Re: Re: no response to LDN

[Guest guest]

Sorry Jerzy ,not all get symptom relief from LDN. The LDN is to simply stop the progression and anything else is a perk. Most who get symptom relief, get it if the new symptom appeared within the past 3 months of starting LDN.

I get mine from Irmat and have not progressed in 18 months. I did see slight symptom relief in the beginning, but Dr. Bihari did say only if it happened in the past 3 months and that's it.(Mine had happened just prior to that)

Had you noticed any progression while on it? Kiki

[Guest guest]

Hi Cinders,

How long have you been taking LDN? What kind of improvements and

progressions have you noted? I hope you don't mind my questions. I am just

trying to compile information for my husband. He has been on for 1 week

now. More energy, less overall depression, but depression is still there as

he still feels his numbness and tingling.

Thanks

Aletha

[low dose naltrexone] Re: no response to LDN

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> Hi There - I have no answers for you, but didn't want you to feel

> ignored. I understand your depression (have some of my own since I

> too seem to still be progressing) and want you to know you are

> welcome to post here, or write me direct. Sorry I don't have any

> answewrs, but hope someone has some suggestions for you - Cinders

> allentownusa@...

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[Guest guest]

I started on 3.0 for 300 days and tried 4.5 for 38 days, went back to 3.0 and then tried it again for only 2 weeks and went back to 3.0, I think 3.0 is much better. Not sure how things would have gone if I started with 4.5, but that's just me.

DL-Phenylalanine 500 MG are capsules you'll find in any health food type vitamin store.. Vitamin World, GNC... it has some cautions, but some people try it to see if it helps keep what the LDN helped produce for longer

Just put dl-phenylalanine in a google search and you can read about it.

Here's one to check out too... http://www.mwt.net/~drbrewer/lownaltrex.htm

DL-Phenylalanine: The amino acid DL-phenylalanine has been reported to slow down the breakdown of endorphins and other painkillers. Daytime usage of this amino acid (taken on an empty stomach) may help to sustain the benefit of nighttime usage of naltrexone by maintaining high levels of endorphins.

I tried it, haven't continued taking it. Not sure it helped any.

If you want to read my story, http://www.larrygc.com/mystory will take you there, it's to my LDN EzBoard site.

[low dose naltrexone] Re: no response to LDN

Thanks for your replies.I am taking it around 10PM. Maybe 4.5mg of LDN is not "low" enough forme, I will try that.What is DL-Phenylalanine?> Are you taking it after 9PM and before 3AM local time? Did you try3.0 MG? How about DL-Phenylalanine 500 MG around 8-9AM in addition?

[Guest guest]

I am about to try Tysabri on the advice of a Dr. that I trust(he put me on LDN). He said a monoclonal antibody is the first step in the right direction that the big pharma co's. have taken so far.I'd like to hear more about your experience....more tingling does not sound good.I too have only gotten limited value from the LDN. I've been on 4.5 mgs. for 10 months now.But I still take it.I also just started Biaxin, an antibiotic,3 days ago. I am trying to eliminate whatever may be giving me this awful disease.

-- [low dose naltrexone] Re: no response to LDN

,

I just had a few questions, about your post. With my personal

experience, I did get symptom relieve by taking LDN. But my MS did

progress, I have the MRI's too prove it. My main question was on your

[Guest guest]

Hi Aletha ( for your hubby)

I just had to put my two bits worth in here as I have been on my max dose 3.0mgs for over a year now and everyday I have sum numbness and tingling.

But I look at what I was like before the miracle of LDN and still have to say keep on with it,,...it could be worse on any of the CRAB's.

Reg.

-- Re: [low dose naltrexone] Re: no response to LDN

Hi Cinders,How long have you been taking LDN? What kind of improvements and progressions have you noted? I hope you don't mind my questions. I am just trying to compile information for my husband. He has been on for 1 week now. More energy, less overall depression, but depression is still there as he still feels his numbness and tingling.ThanksAletha [low dose naltrexone] Re: no response to LDN>>> Hi There - I have no answers for you, but didn't want you to feel> ignored. I understand your depression (have some of my own since I> too seem to still be progressing) and want you to know you are> welcome to post here, or write me direct. Sorry I don't have any> answewrs, but hope someone has some suggestions for you - Cinders> allentownusa@...>>>>>>>>>>

[Guest guest]

Minocyline is more effective against Lyme and mycoplasma than Biaxin...

[low dose naltrexone] Re: no response to LDN

,

I just had a few questions, about your post. With my personal

experience, I did get symptom relieve by taking LDN. But my MS did

progress, I have the MRI's too prove it. My main question was on your

[Guest guest]

Hi Jerzy,

LDN is only suppose to stop the progression of the disease. On some people, they have symptomatic relief but if that happens it is a bonus. Do you know if you have progressed?

Marie

[low dose naltrexone] Re: no response to LDN> > > >> >> > Hi There - I have no answers for you, but didn't want you to feel> > ignored. I understand your depression (have some of my own since I> > too seem to still be progressing) and want you to know you are> > welcome to post here, or write me direct. Sorry I don't have any> > answewrs, but hope someone has some suggestions for you - Cinders> > allentownusa@h...> >> >> >> >> >> >> >> >> >> >

[Guest guest]

Thanks Reg,

I'll share your post with . I know you are right and it is still worth working with. He has only 1 week under his belt. The numbness and tingling remind him of the MS and depression sets in.

Thanks

Aletha

[low dose naltrexone] Re: no response to LDN>>> Hi There - I have no answers for you, but didn't want you to feel> ignored. I understand your depression (have some of my own since I> too seem to still be progressing) and want you to know you are> welcome to post here, or write me direct. Sorry I don't have any> answewrs, but hope someone has some suggestions for you - Cinders> allentownusa@...>>>>>>>>>>

[Guest guest]

Hi Jerzy,

Yes, perhaps you are not dealing with MS. I was of the understanding everyone with MS that has had the CBSC treatment has been helped to some degree. Good luck. Please keep us posted.

We all have so much to learn from each other.

Regards

in Australia

-- [low dose naltrexone] Re: no response to LDN

The stem cells did no good either, and I actually felt worse as a

result of the pre-treatment and the subsequent diet regime. I was not

supposed to eat anything really nutritious for three months in order

to promote cell proliferation, but I only lost a lot of weight and

strength (I was slender and quite fit before that).

> Jerzy

>

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Jerzy

Since the stem cells didn't work get yourself tested by a Lyme Literate doctor. You may not be dealing with an auto-immune disease.