Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/01 5:18:35 AM Pacific Daylight Time, okieleah@... writes: << and gail, you keep on laughing, YOUR TIME WILL BE HERE SOON.....lmao unless seth is petite forver...... but like peggy said that is the only way we survive......... take care all, leah >> Oh yeah, he will be! I insist on it! LOL Ummmmm, what stunts growth? Coffee? LOL Little bugger is 41 pounds now. When his weight catches up with my age I'm going to put my brain in gear and invent a *child mover* LOL Guess with all the laughing I'm doing with the *I'm fine/bine*, I'll get no sympathy here. LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/2001 7:18:39 AM EST, okieleah@... writes: << does billy ray respond to positive reinforcement as the school calls it???? >> Only occasionally. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/01 8:35:18 AM Eastern Daylight Time, okieleah@... writes: << lolol my friend's daughter is just down syndrome and 15.... she says that all the time>>>>> mom will say " tasha please clean your room or tasha set the table " tasha replies " no thank you,i fine " her mother gets sooooooo frustrated as i am sure you do too....i guess we all do....i remember when ashton was 6,7, and even 8, but nowhere near 100 pds, it was easy to pick her up and move her to wherever......not no more.....i could see me with a thrown out back or slipped disc......(donna wasn't this you, or was it neck/)trying to take care of her......ggexxxxxxx i don't even try to pick her out now, we just wait it out..... >> Leah, Just wanted to respond to this. We work really hard to use positive supports for Gene at home and ALOT at school to keep him from yelling really loud " NOs " when asked to do something he doesn't want to do. For him, that often means just pointing out that after he does xyz, he can go to lunch, or play computer for 10 minutes or go home, etc. We have positive supports in his IEP...this loud NO stuff is really the biggest challenge at school for him in an inclusive situation. Our district has a 6 week summer autism program. Gene has been in it the past few years but this year, he moved to the jr. high level. New teacher. I got a picture of the teacher, did a story about her and Mr. Bill helping Gene learn, took his schedule board to school and explained to them how to transition with counting down, etc...and how to use positive reinforcers interspersed with difficult tasks. I was mildly surprised that the teacher didn't call me to discuss Gene prior to the first day. My 11 year old son agreed to stay the afternoon to be of assistance. The teacher assured me that she knew behavior was communication. The sped asst director told me the teacher had a copy of his IEP and his behavior support plan. When I came back, I was appalled to find out that at about 1PM, after gym, they asked Gene to get up and come and do his writing. ( To begin with he struggles greatly with writing and cannot yet print his own name without tracing it). He said " NO " in a normal tone of voice. They persisted and he got louder. They then physically pulled him off the couch ( he is 5'1 " tall and weighs about 135). They hauled him toward the desk to write and he sat down. By then, he was really screaming loud and they said he needed to be quiet. They took him into a 6x6 foot white walled room with no windows. They went in with him and shut the door. Drew said he was screaming and crying. When he finally stopped and they thought he would work, they let him out and he went back to the couch. They took him in the room three times altogether, actually carrying him by the ankles and wrist at one point according to my son. ( They denied that ), but he did have black adn blue marks on the under side of his upper arm that night. I didn't send him back once she showed me the room they had put him in. She said, " well, he was really loud and disruptive " . When I met with this teacher later, she said she has found these behavior modification techniques to be very effective. She was surprised how smart Gene was....he had really caught on to this fast adn for many kids with autism it takes week. My interpretation of that was " He is really smart because he figured out fast that if he doesn't do his work we will torture him again " . So, he is NOT going to this program this summer. I still cannot fathom how anyone can be so cruel....yet she didn't even think she did anything wrong. I think there are so many strategies to avoid outbursts...this strategy of punishment and rewards is really archaic I should think...but it scared me that this actually was taking place in my own school district. Really sad... Lauri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/2001 9:06:25 PM EST, timothytlstein@... writes: << I think there are so many strategies to avoid outbursts...this strategy of punishment and rewards is really archaic I should think...but it scared me that this actually was taking place in my own school district. Really sad... Lauri >> Lauri: The sadness part to me is that because I hired staff who had worked at the treatment center, a behavioral therapist who had clients there and dealt with the school the kids went to and now a classroom aide to do summer caregiving I have heard horrors stories from every setting. It goes on all the time and we never know it. The aide who is here this summer related that the teacher was refusing to allow Ray to set in a special chair and just agitated him so she went to the office to complain because she didn't think Ray could understand what he needed to do to be " level 1 " to sit in that chair and she thought the teacher was being mean to BR. That is probably the mildest of the horrors. No matter how much I try to stay on top of it, I find out these things. