Yes I had the spine/neck MRI etc.

[Guest guest]

Yes, I had the neck/spine MRI and they said no lesions. Neuro also

said no sign of Old lesions but heck, if I've had this one lesion for

the 10 years I've had symptoms, isn't it old? Do the lesions start

tiny speck then get bigger as more damage occurs? Mine is only 7mm X

9mm and he showed me a area where usually MS lesions are scattered

about and said I didn't have any there. More Confusion! My brain

lesion is in the Vision area the neuro says which I find odd. I

don't have any vision symptoms and he said that having a lesion there

doesn't mean I will but there is no way of knowing for sure. Weird!!

How many people with lesions in the Vision area of brain have vision

problems on this group?

I have the pins/needles sensation(lets up when cooler), shocking

sensations, numb All over, off balance like a Drunk (better on

since LDN), pain in arms/hands/legs/feet/joints(much better on LDN!),

memory problems/cognitive/brain fog, Fatigue, legs give out more when

Hot but I walk with No assistance and look damn normal. Have chronic

allergies and get migraines that weather changes seem to bring on and

who know what else.... No noticeable bladder problems. Do get up to

pee some at night but I drink a lot of Water.

Also, I think I asked this before, does anyone that has taken the

Revia know if when crushed, theh yellow is the Lactose filler and the

white the Naltrexone. Seems to be more of the white than yellow and

the white is finer than the yellow.

I didn't get the spinal tap b/c it can be so non-conclusive and I

can't stand the thought of getting one.

Rhonda

> > > Hi everyone,

> > >

> > > Since Marcie did not have an MRI just before starting the

LDN,

> she

> > can't be sure if the few new lesions are prior to staring LDN,

or

> > post LDN. If we have the chance to chat with someone

interested in

> > taking LDN, maybe we should suggest that they get a fresh MRI

just

> > before starting, in order to adequately track progress/or lack

of.

> > >

> > > Aletha

> > > Re: [low dose naltrexone] New Doctor Update

> > >

> > >

> > > I'll try to make this brief!

> > >

> > > I had an MRI done a couple of weeks ago. I hadn't had one

done

> > since Sept '99. I've been on LDN for 15 months. The new Nuero

> > compared the two, and although there were a few more lesions

since

> > the '99 MRI, he said that given my state of progression, he

would

> > have expected it to look much worse. So, I guess the bottom

line

> is

> > that we can't really know what the LDN is doing until we do

another

> > MRI next January. He was very open-minded and acted interested

in

> > talking to Dr Bihari. He, at least, didn't poo-poo what I'm

> doing.

> > His comment about LDN was that he knew for certain that it

wouldn't

> > hurt me.

> > >

> > > He did send info on Novantrone home with me but said for me

to

> > look it over, and if I'm interested, there'[s no hurry.

Wouldn't

> the

> > chemo work against LDN? I told him that I can't do anything to

> risk

> > not being able to take care of myself. I also asked if one

loses

> > their hair. Told him my vanity is about all I've got left!

LOL!!

> I

> > do have good hair! He asked if I had any other problems, to

which

> I

> > said, " Nope. I'm one of the healthiest people I know! " The

look

> on

> > his face was puzzled.

> > >

> > > I did like him, so now maybe I won't be down on Nueros!

> > >

> > > Marcie

> > >