Re: Med Update

[Guest guest]

In a message dated 3/28/01 5:01:56 PM Pacific Standard Time,

writes:

> Tenex isn't a stimulant; it's a blood pressure almost identical to Clondine,

> but isn't as sedating as the Clonidine. It's does sometimes have a calming

> effect like Adderal, though. Craig takes the Clonidine only at nighttime;

> it

> helps him sleep fairly well (he has a sleep disorder) and it has virtually

> stopped his severe headbanging episdoes. Some children take Clonidine in

> the

> day as well, in small doses. If sedation isn't desired, then Tenex might

> be

> prescribed instead of Clonidine. Bev mom to Craig, 15,

> Magenis Syndrome (extremely similar to DS/autism)

>

>

> Bev, thanks for clearing this up! I'm sorry if I gave the wrong

info......I had been told in one breath by one doctor that we can try Tenex

or Adderral, so I assumed they were the same classification.......guess we

all know what happens when we ASSuME????

[Guest guest]

Hi all,

Went to surgeon Monday. He couldn't feel the suspicious lump at all, so we

looked at the sono and mammo results and he showed me where it was on the

film. He says it's very tiny, less than 1 cm. and because I have lots of

fibroid cysts in both breasts and a history of breast cancer in the family,

the radiologist was being very cautious about it. I asked him if he thought

it was cancer as it was not clearly defined and smooth, like most benign

cysts are and he said not necessarily, that it could be anything, he's seen

all kinds of things that ended up being benign.

I asked about worst case scenario. He says they will take it out regardless

and do biopsy, frozen section so they will know immediately. If it's cancer,

I'll find out when I wake up; they will do the surgery Friday morning on

outpatient basis and I will go home in the afternoon and can go back to work

next Monday!

Please continue to keep me in your prayers, this list works wonder with the

power of prayers. I am still very apprehensive. In the worst case, they got

it early and I won't lose my breast, maybe some rad treatments. But, the

surgeon said let's not put the cart before the horse.

On another note, is doing so well lately, I wonder if it's the meds or

maybe God giving me a " break " knowing I can't function too well these days

and is letting be a little calmer for me.....LOL!

Hopefully, I will still be able to take that Vegas vacation (boy, will I need

it after this!!). The boys know what's going on (Josh and ) and are

okay with it. Thank God kids are so resilient.

Take care all,

[Guest guest]

I missed the earlier emails. Just a word of caution. Make sure they

ultrasound the mass they remove. I allegedly had a lumpectomy in '99, normal

mamo/ultrasound in 2000 and then last year the mamo/ultra showed the lump was

never removed. By that time it grew from 2 to 3 cm. I changed doctors and

had it removed (again) and it the mass went under ultrasound. My annual

mamo/ultra done yesterday showed that indeed it was removed!

By the way, it was benign. I was told that most tumors are benign. I know

what you are going through because the stress/waiting is horrible. I will

keep you in my prayers.

Caroline

[Guest guest]

In a message dated 7/9/02 3:20:56 PM Pacific Daylight Time, Ltb3105@...

writes:

<<

Hi all,

Went to surgeon Monday. He couldn't feel the suspicious lump at all, so we

looked at the sono and mammo results and he showed me where it was on the

film. He says it's very tiny, less than 1 cm. and because I have lots of

fibroid cysts in both breasts and a history of breast cancer in the family,

the radiologist was being very cautious about it. >>

,

This sounds encouraging. Let us know how things go on Friday, okay? Sounds

like you are handling this okay . Hang in there. Many, many prayers

being said for you.

(((((hugs))))) x 12

Gail :-)

[Guest guest]

In a message dated 7/9/02 4:23:50 PM Pacific Daylight Time,

joan@... writes:

<< anyway, he's been checked every year for various related cancers and is

still clean. at 7 years he's considered a survivor and " cured, " but we know

the risk is higher for him regardless.

>>

Gosh Joan, that's scary. I'm glad things are going well with it. Must have

given your heart a check, as would say.

Gail :-)

[Guest guest]

Hi :

Thank you for the update. We'll certainly all keep a positive thought for

you. Glad to hear the boys--all of them--are helping out in their own way.

Is your husband going to be home for all this??

