Re: does your kid ever do this.......

[Guest guest]

There are days when talks more than others.

Those days where he talks very little he will do

things like you described. I try to get him to say the

words when he does this.

Mom to 12

--- smilinggail@... wrote:

> In a message dated 3/31/01 9:22:22 PM Eastern

> Standard Time,

> magnussen@... writes:

>

> << I have noticed lately that Angel will take my

> hand and move it to

> accomplish

> a task or to give me a message rather than try to

> sign or speak. Today it

> was very notable as she was sitting while I was

> feeding her and she took my

> hand, pushed it back into the dish, tried to make

> me scrape off the food

> back into the dish and then pushed my hand so that

> the spoon went fully back

> into the dish and then pushed my hand away,

> indicating she didn't want to

> eat anymore. She always signs 'all done', but

> didn't this time. Just

> visually told me she was finished. >>

>

> Cheryl,

> Seth does this with everything. But, he has never

> had any skills in this

> area. We were very pleased that he led us to the

> VCR and pushed us away

> after we turned it on for him. Now I'm thinking

> it's not so good. He uses

> us as a tool to get what he wants, but he's not

> really communicating. Not to

> mention I am beginning to feel USED!!!! LOL

> Gail

>

__________________________________________________

[Guest guest]

Cheryl,

does hurtful things to people as well and I am not convinced that he

understands that he is " hurting " someone. He can be just as happy as can be,

hugging you, and then either take a chunk out of your shoulder or scratch

you. He isn't angry or anything and when you react with surprise and/or

pain, he just looks at you like " what " ? LOL He also smears and will eat

feces given the opportunity. Yuck!

Terry

[Guest guest]

we have had the strangest behavs over the past few days. Angel twice has

tried to grab her bm's out of the toilet and as I have stopped her she looks

at me and signs 'eat' and 'poo poo'. This in new for her as she is usually

hanging her head over the toilet gagging from the smell of her bm's. But no

gagging on these past two occasions, just wanting to eat it. Will be

staying with her when I am able to get her on the toilet. She also took her

dinner fork and stabbed it into the hand of our guest last eve. Twice in

fact. He didn't move his hand away fast enough. she didn't seem to be

angry at him. Just did it and didn't seem to notice that he was upset or

hurting even. Then later after putting she finished toileting and I was

helping to pull her pants up, she looked at me, without facial expression

and lifted her finger and poked it straight at my eye. good thing i was

able to quickly close my eye lid. No notice at all of the fact that it

would hurt me. and again, there was no anger associated with this. I am

really hoping we can get some assessing done soon so that we can figure out

what to do. Know I will be seating our guests alot further away from her

the next time.

Any tips?? Or feedback??

Thanks, Cheryl

Re: does your kid ever do this.......

> There are days when talks more than others.

> Those days where he talks very little he will do

> things like you described. I try to get him to say the

> words when he does this.

>

>

> Mom to 12

>

> --- smilinggail@... wrote:

> > In a message dated 3/31/01 9:22:22 PM Eastern

> > Standard Time,

> > magnussen@... writes:

> >

> > << I have noticed lately that Angel will take my

> > hand and move it to

> > accomplish

> > a task or to give me a message rather than try to

> > sign or speak. Today it

> > was very notable as she was sitting while I was

> > feeding her and she took my

> > hand, pushed it back into the dish, tried to make

> > me scrape off the food

> > back into the dish and then pushed my hand so that

> > the spoon went fully back

> > into the dish and then pushed my hand away,

> > indicating she didn't want to

> > eat anymore. She always signs 'all done', but

> > didn't this time. Just

> > visually told me she was finished. >>

> >

> > Cheryl,

> > Seth does this with everything. But, he has never

> > had any skills in this

> > area. We were very pleased that he led us to the

> > VCR and pushed us away

> > after we turned it on for him. Now I'm thinking

> > it's not so good. He uses

> > us as a tool to get what he wants, but he's not

> > really communicating. Not to

> > mention I am beginning to feel USED!!!! LOL

> > Gail

> >

>

>

> __________________________________________________

>

[Guest guest]

Cheryl,

We have had behavior specialist to help us with our son Brok on three

different occasions. Generally they were pretty helpful about how to deal

with problem behaviors and understanding some of the motivation for them. I

would ask for a behavior therapist to help with these issues.

Marisa

[Guest guest]

Marisa,

Who do you ask for a behavioral therapist?

ita

[Guest guest]

ita,

Here is California, that's where you are too right? You get it through

the regional center. Sometimes school's can also get them, we used to have

one that came to our home and also worked for Spectrum which went out to

schools for kids with problem behaviors. You can call your case worker and

describe the situation and the problems and tell them that you are requesting

a behavior therapist. We had a company out of Santa that was called On

Our Own. They traveled all over I believe and had therapists in different

areas.

Marisa

[Guest guest]

In a message dated 4/4/01 9:00:47 PM Eastern Daylight Time, poggim@...

writes:

<< Cheryl,

We have had behavior specialist to help us with our son Brok on three

different occasions. Generally they were pretty helpful about how to deal

with problem behaviors and understanding some of the motivation for them. I

would ask for a behavior therapist to help with these issues.

Marisa >>

Marisa,

We had one too. The only thing she said was to set up our house like his

classroom. Yeah!!!!! Even his teacher had a good laugh over that one! LOL

Gail

[Guest guest]

In a message dated 4/4/01 9:26:41 PM Eastern Daylight Time,

heirbornpr@... writes:

<< Marisa,

Who do you ask for a behavioral therapist?

ita

>>

Hi ita!!!!!!! How are you? Things going okay, or did I miss a post?

