Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 If there will be cost-cuts this essentially involves other stake- holders. That's quite a political advantage, but to mobilize a political faction to rise up against innocent " every child by two disease " victims..... > > > > The part about the teleconferencing thing was hysterical. My first thought, that had me nearly peeing my pants, was the realization that they wanted kids to watch ABA on tv. Didn’t they just spend like a bazillion dollars and decide that watching tv CAUSES autism? Idiots. I did see this as dangerous because I can see schools and states saying “you people don’t need 1:1 in brick and mortar, you can just watch these dvds! Go away now!†I bet you anything that AS will be funding the next teletherapy project. Gag. > > > > > Holly- I laughed so hard at that I almost threw up > > Thanks for going and reporting back. I know it couldn’t be easy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 You might want to look at the Celeste Foundation web site. There is a good deal of information, including video illustrating the process on the site. Will give you a sense of what they are actually doing. http://www.celestefoundation.org/ I tend to agree with your points - one question I have is that after all these years without significant Congressional attention to autism the first hearing on autism featured telehealth. Featuring this approach was surprising and concerning when much more fundamental issues need attention. On Apr 18, 2007, at 1:49 AM, wewillwin07 wrote: I also don't understand how one would achieve compliance. If this were used with my son in the beginning, he would have just walked away from the screen and gone into the corner to stim. We tried some computer programs that had " reinforcers on the screen " in the form of fun graphics, etc., and they were useless. Also, how do you incorporate sensory tactics like deep pressure, etc.? Sensory diets are part of many ABA programs nowadays. A bad idea all the way around. I will call Sen. Harkin. > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > This is one of the first things that came to mind when I read about > Telehealth (sorry-can't > remember the corporate name). There is no way in hell I would trust > those people to > moniter my child or my family by video camera. Aside from the premise > (and I am > probably just paranoid) that it is long distance therapy and support, > who's to say there > isn't a hidden agenda in all this. Remember teen screen? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I haven't checked out the celestefoundation website yet, but here's a few other sites people may want to check out too. www.atmeda.org/news/2005_presentations/t4a1.oberleitner.ppt http://www.cnowinc.com/ this is from 2002 and relates mostly to nursing but it brings to light a few issues to consider http://www.afip.org/Departments/legalmed/jnrm2002/georgia.htm > > > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > > > > This is one of the first things that came to mind when I read > about > > Telehealth (sorry-can't > > remember the corporate name). There is no way in hell I would > trust > > those people to > > moniter my child or my family by video camera. Aside from the > premise > > (and I am > > probably just paranoid) that it is long distance therapy and > support, > > who's to say there > > isn't a hidden agenda in all this. Remember teen screen? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Maybe it would allow our government to begin producing it's own reality show: The Real World: Autism geesh... I hate the idea altogether. There's no substitute for having one-on-one therapy. A teleconference method would fail miserably. > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > This is one of the first things that came to mind when I read about > Telehealth (sorry-can't > remember the corporate name). There is no way in hell I would trust > those people to > moniter my child or my family by video camera. Aside from the premise > (and I am > probably just paranoid) that it is long distance therapy and support, > who's to say there > isn't a hidden agenda in all this. Remember teen screen? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I heard what Bob said at the meeting about Chelation at the meeting. Perhaps being the parent of a cancer survivor colored my impressions but I don't think that was his point about chelation. I think that what he was trying to say is that whether or not there is any government research about chelation people are going to do it anyway because they need to take care of their kids. If your mainstream doctor doesn't give you any hope you are going to go where you need to go to get help. With the cancer analogy, of course people are going to start with their mainstream doctors and insurance covered treatments but it it doesn't work they will be willing to go to another country to receive treatments that might work even if there is risk and even if their mainstream doctor doesn't approve. I actually think his point was one that the government needs to hear. We are all doing chelation anyway even if the CDC and the NIH stick their head in the sand. One poorly done study with rats isn't going to stop people from doing chelation. Our children are all de factor enrolled in uncontrolled studies. I actually was thinking the other day (before I even heard Bob ) that the pediatric cancer model would be a good one