Re: Re: Mic-Key button Question......Gross...might not want to read...

[Guest guest]

Thank you for this, alana. I've had nothing but trouble with my g-tube, my

body just won't heal around it. My dr doesn't know anything though, what

exactly is the silver coat & where can I find it? Does it cover an existing

tube or is it it's own thing?

On 1/11/11 10:22 PM, " althegrrl " <alanarutht@...> wrote:

> silver-coated tubes. This can reduce infections and address allergies.

[Guest guest]

,

You may have developed a latex allergy. I did a couple of years ago. I am very

careful now.

Lori

I am Bippy on Twitter.

________________________________

From: althegrrl <alanarutht@...>

Sent: Wed, January 12, 2011 3:15:31 PM

Subject: Re: Mic-Key button Question......Gross...might not want to

read...

It's silver coating over the latex tube. I know they're available for

indwelling catheters and endotracheal tubes. Ask a gastroenterologist. G-Tubes

are a lot like urinary catheters, though, maybe the silver coating is

counter-indicated around stomach acid. I can't find anything online.

>

> > silver-coated tubes. This can reduce infections and address allergies.

>

[Guest guest]

I have had a lot of trouble with my g-tube site, BUT am still really glad I

got one. It has improved my quality of life immensely.

On 1/16/11 6:46 PM, " charmedcripchic " <charmedcripchic@...> wrote:

> This sounds like the infected fissures that killed my best friend with a

> childhood nuero muscular disability

>

> Please don't wait for an appointment get it checked asap

>

> No offense here - Reasons infinity of why I refuse to get a feeding tube

>

> I understand it for kids especially, and folks who's life is not in the end

> phases mine is

>

>

>

>

>>

>> Brett had a (14 Fr 1.7 cm) Mic-Key button placed in the summer of 2004 in New

>> Jersey when he was 4 years old, we rarely if ever had any issues with it. It

>> always looked perfect, no redness or irritation, or anything! We always clean

>> it every day and change the gauze pad every day.

>>

>> We just recently in Summer of 2009 (Brett was 9), had it upsized to 14 Fr 2.3

>> cm at our local Children's hospital in KC (which we don't really like). Since

>> we have changed sizes, Brett gets an infection around his site every 2-3

>> months. It gets bright red, hot to the touch with white streaks around it. It

>> is very painful to the touch for Brett and it oozes lovely brownish,

>> yellowish goo with tinges of blood. We usually get some cream for it and they

>> put him on an antibiotic then it goes away in about a week.

>>

>> The most recent time, he woke up on Friday with the above symptoms by Friday

>> night, it was really puffy and oozing bad, so I slightly pushed on it to help

>> get the infectious ooze out. Saturday morning when he woke up there was a

>> tiny hole right next to the Mic-Key button from where the ooze was escaping.

>> I just figured it needed to find an orifice to get out of it, so it created

>> an out. Well today when he woke up, the hole has doubled in size. I have been

>> keeping it clean and putting Neosporin on it and the hotness, redness, and

>> white streaks have disappeared but the hole with the oozing still remains.

>> And it was tender the first day, but now Brett says it doesn't hurt at all.

>> Just at a loss and don't know what to do. Any clue what or why this is

>> happening?

>>

>> But there has to be something else to this right? Could he have developed

>> some kind of allergy? Have they changed how they make them? We have a dr.

>> appt on Thursday with his PCP and I am assuming she will just refer us to the

>> Children's hospital which I dread going to.....just wondering if anyone has

>> any advice? We would go to the doctor or hospital sooner but it has been

>> snowing since yesterday and my lowered van just cannot make it in the snow.

>> We are stuck!

>>

>> Kristal- Mom to Brett- SMA II- 11 years old

>> Visit Brett @ www.our-sma-angels.com/brett

>> OR www.caringbridge.org/visit/brettwilson

>>

>>

[Guest guest]

That is wonderful, ! Best to you!

Lori

________________________________

From: <nicoleroberts@...>

" " < >

Sent: Sun, January 16, 2011 11:30:49 PM

Subject: Re: Re: Mic-Key button Question......Gross...might not

want to read...

