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Oh Donna, it is the scariest thing ever isn't it. I just can't

understand why they won't respond when we call them. They just seem

to totally zone out when they are over stimmmed. I am learning to

check the dark places first. I never thought about dangly things.

Hmmmm....maybe that makes sense about the closets and the coat racks,

etc. It almost seems like a great way to disappear into the walls.

KWIM? Did Maddie do the nakey nakey thing forever too? Every time I

turn around my kid is naked. Think she could go sit on the toilet

while she is unclothed? Not a chance! Perfect time to pee on the

rugs. I think I am going to use all these experiences for a great

stand up comedy routine. Oh, gotta run, she is fishing in the

toilet. Yuck!

Cheryl

> In a message dated 7/16/01 10:46:14 PM Eastern Daylight Time,

> magnussen@t... writes:

>

>

> >

> > We'll be had if we ever lose our sense of humour Donna. Does

Maddie

> > ever disappear into dark spaces just to calm herself?

>

> OH YES Cheryl. Her favorite place to be used to be the closet----

You know,

> all those wonderful dangling things!!!! LOL Once, we couldn't

find her

> and she was hiding in the tv cabinet. Just this past weekend, my

BIL was

> kind enough to offer to babysit her while Duff and I and his sister

(BIL's

> wife) went out on the boat with my other little girl and my

nephew. When we

> came back, he said that he couldn't find her and was in a total

panic. He

> figured he'd rather leave the country and assume a new identity

than tell us

> he lost her.......;-) BUT, she was in the closet. I'll never

forget the

> very first time she got away from us. I remember ALL of us

running around

> like crazy screaming her name..........and like a light going off,

REALIZING

> calling her makes NO DIFFERENCE whatsoever. VERY scary!!!

> Donna

>

>

>

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-, isn't it great how kids learn to self regulate. They are so

good at finding ways to meet their needs. I am sure that is exactly

what Angel is doing when she dissapears, just gotta find a safe place

to do it.

Cheryl'

-- In @y..., Doug <doug.smith@s...> wrote:

> Cheryl, will sometimes go into the downstairs bathroom and

close

> the door and play with his ball, just sit there and bounce it in the

> dark. or if his brothers are wrestling and being loud he will just

take

> his ball and go into a corner somewhere as if to say, I have had

> enough. - mom to Alek 8, 7, 5 DS/ASD,

> Logan 3, and Liam 11/2.

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Time for me to read the toilet training book that Joan just sent my

way. The 'toilet fishing' was a poop smearing mess, everywhere.

That smell is hard to get out of the walls. That was just a reminder

for me not to think all is well because it is quiet. Silence is not

golden, it is STINKY. I'm learning!

Cheryl

> > In a message dated 7/16/01 10:46:14 PM Eastern Daylight Time,

> > magnussen@t... writes:

> >

> >

> > >

> > > We'll be had if we ever lose our sense of humour Donna. Does

> Maddie

> > > ever disappear into dark spaces just to calm herself?

> >

> > OH YES Cheryl. Her favorite place to be used to be the closet---

-

> You know,

> > all those wonderful dangling things!!!! LOL Once, we couldn't

> find her

> > and she was hiding in the tv cabinet. Just this past weekend,

my

> BIL was

> > kind enough to offer to babysit her while Duff and I and his

sister

> (BIL's

> > wife) went out on the boat with my other little girl and my

> nephew. When we

> > came back, he said that he couldn't find her and was in a total

> panic. He

> > figured he'd rather leave the country and assume a new identity

> than tell us

> > he lost her.......;-) BUT, she was in the closet. I'll never

> forget the

> > very first time she got away from us. I remember ALL of us

> running around

> > like crazy screaming her name..........and like a light going

off,

> REALIZING

> > calling her makes NO DIFFERENCE whatsoever. VERY scary!!!

> > Donna

> >

> >

> >

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In a message dated 01-07-13 16:16:30 EDT, you write:

<< I am wondering about a dog. Do you think anyone can train a dog to be

ever

vigilent like Lassie? Bark loudly when our children leave the house, louder

when they leave the yard, frantically look for mom or dad, and maybe follow

them if all else fails. Does anyone have a dog like this? just wondering.

We don't have a dog but such a dog would be nice.

>>

That is so funny. I looked into a companion dog years ago for my son. You

know, some sort of breed that had herding skills and one that would also

alert us to problems. He was on the waiting list in VA for a companion dog,

but it never came through. Since then we have gotten a dog and Marley loves

our big Choc. Lab (Lexi). She is a Labrador Retriever so I thought maybe we

could teach her to retrieve Marley. But in the last 18 months Marley has

stopped wandering off and is very much a closer to home kind of guy. In fact

the dog wanders off more than Marley does. You might try calling a place

that trains seeing eye and hearing ear dogs--because sometimes they have dogs

that are not quite right for those jobs but that might fit your needs more.

I read about a dog once that failed the hearing ear dog program because he

would not jump on the furniture. (I thought, that's the dog for me!) The dog

ended up at a group home and the news article said that the dog encouraged

speech in a young adult woman with Downs Syndrome. This was in VA.

momto Marley 10 DS/ASD, Cas, and Kira

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i think the not answering is something they do out grow, nathan will be ten

in a couple weeks, and lately if he isnt in family room or outside on swing,

i wil yell up stairs for him (playing toys) and occasionally now he answers

with a " ya " or a " what " once he even said " why " and i said becuase i said

so! (i needed him to come down stairs)what a goof. shawna.