Gail

[Guest guest]

Wow, Terry, he sounds like Angel. I mean there are times when she hurts us

out of anger, but lots of times we don't expect it as she is just loving us

and then the kiss turns into a bite, or the carress becomes a hair pull. It

worries me when she is tired and is playing near other little kids cause

that is when it most likely will happen, she will just suddenly take a bite

when you don't expect it, but as I have seen it enough I am always on the

alert for it.

Angel had her first private swim lesson today. When we went into the change

room before swimming, Angel freaked about some of the lift equipment hanging

from the roof. She has seen this many times, used that change room lots,

two days ago in fact, and suddenly it was freaky. so we used a different

room, without an overhead lift, once she decided it was safe to enter it.

Then during the lesson the instructor pulled out a puppet during the swim

and put it in the water, boy did that freak her. Then after swimming she

wouldn't enter a change room without being assured again that there was no

overhead lift equipment in the one we were entering. Funny how things can

be okay one day, and not at all the next.

Cheryl

Re: does your kid ever do this.......

> Cheryl,

> does hurtful things to people as well and I am not convinced that

he

> understands that he is " hurting " someone. He can be just as happy as can

be,

> hugging you, and then either take a chunk out of your shoulder or scratch

> you. He isn't angry or anything and when you react with surprise and/or

> pain, he just looks at you like " what " ? LOL He also smears and will

eat

> feces given the opportunity. Yuck!

> Terry

>

>

>

[Guest guest]

Hi Cheryl,

I know what you mean. We have toddler grandchildren who come to visit from

time to time. (when he's not in the cast and is mobile) would love

to watch them play...sort of peripherally..like he looks out of the side of

his eyes! He'll just sit there and then out of nowhere, he'd grab one of

them. I don't think he means to hurt them, just sort of to " connect " with

them or something. Nevertheless, it causes quite a stir because it at the

very least scares them and more often than not, he pulls their hair or

scratches them. As much as I love for them to visit, it makes for some tense

moments! LOL

Terry

[Guest guest]

Marisa,

Thanks for the information. We are in Arkansas. I don't even know how to get

a case worker. We have never had any behavior problems before now. Part of it

is puberty, I'm sure.

ita

[Guest guest]

Hi Gail! You haven't missed a post. I am usually just lurking, but Reuben has

been having aggresive behavior problems and the school is driving us crazy.

We have an IEP meeting Tuesday to discuss his behavior. I see a lot of people

on the list talking about behavior specialist and case workers and we have

never had any of those. Just wondering how you go about getting them.

ita

[Guest guest]

In a message dated 4/6/01 11:09:07 PM Eastern Daylight Time,

heirbornpr@... writes:

<< Hi Gail! You haven't missed a post. I am usually just lurking, but Reuben

has

been having aggresive behavior problems and the school is driving us crazy.

We have an IEP meeting Tuesday to discuss his behavior. I see a lot of

people

on the list talking about behavior specialist and case workers and we have

never had any of those. Just wondering how you go about getting them.

ita >>

Hi ita,

Good luck at the IEP on Tuesday. We got our case worker/advocate through UCP

house. The behavior specialist we had was through early intervention. I'm

told the DDSO is much better at handling MR kids though. I am pleased with

my case worker and won't change unless she leaves though. Hope things work

out for you.

Gail

[Guest guest]

Hi ita,In New Jersey we have DDD which is division

of developmental disability which is a state wide ,but

run by counties, organization with all kind of help

from respite care, stipends,case managers and behavior

specialists.Each county also has special child health

services with a worker for each child who will be an

advocate with you and stays with the child til 21.

Check your county and state phone listings and you

should find something similar.You could also try his

early intervention team for ideas on where to go .My

grandson has also been having severe behavior probs

and will soon be going on meds .Carole

--- heirbornpr@... wrote:

> Hi Gail! You haven't missed a post. I am usually

> just lurking, but Reuben has

> been having aggresive behavior problems and the

> school is driving us crazy.

> We have an IEP meeting Tuesday to discuss his

> behavior. I see a lot of people

> on the list talking about behavior specialist and

> case workers and we have

> never had any of those. Just wondering how you go

> about getting them.

> ita

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

Carole, wife of Rich, mom to and , m-i-l to and ,

grandmom to ,9,with d.s.and a.s.d. and 6 with adhd and possible

a.s.d.and Logan 2 year old chatterbox and Seth,9month old in to everything.Be

wise in the way you act toward outsiders;make the most of every

oppotunity.Colossians4:5

__________________________________________________

[Guest guest]

nathan has had behavior modification docs since he was around 3years. they

are usually behavior pscychologists, use of tx with out meds. we just got

done with another two week tx session on nathan's stereotypic behavior, they

are doing a research thing on this, and its all free, and plus we get

trained and tx ideas for nathan, that are actually working, and have worked

well since we started using them when he was a toddler. i think our speciaty

peds set us up with them, they are right there in same building. We got our

case worker when we singed up for mrwaiver and hcb waiver respite and scl

etc, you know. shawna.

>From: heirbornpr@...

>Reply-

>

>Subject: Re: does your kid ever do this.......

>Date: Fri, 6 Apr 2001 23:04:22 EDT

>

>Marisa,

> Thanks for the information. We are in Arkansas. I don't even know how to

>get

>a case worker. We have never had any behavior problems before now. Part of

>it

>is puberty, I'm sure.

>ita

>

>

>

[Guest guest]

Thank you so much for the information Carole.

ita