Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Dear Gail, Some pharmacies carry them. I have them for sale at $2 each plus mailing. Best of Health! Dr. Saul Pressman Catheters was ozonated saline IV > > > > Dear Mike, > > > > You can buy sterile saline at the pharmacy, > > > > Saul, is there a place where one can buy the catherter for > insufflation? If not, do you sell them? If so, how much? I need to > pick up some more and don't know where to do it? Thanks, Gail > > > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 > Dear Gail, > > Some pharmacies carry them. > I have them for sale at $2 each plus mailing. > > Best of Health! > Dr. Saul Pressman > >Saul, does one need a scrip when buying them at a pharmacy? Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Dear Gail, Most places not, but phone around. Best of Health! Dr. Saul Pressman Re: Catheters > > > > Dear Gail, > > > > Some pharmacies carry them. > > I have them for sale at $2 each plus mailing. > > > > Best of Health! > > Dr. Saul Pressman > > > >Saul, does one need a scrip when buying them at a pharmacy? Gail > > > > > > > OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. > > THERE IS NO MEDICAL ADVICE HERE! > > This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. > > You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - > DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : > > oxyplus-unsubscribeegroups > > oxyplus-normalonelist - switch your subscription to normal mode. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Hello All, All my life, I've been going to the bathroom " on demand " . I've reached a point where it is simply becoming too onerous for me to be transferred on and off a commode chair due to difficult- to- access attendant care. I'd like to hear from some of our female group members as to their experiences with catheterization; in particular, the pros and cons of the process. I'm interested in knowing things like is it difficult to bathe, is pain ever an issue, and what other issues have you come across? I don't know anyone who uses a catheter and I am keen to learn from some first-hand users. Any suggestions/advice/recommendations you might have for someone considering embarking on such a journey would be greatly appreciated. I'm hoping this change will improve my quality of life even by allowing me to drink more fluids which is always a good thing. Thanks in advance. Karyna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Karyna, I had my supra pubic catheter placed in May 2003. It's a surgically placed stoma between my naval and pubic bone that goes directly to my bladder. This is what I wrote to someone else on this list in 2005, and I have updated it a bit: " In this 2nd year I don't feel it there. I take 2.5 mg of oxybutynin (generic for Ditropan) to prevent bladder spasms. This is a very low dose - 1/2 for a child but seems to be enough. It's painful when I have infections or don't drink enough, and can hurt to change under those circumstances. It hurt during the 1st year (a 2-3 on a scale of 1-10). My friend said it's very much like a G-tube in that regard. Asshole surgeon told me it wouldn't hurt at all, but all his patients are paralyzed...duh. They tried to make me go in monthly to have a nurse change it, but it's not hard to do so I had my quadriplegic friend teach me, and I taught my PAs to do it. I remember a urethral catheter hurting lots more and being constantly uncomfortable. The supra pubic catheter thankfully doesn't interfere with my sex life. I only regret I didn't get it sooner to avoid the kidney stones that began developing in my early 20s because I didn't drink/pee enough. " The surgery went very well because I arranged with the intake nurse, surgeon, and the operating room supervisor (most important) to allow my attendant to be in there with me. Without her there, I likely would have had injuries like did (check with Geary on this list about her experience). My attendant did a great job being my protector while at the same time being being very liked and appreciated by the staff who eventually understood how fragile I am. On the other hand, the surgeon was rough and careless with my legs and didn't think it mattered because I was unconscious. My attendant had to shove her hand between him and me because he ignored her concerns about him leaning on my foot. The anesthesiologist was great. He tried to do a spinal to avoid putting my under, but my tail bone was too decalcified and my face went numb instead of going numb from the waist down. I was allowed to go home the same day, but chose to stay 1 night because I was so exhausted. I was up in my chair the next day, and back to work 7 days later. I keep my catheter drainage bag in a very pretty bag tied to the side of my wheelchair. No one can see it and it holds 2000cc so I only have to empty it at the end of the day. It's so wonderful not having to depend on an attendant to help me pee, and it's great to not be distracted constantly by a full bladder. I stopped taking the oxybutynin about 2 years ago because it affected my short-term memory, a common but rarely disclosed side effect. The spasms are minor and rare if I stay hydrated. Still no regrets 8 years later. A friend of mine, also with SMA, had a different procedure done called the Mitrofanoff Procedure. If you have the mobility to manage catheterizing yourself via your bely button, this may be a good option. See: http://newmobility.com/articleViewIE.cfm?id=11693 Good luck! Alana > > Hello All, > > All my life, I've been going to the bathroom " on demand " . I've reached a > point where it is simply becoming too onerous for me to be transferred on > and off a commode chair due to difficult- to- access attendant care. > > I'd like to hear from some of our female group members as to their > experiences with catheterization; in particular, the pros and cons of the > process. I'm interested in knowing things like is it difficult to bathe, is > pain ever an issue, and what other issues have you come across? I don't know > anyone who uses a catheter and I am keen to learn from some first-hand > users. > > Any suggestions/advice/recommendations you might have for someone > considering embarking on such a journey would be greatly appreciated. I'm > hoping this change will improve my quality of life even by allowing me to > drink more fluids which is always a good thing. > > Thanks in advance. > > Karyna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Hi Alana, So glad this has helped you. I, too, have kidney stones now (I'm 34) and may need to consider my options. Is there an odor from the urine bag? ~a From: althegrrl <alanarutht@...