Re: Anyone here taking a hands-off approach?

[Guest guest]

hello,

it has been a long time since i posted but here i go. Jane

had fevers for 3 yrs we tried steroids but did not work, we tried

cimetidine with fair results. I used these meds because we were

going thru 4 bottles of ibuprofen and tylonal a month and i was

afraid of the long term effects on her liver and kidneys. Finally

we found a doc to do a T & A. This treatment stopped her fevers. she

has been fever free (anything above 101) for 1 yr and 3 mo..

Now i ask myself was it or a harboring bacteria in her toncils

or adnoids that made her fever every 17 - 19 days. I do not have

the answer. She started Kindergarden this year and has not missed

any school, she is progressing well and we are very proud. She

still is afraid when she gets a head ache or her legs ache. We

take " juice plus " eat healthy food and pray. We often put the

group in our prayers.

Best to you,

Lorraine and Jane (6)

>

> My previous inquiry

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol

only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What

about

> the more medical treatments made a huge difference and were worth

the

> risks/side effects? Does anyone else here NOT use steroids, etc.,

or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

We treat our dd with motrin, and only when she is uncomfortable - typically when

her

fever is over 103. Below that, we tend to let it run it's course. Our doc feels

this is a

reasonable approach. We're not comfortable treating her with prednisone, other

meds or

with tonsilectomy. She's had periodic fevers for two years and gets fevers up to

104.5

every 4-6 weeks that last 5-7 days. The last few have been milder and we're

hoping we're

seeing the beginning of her outgrowing this condition. I agree that this doesn't

seem to be

the norm here, but it's what works for us.

>

> My previous inquiry

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What about

> the more medical treatments made a huge difference and were worth the

> risks/side effects? Does anyone else here NOT use steroids, etc., or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

Treating a child's temp will depend upon how a child reacts to a fever.

If a child has a fever disorder and typically spikes to 103 from normal....

within a few minutes... and continues to elevate to 106 or 107.5... Motrin

and Tylenol alternating is difficult.

Not saying it is not done... I did it from the beginning... when ph was

5 months old and spiked to 106.5.... and remained there for 5 days....

Alternating Tylenol with Motrin brought his temp to 104-105 for 4 days...

And I HAD to give it every 3 hours exactly and use my old fashioned nursing

skills... cooling him with tepid baths and cool wash cloths in his groin,

around his neck and over his head...

Later about 8 months old he began getting febrile seizures and severe

myoclonic jerks... We eventually tried Prednisone... seemed like a miracle

however caused more frequent fevers to the point of returning just 5 days

after medicated... So I stopped... I went back to Motrin and Tylenol. I also

tried Cimetidine.... did not work...

BUT ph does not have as we know now... He does have NOMID.

Let me say.... using Motrin and Tylenol... and choosing ONLY to use this as

treatment is fine... However if parents choose another treatment and it

works... that is a good choice too! Also there are MANY children

here who are NOT able to control their fevers with anti-pyretics because

their fever goes so high.

If a fever only goes to 103... and reduces 1-2 degrees it is easy to simply

use Motrin and Tylenol... But if a child has a periodic fever that tends to

elevate to the extreme.... other measures should be tried.

God Bless

Fran

Fran A Bulone

Mom to ph 6 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

We are very fortunate that our Grant's symptoms are not as severe as many I " ve

read about here, and so we have never used anything but Motrin or Tylenol - in

fact, stubborn as he can be, especially when sick, there were plenty of times

when he would not take M or T! He's thrown up a few times when I nearly forced

it into him, so I don't do that anymore. Some of us have gone the alternative

route - can't talk about that here, but there is a Alternative web group

you can join to find out about the success some of us have had without Pred.

I agree that what works for your child is right!

Christy

mother of Grant 5

letsvt <lisa@...> wrote:

We treat our dd with motrin, and only when she is uncomfortable - typically

when her

fever is over 103. Below that, we tend to let it run it's course. Our doc feels

this is a

reasonable approach. We're not comfortable treating her with prednisone, other

meds or

with tonsilectomy. She's had periodic fevers for two years and gets fevers up to

104.5

every 4-6 weeks that last 5-7 days. The last few have been milder and we're

hoping we're

seeing the beginning of her outgrowing this condition. I agree that this doesn't

seem to be

the norm here, but it's what works for us.

>

> My previous inquiry

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What about

> the more medical treatments made a huge difference and were worth the

> risks/side effects? Does anyone else here NOT use steroids, etc., or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

We have been giving my son Indocin. It is not a steroid and it works better

then the Motrin/Tylenol. He only takes it during fever episodes. When the

medication wears off the fever starts to spike again. It does not eliminate the

fevers and other symptoms but it keeps him well enough to attend school.

