Re: Question about the fevers

[Guest guest]

My daughter has been having fevers for about 1.5 years every 4 weeks. We

are going for our official diagnosis at Childrens in two weeks but until the

April episode, it has JUST been fevers. No other symptoms. She had a

single sore behind her upper lip but I don't know if that was related - we

will see in 13 days if we are getting more symptoms. The fevers have all

been high - 104-105 except this last one which was only 101 (haha - only 101

- her resting temp is 96.8). So we will see what the docs say but her labs

all come back boringly normal.

_____

From: [mailto: ] On Behalf Of

tkfourangels

Sent: Tuesday, May 02, 2006 5:48 PM

Subject: Question about the fevers

Hello all,

I was wondering if any of you experienced JUST FEVERS before your

child was finally DX with a fever syndrome. With my research I have

found that with some of the syndromes a child will only show the

fever. So, I was wondering if that was true or if your child has to

have all the symptoms of a fever syndrome, like the mouth sores and

tummy issues before they will take you seriously. My son is 16

months old and has been having unexplained fevers since pretty much

after he came home from the NICU.

I am just trying to figure all this out. My son has only had one

really high fever with his episodes. 104, the rest have been 100.5

to 102

Any thoughts??

Thank you and God bless,

a and Kardyn

[Guest guest]

Yes, when my son started to show signs he was 4 mos old and it

started with fevers. the other symptoms came later.

Kathleen (mom of 23 yrs old)

On May 2, 2006, at 4:47 PM, tkfourangels wrote:

> Hello all,

>

> I was wondering if any of you experienced JUST FEVERS before your

> child was finally DX with a fever syndrome. With my research I have

> found that with some of the syndromes a child will only show the

> fever. So, I was wondering if that was true or if your child has to

> have all the symptoms of a fever syndrome, like the mouth sores and

> tummy issues before they will take you seriously. My son is 16

> months old and has been having unexplained fevers since pretty much

> after he came home from the NICU.

>

> I am just trying to figure all this out. My son has only had one

> really high fever with his episodes. 104, the rest have been 100.5

> to 102

>

> Any thoughts??

>

> Thank you and God bless,

>

> a and Kardyn

>

>

>

>

>

>

>

>

[Guest guest]

My daughter Ella turned 2 in March and has been having the recurring

fevers for almost a year and a half. With her first several fevers

she had no other symptoms other than the fever. During that time

period, we were running to the doctor's office all the time it seems

and our pediatrician could never find anything wrong with her other

than the fever. Her labwork came back normal too. After the first

several fever cycles, her tonsils started being affected along with

the fevers. Now her tonsils are affected with nearly every fever,

but every once in a while she'll have an episode with only a fever.

We have never been able to find any mouth sores. Ella's fevers have

always been very high, usually around 104-105, but going as high as

106 on a couple of occasions. I think it's hard with such little

kids, because they can't really explain to you how they are

feeling. I've read many posts about kids having joint pain and

stomach problems, and we've always assumed that Ella doesn't have

joint pain or stomach issues, because she has never really indicated

that to us, but at the same time she hasn't really been able to

effectively articulate EXACTLY what hurts. Her vocabulary is

getting much better now so I'm hoping that with future fever

episodes we are able to get a better idea of how she is feeling

during fever episodes.

>

> Hello all,

>

> I was wondering if any of you experienced JUST FEVERS before your

> child was finally DX with a fever syndrome. With my research I

have

> found that with some of the syndromes a child will only show the

> fever. So, I was wondering if that was true or if your child has

to

> have all the symptoms of a fever syndrome, like the mouth sores

and

> tummy issues before they will take you seriously. My son is 16

> months old and has been having unexplained fevers since pretty

much

> after he came home from the NICU.

>

> I am just trying to figure all this out. My son has only had one

> really high fever with his episodes. 104, the rest have been 100.5

> to 102

>

> Any thoughts??

>

> Thank you and God bless,

>

> a and Kardyn

>

[Guest guest]

,

I agree. Evan has had fevers since 1 month old. You cannot tell if

there are any other symptoms when they are that young. As they get

older they can tell you that their hands knees and feet burn or

hurt. I remember before Evan could really communicate he would look

at his hands strangely, almost like when they are a babies and

discovering their hands, but he was past that stage. I knew

something wasn't right, but the doctor's back then must have thought

I was nuts. His hands were hurting him and he could not communicate

it. Evan's inflamed tonsils didn't become a severe problem until he

was about 2 years old. Shortly after he started cycling very two

weeks. He had his tonsillectomy at 2 1/2.

Prayers to everyone,

-Tara mom to Evan(6 in May-) and age 8

Connecticut

>

> I've read many posts about kids having joint pain and

> stomach problems, and we've always assumed that Ella doesn't have

> joint pain or stomach issues, because she has never really

indicated

> that to us, but at the same time she hasn't really been able to

> effectively articulate EXACTLY what hurts. Her vocabulary is

> getting much better now so I'm hoping that with future fever

> episodes we are able to get a better idea of how she is feeling

> during fever episodes.

>

>

>

[Guest guest]

Dana,

His symptoms were reduced greatly for about 3 years. But they just

came back this past November(possibly because of the stress of starting

kindergarten?) I have an appointment with an ID Doc Evan's

rheumotologist recommended next week. Very frustrating to have his

fevers back after so long of a so-called " remission " period.

-Tara

mom to Evan(age 6 in May Pfapa) and age 8

Connecticut

>

> Tara, Did the Tonsillectomy help EVAN? Did his fevers stop?

> Just wondering if that helped any.