Re: Strollers/Wheelchairs??

[Guest guest]

Ted will also do this. Last week he rolled right out of a class.

He is almost 10 and weighs over 150 pounds. Last year he

resorted to stripping and pushing over furniture. They were

using a " theraputic " hold on him and I made them stop. I would

not allow any one to put Ted on a chair with rollers to get him

to class. When he was in K, they let him occasionally ride a trike

down the hall. Ted has difficult times in the hall. I am interested

in hearing about this.

On Wed, 23 May 2001 18:17:47 -0500 " Lee "

<texasbluebonnets@...> writes:

> Our student has a habit of plopping or sitting and refuseing to move,

> or walk. His weight is very heavy, and I was wondering if any

> parents here had children who have this habit in school. To just

> become dead weight so to speak, or lie down and roll around on the

> floor, or flatten himself out and refuse to stand up. he does this

> all the time, and we have had to begin getting a chair with rollers

> on it and wheeling him where it is we need him to be.

>

> I would like to hear some ideas on this, or how this is handled at

> your childrens schools.

>

>

> thanks

>

>

>

>

>

>

>

[Guest guest]

Oh yes!! the wet noodle thing,lol, this use to be a

constant with nathan at school dropping down in

hallways at school or if we had him somewhere like the

store or hospital whereever. we just strained our

backs and still occasionally do and make him stand up

and walk, its not alwys easy, weve had to literally

drag him all the way accross the hospital to an

appointment(no wheelchairs available)uggh, at school

they give him a time limit i do believe, and if he

still wont move it usually takes around 3 of them to

move him the principle and janitors(males,lol). We

dont encourage giving him rides at school its not far

to walk, we use a transitioning object usually, like a

batman action figure, or other toy he puts away after

sits down at desk etc. This is very helpful most of

the time, we have to change object often to keep him

interested though. shawna.

--- Lee <texasbluebonnets@...> wrote:

> Our student has a habit of plopping or sitting and

> refuseing to move, or walk. His weight is very

> heavy, and I was wondering if any parents here had

> children who have this habit in school. To just

> become dead weight so to speak, or lie down and roll

> around on the floor, or flatten himself out and

> refuse to stand up. he does this all the time, and

> we have had to begin getting a chair with rollers on

> it and wheeling him where it is we need him to be.

>

> I would like to hear some ideas on this, or how this

> is handled at your childrens schools.

>

>

> thanks

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

> --------------------------------------------------

> Checkout our homepage for information,

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> of the archives for our list.

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>

[Guest guest]

Yes yes yes. Marley used to body drop for all of his transitions. The

school would call the gym teacher to carry him to the next class. I had

specifically asked for him not to be lifted. He is heavy and either he will

get hurt or one of the teachers would. They ignored my wishes often and would

get this big male gym teacher to come down and carry him. Sometimes they

would put him in a rolling chair and roll him. I really felt that Marley

needed to feel what it was like to start himself. When he body dropped in

the community with me I would take a deep breath and wait. Istopped begging

him to " come on " . While I was waiting I would sometimes ask him " what do you

want " or " what's wrong " . He has very limited language but in one word or

less he could sometimes let me know. Sometimes what he wanted made sense and

was easy to solve (Like a book when leaving the library) other times he

could not tell me or he would want something I could not give him. These

transitions were so stressful for everyone school, my husband, and for me.

The more I just waited, the more success I began to have. It was when I was

in a hurry or impatient that things got worse. Finally though to get support

for the idea that Marley should not be carried I went to a professor of

Psychology at Eastern Kentucky University (Dr. Myra Beth Bundy) and we talked

about the antecedents and the consequences to this body drop behavior. We

decided that Marley who has signifigant sensory problems and who is obviosly

maximally stressed out over the transition, might actually be getting a

positive consequence or sensory reward by being carried. To carry this child

you have to really bear hug him. That deep pressure may be organizing and

calming for him. Just like the vestibular input of getting a ride on wheels

to class could be. I requested an IEP meeting and wrote into the notes of

the IEP that I had requested that Marley not be lifted unless it was an

emergency. We defined emergency in the notes as possible injury to Marley or

others. I provided them with the report from the psychologist and explained

that waiting for him to be ready and finding ways to help Marley choose to

move were the only options. Marley had an aide in the classroom so the rest

of the class could go on and the aide could wait with him. Dr. Bundy

suggested giving him a transition ticket. The ticket could be a picture like

many of us use on schedules. Or it could be an item he would use in the next

setting ( like a lunch bag to lunch, a book to the library, a ball to recess,

etc.) or in Marley's case it could be a genuine ticket. Marley likes to go

to movies and sporting events which both require tickets. So we had him take

his ticket. The teacher at the next class would tear the ticket for him and

give his half back. The school really felt like this was all hocus pocus,

but about 2/3 of the way through last school year he started transitioning

more frequently with his class. This year he was about 95% successful with

transitions around school. We still have some rough moments every week-or

for short streaks- but we no longer provide the sensory reward before the

transition. After what should be a difficult transition, we give him a

big-toes-off-the-ground bear hug and tell him what a great job he has done.

