNAK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 It's available in our pharmacy. Pam wife to (16 years) mother to , 9, Hannah, 7, Rebekah, 4, and Leah, 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Word of advice on the EMLA cream. it can also make veins run away.. as we call it.. mom to kiara 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Hmm..I'd never heard that. We've not had any problems (other than the fact that he clots very rapidly). Good to know, though, if we ever run into a problem! Thanks. On 2/25/06, Bisson <proudmom@...> wrote: > > > Word of advice on the EMLA cream. it can also make veins run away.. as > we call it.. > > mom to kiara 5 > > Quote Link to comment Share on other sites More sharing options...
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