Re: A Question for Kathleen

[Guest guest]

Hi Amy-

has not had a tonsillectomy, but as soon as he fully recovers from the

last bout we're going to look into that. I didn't know it was even an option

until I joined this group. It does give us hope.

Thank you for the info.

Kathleen (mom of , 23 yrs old)

-------------- Original message --------------

From: " Amy " <cjackso1@...>

> Kathlleen

> Did your son have a tonsillectomy? If so did it help initially then symptoms

> came back or did it not help at all?

>

> Just curious because my daughter was greatly improved with tonsillectomy but

> still has mouth sores and a couple of cycles in the last 6 months. I have

braced

> my self for the possibility of the symptoms returning but I wondered what your

> experience was like?

>

> Christy Mom to 6y/o

> Missouri Valley Iowa

>

> >>> kmcloud79@... 5/2/2006 6:42 PM >>>

> -

> It has been hard for me to respond to the mom's of young children

> because has suffered from this for so long. I didn't want to

> make anyone feel more frustrated than they already do. He did not

> have genetic tests done. I have 2 other children that have never

> shown any signs

> of . I have 21 nieces and nephews, not one has 's symptoms.

>

> Please feel free to ask me any questions.

>

> Kathleen (mom of 23 yrs old still dealing with )

>

>

> On May 2, 2006, at 6:12 PM, wrote:

>

> > Kathleen,

> > Your son still has at the age of 23? Did he have genetic

> > tests done? I am wondering and worried because we have been told

> > that our daughter would grow out of this and it is shocking to hear

> > that your son has suffered with this for so long. The thought of

> > going through this for that long brings tears to my eyes. Does

> > anyone know if children really grow out of this? Does any one know

> > any child who has grown out of this, and at what age????

> >

> > , mother of ee

> > Just turned 2,

> >

> >

> >>

> >>

> >> -

> >>

> >> My son is 23 yrs old and has had since he was 4 mos old. He

> > has every symptom but has never suffered from a cough. He never has

> > had any other illness, until he was 21 yrs old, that my other

> > children had.

> >>

> >> Kathleen (mother of , 23)

> >> -------------- Original message --------------

> >> From: " jensheahan "

> >>

> >>> Hello all...my 4 year old son has had fevers since

> > he

> >>> was 9 months old. He doesn't always get all the manifestations

> > so we

> >>> were delayed in his diagnosis. He was considered to have

> > systemic JRA

> >>> until recently. He started fevering on Friday night and

> > developed a

> >>> cough. By saturday morning his fever was 104.4,he had the mouth

> > sores,

> >>> was complaining that his neck hurt, but also had this cough. I

> > took

> >>> him into the after hours clinic so I could document the throat

> > because

> >>> I am trying to make a case for a tonsillectomy. They cultured

> > his

> >>> throat, negative as usual, and then decided it was a

> > episode. (I

> >>> knew that but had to get it documented.) Anyway, all symptoms

> > have now

> >>> disappeared except the cough. Does anyone else have a child that

> >>> continues with a gagging cough after all other symptoms

> >>> disappear? I'm not sure if this is typical or maybe it is an

> > allergy.

> >>> Thanks for any replies. I read all posts even though I can't

> > always

> >>> respond!!

> >>>

> >>>

> >>> Mom to , 4 since 9 months

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

[Guest guest]

Kathleen

Good luck!!!!

Christy

>>> kmcloud79@... 5/3/2006 9:11 AM >>>

Hi Amy-

has not had a tonsillectomy, but as soon as he fully recovers from the

last bout we're going to look into that. I didn't know it was even an option

until I joined this group. It does give us hope.

Thank you for the info.

Kathleen (mom of , 23 yrs old)

-------------- Original message --------------

From: " Amy " <cjackso1@...>

> Kathlleen

> Did your son have a tonsillectomy? If so did it help initially then symptoms

> came back or did it not help at all?

>

> Just curious because my daughter was greatly improved with tonsillectomy but

> still has mouth sores and a couple of cycles in the last 6 months. I have

braced

> my self for the possibility of the symptoms returning but I wondered what your

> experience was like?

>

> Christy Mom to 6y/o

> Missouri Valley Iowa

>

> >>> kmcloud79@... 5/2/2006 6:42 PM >>>

> -

> It has been hard for me to respond to the mom's of young children

> because has suffered from this for so long. I didn't want to

> make anyone feel more frustrated than they already do. He did not

> have genetic tests done. I have 2 other children that have never

> shown any signs

> of . I have 21 nieces and nephews, not one has 's symptoms.

>

> Please feel free to ask me any questions.

>

> Kathleen (mom of 23 yrs old still dealing with )

>

>

> On May 2, 2006, at 6:12 PM, wrote:

>

> > Kathleen,

> > Your son still has at the age of 23? Did he have genetic

> > tests done? I am wondering and worried because we have been told

> > that our daughter would grow out of this and it is shocking to hear

> > that your son has suffered with this for so long. The thought of

> > going through this for that long brings tears to my eyes. Does

> > anyone know if children really grow out of this? Does any one know

> > any child who has grown out of this, and at what age????