I have had a lot of trouble with my g-tube site, BUT am still really glad I

got one. It has improved my quality of life immensely.

On 1/16/11 6:46 PM, " charmedcripchic " <charmedcripchic@...> wrote:

> This sounds like the infected fissures that killed my best friend with a

> childhood nuero muscular disability

>

> Please don't wait for an appointment get it checked asap

>

> No offense here - Reasons infinity of why I refuse to get a feeding tube

>

> I understand it for kids especially, and folks who's life is not in the end

> phases mine is

>

>

>

>

>>

>> Brett had a (14 Fr 1.7 cm) Mic-Key button placed in the summer of 2004 in New

>> Jersey when he was 4 years old, we rarely if ever had any issues with it. It

>> always looked perfect, no redness or irritation, or anything! We always clean

>> it every day and change the gauze pad every day.

>>

>> We just recently in Summer of 2009 (Brett was 9), had it upsized to 14 Fr 2.3

>> cm at our local Children's hospital in KC (which we don't really like). Since

>> we have changed sizes, Brett gets an infection around his site every 2-3

>> months. It gets bright red, hot to the touch with white streaks around it. It

>> is very painful to the touch for Brett and it oozes lovely brownish,

>> yellowish goo with tinges of blood. We usually get some cream for it and they

>> put him on an antibiotic then it goes away in about a week.

>>

>> The most recent time, he woke up on Friday with the above symptoms by Friday

>> night, it was really puffy and oozing bad, so I slightly pushed on it to help

>> get the infectious ooze out. Saturday morning when he woke up there was a

>> tiny hole right next to the Mic-Key button from where the ooze was escaping.

>> I just figured it needed to find an orifice to get out of it, so it created

>> an out. Well today when he woke up, the hole has doubled in size. I have been

>> keeping it clean and putting Neosporin on it and the hotness, redness, and

>> white streaks have disappeared but the hole with the oozing still remains.

>> And it was tender the first day, but now Brett says it doesn't hurt at all.

>> Just at a loss and don't know what to do. Any clue what or why this is

>> happening?

>>

>> But there has to be something else to this right? Could he have developed

>> some kind of allergy? Have they changed how they make them? We have a dr.

>> appt on Thursday with his PCP and I am assuming she will just refer us to the

>> Children's hospital which I dread going to.....just wondering if anyone has

>> any advice? We would go to the doctor or hospital sooner but it has been

>> snowing since yesterday and my lowered van just cannot make it in the snow.

>> We are stuck!

>>

>> Kristal- Mom to Brett- SMA II- 11 years old

>> Visit Brett @ www.our-sma-angels.com/brett

>> OR www.caringbridge.org/visit/brettwilson

>>

>>

[Guest guest]

and Kristal,

Could the GT issues come from granulation tissue?

& Ivy- service dog extraordinaire

www.k94life.org

>

> > >>

> > >> Brett had a (14 Fr 1.7 cm) Mic-Key button placed in the summer of

> 2004 in New

> > >> Jersey when he was 4 years old, we rarely if ever had any issues

> with it. It

> > >> always looked perfect, no redness or irritation, or anything! We

> always clean

> > >> it every day and change the gauze pad every day.

> > >>

> > >> We just recently in Summer of 2009 (Brett was 9), had it upsized

> to 14 Fr 2.3

> > >> cm at our local Children's hospital in KC (which we don't really

> like). Since

> > >> we have changed sizes, Brett gets an infection around his site

> every 2-3

> > >> months. It gets bright red, hot to the touch with white streaks

> around it. It

> > >> is very painful to the touch for Brett and it oozes lovely brownish,

> > >> yellowish goo with tinges of blood. We usually get some cream for

> it and they

> > >> put him on an antibiotic then it goes away in about a week.

> > >>

> > >> The most recent time, he woke up on Friday with the above

> symptoms by Friday

> > >> night, it was really puffy and oozing bad, so I slightly pushed

> on it to help

> > >> get the infectious ooze out. Saturday morning when he woke up

> there was a

> > >> tiny hole right next to the Mic-Key button from where the ooze

> was escaping.

