Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 That's what they say!! Our Dr's have said between the ages of 6 and 8, but there are kids here that are that age and older that are still experiencing it!! Shumate --------------------------------- How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Hello, My son, , is now 17 years old. He began experiencing series of fevers at about 20 months of age. My wife calculates that he had somewhere in the range of 1000 days of fevers over 103 degrees until age 7. We had him evaluated extensively by doctors at the Mayo Clinic in Rochester, MN. We treated him with tylenol and motrin. We also used colchicine. During that time he experienced 9 green stick fractures, fractures and a big break in his bones. He was diagnosed with osteopina (not sure on spelling) which indicates a weakness in the bones ( a precursor perhaps to osteoporosis, but he has not broken anything in a long time and now plays soccer in high school. He was never diagnosed with . I'm not sure there was much info on it at the time. there was a theory that his auto immune system had turned against him and that it couldn't turn itself off again. The episodes of fevers decreased significantly. Eventually he would experience a day or two of not feeling good. would say " it feels like my fevers again " . Those were rare events. Today he is fever free and seems relatively healthy. His pediatricians are still confounded by the whole experience and follow up on him often. So, in a nutshell, seems to be doing very well. I remember vividly all the days of fevers and emotional trauma for all of us. I hope you can find some hope in our experiences. Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 : >My son is turning 9 next week. I'm just beginning to figure out he may have (prob since he was 4) We have his 9 year old check up also next week-I'm going with lots of info about for our ped. I haven't kept track of exact days very well but just by my memory (and some keeping track on my calendar) I know he's had at least 9 fever episodes in the past year. Thanks for replying . If anyone in this group knows of anyone who has outgrown it I'd love to hear from you too! Thanks! > That's what they say!! Our Dr's have said between the ages of 6 and 8, but there are kids here that are that age and older that are still experiencing it!! > > > Shumate > > > > --------------------------------- > How low will we go? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Thank-you Tony for your message, it does give me hope. I'm glad that is doing so well now-I hope he stays healthy and that his bones stay strong and fracture free! 's fevers have decreased in length of time from 5-7 days when younger to now usually 3 days in length-so maybe that's going to continue to be the trend! thanks again very much!!! --- alehm37876@... wrote: > Hello, > > My son, , is now 17 years old. He began > experiencing series of > fevers at about 20 months of age. My wife calculates > that he had somewhere in the > range of 1000 days of fevers over 103 degrees until > age 7. We had him > evaluated extensively by doctors at the Mayo Clinic > in Rochester, MN. We treated > him with tylenol and motrin. We also used > colchicine. During that time he > experienced 9 green stick fractures, fractures and a > big break in his bones. > He was diagnosed with osteopina (not sure on > spelling) which indicates a > weakness in the bones ( a precursor perhaps to > osteoporosis, but he has not > broken anything in a long time and now plays soccer > in high school. He was never > diagnosed with . I'm not sure there was much > info on it at the time. > there was a theory that his auto immune system had > turned against him and that > it couldn't turn itself off again. > > The episodes of fevers decreased significantly. > Eventually he would > experience a day or two of not feeling good. > would say " it feels like my > fevers again " . Those were rare events. Today he is > fever free and seems > relatively healthy. His pediatricians are still > confounded by the whole experience > and follow up on him often. > > So, in a nutshell, seems to be doing very > well. I remember vividly > all the days of fevers and emotional trauma for all > of us. I hope you can > find some hope in our experiences. > > Tony > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Hi my name is Ilana and my son Gal, will be 7 in July. His first episode was at age 4, for 2 years he had periodic fevers, white stains in his throat, tired. His episodes were long and very high fevers, but at age 6 his fevers were not every month, the episodes very short and fevers very low. His last episode was on Monday, May 22. It was less than 24 hours long, no fever at all, sore throat, very very tired and 2 white stains in his throat. That day he was honor student at school, they had an assembly and he got very excited. Is it coincidence? I've read so many posts of kids getting an episode on their birdthdays.. or on a trip to Disney... first day of school.. I think there is a conection betwen fevers and getting excited, this kids are for sure different than others. I hope he is growing out !!! Ilana mom to Gal 6 and Raz 4 Guatemala City. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 This is so interesting! My 6 y.o. son has the same tendencies. He is very, very intelligent, I mean in a way that makes you wonder " how is this possible " . About the " excited " connection, here is an example. He had an episode last week, the day after he got really excited (not in a happy way) about me pulling his tooth. This makes me wonder if anyone else has a similar child. Thanks! Tom > > Hi my name is Ilana and my son Gal, will be 7 in July. > His first episode was at age 4, for 2 years he had periodic fevers, > white stains in his throat, tired. His episodes were long and very > high fevers, but at age 6 his fevers were not every month, the > episodes very short and fevers very low. > His last episode was on Monday, May 22. It was less than 24 hours > long, no fever at all, sore throat, very very tired and 2 white stains > in his throat. > That day he was honor student at school, they had an assembly and he > got very excited. Is it coincidence? I've read so many posts of kids > getting an episode on their birdthdays.. or on a trip to Disney... > first day of school.. I think there is a conection betwen fevers and > getting excited, this kids are for sure different than others. > I hope he is growing out !!! > > Ilana mom to Gal 6 and Raz 4 > Guatemala City. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 A gal that I work with has a niece that had periodic fevers for years. That was in the early 1980s, so at that time there was really not much known about periodic fevers. said that her niece had these fevers monthly (along with mouth sores and sore throat)from the time she was very little, about age 1 or 2, and they continued for about 5 years. She said that they really had no effective way of treating the fevers at that time, and for a couple of years her niece had febrile seizures with many of the fevers. Gradually, the fevers became more and more spaced out until they just stopped. She says now her niece is in her mid-20s and the fevers haven't returned. Of course, there is no way of knowing if this girl truly had or something else, but the regularily of the fevers and other symptoms certainly sound consistent with . > > : > >My son is turning 9 next week. I'm just beginning to figure out he may have > (prob since he was 4) We have his 9 year old check up also next week-I'm > going with lots of info about for our ped. I haven't kept track of exact days > very well but just by my memory (and some keeping track on my calendar) I know > he's had at least 9 fever episodes in the past year. Thanks for replying . If > anyone in this group knows of anyone who has outgrown it I'd love to hear from you > too! Thanks! > > > > > > > That's what they say!! Our Dr's have said between the ages of 6 and 8, but there > are kids here that are that age and older that are still experiencing it!! > > > > > > Shumate > > > > > > > > --------------------------------- > > How low will we go? Check out Messenger's low PC-to- Phone call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 A gal that I work with has a niece that had periodic fevers for years. That was in the early 1980s, so at that time there was really not much known about periodic fevers. said that her niece had these fevers monthly (along with mouth sores and sore throat)from the time she was very little, about age 1 or 2, and they continued for about 5 years. She said that they really had no effective way of treating the fevers at that time, and for a couple of years her niece had febrile seizures with many of the fevers. Gradually, the fevers became more and more spaced out until they just stopped. She says now her niece is in her mid-20s and the fevers haven't returned. Of course, there is no way of knowing if this girl truly had or something else, but the regularily of the fevers and other symptoms certainly sound consistent with . > > : > >My son is turning 9 next week. I'm just beginning to figure out he may have > (prob since he was 4) We have his 9 year old check up also next week-I'm > going with lots of info about for our ped. I haven't kept track of exact days > very well but just by my memory (and some keeping track on my calendar) I know > he's had at least 9 fever episodes in the past year. Thanks for replying . If > anyone in this group knows of anyone who has outgrown it I'd love to hear from you > too! Thanks! > > > > > > > That's what they say!! Our Dr's have said between the ages of 6 and 8, but there > are kids here that are that age and older that are still experiencing it!! > > > > > > Shumate > > > > > > > > --------------------------------- > > How low will we go? Check out Messenger's low PC-to- Phone call rates. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 thanks-all this is giving me hope! --- " (Berggren) Alsleben " <annaalsl@...> wrote: > A gal that I work with has a niece that had periodic > fevers for > years. That was in the early 1980s, so at that time > there was > really not much known about periodic fevers. > said that her > niece had these fevers monthly (along with mouth > sores and sore > throat)from the time she was very little, about age > 1 or 2, and they > continued for about 5 years. She said that they > really had no > effective way of treating the fevers at that time, > and for a couple > of years her niece had febrile seizures with many of > the fevers. > Gradually, the fevers became more and more spaced > out until they > just stopped. She says now her niece is in her > mid-20s and the > fevers haven't returned. Of course, there is no way > of knowing if > this girl truly had or something else, but the > regularily of > the fevers and other symptoms certainly sound > consistent with . > > > > > > > > > : > > >My son is turning 9 next week. I'm just > beginning to > figure out he may have > > (prob since he was 4) We have his 9 year > old check up also > next week-I'm > > going with lots of info about for our ped. > I haven't kept > track of exact days > > very well but just by my memory (and some keeping > track on my > calendar) I know > > he's had at least 9 fever episodes in the past > year. Thanks for > replying . If > > anyone in this group knows of anyone who has > outgrown it I'd love > to hear from you > > too! Thanks! > > > > > > > > > > > > > That's what they say!! Our Dr's have said > between the ages of 6 > and 8, but there > > are kids here that are that age and older that are > still > experiencing it!! > > > > > > > > > Shumate > > > > > > > > > > > > --------------------------------- > > > How low will we go? Check out Messenger's > low PC-to- > Phone call rates. > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 I too wonder about the fevers and the kids getting sick at times when we don't need it most. Last Christmas we were planning a family camping trip. I told my husband to take the other two kids and leave n and I at home if he was sick. He had every sign of a fever coming on the date, he was miserable wingeing and had low platlets (n gets bruising before a fever) Well it did not come so decided to go and we would deal with situation of fever if it arose. We kept him on nurphen for a few days as we had no idea what n had at this stage. Anyway we had a happy holiday with n wingeing. The afternoon we arrived home n got a fever. I am sure he held it off till he was at home. -This was the first time it was clear that there was something strange about the fevers other all the usual stuff. Mum to n. -- In , " chapina30 " <kusit@...> wrote: > > Hi my name is Ilana and my son Gal, will be 7 in July. > His first episode was at age 4, for 2 years he had periodic fevers, > white stains in his throat, tired. His episodes were long and very > high fevers, but at age 6 his fevers were not every month, the > episodes very short and fevers very low. > His last episode was on Monday, May 22. It was less than 24 hours > long, no fever at all, sore throat, very very tired and 2 white stains > in his throat. > That day he was honor student at school, they had an assembly and he > got very excited. Is it coincidence? I've read so many posts of kids > getting an episode on their birdthdays.. or on a trip to Disney... > first day of school.. I think there is a conection betwen fevers and > getting excited, this kids are for sure different than others. > I hope he is growing out !!! > > Ilana mom to Gal 6 and Raz 4 > Guatemala City. > Quote Link to comment Share on other sites More sharing options...
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