Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 Hello all, I have SMA II. Approximately 8 years ago I developed acute urinary retention stemming from my constipation. I would allow my constipation to get so severe that I would have difficulty urinating and eventually I had to be catherized. After my catheter was removed, I was able to urinate but my badder did not stay contracted the way it used to. My urologist indicated that I might have damaged my bladder muscles and that I needed to keep my bowels active because my ability to urinate was contingent on moving my bowels. I have been subsequently able to deal with this through the years as I regularly take lactulose to help move my bowels. However, just recently my bladder is not contracting normally. Out of the blue, it feels as if my bladder doesn't have the same contracting strength. I have never heard these symptoms being associated with SMA. Has anyone ever dealt with anything similar to what I have described? It is quite frustrating. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 Urinary retention is common with SMA. I always had to have someone press on my lower belly to help me empty my bladder. I now have a suprapubic catheter so this is not an issue for me anymore. Alana > > Hello all, > > I have SMA II. Approximately 8 years ago I developed acute urinary retention stemming from my constipation. I would allow my constipation to get so severe that I would have difficulty urinating and eventually I had to be catherized. After my catheter was removed, I was able to urinate but my badder did not stay contracted the way it used to. My urologist indicated that I might have damaged my bladder muscles and that I needed to keep my bowels active because my ability to urinate was contingent on moving my bowels. I have been subsequently able to deal with this through the years as I regularly take lactulose to help move my bowels. However, just recently my bladder is not contracting normally. Out of the blue, it feels as if my bladder doesn't have the same contracting strength. I have never heard these symptoms being associated with SMA. Has anyone ever dealt with anything similar to what I have described? It is quite frustrating. Thanks for listening. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2011 Report Share Posted January 11, 2011 hello. My name is . Doctors think I have SMA IV. It is not definite but it is a best guess. I am fifty-six years old. About five years go, I had a urine retention and was told by the ER doctor that my sphinter muscles were not working and I needed a permanent catheter. I don't know anyone else with adult onset SMA. My DNA blood test results did not match SMA one or two and I understand they do not have a test for me. I thought the operation was a little drastic since I had never had a retention problem before. But all my doctors agreed. So I went for it and got it over as soon as I From: santino <santinoceccotti@...> Subject: Urinary issues Date: Monday, January 10, 2011, 12:58 AM  Hello all, I have SMA II. Approximately 8 years ago I developed acute urinary retention stemming from my constipation. I would allow my constipation to get so severe that I would have difficulty urinating and eventually I had to be catherized. After my catheter was removed, I was able to urinate but my badder did not stay contracted the way it used to. My urologist indicated that I might have damaged my bladder muscles and that I needed to keep my bowels active because my ability to urinate was contingent on moving my bowels. I have been subsequently able to deal with this through the years as I regularly take lactulose to help move my bowels. However, just recently my bladder is not contracting normally. Out of the blue, it feels as if my bladder doesn't have the same contracting strength. I have never heard these symptoms being associated with SMA. Has anyone ever dealt with anything similar to what I have described? It is quite frustrating. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
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