for autsim. Most children with cancer are enrolled in research protocols as part of their treatment. Insurance pays for it and doctors get to find out what combinations of drugs works best. They were constantly testing the gold standard against new treatment. Due to this approach pediatric cancer cure rates are way up. Wouldn't it be wonderful if you could go to your doctor and have your insurance pay for chelation and data was kept about which combination of chelation medications worked best for which types of kids. Very soon there would be a lot less guessing and a lot more curing. I've stopped 2,875 spam and fraud messages. You can too!Free trial of spam and fraud protection at www.cloudmark.com From: EOHarm [mailto:EOHarm ] On Behalf Of hcolemanSent: Wednesday, April 18, 2007 5:52 AMEOHarm Subject: Re: back from the hearing Very often the only thing worse than what they did, is what they plan to do. back from the hearing I am just back from a long day in DC. It did not go so well for us. Something you all might not have been able to see was all the hugging and kissing and handshaking going on before and after the hearing. A lot of chummy stuff going on. Very unsettling. There were also a lot of lies put forth by Gerberding and Insel. What weasles they were. Bob did a decent job, right up until he talked about chelation, which is when he basically said that we were all risking our kids with it because the payoff MIGHT be worth the risk. What he said was not encouraging. Harkin did a good job. He had a lot of background info but he was given blatantly false answers today by NIH and CDC. We need to correct what was not true with him asap and ask him to keep holding more hearings with more parental input. The part about the teleconferencing thing was hysterical. My first thought, that had me nearly peeing my pants, was the realization that they wanted kids to watch ABA on tv. Didn’t they just spend like a bazillion dollars and decide that watching tv CAUSES autism? Idiots. I did see this as dangerous because I can see schools and states saying “you people don’t need 1:1 in brick and mortar, you can just watch these dvds! Go away now!” I bet you anything that AS will be funding the next teletherapy project. Gag. Max was the only person with autism there today, despite the room being standing room only. He did a kick ass job (you will know that if you listened to the feed and never heard him yelling “Amtrak!”) lol The worst part was that this exact word for word hearing could have been help 7 years ago. We knew all the same stuff back then. We talked about all the same stuff. They lied the same lies. Everything. That means in 7 years we have not moved. Not progressed. That sucks ass. We need to do better. All in all, kinda worthless as hearings go but maybe ya’ll will get a taste for it and start calling and get more hearings with MORE input from our side. Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I think telehealth could have very limited application in special situations. But it seems it is being proposed as a way to solve massive service delivery problems because of the large numbers of autistic children. It is this aspect that is disturbing - that it is seen as an inexpensive solution to a massive problem. It also does nothing to build longlasting community institutions and supports - it may even be destructive of those supports. Again, featuring this center stage in a hearing when there are more fundamental problems that need attention in a hearing raises many questions. On Apr 18, 2007, at 7:41 AM, Nanstiel wrote: Maybe it would allow our government to begin producing it's own reality show: The Real World: Autism geesh... I hate the idea altogether. There's no substitute for having one-on-one therapy. A teleconference method would fail miserably. > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > This is one of the first things that came to mind when I read about > Telehealth (sorry-can't > remember the corporate name). There is no way in hell I would trust > those people to > moniter my child or my family by video camera. Aside from the premise > (and I am > probably just paranoid) that it is long distance therapy and support, > who's to say there > isn't a hidden agenda in all this. Remember teen screen? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Maybe this would work for higher functioning kids?? But yes, this would be ridiculous to even attempt this with my son. However, I do like the idea of using video or webcam for a DAN! Doctors appointment. The closet legit DAN! doctor to us is at least 100 miles away. It is difficult to travel any distance with my son and it would be really bad to have to stay overnight at a hotel. Video appointment would be ideal. > > > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > > > > This is one of the first things that came to mind when I read > about > > Telehealth (sorry-can't > > remember the corporate name). There is no way in hell I would > trust > > those people to > > moniter my child or my family by video camera. Aside from the > premise > > (and I am > > probably just paranoid) that it is long distance therapy and > support, > > who's to say there > > isn't a hidden agenda in all this. Remember teen screen? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Whether or not a teleconference method would be effective I don't believe is even the consideration. Keeping the corrupt autism industry's money in the hands of a few I believe is more likely the goal. I'm certain by now we have lurkers from the autism teleconference monopoly. Casper > > Maybe it would allow our government to begin producing it's own reality show: > > The Real World: Autism > > > geesh... I hate the idea altogether. There's no substitute for having one-on-one therapy. A > teleconference method would fail miserably. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I understand the lurkers are videoconferencing the posts! Re: back from the hearing Whether or not a teleconference method would be effective I don'tbelieve is even the consideration. Keeping the corrupt autismindustry's money in the hands of a few I believe is more likely the goal.I'm certain by now we have lurkers from the autism teleconferencemonopoly.Casper>> Maybe it would allow our government to begin producing it's ownreality show:> > The Real World: Autism> > > geesh... I hate the idea altogether. There's no substitute forhaving one-on-one therapy. A > teleconference method would fail miserably. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I hope everyone checks out this website and discovers where private information will most likely end up. I think it is page 17 of this PowerPoint slide show that has that info. www.atmeda.org/news/2005_presentations/t4a1.oberleitner.ppt > > > > > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > > > > > > > This is one of the first things that came to mind when I read > > about > > > Telehealth (sorry-can't > > > remember the corporate name). There is no way in hell I would > > trust > > > those people to > > > moniter my child or my family by video camera. Aside from the > > premise > > > (and I am > > > probably just paranoid) that it is long distance therapy and > > support, > > > who's to say there > > > isn't a hidden agenda in all this. Remember teen screen? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 SCARY SHIT! From: EOHarm [mailto:EOHarm ] On Behalf Of searchingforserenity111 Sent: Wednesday, April 18, 2007 8:26 AM EOHarm Subject: Re: back from the hearing I hope everyone checks out this website and discovers where private information will most likely end up. I think it is page 17 of this PowerPoint slide show that has that info. www.atmeda.org/news/2005_presentations/t4a1.oberleitner.ppt > > > > > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > > > > > > > This is one of the first things that came to mind when I read > > about > > > Telehealth (sorry-can't > > > remember the corporate name). There is no way in hell I would > > trust > > > those people to > > > moniter my child or my family by video camera. Aside from the > > premise > > > (and I am > > > probably just paranoid) that it is long distance therapy and > > support, > > > who's to say there > > > isn't a hidden agenda in all this. Remember teen screen? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 And being financially compensated with grants from the govt to do so! > > > > Maybe it would allow our government to begin producing it's own > reality show: > > > > The Real World: Autism > > > > > > geesh... I hate the idea altogether. There's no substitute for > having one-on-one therapy. A > > teleconference method would fail miserably. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Kathleen, If you followed Andy's advice 7 years ago, you might not have ever needed the ABA. Perhaps we're looking at this from different perspectives. Recovery is unacceptable to me. Cure is the only word I accept. Recovery is a half-assed solution. I don't care that it might be possible to teach my son to behave in any certain way. I won't be satisfied until his brain functions the way it is supposed to. Your empirical research on ABA is now obsolete. Let this sink in, you can not cure mercury poisoning with ABA. Those who continue to shove ABA down our throats are only giving us a band-aid. Modifying behavior will not make the brain work the way it is supposed to. And, touting ABA as a cure for autism will not hinder the drug companies in poisoning more babies for profit. > > > > > > > > > > > > > > > > > The part about the teleconferencing thing was hysterical. > >  My > > > > first > > > > > > thought, that had me nearly peeing my pants, was the > > > realization > > > > that > > > > > > they wanted kids to watch ABA on tv.  Didn’t they just > > spend > > > > like a > > > > > > bazillion dollars and decide that watching tv CAUSES > autism? > > > >  Idiots. > > > > > >  I did see this as dangerous because I can see schools and > > > > states > > > > > > saying “you people don’t need 1:1 in brick and mortar, > > you > > > > can just > > > > > > watch these dvds!  Go away now!† I bet you anything > that > > > AS > > > > will be > > > > > > funding the next teletherapy project.  Gag. > > > > > >  > > > > > > > > > > > > > > > Holly- I laughed so hard at that I almost threw up > > > > > > > > > > Thanks for going and reporting back.  I know it couldn’t > > be > > > > easy. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Telehealth has TOTALLY changed the playing field of long term care of the chronically ill. YOu have care manager/case manager companies springing up like weeds. Again, reaching millions of data bases for God knows what purpose, we are the great experiment. Using if for ABA just opens the Autism arena for other purposes of financial gain, home schooling, health/behavioral monitoring, the field is endless. Have used it with home care for CHF patients/diabetics etc. IMO, just another huge financial boost to another upstart. Monitoring us from cradle to grave. You now see insurance/HMO's jumping on this bandwagon like flies to honey.