I am sure you find lots of valuable information here!

mom of (, 6 yrs)

and Luke (3 yrs) and with to Jerry (kidney cancer survivor!)

-------------- Original message --------------

From: " mamageph " <Taton_Ranch@...>

My previous inquiry

(/message/12585) didn't get any

bites, so I'll try a different direction.

We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

along with plenty of rest and fluids. The more I have read on this

forum, the more I see we are not the norm.

Since this is a support group, I am looking for your input. What about

the more medical treatments made a huge difference and were worth the

risks/side effects? Does anyone else here NOT use steroids, etc., or

tonsillectomy to treat your child?

Thanks in advance for your feedback!

[Guest guest]

>

We treated our daughter solely by alternating Motrin and Tylenol for

9 months. Then rather suddenly last August the Motrin and Tylenol

became less effective (or Ella's fevers became more severe, or both)

and our daughter had a febrile seizure. We experienced a similar

situation to what Fran mentioned in that the fever would be over 106

and the Tylenol and Motrin would only bring it down a degree or two

and that was with alternating them every three hours and sitting in

the bathtub and eating popsicles. Ella does take prednisone now

with her fevers, but I think we'd be willing to give up the

prednisone if we were better able to manage her fevers with Tylenol

and Motrin (I think we'd be happy if we could keep the temp below

101 or 102 with Tylenol and Motrin, but sadly that doesn't happen)

and if we felt relatively certain that we'd be able to avoid any

future febrile seizure episodes.

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol

only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What

about

> the more medical treatments made a huge difference and were worth

the

> risks/side effects? Does anyone else here NOT use steroids, etc.,

or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

Hi my son Nicolas he was a baby and he would run sky high fevers and he would

go into seizure and now they say he developed epilepsy. My son since birth has

lived on tylonel and motrin were now tylonel dont touch them and motrin brings

them down a degree or two sometimes it takes the fever to 99 and when it wears

down it sky rockets again.I dont have any luck with his doctors they know they

dont work and they have never gave me nothing to help. An infection disease

doctor gave us prednisone.

Good Luck

Sacora

" (Berggren) Alsleben " <annaalsl@...> wrote:

>

We treated our daughter solely by alternating Motrin and Tylenol for

9 months. Then rather suddenly last August the Motrin and Tylenol

became less effective (or Ella's fevers became more severe, or both)

and our daughter had a febrile seizure. We experienced a similar

situation to what Fran mentioned in that the fever would be over 106

and the Tylenol and Motrin would only bring it down a degree or two

and that was with alternating them every three hours and sitting in

the bathtub and eating popsicles. Ella does take prednisone now

with her fevers, but I think we'd be willing to give up the

prednisone if we were better able to manage her fevers with Tylenol

and Motrin (I think we'd be happy if we could keep the temp below

101 or 102 with Tylenol and Motrin, but sadly that doesn't happen)

and if we felt relatively certain that we'd be able to avoid any

future febrile seizure episodes.

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol

only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What

about

> the more medical treatments made a huge difference and were worth

the

> risks/side effects? Does anyone else here NOT use steroids, etc.,

or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

We usually only due the Motrin/Tylenol combination too. However, my

son is not allowed to take the steroids due to having intestinal

problems. I would probably give the steroids to him, if the Doctors

would have said he could take them though because his fevers had been

going up to 105. I would never consider putting him through a

tonsillectomy unless the Doctors would tell me that it was a full-proof

guarantee that it would work ... and so far, it doesn't always work for

everyone. I tend to be on the cautious side when it comes to surgery

because our son has already been through 4 of them for his intestinal

problems and really don't want to have him be " put under " for a surgery

which may possibly work but had no guarantees. I also understand that

some children have very difficult times with tonsillectomy, as my niece

had hemorrhaged after hers were removed (she was born with very large

tonsils which affected her breathing and did not have them removed due

to ). Currently my son is taking Cimetidine and at this point

we're unsure if its helping at all as he's only been on it for 3 months.

But again, its very difficult for anyone here to tell you what you

should or should not do ... it really all comes down to what you are

comfortable with and how you feel your child responds, etc. There are

so many factors that can come into play with you making the decisions

for your child.

I also would try and help Mason's fevers come down with the tepid

baths, and wiping him down as Fran had mentioned because the

Motrin/Tylenol numerous times didn't bring it down enough for me to

feel comfortable that he wouldn't dehydrate. Dehydration is always my

biggest concern when he has these fevers since it can happen so quickly.

I hope this helped some.

