A new members story

[Guest guest]

My name is and i am mother to Max age 6. Max first started

getting fevers at around three years. From the start his cycle has

been six weekly, but if an attack is mild it can mean the next onset

is slightly shorter. For the first year we were living in England

where doctors were completely disinterested. We were told

that 'some children just get more fevers than others'. We were also

often given an antibiotic 'just in case'! We moved to Denmark when

Max was four and he arrived here with a fever. I went to our new

doctor immediately and was referred to an ENT specialist same day.

So far the health system has been much more attentive here but no

one seems to know what to do with Max so we have been passed from

one specialist to another. He has had so many blood tests (eleven

in one day was his record) that we are on first name terms with the

plebotomists. He has been tested for everything from leukemia to

malaria. His symptoms are always the same, fever, headache, stomach

ache, swollen lymph glands, sore throat (that always tests negative

for bacteria, although he has strep antibodies when ill), mouth

ulcers. Apart from the lingering mouth ulcers he is reasonably well

between episodes, although i think he easily tired in comparison to

other children his age. We do ot have a diagnosis, I

discovered the syndrome myself whilst surfing and thought that the

pattern fits Max exactly. I have written to Max's paediatrician and

asked her to investigate. Max is due to be admitted to hospital for

further tests on his next acute episode so I intend to gather as

much info as possible on to present to whichever specialist is

now dealing with him.

Regards

Lassen

Hjerting, Esbjerg

Denmark