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 In a message dated 7/7/01 7:06:27 PM Pacific Daylight Time, timothytlstein@... writes: << When I came back, I was appalled to find out that at about 1PM, after gym, they asked Gene to get up and come and do his writing. ( To begin with he struggles greatly with writing and cannot yet print his own name without tracing it). He said " NO " in a normal tone of voice. They persisted and he got louder. They then physically pulled him off the couch ( he is 5'1 " tall and weighs about 135). They hauled him toward the desk to write and he sat down. By then, he was really screaming loud and they said he needed to be quiet. They took him into a 6x6 foot white walled room with no windows. They went in with him and shut the door. Drew said he was screaming and crying. When he finally stopped and they thought he would work, they let him out and he went back to the couch. They took him in the room three times altogether, actually carrying him by the ankles and wrist at one point according to my son. ( They denied that ), but he did have black adn blue marks on the under side of his upper arm that night. >> Laurie, That is awful!!!!!!!! I'm so sorry you ALL had to endure that. That must have been very scary for your 11 year old to witness too. What happened to following his IEP??? So what will Gene do all summer now? (((((HUGS))))) Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 In a message dated 7/7/01 11:11:18 PM Eastern Daylight Time, smilinggail@... writes: << That must have been very scary for your 11 year old to witness too. What happened to following his IEP??? So what will Gene do all summer now? (((((HUGS))))) Gail >> Gail, Thanks for your note. According to my 11 year old Drew he wasn't scared, but angry ( must get that from Mom, hee hee ). You're right, what did happen to the IEP? They were totally unprepared for him, but I think they felt they could handle anything with there one intervention fits all approach. Gene just got back from a great week at camp. He slept out at night, actually trotted on a horse on a trail, and loved canoeing with his counselor. Now, the rest of the summer lies before us and I am hoping to find things to fill his days other than video watching. This is a challenge...but at least he will be happier than returning to that classroom and I will be much less stressed out. Lauri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 In a message dated 7/7/01 10:06:23 PM Eastern Daylight Time, timothytlstein@... writes: > down. By then, he was really screaming loud and they said he needed to be > quiet. They took him into a 6x6 foot white walled room with no windows. > They went in with him and shut the door. Drew said he was screaming and > crying. When he finally stopped and they thought he would work, they let > him > out and he went back to the couch. They took him in the room three times > altogether, actually carrying him by the ankles and wrist at one point > according to my son. ( They denied that ), but he did have black adn blue > marks on the under side of his upper arm that night. > Oh Lauri!!!!! This just breaks my heart!!! It is truly my worst fear; that someone will mistreat and abuse Maddie. She is non-verbal and does not comprehend any verbal language. I mean....HOW would I know?!?!? I'm so sorry Gene had to go through that and I'm so sorry for you as his mom. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 In a message dated 7/7/01 8:19:00 AM Eastern Daylight Time, okieleah@... writes: > ..(donna wasn't this you, > or was it neck/)trying to take care of her...... Yup. A ruptured disc, what the neuro doc called a blow out; a broken neck. I had to have emergency spinal fusion surgery. They put a cadaver bone in my back. n (my 15 yo) thought that was the best. He went around making jokes like... " My Mom has a stiff's neck " .....LOL I'm healed, but I'll tell ya, I'm so cautious now. Every once in a while, it acts up and boy oh boy, I lay myself down right away. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2001 Report Share Posted July 9, 2001 how completely awful!!! talk about the dark ages, that is redicuoulas and his brother, i think i would check into sueing the school or something for trauma and abuse to gene and his brother. Or something anyways. shawna. Re: peggy and gail > In a message dated 7/7/01 7:06:27 PM Pacific Daylight Time, > timothytlstein@... writes: > > << When I came back, I was appalled to find out that at about 1PM, after > gym, > they asked Gene to get up and come and do his writing. ( To begin with he > struggles greatly with writing and cannot yet print his own name without > tracing it). He said " NO " in a normal tone of voice. They persisted and he > got louder. They then physically pulled him off the couch ( he is 5'1 " tall > and weighs about 135). They hauled him toward the desk to write and he sat > down. By then, he was really screaming loud and they said he needed to be > quiet. They took him into a 6x6 foot white walled room with no windows. > They went in with him and shut the door. Drew said he was screaming and > crying. When he finally stopped and they thought he would work, they let > him > out and he went back to the couch. They took him in the room three times > altogether, actually carrying him by the ankles and wrist at one point > according to my son. ( They denied that ), but he did have black adn blue > marks on the under side of his upper arm that night. > >> > > Laurie, > That is awful!!!!!!!! I'm so sorry you ALL had to endure that. That must > have been very scary for your 11 year old to witness too. What happened to > following his IEP??? So what will Gene do all summer now? (((((HUGS))))) > Gail > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 In a message dated 7/8/01 7:16:21 AM Pacific Daylight Time, timothytlstein@... writes: << Gail, Thanks for your note. According to my 11 year old Drew he wasn't scared, but angry ( must get that from Mom, hee hee ). You're right, what did happen to the IEP? They were totally unprepared for him, but I think they felt they could handle anything with there one intervention fits all approach. Gene just got back from a great week at camp. He slept out at night, actually trotted on a horse on a trail, and loved canoeing with his counselor. Now, the rest of the summer lies before us and I am hoping to find things to fill his days other than video watching. This is a challenge...but at least he will be happier than returning to that classroom and I will be much less stressed out. Lauri >> Laurie, That's great about camp! Yep, I'm keeping Seth home this summer and it is a challenge to keep them busy and away from those videos! LOL Good luck and let us know what wonderful ideas you come up with okay? Gail Quote Link to comment Share on other sites More sharing options...
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