Would Like Advice - What To Do Next?

[Guest guest]

The last time seen the ID doctors they decided to try

cimetidine. He has been on it since 1/19/06 and since then he has

had 2 fever episodes. One was bad and had to take prednisone and now

seems to be getting over a episode without taking it. The episode

lasted 5 days, but not as bad as usual, which sometimes happens

every now and then. (Before cimetidine his fevers were coming every

1 - 2 weeks.) The only thing I think I see a difference in is the

days between fevers. He was sleepy, pale and complained of leg and

back pain and before his fevers he almost was a normal kid.

goes back to the ID doctors tomorrow and I don't know what should be

the next step. Should I request the genetic testing? (would have to

pay for) Keep him on cimetidine longer and see? Request to have

his tonsils out? Get on the waiting list for NIH? His ID doctors

did telephone Dr. Kasner and he also thinks has , but

is willing to give info to get on the list. I am just fustrated!

We really thought the cimetidine would work better and very

concerned about him missing school. I really would like some advice!

Thank You

Dena