Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 , I forgot to thank you for bringing the Munchhauser up. That is such a shameful thing that I think it is even hard to discuss. As you can see you were not the only one. , Clay was put on pred for almost a year and half. He was just taken off his daily dose in July. Now he only gets pred during the fever. Before pred we had no idea when the fevers were coming. They seemed to be all month long. He was always sick. He was hospitalized alot because he could not get over one to where another one came. At least on pred it became once a month and less symptomatic. He was only hospitalized on the pred 3 times with the pred. He was also on colchocine and naprosyn at the same time with pred. Since no daily pred in August he had 4 fevers. He got pred during them but within 3-4 days off pred he gets a fever. They are for the most part, what I consider, little ones and uneventful. We are trying to desperately get into NIH. Tammy Mother of Clay 3 Quote Link to comment Share on other sites More sharing options...
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