> Subject: Re: catheters Date: Sunday, August 7, 2011, 4:20 PM Â Karyna, I had my supra pubic catheter placed in May 2003. It's a surgically placed stoma between my naval and pubic bone that goes directly to my bladder. This is what I wrote to someone else on this list in 2005, and I have updated it a bit: " In this 2nd year I don't feel it there. I take 2.5 mg of oxybutynin (generic for Ditropan) to prevent bladder spasms. This is a very low dose - 1/2 for a child but seems to be enough. It's painful when I have infections or don't drink enough, and can hurt to change under those circumstances. It hurt during the 1st year (a 2-3 on a scale of 1-10). My friend said it's very much like a G-tube in that regard. Asshole surgeon told me it wouldn't hurt at all, but all his patients are paralyzed...duh. They tried to make me go in monthly to have a nurse change it, but it's not hard to do so I had my quadriplegic friend teach me, and I taught my PAs to do it. I remember a urethral catheter hurting lots more and being constantly uncomfortable. The supra pubic catheter thankfully doesn't interfere with my sex life. I only regret I didn't get it sooner to avoid the kidney stones that began developing in my early 20s because I didn't drink/pee enough. " The surgery went very well because I arranged with the intake nurse, surgeon, and the operating room supervisor (most important) to allow my attendant to be in there with me. Without her there, I likely would have had injuries like did (check with Geary on this list about her experience). My attendant did a great job being my protector while at the same time being being very liked and appreciated by the staff who eventually understood how fragile I am. On the other hand, the surgeon was rough and careless with my legs and didn't think it mattered because I was unconscious. My attendant had to shove her hand between him and me because he ignored her concerns about him leaning on my foot. The anesthesiologist was great. He tried to do a spinal to avoid putting my under, but my tail bone was too decalcified and my face went numb instead of going numb from the waist down. I was allowed to go home the same day, but chose to stay 1 night because I was so exhausted. I was up in my chair the next day, and back to work 7 days later. I keep my catheter drainage bag in a very pretty bag tied to the side of my wheelchair. No one can see it and it holds 2000cc so I only have to empty it at the end of the day. It's so wonderful not having to depend on an attendant to help me pee, and it's great to not be distracted constantly by a full bladder. I stopped taking the oxybutynin about 2 years ago because it affected my short-term memory, a common but rarely disclosed side effect. The spasms are minor and rare if I stay hydrated. Still no regrets 8 years later. A friend of mine, also with SMA, had a different procedure done called the Mitrofanoff Procedure. If you have the mobility to manage catheterizing yourself via your bely button, this may be a good option. See: http://newmobility.com/articleViewIE.cfm?id=11693 Good luck! Alana > > Hello All, > > All my life, I've been going to the bathroom " on demand " . I've reached a > point where it is simply becoming too onerous for me to be transferred on > and off a commode chair due to difficult- to- access attendant care. > > I'd like to hear from some of our female group members as to their > experiences with catheterization; in particular, the pros and cons of the > process. I'm interested in knowing things like is it difficult to bathe, is > pain ever an issue, and what other issues have you come across? I don't know > anyone who uses a catheter and I am keen to learn from some first-hand > users. > > Any suggestions/advice/recommendations you might have for someone > considering embarking on such a journey would be greatly appreciated. I'm > hoping this change will improve my quality of life even by allowing me to > drink more fluids which is always a good thing. > > Thanks in advance. > > Karyna > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Hi a, There is no odor from the bag. I use 2 of them (day/night) and wash them with a 10% bleach solution and then plain water. I hang them open over an empty basin in the bathroom to dry. Many people I know use a vinegar solution instead. I use bleach because of antibiotic-resistant urinary tract infections I get regularly because of the kidney stones. Vinegar is usually sufficient for most people. Alana > > > > > > Hello All, > > > > > > All my life, I've been going to the bathroom " on demand " . I've reached a > > > point where it is simply becoming too onerous for me to be transferred on > > > and off a commode chair due to difficult- to- access attendant care. > > > > > > I'd like to hear from some of our female group members as to their > > > experiences with catheterization; in particular, the pros and cons of the > > > process. I'm interested in knowing things like is it difficult to bathe, is > > > pain ever an issue, and what other issues have you come across? I don't know > > > anyone who uses a catheter and I am keen to learn from some first-hand > > > users. > > > > > > Any suggestions/advice/recommendations you might have for someone > > > considering embarking on such a journey would be greatly appreciated. I'm > > > hoping this change will improve my quality of life even by allowing me to > > > drink more fluids which is always a good thing. > > > > > > Thanks in advance. > > > > > > Karyna > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Thanks!! ~a From: althegrrl <alanarutht@...> Subject: Re: catheters Date: Sunday, August 7, 2011, 11:30 PM Â Hi a, There is no odor from the bag. I use 2 of them (day/night) and wash them with a 10% bleach solution and then plain water. I hang them open over an empty basin in the bathroom to dry. Many people I know use a vinegar solution instead. I use bleach because of antibiotic-resistant urinary tract infections I get regularly because of the kidney stones. Vinegar is usually sufficient for most people. Alana > > > > > > Hello All, > > > > > > All my life, I've been going to the bathroom " on demand " . I've reached a > > > point where it is simply becoming too onerous for me to be transferred on > > > and off a commode chair due to difficult- to- access attendant care. > > > > > > I'd like to hear from some of our female group members as to their > > > experiences with catheterization; in particular, the pros and cons of the > > > process. I'm interested in knowing things like is it difficult to bathe, is > > > pain ever an issue, and what other issues have you come across? I don't know > > > anyone who uses a catheter and I am keen to learn from some first-hand > > > users. > > > > > > Any suggestions/advice/recommendations you might have for someone > > > considering embarking on such a journey would be greatly appreciated. I'm > > > hoping this change will improve my quality of life even by allowing me to > > > drink more fluids which is always a good thing. > > > > > > Thanks in advance. > > > > > > Karyna > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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