Heidi

Mommy of Mason

>

> My previous inquiry

> (/message/12585) didn't get any

> bites, so I'll try a different direction.

>

> We have chosen thus far to treat dd's spikes with Motrin/Tylenol

only,

> along with plenty of rest and fluids. The more I have read on this

> forum, the more I see we are not the norm.

>

> Since this is a support group, I am looking for your input. What

about

> the more medical treatments made a huge difference and were worth the

> risks/side effects? Does anyone else here NOT use steroids, etc., or

> tonsillectomy to treat your child?

>

> Thanks in advance for your feedback!

>

[Guest guest]

Thanks to all wo replied! Since I know no one else who is going

through the lifestyle, I really had no idea the extremes it

could take until I found this group.

Thank you again for everyone's information.

>

> Treating a child's temp will depend upon how a child reacts to a

fever.

> If a child has a fever disorder and typically spikes to 103 from

normal....

> within a few minutes... and continues to elevate to 106 or

107.5... Motrin

> and Tylenol alternating is difficult.

>

> Not saying it is not done... I did it from the beginning... when

ph was

> 5 months old and spiked to 106.5.... and remained there for 5

days....

> Alternating Tylenol with Motrin brought his temp to 104-105 for 4

days...

> And I HAD to give it every 3 hours exactly and use my old

fashioned nursing

> skills... cooling him with tepid baths and cool wash cloths in his

groin,

> around his neck and over his head...

>

> Later about 8 months old he began getting febrile seizures and

severe

> myoclonic jerks... We eventually tried Prednisone... seemed like a

miracle

> however caused more frequent fevers to the point of returning just

5 days

> after medicated... So I stopped... I went back to Motrin and

Tylenol. I also

> tried Cimetidine.... did not work...

>

> BUT ph does not have as we know now... He does have

NOMID.

>

> Let me say.... using Motrin and Tylenol... and choosing ONLY to

use this as

> treatment is fine... However if parents choose another treatment

and it

> works... that is a good choice too! Also there are MANY

children

> here who are NOT able to control their fevers with anti-pyretics

because

> their fever goes so high.

>

> If a fever only goes to 103... and reduces 1-2 degrees it is easy

to simply

> use Motrin and Tylenol... But if a child has a periodic fever that

tends to

> elevate to the extreme.... other measures should be tried.

>

>

> God Bless

> Fran

> Fran A Bulone

> Mom to ph 6 yrs old

> Waxhaw, NC

> Owner & Moderator Group

>

>

>

>

>

[Guest guest]

Thank you for this information! I think this might be a good place

to check out. Do you have the web addy?

> >

> > My previous inquiry

> > (/message/12585) didn't get

any

> > bites, so I'll try a different direction.

> >

> > We have chosen thus far to treat dd's spikes with Motrin/Tylenol

only,

> > along with plenty of rest and fluids. The more I have read on

this

> > forum, the more I see we are not the norm.

> >

> > Since this is a support group, I am looking for your input. What

about

> > the more medical treatments made a huge difference and were

worth the

> > risks/side effects? Does anyone else here NOT use steroids,

etc., or

> > tonsillectomy to treat your child?

> >

> > Thanks in advance for your feedback!

> >

>

>

>

>

>

>

>

[Guest guest]

,

Hi. Well I'm definitely not a medical professional but I did ask that same

question of my Rheumatologist. He told me that there were many more

underlying things that can result from frequent fevers. He explained that,

in my daughter's case, proteins can build up in the blood and cause severe

kidney problems down the road. So, if it were me, I would consult the

specialists in your son's care and get their opinions and recommendations.

Best of luck.

Becky

-- Re: Anyone here taking a hands-off approach?

We have been giving my son Indocin. It is not a steroid and it works better

then the Motrin/Tylenol. He only takes it during fever episodes. When the

medication wears off the fever starts to spike again. It does not eliminate

the fevers and other symptoms but it keeps him well enough to attend school.

I am sure you find lots of valuable information here!

mom of (, 6 yrs)

and Luke (3 yrs) and with to Jerry (kidney cancer survivor!)

-------------- Original message --------------

From: " mamageph " <Taton_Ranch@...>

My previous inquiry

(/message/12585) didn't get any

bites, so I'll try a different direction.

We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

along with plenty of rest and fluids. The more I have read on this

forum, the more I see we are not the norm.

Since this is a support group, I am looking for your input. What about

the more medical treatments made a huge difference and were worth the

risks/side effects? Does anyone else here NOT use steroids, etc., or

tonsillectomy to treat your child?

Thanks in advance for your feedback!

