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I my name is Chuck, I am a new member to this forum. My 6 year old

son has just been diagnosed with Syndrome by a Dr. at

Children's Hospital of Philadelphia. I hope it is not a premature

diagnosis. He started a high fever in early March that were

accompanied by painful sores all through his mouth and throat. The

fever although low grade at time lasted over a week. However, the

mouth sores have never gone away. He lost 18% of his body weight

from not being able to eat because of the pain. He was

hospitialized due to dehydration twice. He was first diagnosed with

Hand Foot Mouth Disease and the Herpes. Finally thirty days after

the intitial fever he developed another high fever and new mouth

sores started to appear in addition to the pre-existing ones. We

were told by our Ped. to go to Childrens Hospital in Philly and not

to leave until we knew what was happening to him. On the third day

and after many blood tests we sew a Rhumetologist who listened to

our story and looked at my son and within five minutes said, " He has

Syndrome. " He was given Liquid Predislone and we were told

next time his fever rises above 100.5 and is accompanied by mouth

sores to give another dose of the steriod. Since then I have been

trying to learn as much as I can, subsequently stumbling on to your

forum.