> >

> > , mother of ee

> > Just turned 2,

> >

> >

> >>

> >>

> >> -

> >>

> >> My son is 23 yrs old and has had since he was 4 mos old. He

> > has every symptom but has never suffered from a cough. He never has

> > had any other illness, until he was 21 yrs old, that my other

> > children had.

> >>

> >> Kathleen (mother of , 23)

> >> -------------- Original message --------------

> >> From: " jensheahan "

> >>

> >>> Hello all...my 4 year old son has had fevers since

> > he

> >>> was 9 months old. He doesn't always get all the manifestations

> > so we

> >>> were delayed in his diagnosis. He was considered to have

> > systemic JRA

> >>> until recently. He started fevering on Friday night and

> > developed a

> >>> cough. By saturday morning his fever was 104.4,he had the mouth

> > sores,

> >>> was complaining that his neck hurt, but also had this cough. I

> > took

> >>> him into the after hours clinic so I could document the throat

> > because

> >>> I am trying to make a case for a tonsillectomy. They cultured

> > his

> >>> throat, negative as usual, and then decided it was a

> > episode. (I

> >>> knew that but had to get it documented.) Anyway, all symptoms

> > have now

> >>> disappeared except the cough. Does anyone else have a child that

> >>> continues with a gagging cough after all other symptoms

> >>> disappear? I'm not sure if this is typical or maybe it is an

> > allergy.

> >>> Thanks for any replies. I read all posts even though I can't

> > always

> >>> respond!!

> >>>

> >>>

> >>> Mom to , 4 since 9 months

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

> >>>

[Guest guest]

thank you

-------------- Original message --------------

From: " Amy " <cjackso1@...>

> Kathleen

> Good luck!!!!

> Christy

>

> >>> kmcloud79@... 5/3/2006 9:11 AM >>>

> Hi Amy-

> has not had a tonsillectomy, but as soon as he fully recovers from the

> last bout we're going to look into that. I didn't know it was even an option

> until I joined this group. It does give us hope.

>

> Thank you for the info.

>

> Kathleen (mom of , 23 yrs old)

>

> -------------- Original message --------------

> From: " Amy "

>

> > Kathlleen

> > Did your son have a tonsillectomy? If so did it help initially then symptoms

> > came back or did it not help at all?

> >

> > Just curious because my daughter was greatly improved with tonsillectomy but

> > still has mouth sores and a couple of cycles in the last 6 months. I have

> braced

> > my self for the possibility of the symptoms returning but I wondered what

your

> > experience was like?

> >

> > Christy Mom to 6y/o

> > Missouri Valley Iowa

> >

> > >>> kmcloud79@... 5/2/2006 6:42 PM >>>

> > -

> > It has been hard for me to respond to the mom's of young children

> > because has suffered from this for so long. I didn't want to

> > make anyone feel more frustrated than they already do. He did not

> > have genetic tests done. I have 2 other children that have never

> > shown any signs

> > of . I have 21 nieces and nephews, not one has 's symptoms.

> >

> > Please feel free to ask me any questions.

> >

> > Kathleen (mom of 23 yrs old still dealing with )

> >

> >

> > On May 2, 2006, at 6:12 PM, wrote:

> >

> > > Kathleen,

> > > Your son still has at the age of 23? Did he have genetic

> > > tests done? I am wondering and worried because we have been told

> > > that our daughter would grow out of this and it is shocking to hear

> > > that your son has suffered with this for so long. The thought of

> > > going through this for that long brings tears to my eyes. Does

> > > anyone know if children really grow out of this? Does any one know

> > > any child who has grown out of this, and at what age????

> > >

> > > , mother of ee

> > > Just turned 2,

> > >

> > >

> > >>

> > >>

> > >> -

> > >>

> > >> My son is 23 yrs old and has had since he was 4 mos old. He

> > > has every symptom but has never suffered from a cough. He never has

> > > had any other illness, until he was 21 yrs old, that my other

> > > children had.

> > >>

> > >> Kathleen (mother of , 23)

> > >> -------------- Original message --------------

> > >> From: " jensheahan "

> > >>

> > >>> Hello all...my 4 year old son has had fevers since

> > > he

> > >>> was 9 months old. He doesn't always get all the manifestations

> > > so we

> > >>> were delayed in his diagnosis. He was considered to have

> > > systemic JRA

> > >>> until recently. He started fevering on Friday night and

> > > developed a

> > >>> cough. By saturday morning his fever was 104.4,he had the mouth

> > > sores,

> > >>> was complaining that his neck hurt, but also had this cough. I

> > > took

> > >>> him into the after hours clinic so I could document the throat

> > > because

> > >>> I am trying to make a case for a tonsillectomy. They cultured

> > > his

> > >>> throat, negative as usual, and then decided it was a

> > > episode. (I

> > >>> knew that but had to get it documented.) Anyway, all symptoms

> > > have now

> > >>> disappeared except the cough. Does anyone else have a child that

> > >>> continues with a gagging cough after all other symptoms

> > >>> disappear? I'm not sure if this is typical or maybe it is an

> > > allergy.

> > >>> Thanks for any replies. I read all posts even though I can't

> > > always

> > >>> respond!!

> > >>>

> > >>>

> > >>> Mom to , 4 since 9 months

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>