[Guest guest]

When My son was experiencing fevers monthly we would treat him with

Motrin/Tylenol only. Dillon hasn't had a fever in over a year now and It

appears he may have outgrown it so its hard to say whether it was just his

time to be done or if it was something else.

North Texas

Dillon age 3

Re: Anyone here taking a hands-off approach?

We have been giving my son Indocin. It is not a steroid and it works better

then the Motrin/Tylenol. He only takes it during fever episodes. When the

medication wears off the fever starts to spike again. It does not eliminate

the fevers and other symptoms but it keeps him well enough to attend school.

I am sure you find lots of valuable information here!

mom of (, 6 yrs)

and Luke (3 yrs) and with to Jerry (kidney cancer survivor!)

-------------- Original message --------------

From: " mamageph " <Taton_Ranch@...>

My previous inquiry

(/message/12585) didn't get any bites, so

I'll try a different direction.

We have chosen thus far to treat dd's spikes with Motrin/Tylenol only, along

with plenty of rest and fluids. The more I have read on this forum, the more

I see we are not the norm.

Since this is a support group, I am looking for your input. What about the

more medical treatments made a huge difference and were worth the risks/side

effects? Does anyone else here NOT use steroids, etc., or tonsillectomy to

treat your child?

Thanks in advance for your feedback!

[Guest guest]

Hi Becky,

Indocin is a prescription that was given to us by my sons Rheumatologist. We

have been to many specialists and will continue to see them.

I mentioned the Indocin to you because it is not has hard on the body as the

steroids and is (I believe) a little stronger then the Tylenol and Motrin.

For my son the Tylenol and Motrin help to bring down the fever some but not all

the way. With the Indocin the fever usually comes down all the way and he does

not even seem sick until the Indocin starts to wear off.

Prayers!

--------- Re: Anyone here taking a hands-off approach?

We have been giving my son Indocin. It is not a steroid and it works better

then the Motrin/Tylenol. He only takes it during fever episodes. When the

medication wears off the fever starts to spike again. It does not eliminate

the fevers and other symptoms but it keeps him well enough to attend school.

I am sure you find lots of valuable information here!

mom of (, 6 yrs)

and Luke (3 yrs) and with to Jerry (kidney cancer survivor!)

-------------- Original message --------------

From: " mamageph " <Taton_Ranch@...>

My previous inquiry

(/message/12585) didn't get any

bites, so I'll try a different direction.

We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

along with plenty of rest and fluids. The more I have read on this

forum, the more I see we are not the norm.

Since this is a support group, I am looking for your input. What about

the more medical treatments made a huge difference and were worth the

risks/side effects? Does anyone else here NOT use steroids, etc., or

tonsillectomy to treat your child?

Thanks in advance for your feedback!

[Guest guest]

,

I just wanted to be sure that you realize that I was in no way criticizing

your approach or anything. I feel that the less evasive way to deal with

things the better. I just wanted to mention the things that the Rheum.

told me when I asked if I could just treat the fevers when they come verses

keeping her on a medicine all the time to prevent them from coming. I had

no Idea the other complications that went along with the fevers. So as long

as you know I meant no harm in my comments.... Best wishes.

Becky

-- Re: Anyone here taking a hands-off approach?

Hi Becky,

Indocin is a prescription that was given to us by my sons Rheumatologist.

We have been to many specialists and will continue to see them.

I mentioned the Indocin to you because it is not has hard on the body as the

steroids and is (I believe) a little stronger then the Tylenol and Motrin.

For my son the Tylenol and Motrin help to bring down the fever some but not

all the way. With the Indocin the fever usually comes down all the way and

he does not even seem sick until the Indocin starts to wear off.

Prayers!

--------- Re: Anyone here taking a hands-off approach?

We have been giving my son Indocin. It is not a steroid and it works better

then the Motrin/Tylenol. He only takes it during fever episodes. When the

medication wears off the fever starts to spike again. It does not eliminate

the fevers and other symptoms but it keeps him well enough to attend school.

I am sure you find lots of valuable information here!

mom of (, 6 yrs)

and Luke (3 yrs) and with to Jerry (kidney cancer survivor!)

-------------- Original message --------------

From: " mamageph " <Taton_Ranch@...>

My previous inquiry

(/message/12585) didn't get any

bites, so I'll try a different direction.

We have chosen thus far to treat dd's spikes with Motrin/Tylenol only,

along with plenty of rest and fluids. The more I have read on this

forum, the more I see we are not the norm.

Since this is a support group, I am looking for your input. What about

the more medical treatments made a huge difference and were worth the

risks/side effects? Does anyone else here NOT use steroids, etc., or

tonsillectomy to treat your child?

Thanks in advance for your feedback!