$$$$$$ big $$$$$ > > > > > > Maybe it would allow our government to begin producing it's own > > reality show: > > > > > > The Real World: Autism > > > > > > > > > geesh... I hate the idea altogether. There's no substitute for > > having one-on-one therapy. A > > > teleconference method would fail miserably. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Very creepy. Sounds like a way to prove it is the parent fault. I don't like taking my kids to the local children's hospital because they video tape - you have to sign a release to allow taping when you sign everything else. The hospital used those tapes for a Munchausen's Syndrome by Proxy study. > > > > > > Wonder how the Patriot Act fits into this type of scenario? > > > > > > > > This is one of the first things that came to mind when I read about > > Telehealth (sorry-can't > > remember the corporate name). There is no way in hell I would trust > > those people to > > moniter my child or my family by video camera. Aside from the premise > > (and I am > > probably just paranoid) that it is long distance therapy and support, > > who's to say there > > isn't a hidden agenda in all this. Remember teen screen? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 We are working to UNDO the weirdness we created with ABA. I pray others avoid our mistakes. Part of our story is here: http://horizonsdrc.blogspot.com/2007/02/man-on-bicycle.html >> ABA most likely provides maximal benefit for those who are not/minimally mercury poisoned but whose "autism" etiology springs from viral challenge (MMR) rather than heavy metal poisoning following by an immunological insult. Those kids may not need chelation, but other supplements instead. The ABA would appear to help many of those kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Like all interventions, there hopefully will be a lot more good than bad. It's always a balance. Sometimes you screw up and don't even recognize a problem until it's too late. That's why in all of these things, caution is the word. ABA has its place. Not always. Not everywhere. Re: back from the hearing We are working to UNDO the weirdness we created with ABA. I pray others avoid our mistakes. Part of our story is here: http://horizonsdrc.blogspot.com/2007/02/man-on-bicycle.html >> ABA most likely provides maximal benefit for those who are not/minimally mercury poisoned but whose "autism" etiology springs from viral challenge (MMR) rather than heavy metal poisoning following by an immunological insult. Those kids may not need chelation, but other supplements instead. The ABA would appear to help many of those kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 That is really some great observations. Thanks you for sharing that. We created some unpleasant " issues " with ABA as well. Stil working to undo some of them. > > > > ABA most likely provides maximal benefit for those who are > not/minimally mercury poisoned but whose " autism " etiology springs from > viral challenge (MMR) rather than heavy metal poisoning following by an > immunological insult. Those kids may not need chelation, but other > supplements instead. The ABA would appear to help many of those kids. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 , I'm with you on the need to remove all mercury from our children's bodies... but after you repair the hard-drive... it helps to jump start the software. ABA can really help with that. > > > > > > > > > > > > > > > > > > > > The part about the teleconferencing thing was > hysterical. > > >  My > > > > > first > > > > > > > thought, that had me nearly peeing my pants, was the > > > > realization > > > > > that > > > > > > > they wanted kids to watch ABA on tv.  Didn’t they just > > > spend > > > > > like a > > > > > > > bazillion dollars and decide that watching tv CAUSES > > autism? > > > > >  Idiots. > > > > > > >  I did see this as dangerous because I can see schools > and > > > > > states > > > > > > > saying “you people don’t need 1:1 in brick and > mortar, > > > you > > > > > can just > > > > > > > watch these dvds!  Go away now!† I bet you anything > > that > > > > AS > > > > > will be > > > > > > > funding the next teletherapy project.  Gag. > > > > > > >  > > > > > > > > > > > > > > > > > > Holly- I laughed so hard at that I almost threw up > > > > > > > > > > > > Thanks for going and reporting back.  I know it > couldn’t > > > be > > > > > easy. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I would agree to this in my sons case. ABA has helped and his autism stems from the MMR. > > > > I am just back from a long day in DC. It did not go so well for us. > > Something you all might not have been able to see was all the > hugging and > > kissing and handshaking going on before and after the hearing. A > lot of > > chummy stuff going on. Very unsettling. > > > > > > > > There were also a lot of lies put forth by Gerberding and Insel. > What > > weasles they were. > > > > > > > > Bob did a decent job, right up until he talked about > chelation, which > > is when he basically said that we were all risking our kids with it > because > > the payoff MIGHT be worth the risk. What he said was not > encouraging. > > > > > > > > Harkin did a good job. He had a