> > >> I just figured it needed to find an orifice to get out of it, so

> it created

> > >> an out. Well today when he woke up, the hole has doubled in size.

> I have been

> > >> keeping it clean and putting Neosporin on it and the hotness,

> redness, and

> > >> white streaks have disappeared but the hole with the oozing still

> remains.

> > >> And it was tender the first day, but now Brett says it doesn't

> hurt at all.

> > >> Just at a loss and don't know what to do. Any clue what or why

> this is

> > >> happening?

> > >>

> > >> But there has to be something else to this right? Could he have

> developed

> > >> some kind of allergy? Have they changed how they make them? We

> have a dr.

> > >> appt on Thursday with his PCP and I am assuming she will just

> refer us to the

> > >> Children's hospital which I dread going to.....just wondering if

> anyone has

> > >> any advice? We would go to the doctor or hospital sooner but it

> has been

> > >> snowing since yesterday and my lowered van just cannot make it in

> the snow.

> > >> We are stuck!

> > >>

> > >> Kristal- Mom to Brett- SMA II- 11 years old

> > >> Visit Brett @ www.our-sma-angels.com/brett

> > >> OR www.caringbridge.org/visit/brettwilson

> > >>

> > >>

[Guest guest]

Charmdcripchic, what do u meann mine is?

 

Jodi & Juni

Digital Scrapbook Artist & Service Dog

All Scraps 4 You

www.freewebs.com/allscraps4you

On 1/16/11 6:46 PM, " charmedcripchic " <charmedcripchic@...> wrote:

> This sounds like the infected fissures that killed my best friend with a

> childhood nuero muscular disability

>

> Please don't wait for an appointment get it checked asap

>

> No offense here - Reasons infinity of why I refuse to get a feeding tube

>

> I understand it for kids especially, and folks who's life is not in the end

> phases mine is

>

>

>

>

>>

>> Brett had a (14 Fr 1.7 cm) Mic-Key button placed in the summer of 2004 in New

>> Jersey when he was 4 years old, we rarely if ever had any issues with it. It

>> always looked perfect, no redness or irritation, or anything! We always clean

>> it every day and change the gauze pad every day.

>>

>> We just recently in Summer of 2009 (Brett was 9), had it upsized to 14 Fr 2.3

>> cm at our local Children's hospital in KC (which we don't really like). Since

>> we have changed sizes, Brett gets an infection around his site every 2-3

>> months. It gets bright red, hot to the touch with white streaks around it. It

>> is very painful to the touch for Brett and it oozes lovely brownish,

>> yellowish goo with tinges of blood. We usually get some cream for it and they

>> put him on an antibiotic then it goes away in about a week.

>>

>> The most recent time, he woke up on Friday with the above symptoms by Friday

>> night, it was really puffy and oozing bad, so I slightly pushed on it to help

>> get the infectious ooze out. Saturday morning when he woke up there was a

>> tiny hole right next to the Mic-Key button from where the ooze was escaping.

>> I just figured it needed to find an orifice to get out of it, so it created

>> an out. Well today when he woke up, the hole has doubled in size. I have been

>> keeping it clean and putting Neosporin on it and the hotness, redness, and

>> white streaks have disappeared but the hole with the oozing still remains.

>> And it was tender the first day, but now Brett says it doesn't hurt at all.

>> Just at a loss and don't know what to do. Any clue what or why this is

>> happening?

>>

>> But there has to be something else to this right? Could he have developed

>> some kind of allergy? Have they changed how they make them? We have a dr.

>> appt on Thursday with his PCP and I am assuming she will just refer us to the

>> Children's hospital which I dread going to.....just wondering if anyone has

>> any advice? We would go to the doctor or hospital sooner but it has been

>> snowing since yesterday and my lowered van just cannot make it in the snow.

>> We are stuck!

>>

>> Kristal- Mom to Brett- SMA II- 11 years old

>> Visit Brett @ www.our-sma-angels.com/brett

>> OR www.caringbridge.org/visit/brettwilson

>>

>>