Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 I remember and you did ask very nicely. We are a good group of people here and your welcome back may just go along way for her Kathy On 13-Jan-05, at 4:39 AM, C wrote: > As the one who initially asked Edie (as nicely as I could) to try to > ease off a bit on the sheer number of her postings (i.e. cut out those > that basically just said " I agree " ) and also asked her to try to prune > out old stuff (something many people are guilty of not doing), then > given that she did apologize I certainly don't have a problem with her > joining back in if she can do those things and if she didn't follow > through on her threats. > > > > Kathy Huget wrote: > > Just a note to some who may not of read it...but Edie did apologize to > the group at large. Some of you may have missed this apology but it > was sincere. Mood swings are very common with this illness and while > she made alot of threats to the group about reporting stuff to > anywhere possible; I know she feels extremely bad about everything and > truly regrets it all. Lets move on as a group but not alienate anyone. > We've all said things we wish we could take back, but when they are > said on the internet to faceless people it is impossible to let > everyone see your regret.... " Give peace a chance? " > > Kathy > > -- > . > ,-._|\ Covington > / Oz \ > \_,--.x/ > v > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 I've been exchanging emails with Edie and have encouraged her to continue with the group. I have assured her that this is a good group of people and that she should not cut herself off from the great support available here. JT Re: [low dose naltrexone] Edie I remember and you did ask very nicely. We are a good group of people here and your welcome back may just go along way for her Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 We said what we had to say and Edie apologized. It's unrealistic to expect more of a response from us. Of course she's welcome to participate in an appropriate manner. We are all adults here. -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 265.6.12 - Release Date: 1/14/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 , I am so curious...why do you hate the fact that you have had revision? It's important for me to examine all sides of this issue, so I'd very much like to understand what your current frustrations are. Can you share? Since I'm such a newbie revisionee (5 weeks), I can only struggle with my own current limitations, but do hope for much better in the long run. I know it's going to take a lot of time to feel comfortable in my own skin again, but so far, my biggest frustrations are my physical limitations, particularly not being able to put on socks, etc. I hope that once I am allowed that I can regain a tiny bit more flexibility eventually to attend to below-waist level activities (Now Now, stop those dirty thoughts ladies! I mean socks, shaving, shoes etc) My pain is pretty well controlled through meds right now, which I've managed to cut down on considerably since getting out of the hospital, but am still very much reliant on. I'm finding that getting up and moving first thing in the morning helps considerably with the morning shock of " Oh man, my body is DIFFERENT!) & discomfort. Pain increases by night, when I get muscle fatigue and can start feeling my hardware. So, I take meds and lie down. But I am walking every day, and hope that this low-impact exercise will give me a little more strength and energy, as well as strengthen my legs. I have hopes that my flexibility in my legs may begin to increase when I can get back into the water, and also start doing some gentle yoga stretches, since I'll be relying so heavily on them for getting up and down now. K convinced me to give up the walker and cane in my walks, and even though it's slow going, it's so much better for me not to have to rely on an external device. Although i am still wearing my brace. Thanks !!!! I guess because I went into this sugery knowing what my physical limitatons would be, I am not really disappointed or shocked so far. Our lives as scolis have had to be about physical readjustments: for me it was a back brace for 5 years, then harrington rod fusion, then flatback, then recover from discectomy/laminotomy, and now this revision surgery, fusion to the sacrum. It just doesn't surprise me, even if it is frustrating at times. I'll get over that though, I have no doubt. Particularly if the payoff really is much less pain and suffering than I was experiencing with flatback. I know I will hit walls along the way to recovery, it would be unnatural not to feel ambivalent at times. My body looks wonderful and odd to me all at the same time. I'm getting used to the cosmetics of it all, too. Anyway, didn't mean to ramble, but I would like to know what your regrets are. Believe me, I am not unrealistic, and have moments of angst about the whole thing too, but then I remind myself that I need to give it all a chance, and that chance can take up to 2 years to benefit from..... Thanks for sharing & Love, Edie > > Hi Edie, > Somebody really read that journal Well, it has been > a year and I still say, I am glad to have had revision but > I hate the fact that I have. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 My response has gone to your email Quote Link to comment Share on other sites More sharing options...
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