lot of background info but he was > given > > blatantly false answers today by NIH and CDC. We need to correct > what was > > not true with him asap and ask him to keep holding more hearings > with more > > parental input. > > > > > > > > The part about the teleconferencing thing was hysterical. My first > thought, > > that had me nearly peeing my pants, was the realization that they > wanted > > kids to watch ABA on tv. Didn't they just spend like a bazillion > dollars > > and decide that watching tv CAUSES autism? Idiots. I did see this > as > > dangerous because I can see schools and states saying " you people > don't need > > 1:1 in brick and mortar, you can just watch these dvds! Go away > now! " I > > bet you anything that AS will be funding the next teletherapy > project. Gag. > > > > > > > > Max was the only person with autism there today, despite the room > being > > standing room only. He did a kick ass job (you will know that if > you > > listened to the feed and never heard him yelling " Amtrak! " ) lol > > > > > > > > The worst part was that this exact word for word hearing could have > been > > help 7 years ago. We knew all the same stuff back then. We talked > about > > all the same stuff. They lied the same lies. Everything. That > means in 7 > > years we have not moved. Not progressed. That sucks ass. We need > to do > > better. > > > > > > > > All in all, kinda worthless as hearings go but maybe ya'll will get > a taste > > for it and start calling and get more hearings with MORE input from > our > > side. > > > > > > > > Holly > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 , I agree also with you, all the mercury needs to be removed that is repairing the hard drive, ABA VB done under someone with credentials will jump start the software. I find it hard to believe that people still question ABA/ VB. Years ago early 90's it was a major no no to any school district or early intervention program. Mainly the name Lovaas what horse poop I would hear. I am glad that in 1993 I started using the UCLA clinic, had my district pay for it and had 50 hours a week. My child will never be able to be on his own but he can function and is no longer a shell of a child. Someone lives in his body now. Nanstiel <erik@...> wrote: , I'm with you on the need to remove all mercury from our children's bodies... but after you repair the hard-drive... it helps to jump start the software. ABA can really help with that.> > > > > > > > > > > > >> > > > > > > The part about the teleconferencing thing was > hysterical. > > >  My > > > > > first > > > > > > > thought, that had me nearly peeing my pants, was the > > > > realization > > > > > that > > > > > > > they wanted kids to watch ABA on tv.  Didn’t they just > > > spend > > > > > like a > > > > > > > bazillion dollars and decide that watching tv CAUSES > > autism? > > > > >  Idiots. > > > > > > >  I did see this as dangerous because I can see schools > and > > > > > states > > > > > > > saying “you people don’t need 1:1 in brick and > mortar, > > > you > > > > > can just > > > > > > > watch these dvds!  Go away now!† I bet you anything > > that > > > > AS > > > > > will be > > > > > > > funding the next teletherapy project.  Gag.> > > > > > >  > > > > > > > > > > > > > > > > > > Holly- I laughed so hard at that I almost threw up > > > > > > > > > > > > Thanks for going and reporting back.  I know it > couldn’t > > > be > > > > > easy.> > > > > > > > > > > > > > > > > >> > > > >> > > >> > >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 I would highly disagree. My son has tested positive to heavy metals and has also learned his first words at age 11 because of ABA-VB. > > > > > > I am just back from a long day in DC. It did not go so well > for us. > > > Something you all might not have been able to see was all the > > hugging and > > > kissing and handshaking going on before and after the hearing. > A > > lot of > > > chummy stuff going on. Very unsettling. > > > > > > > > > > > > There were also a lot of lies put forth by Gerberding and > Insel. > > What > > > weasles they were. > > > > > > > > > > > > Bob did a decent job, right up until he talked about > > chelation, which > > > is when he basically said that we were all risking our kids > with it > > because > > > the payoff MIGHT be worth the risk. What he said was not > > encouraging. > > > > > > > > > > > > Harkin did a good job. He had a lot of background info but he > was > > given > > > blatantly false answers today by NIH and CDC. We need to > correct > > what was > > > not true with him asap and ask him to keep holding more > hearings > > with more > > > parental input. > > > > > > > > > > > > The part about the teleconferencing thing was hysterical. My > first > > thought, > > > that had me nearly peeing my pants, was the realization that > they > > wanted > > > kids to watch ABA on tv. Didn't they just spend like a > bazillion > > dollars > > > and decide that watching tv CAUSES autism? Idiots. I did see > this > > as > > > dangerous because I can see schools and states saying " you > people > > don't need > > > 1:1 in brick and mortar, you can just watch these dvds! Go > away > > now! " I > > > bet you anything that AS will be funding the next teletherapy > > project. Gag. > > > > > > > > > > > > Max was the only person with autism there today, despite the > room > > being > > > standing room only. He did a kick ass job (you will know that > if > > you > > > listened