Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Yes, I'd like to know, too. Are you reaching the end of of your life in the way of suicidal thoughts and giving up the fight? ~a ________________________________ From: Jodi & Juni <junikins4me@...> Sent: Tue, January 18, 2011 1:56:55 AM Subject: Re: Re: Mic-Key button Question......Gross...might not want to read... Charmdcripchic, what do u meann mine is? Jodi & Juni Digital Scrapbook Artist & Service Dog All Scraps 4 You www.freewebs.com/allscraps4you On 1/16/11 6:46 PM, " charmedcripchic " <charmedcripchic@...> wrote: > This sounds like the infected fissures that killed my best friend with a > childhood nuero muscular disability > > Please don't wait for an appointment get it checked asap > > No offense here - Reasons infinity of why I refuse to get a feeding tube > > I understand it for kids especially, and folks who's life is not in the end > phases mine is > > > > >> >> Brett had a (14 Fr 1.7 cm) Mic-Key button placed in the summer of 2004 in New >> Jersey when he was 4 years old, we rarely if ever had any issues with it. It >> always looked perfect, no redness or irritation, or anything! We always clean >> it every day and change the gauze pad every day. >> >> We just recently in Summer of 2009 (Brett was 9), had it upsized to 14 Fr 2.3 >> cm at our local Children's hospital in KC (which we don't really like). Since >> we have changed sizes, Brett gets an infection around his site every 2-3 >> months. It gets bright red, hot to the touch with white streaks around it. It >> is very painful to the touch for Brett and it oozes lovely brownish, >> yellowish goo with tinges of blood. We usually get some cream for it and they >> put him on an antibiotic then it goes away in about a week. >> >> The most recent time, he woke up on Friday with the above symptoms by Friday >> night, it was really puffy and oozing bad, so I slightly pushed on it to help >> get the infectious ooze out. Saturday morning when he woke up there was a >> tiny hole right next to the Mic-Key button from where the ooze was escaping. >> I just figured it needed to find an orifice to get out of it, so it created >> an out. Well today when he woke up, the hole has doubled in size. I have been >> keeping it clean and putting Neosporin on it and the hotness, redness, and >> white streaks have disappeared but the hole with the oozing still remains. >> And it was tender the first day, but now Brett says it doesn't hurt at all. >> Just at a loss and don't know what to do. Any clue what or why this is >> happening? >> >> But there has to be something else to this right? Could he have developed >> some kind of allergy? Have they changed how they make them? We have a dr. >> appt on Thursday with his PCP and I am assuming she will just refer us to the >> Children's hospital which I dread going to.....just wondering if anyone has >> any advice? We would go to the doctor or hospital sooner but it has been >> snowing since yesterday and my lowered van just cannot make it in the snow. >> We are stuck! >> >> Kristal- Mom to Brett- SMA II- 11 years old >> Visit Brett @ www.our-sma-angels.com/brett >> OR www.caringbridge.org/visit/brettwilson >> >> Quote Link to comment Share on other sites More sharing options...
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