One thing Marley has taught me is that all people run at different speeds.

For Marley-sometimes I slow down--but watch out because once he starts- he

can fly. (Marley, Castan, & Kira's mom)

[Guest guest]

In a message dated 5/23/01 8:16:47 PM Eastern Daylight Time,

gboughton@... writes:

> Our student has a habit of plopping or sitting and refuseing to move,

> > or walk. His weight is very heavy, and I was wondering if any

> > parents here had children who have this habit in school. To just

> > become dead weight so to speak, or lie down and roll around on the

> > floor, or flatten himself out and refuse to stand up. he does this

> > all the time, and we have had to begin getting a chair with rollers

> > on it and wheeling him where it is we need him to be.

> >

> > I would like to hear some ideas on this, or how this is handled at

> > your childrens schools.

> >

> >

> > thanks

Yep, a Maddie classic too!! There's no coaxing her through talking,

since she understands no words either. Therefore, we have to give her

incentive to get up and go. Often it's using what we call a *transition*

item. If she has something to hold or dangle, she's more willing to go

along with you. Also, Maddie loves to run and jump, so we start of by

running or jumping first to get her going.

Donna

[Guest guest]

In a message dated 5/24/01 1:03:15 PM Eastern Daylight Time,

Wayne.Hochrein@... writes:

> We started giving him or using a picture schedule. Breaking the tasks down

> into high points, so he had a grasp of what was to happen next. Then when a

> change occurred we could point out that there was a change, and after that

> it would be back to the routine.

Yes Wayne. Also, I know with Maddie that sometimes all it takes is LOTS of

patience. Her cab driver is SO sweet. He opens the car door and says

" Climb into your car seat Maddie " . She dilly dallies.....sits on the other

side.....looks out the window......dangles her Barnie.......THEN complies

nicely and sits in her seat. He just smiles and waits. Sure, we could

just pick her up and put her in (she's only 46lbs), but then she wouldn't

learn to do it by herself.

Donna

[Guest guest]

Hi

About a year ago, the school started noting that they were having trouble

with our son Zachary sitting down, (age 9 1/2 and about 90 lbs) and not

cooperating. Actually, they told us that this was going on longer time, but

instead of telling us they were picking him up to get him to comply.

Guess what... he grew. Suddenly they could not longer lift him.

We went had to get a behaviorist involved, meeting etc, when some asked why

is he doing this? Like a light bulb someone said, it happens when there is a

change, or something out of the routine, different aide helping off the bus,

substitute teacher, change in day. They all said, " we tell him " . but when

asked if they thought he 'understood', everyone was at a loss.

In hind sight, we all felt really stupid. He would sit down, and not move

until someone he knew came and got him. It was familiar. We were

re-enforcing his behavior with a predictable response. If he didn't know

what was next, act up and he would get to do something he knew about.

We started giving him or using a picture schedule. Breaking the tasks down

into high points, so he had a grasp of what was to happen next. Then when a

change occurred we could point out that there was a change, and after that

it would be back to the routine.

It has helped in allot of areas to for Zac to know what is next and be able

to review visually what is going to happen. We have seen an increase in

time spend in the routine tasks as well as reduce issues for when things

changed.

Best Regards

Wayne

Yes yes yes. Marley used to body drop for all of his transitions. The

school would call the gym teacher to carry him to the next class. I had

specifically asked for him not to be lifted. He is heavy and either he will

get hurt or one of the teachers would.

[Guest guest]

we use to do this when nathan was younger, he doesnt

use them anymore, we had basic pic schedules for

certain activities, like brushing teeth, taking a

shower, getting dressed, using toilet, now he does

them all without the pics to remind him, now im

thinking on making a velcro or some sort of stop sign

for when he gets up in the morning, he sees this big

stop sign which also reminds him he needs to use

bathroom and GET DRESSED. He knows how to get dressed

and all but he needs to learn to just do it

automatically, withut us teling him several times and

often even getting his clothes out, he still has his

drawers labeled so he knows what is where, and he

occasionally gets clothes out on own, like ifi he has

an accident he will change and show us he changed,

then we find its because he oopsed. shawna

--- duffey48@... wrote:

> In a message dated 5/24/01 1:03:15 PM Eastern

> Daylight Time,

> Wayne.Hochrein@... writes:

>

>

> > We started giving him or using a picture schedule.

> Breaking the tasks down

> > into high points, so he had a grasp of what was to

> happen next. Then when a

> > change occurred we could point out that there was

> a change, and after that

> > it would be back to the routine.