to the feed and never heard him yelling " Amtrak! " ) lol > > > > > > > > > > > > The worst part was that this exact word for word hearing could > have > > been > > > help 7 years ago. We knew all the same stuff back then. We > talked > > about > > > all the same stuff. They lied the same lies. Everything. That > > means in 7 > > > years we have not moved. Not progressed. That sucks ass. We > need > > to do > > > better. > > > > > > > > > > > > All in all, kinda worthless as hearings go but maybe ya'll > will get > > a taste > > > for it and start calling and get more hearings with MORE input > from > > our > > > side. > > > > > > > > > > > > Holly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 You prove the point. One size does NOT fit all. That is what we are facing with teleconferencing. > > > > > > ABA most likely provides maximal benefit for those who are > > not/minimally mercury poisoned but whose " autism " etiology springs > > from viral challenge (MMR) rather than heavy metal poisoning > > following by an immunological insult. Those kids may not need > > chelation, but other supplements instead. The ABA would appear to > > help many of those kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 There are lots of opinions on ABA. I'm not saying nobody should use it. When offers of providing it, in any form, come from our government, I take it as an opportunity to drive home the point that it is more important to address the cause first. > > > > > > > > > > > > > > > > > > > > > > > The part about the teleconferencing thing was > > hysterical. > > > >  My > > > > > > first > > > > > > > > thought, that had me nearly peeing my pants, was the > > > > > realization > > > > > > that > > > > > > > > they wanted kids to watch ABA on tv.  Didn’t they just > > > > spend > > > > > > like a > > > > > > > > bazillion dollars and decide that watching tv CAUSES > > > autism? > > > > > >  Idiots. > > > > > > > >  I did see this as dangerous because I can see schools > > and > > > > > > states > > > > > > > > saying “you people don’t need 1:1 in brick and > > mortar, > > > > you > > > > > > can just > > > > > > > > watch these dvds!  Go away now!† I bet you anything > > > that > > > > > AS > > > > > > will be > > > > > > > > funding the next teletherapy project.  Gag. > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > Holly- I laughed so hard at that I almost threw up > > > > > > > > > > > > > > Thanks for going and reporting back.  I know it > > couldn’t > > > > be > > > > > > easy. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Chuck, didn't you start chelating about 10 years ago? How do you know it's not the result of that that he finally talks? > > > > > > > > I am just back from a long day in DC. It did not go so well > > for us. > > > > Something you all might not have been able to see was all the > > > hugging and > > > > kissing and handshaking going on before and after the > hearing. > > A > > > lot of > > > > chummy stuff going on. Very unsettling. > > > > > > > > > > > > > > > > There were also a lot of lies put forth by Gerberding and > > Insel. > > > What > > > > weasles they were. > > > > > > > > > > > > > > > > Bob did a decent job, right up until he talked about > > > chelation, which > > > > is when he basically said that we were all risking our kids > > with it > > > because > > > > the payoff MIGHT be worth the risk. What he said was not > > > encouraging. > > > > > > > > > > > > > > > > Harkin did a good job. He had a lot of background info but he > > was > > > given > > > > blatantly false answers today by NIH and CDC. We need to > > correct > > > what was > > > > not true with him asap and ask him to keep holding more > > hearings > > > with more > > > > parental input. > > > > > > > > > > > > > > > > The part about the teleconferencing thing was hysterical. My > > first > > > thought, > > > > that had me nearly peeing my pants, was the realization that > > they > > > wanted > > > > kids to watch ABA on tv. Didn't they just spend like a > > bazillion > > > dollars > > > > and decide that watching tv CAUSES autism? Idiots. I did see > > this > > > as > > > > dangerous because I can see schools and states saying " you > > people > > > don't need > > > > 1:1 in brick and mortar, you can just watch these dvds! Go > > away > > > now! " I > > > > bet you anything that AS will be funding the next teletherapy > > > project. Gag. > > > > > > > > > > > > > > > > Max was the only person with autism there today, despite the > > room > > > being > > > > standing room only. He did a kick ass job (you will know that > > if > > > you > > > > listened to the feed and never heard him yelling " Amtrak! " ) > lol > > > > > > > > > > > > > > > > The worst part was that this exact word for word hearing > could > > have > > > been > > > > help 7 years ago. We knew all the same stuff back then. We > > talked > > > about > > > > all the same stuff. They lied the same lies. Everything. That > > > means in 7 > > > > years we have not moved. Not progressed. That sucks ass. We > > need > > > to do > > > > better. > > > > > > > > > > > > > > > > All in all, kinda worthless as hearings go but maybe ya'll > > will get > > > a taste > > > > for it and start calling and get more hearings with MORE > input > > from > > > our > > > > side. > > > > > > > > > > > > > > > > Holly > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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