> Re: Running away again

>

>

> Oh Donna, it is the scariest thing ever isn't it. I just can't

> understand why they won't respond when we call them. They just seem

> to totally zone out when they are over stimmmed. I am learning to

> check the dark places first. I never thought about dangly things.

> Hmmmm....maybe that makes sense about the closets and the coat racks,

> etc. It almost seems like a great way to disappear into the walls.

> KWIM? Did Maddie do the nakey nakey thing forever too? Every time I

> turn around my kid is naked. Think she could go sit on the toilet

> while she is unclothed? Not a chance! Perfect time to pee on the

> rugs. I think I am going to use all these experiences for a great

> stand up comedy routine. Oh, gotta run, she is fishing in the

> toilet. Yuck!

>

> Cheryl

>

> > In a message dated 7/16/01 10:46:14 PM Eastern Daylight Time,

> > magnussen@t... writes:

> >

> >

> > >

> > > We'll be had if we ever lose our sense of humour Donna. Does

> Maddie

> > > ever disappear into dark spaces just to calm herself?

> >

> > OH YES Cheryl. Her favorite place to be used to be the closet----

> You know,

> > all those wonderful dangling things!!!! LOL Once, we couldn't

> find her

> > and she was hiding in the tv cabinet. Just this past weekend, my

> BIL was

> > kind enough to offer to babysit her while Duff and I and his sister

> (BIL's

> > wife) went out on the boat with my other little girl and my

> nephew. When we

> > came back, he said that he couldn't find her and was in a total

> panic. He

> > figured he'd rather leave the country and assume a new identity

> than tell us

> > he lost her.......;-) BUT, she was in the closet. I'll never

> forget the

> > very first time she got away from us. I remember ALL of us

> running around

> > like crazy screaming her name..........and like a light going off,

> REALIZING

> > calling her makes NO DIFFERENCE whatsoever. VERY scary!!!

> > Donna

> >

> >

> >

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Too scary . We go through this still . Quietness and hiding . Never

knowing whats going through their minds . Its been a while since

has done this but one early morning he went to the garage to

get a crate full of toys . When I woke up I jumped up to look into

his bedroom to see if he was still asleep . Then the search begin .

My husband and other son (Rick) were out of town . I had looked at

the garage door , the key was inserted and I did not bother looking

inside . One more trip around the house , finally went to check ,

sure enough there he was and locked inside . One of the locks decided

to kick in , since it was not working . He could not enter and he was

sitting on the crate by the door , waiting . That stink pot raising

my blood . I normally would have not allowed the crate full of toys

inside , but since he went through that ordeal of trying to bring it

in , I allowed him . I was surprised to see how strong he was

carrying it in . I just read a 1 1/2 year old kid wander off

outside , guess where ? Yes , the swimming pool , sadly to say he did

not survive . I know we've had close calls with our kids wandering

off , too many stories . Prayers that we may never have to confront

our kids in danger .

Irma , 12,DS/ASD.

>

>

> > > In a message dated 7/16/01 10:46:14 PM Eastern Daylight Time,

> > > magnussen@t... writes:

> > >

> > >

> > > >

> > > > We'll be had if we ever lose our sense of humour Donna. Does

> > Maddie

> > > > ever disappear into dark spaces just to calm herself?

> > >

> > > OH YES Cheryl. Her favorite place to be used to be the closet-

--

> -

> > You know,

> > > all those wonderful dangling things!!!! LOL Once, we

couldn't

> > find her

> > > and she was hiding in the tv cabinet. Just this past weekend,

> my

> > BIL was

> > > kind enough to offer to babysit her while Duff and I and his

> sister

> > (BIL's

> > > wife) went out on the boat with my other little girl and my

> > nephew. When we

> > > came back, he said that he couldn't find her and was in a total

> > panic. He

> > > figured he'd rather leave the country and assume a new identity

> > than tell us

> > > he lost her.......;-) BUT, she was in the closet. I'll

never

> > forget the

> > > very first time she got away from us. I remember ALL of us

> > running around

> > > like crazy screaming her name..........and like a light going

> off,

> > REALIZING

> > > calling her makes NO DIFFERENCE whatsoever. VERY scary!!!

> > > Donna

> > >

> > >

> > >

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In a message dated 7/18/01 1:55:32 AM Eastern Daylight Time,

magnussen@... writes:

> Did Maddie do the nakey nakey thing forever too? Every time I

> turn around my kid is naked. Think she could go sit on the toilet

> while she is unclothed? Not a chance! Perfect time to pee on the

> rugs. I think I am going to use all these experiences for a great

> stand up comedy routine. Oh, gotta run, she is fishing in the

> toilet. Yuck

LOLOLOL Cheryl. Yep, makes for a good routine, doesn't it??? Maddie takes

her shirt off these days. And shoes. She doesn't mind wearing pants. As

far as not answering us, Maddie is not only non-verbal, but doesn't

comprehend words. We have just gotten to the point where she'll turn when

you call her....IF she is close enough. No hearing problems, just attention

ones.

And Irma? Hiding in the garage!!! Oh man!!!! That wouldn't be one of my

top ten places to look!!! And Happy Birthday to !!!! And tell him

we said CONGRATS for saying his name so nicely!!!!

Donna

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