Re: FW: canada.com Story on autism Crapisode

[Guest guest]

try this link, yours didn't work for me.

http://tinyurl.com/27seeb

>

> Sorry if this posts twice. It didn't come through earlier. They

use my

> term " Crapisode " and my name although they didn't interview me.

Interesting.

>

> " Parents can be prisoners of child?s condition "

>

> http://www.canada.com/vancouversun/features/autism/story.html?

id=c9f07414-bf

> 81-43a2-96a6-7272e85367db & k=48606

>

>

>

>

> _______________________________________

> This is a free service courtesy of

> canada.com (http://www.canada.com)

>

[Guest guest]

I thought it was a pretty good article. You should be flattered Kim

with " crapisode " reference.

Soon you will be known the Queen of Crap- the wolrd over!

We can honor you with a crown of poo- jeweled with peanuts and corn

and other undigested itesms.

I know that was gross!

> >

> > Sorry if this posts twice. It didn't come through earlier. They

> use my

> > term " Crapisode " and my name although they didn't interview me.

> Interesting.

> >

> > " Parents can be prisoners of child?s condition "

> >

> > http://www.canada.com/vancouversun/features/autism/story.html?

> id=c9f07414-bf

> > 81-43a2-96a6-7272e85367db & k=48606

> >

> >

> >

> >

> > _______________________________________

> > This is a free service courtesy of

> > canada.com (http://www.canada.com)

> >

>

[Guest guest]

cannot get linkKRStagliano <KRStagliano@...> wrote: Sorry if this posts twice. It didn't come through earlier. They use myterm "Crapisode" and my name although they didn't interview me. Interesting."Parents can be prisoners of child?s condition"http://www.canada.com/vancouversun/features/autism/story.html?id=c9f07414-bf81-43a2-96a6-7272e85367db & k=48606_______________________________________This is a free service courtesy of canada.com (http://www.canada.com)

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

got it with 's link. thanks!andrea52521991 <mkeller@...> wrote: I thought it was a pretty good article. You should be flattered Kim with "crapisode" reference.Soon you will be known the Queen of Crap- the wolrd over!We can honor you with a crown of poo- jeweled with peanuts and corn and other undigested itesms.I know that was gross!> >> > Sorry if this posts twice. It didn't come through earlier. They > use my> > term "Crapisode" and my name although they didn't interview me. > Interesting.> > > > "Parents can be prisoners of child?s condition"> > > > http://www.canada.com/vancouversun/features/autism/story.html?> id=c9f07414-bf> > 81-43a2-96a6-7272e85367db & k=48606> > > > > > > > > >

_______________________________________> > This is a free service courtesy of > > canada.com (http://www.canada.com)> >>

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Kim, I also liked the article. Hail to the queen of Crap!!! I remember those crap days thank GOD they are somewhat over. We still stuck in the wipes world working on the tp...... Maybe I can be the princess ?? lmaoandrea52521991 <mkeller@...> wrote: I thought it was a pretty good article. You should be flattered Kim with "crapisode"

reference.Soon you will be known the Queen of Crap- the wolrd over!We can honor you with a crown of poo- jeweled with peanuts and corn and other undigested itesms.I know that was gross!> >> > Sorry if this posts twice. It didn't come through earlier. They > use my> > term "Crapisode" and my name although they didn't interview me. > Interesting.> > > > "Parents can be prisoners of child?s condition">

> > > http://www.canada.com/vancouversun/features/autism/story.html?> id=c9f07414-bf> > 81-43a2-96a6-7272e85367db & k=48606> > > > > > > > > > _______________________________________> > This is a free service courtesy of > > canada.com (http://www.canada.com)> >>

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

EEEWWW! They did not interview me and I had no idea my name was being

picked up like that. I'll defer the title, thanks.

We've had some GREAT success in toileting recently, I don't want to jix

us!

K

[Guest guest]

I thought the article was very sympathetic to our cause hoepfully

since it an ongoing report mercury and vaccines will be mentioned

soemwhere down the line.

F

Parents can be prisoners of child's condition

Pete Mc, Vancouver Sun

Published: Friday, April 20, 2007

Marriages and friendships come under great strain as the family's

time and energy is gobbled up by the disorder's demands. Parents of

children with autism are not like parents of typical children.

This truth is easily said but not easily understood.

Depending on the severity of their child's condition, parents are

prisoners to that condition just as their child is.

Her autism often prompts Kristi Jansen not only to bite her own

knees, hands and feet but to pinch and bite her mother Sandy. She

would pinch or bite Sandy up and down her arms 'really hard,' her mom

says, and even while her mother slept.

Printer friendly

Font: ****They often lose friends to it, and sometimes family. Their

free time and social life evaporate. Their other children suffer

unintended neglect because the child with autism commands so much of

their attention.

Autism also puts its own unique strains on marriages. In married

couples, one of them, usually the wife, must often give up work. This

sacrifice creates further sacrifices: To finance their child's

obscenely expensive therapies -- think of spending the entire cost of

a four-year university education every year -- many parents are on a

first-name basis with credit-card juggling, multiple mortgages and

the threat of bankruptcy. You think onerous health care bills only

impoverish families in the U.S.? Think again. Many families of

children with autism forgo vacations, investments, even half-hour

strolls down to their local Starbuck's.

In the more severe cases, many must deal with more mundane

unpleasantries, like the " feces issue " -- or what blogger Kim

Stagliano, a Connecticut mother of three autistic girls,

called " crapisodes. " To a parent of a severely autistic child, toilet-

training isn't a rite of passage taken for granted -- it is seen as a

major accomplishment, in lieu of smeared walls and a life lived in

pull-ups.

Then there are the symptomatic self-stimulatory behaviours more

colloquially known as " stimming " that make going out in public

difficult and often impossible. A child might spin in circles

continuously, or flap their hands, or walk on their toes, or scream

or tantrum unexpectedly, or obsess over a single object.

And there are real physical dangers to worry over. Some parents

suffer injuries at the hands of their children, while many must be

vigilant to prevent their children from injuring themselves. Children

with autism can be self-abusive, and many have no sense of personal

safety. They can wander off or walk into traffic. It can take years

of intensive therapy before they can be trusted to do something as

simple as crossing the street, or talking to a stranger.

In all, these parents snort at the public's idea of autism as

synonymous with docility and withdrawal. Their children require

unimaginably hard work. Their children are not merely a preoccupation

for these parents: they are a full-blown occupation, one which can

eat up their time, money and focus. In the end, the dividends are

uncertain. As one mother told me:

" I may never hear my child tell me he loves me. "

On the other hand, the hard-won progress parents do win for their

children can cause elation. Seeing a child with autism talk for the

first time, or getting them to do something as simple as making a

piece of toast, is a source of hope and pride.

In the following week, we will look at these facets to autism through

the eyes of these parents -- the cost they bear, the stresses on

their families, the dizzying array of therapies and government

regulations they must negotiate alone.

pmcmartin@... or 604-605-2905

[Guest guest]

Kim, you are becoming famous in the autism world,pretty soon pharma

will be knocking on your door wanting to advertise their drugs " that

help kids with autism " on your website.

F

Re: FW: canada.com Story on autism " Crapisode "

Posted by: " andrea52521991 " mkeller@... andrea52521991

Sun Apr 22, 2007 5:33 am (PST)

I thought it was a pretty good article. You should be flattered Kim

with " crapisode " reference.