>

> Yes Wayne. Also, I know with Maddie that sometimes

> all it takes is LOTS of

> patience. Her cab driver is SO sweet. He opens

> the car door and says

> " Climb into your car seat Maddie " . She dilly

> dallies.....sits on the other

> side.....looks out the window......dangles her

> Barnie.......THEN complies

> nicely and sits in her seat. He just smiles and

> waits. Sure, we could

> just pick her up and put her in (she's only 46lbs),

> but then she wouldn't

> learn to do it by herself.

> Donna

>

>

> [Non-text portions of this message have been

> removed]

>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

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> --------------------------------------------

>

>

[Guest guest]

we use to do this when nathan was younger, he doesnt

use them anymore, we had basic pic schedules for

certain activities, like brushing teeth, taking a

shower, getting dressed, using toilet, now he does

them all without the pics to remind him, now im

thinking on making a velcro or some sort of stop sign

for when he gets up in the morning, he sees this big

stop sign which also reminds him he needs to use

bathroom and GET DRESSED. He knows how to get dressed

and all but he needs to learn to just do it

automatically, withut us teling him several times and

often even getting his clothes out, he still has his

drawers labeled so he knows what is where, and he

occasionally gets clothes out on own, like ifi he has

an accident he will change and show us he changed,

then we find its because he oopsed. shawna

--- duffey48@... wrote:

> In a message dated 5/24/01 1:03:15 PM Eastern

> Daylight Time,

> Wayne.Hochrein@... writes:

>

>

> > We started giving him or using a picture schedule.

> Breaking the tasks down

> > into high points, so he had a grasp of what was to

> happen next. Then when a

> > change occurred we could point out that there was

> a change, and after that

> > it would be back to the routine.

>

> Yes Wayne. Also, I know with Maddie that sometimes

> all it takes is LOTS of

> patience. Her cab driver is SO sweet. He opens

> the car door and says

> " Climb into your car seat Maddie " . She dilly

> dallies.....sits on the other

> side.....looks out the window......dangles her

> Barnie.......THEN complies

> nicely and sits in her seat. He just smiles and

> waits. Sure, we could

> just pick her up and put her in (she's only 46lbs),

> but then she wouldn't

> learn to do it by herself.

> Donna

>

>

> [Non-text portions of this message have been

> removed]

>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

>

> --------------------------------------------

>

>

[Guest guest]

Elie did this for years. We did not allow wheeled transport to be used in

school EXCEPT for fire because he WANTED the wheelchair. What we did do was

give very clear parameters. This was: tell him what you want - " Elie stand

up, time to go to art. " Then WAIT> No more conversation for at least 4 -5

minutes. Then repeat with " Let me know when you are ready to go to art. "

Otherwise, no cajoling, begging, threatening. Just sit and wait with ano

interaction.

It drove the school crazy - me too because I had to do it too!! But

eventually it has worked (poor grammer, but you get my drift) He no longer

flattens out. He does occasionally refuse to go....but we wait him out .

This happened on Saturday at Home Depot. He saw the great wheelchair there

and refused to walk. So I waited by the door and my husband did his

shopping, then he came back. Elie got up for him and went back to the car.

No chair and no treat either.

We also learned that after the 5 minutes, it sometimes helped to have

another person issue the same short directive. No begging, no repeating, no

cajoling and no brabes unless there was a reward in the first place for

going where he had to go.

Hope this helps.

Sara

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[Guest guest]

Elie did this for years. We did not allow wheeled transport to be used in

school EXCEPT for fire because he WANTED the wheelchair. What we did do was

give very clear parameters. This was: tell him what you want - " Elie stand

up, time to go to art. " Then WAIT> No more conversation for at least 4 -5

minutes. Then repeat with " Let me know when you are ready to go to art. "

Otherwise, no cajoling, begging, threatening. Just sit and wait with ano

interaction.

It drove the school crazy - me too because I had to do it too!! But

eventually it has worked (poor grammer, but you get my drift) He no longer

flattens out. He does occasionally refuse to go....but we wait him out .

This happened on Saturday at Home Depot. He saw the great wheelchair there

and refused to walk. So I waited by the door and my husband did his

shopping, then he came back. Elie got up for him and went back to the car.

No chair and no treat either.

We also learned that after the 5 minutes, it sometimes helped to have

another person issue the same short directive. No begging, no repeating, no

cajoling and no brabes unless there was a reward in the first place for

going where he had to go.

Hope this helps.

Sara

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

,

Nice e-mail. That's good that your fighting for

services, etc. though school for Marley. Good job,

and don't give up fighting. I know it's tough, my

parnets had to fight for services for me when I was in

public schooling.

From,

__________________________________________________

[Guest guest]

Thanks for the pat on the back. I can use one of those every now and

again. .

[Guest guest]

Your welcome . Anytime you need it just

tell me.

--- MSomemom@... wrote:

> Thanks for the pat on the back. I can use

> one of those every now and

> again. .

>

__________________________________________________