Preparing for child. Need advice.

[Guest guest]

Hey everybody, I know it's been a while so I shall update you... but I also need

some advice.

I am in the process of moving in with... my fiance. Him and I are also

thinking about children in the future... of course once we get all financial

things worked out. My much needed advice is to all the mothers with SMA type 2.

What are the dangers? What do I need to be aware of? My fiance wants to know

what he should expect? I also would like to know how you did it and how it

affected you. To explain to you, I'm not fully immobile, I don't have problems

gaining weight. I had spinal correction surgery when I was 7. My lungs are

great. My posture is a bit ascue due to rod displacement. I know that there are

women with sma that have had children, so that us some hope... we just don't

want to be in the dark. I'd appreciate any information, and we will keep you all

posted.

Peace and Love,

Cortney

[Guest guest]

I don't have kids but congrats on your engagement!! ~a

From: Nichole M <diary_of_the_insane123@...>

Subject: Preparing for child. Need advice.

Date: Thursday, September 1, 2011, 4:37 PM

 

Hey everybody, I know it's been a while so I shall update you... but I

also need some advice.

I am in the process of moving in with... my fiance. Him and I are also

thinking about children in the future... of course once we get all financial

things worked out. My much needed advice is to all the mothers with SMA type 2.

What are the dangers? What do I need to be aware of? My fiance wants to know

what he should expect? I also would like to know how you did it and how it

affected you. To explain to you, I'm not fully immobile, I don't have problems

gaining weight. I had spinal correction surgery when I was 7. My lungs are

great. My posture is a bit ascue due to rod displacement. I know that there are

women with sma that have had children, so that us some hope... we just don't

want to be in the dark. I'd appreciate any information, and we will keep you all

posted.

Peace and Love,

Cortney

[Guest guest]

I have SMA II and miscarried two children in our second trimesters. Killer

thing is I was using four birth control methods every time I had sex and one of

those methods was surgical sterilization (on the guys part) that all failed.

I would've gladly had my two kids but life had other plans for all of us

involved.

I've known women with our disability who've had a child then had abortion after

failed birth control because they felt it was the fairer choice for the living

child to grow up without the pressure of IF a second pregnancy failed or

weakened them.

A very dear friend (who's home I was at when I miscarried my daughter)

last words while passing on were how she NEVER regretted having her son, felt

sad she had to abort his younger sibling but was ready to die and grateful she

lived to see him grown up and on his own.

It's all an individual choice and experience for each and every one of us when

it comes to having kids.

The only thing is to be very cautious of anybody with extreems in medical

advice.

A friend with SMA was told by doctors, " You will DIE before the child is born! " ,

she lived to see that child finish college.

Another, " You can have children and you'll be fine! " , died after miscarrying her

fifth child.

Another had her son, then her lungs collapsed the next day, she went on a vent,

died eight years later.

Other women with SMA II that I've met had a child or two and even a third little

one all healthy happy and thriving along.

Follow your heart, do your homework, and whatever happens God Bless.

>

> Hey everybody, I know it's been a while so I shall update you... but I also

need some advice.

> I am in the process of moving in with... my fiance. Him and I are also

thinking about children in the future... of course once we get all financial

things worked out. My much needed advice is to all the mothers with SMA type 2.

What are the dangers? What do I need to be aware of? My fiance wants to know

what he should expect? I also would like to know how you did it and how it

affected you. To explain to you, I'm not fully immobile, I don't have problems

gaining weight. I had spinal correction surgery when I was 7. My lungs are

great. My posture is a bit ascue due to rod displacement. I know that there are

women with sma that have had children, so that us some hope... we just don't

want to be in the dark. I'd appreciate any information, and we will keep you all

posted.

> Peace and Love,

> Cortney

>

[Guest guest]

Great news! Congratulations and all the best for you and your plans!

Camilla