Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 I'd like to help out but like many of these LDN things it is focused on MS - understandable in some ways but frustrating in others........ :-( loma1956 wrote: Please, please visit www.ldnresearchtrust.org and take time to fill in the form. Let`s help this cause in anyway we can. Lorna -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 Kim- I'm just starting ldn- multiple myeloma in good health and looking to stay that way for an upcoming 70thbday.. Any info woul be appreciated, I want to learn more especially about possible side effects before telling our support group.. allan > > Hi, . I think I understand what you are asking. The reason they > are only asking MSer's to fill out this particular survey is because > of the trials they are trying to get underway for LDN use in MS. > They don't really require any data from people using if for other > diseases or disorders. It would not be of any benefit regarding a > trial for LDN and MS. > > This has to be tackled one disease at a time, and that is a shame, > considering how hard it is to get this done. It would be great if we > could just throw all the things that people use LDN for into one pot > and take that approach, but it would never get off the ground if we > did. > > I am not belittling any of the other diseases that LDN is being used > for in any way, and I hope you do not think that I am. I have a > friend who was diagnosed with non-Hodgkins lymphoma this week, and > the day after she got her diagnosis, I printed everything I could get > my hands on and gave it to her so that she could weigh her options. I > wish I had known about LDN 3 years ago when my mother was diagnosed > with mets all over her tiny body. I think it would have been an > alternative she would have gladly chosen over the one my father chose > for her - chemo and radiation that took her to her grave much faster > than she would have gone without any treatment. I think it is so > exciting that LDN helps so many people with such diverse problems, > but the only way we are going to get the trials is to tackle one > obstacle at a time. > > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2005 Report Share Posted January 24, 2005 Hi Kim, Yep, understand fully the reasons for the surveys only applying to MS but just ask when somebody exhorts 'everybody please take the survey' they could instead just say 'everybody with MS please take the survey'. Just two simple little words but would avoid those of us who don't have MS wasting time going in and getting to the surveys again just in case for some reason they have broadened in scope. I guess that's unlikely but when there are just general pleas for everybody to please do their bit to help out by taking the survey I want to do my bit too so have to go and check just in case............. petessweetheart wrote: > > > > Lorna, > > > > Could you please qualify such requests as being for MSers only if > that > > is what they are? > > Hi, . I think I understand what you are asking. The reason they > are only asking MSer's to fill out this particular survey is because > of the trials they are trying to get underway for LDN use in MS. > They don't really require any data from people using if for other > diseases or disorders. It would not be of any benefit regarding a > trial for LDN and MS. -- . ,-._|\ Covington / Oz \ \_,--.x/ v Quote Link to comment Share on other sites More sharing options...
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