7 years ago--8 this fall--they found a pea sized (if that) tumor in one of

Rex's (my husband) testicles. We learned that 99% of all testicular growths

were malignant, so we focused our attention on the 5 different types of

testicular cancer and chose our poison. We hoped for a seminoma carcinoma

which metastisizes last in it's tumor production. He had an orchiectomy

(removal). In the waiting room, the urologist told me the frozen biopsy

indicated it was indeed a seminoma carcinoma..and I was incredliby happy!

His tumor was so small that the doctor said there was no way it was a

mature tumor. The risk of anythinjg spreading was very small. He had 6

weeks of radiation once he was healed, which was a bit of a trial, but much

easier than keeping Andy from trying to sit on his Daddy's lap after the

orchiectomy!!

anyway, he's been checked every year for various related cancers and is

still clean. at 7 years he's considered a survivor and " cured, " but we know

the risk is higher for him regardless.

All that to tell you that good stuff happens. You have alot of good odds in

your favor. It seems like the chance it is a cyst is good, but evcen if

it's not, you caught it very early in amongst all those cysts!

Good thoughts coming your way. YOu're going to be fine. It's all going to

work out great. And the boys..well..they do somehow know, don;'t they? Take

care of you this week.

j

[Guest guest]

Hey Joan

I can relate. . .Kent had Hodgkin's twice and he had lots of chemo and radiation

and had

his spleen removed, etc. but has been clean for about 12 years!

Kathy

Re: Med Update

In a message dated 7/9/02 4:23:50 PM Pacific Daylight Time,

joan@... writes:

<< anyway, he's been checked every year for various related cancers and is

still clean. at 7 years he's considered a survivor and " cured, " but we know

the risk is higher for him regardless.

>>

Gosh Joan, that's scary. I'm glad things are going well with it. Must have

given your heart a check, as would say.

Gail :-)

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[Guest guest]

, still thinking of you and am so glad again that you dont have

to wait too long!! (till Fri.) this sounds like positive talk from

the dr. and just want you to know I am praying still and am sure

everything will be okay!! God bless!!! Dawn

- In @y..., Ltb3105@a... wrote:

> Hi all,

> Went to surgeon Monday. He couldn't feel the suspicious lump at

all, so we

> looked at the sono and mammo results and he showed me where it was

on the

> film. He says it's very tiny, less than 1 cm. and because I have

lots of

> fibroid cysts in both breasts and a history of breast cancer in the

family,

> the radiologist was being very cautious about it. I asked him if

he thought

> it was cancer as it was not clearly defined and smooth, like most

benign

> cysts are and he said not necessarily, that it could be anything,

he's seen

> all kinds of things that ended up being benign.

>

> I asked about worst case scenario. He says they will take it out

regardless

> and do biopsy, frozen section so they will know immediately. If

it's cancer,

> I'll find out when I wake up; they will do the surgery Friday

morning on

> outpatient basis and I will go home in the afternoon and can go

back to work

> next Monday!

>

> Please continue to keep me in your prayers, this list works wonder

with the

> power of prayers. I am still very apprehensive. In the worst

case, they got

> it early and I won't lose my breast, maybe some rad treatments.

But, the

> surgeon said let's not put the cart before the horse.

>

> On another note, is doing so well lately, I wonder if it's the

meds or

> maybe God giving me a " break " knowing I can't function too well

these days

> and is letting be a little calmer for me.....LOL!

>

> Hopefully, I will still be able to take that Vegas vacation (boy,

will I need

> it after this!!). The boys know what's going on (Josh and )

and are

> okay with it. Thank God kids are so resilient.

>

> Take care all,

>

>

>

>

[Guest guest]

In a message dated 7/9/02 6:20:43 PM Eastern Daylight Time, Ltb3105@...

writes:

> I'll find out when I wake up; they will do the surgery Friday morning on

> outpatient basis and I will go home in the afternoon and can go back to

> work

> next Monday

Let us know what happens Friday. Prayers coming your way.

Diane {{{{{{{{{{{{{HUGS)))))))))))

[Guest guest]

Hi ,

It's about time you let us know what was going on. You know hard hard it is

to wait! You will be in my thoughts and prayers on friday. I just know

everything will be fine. You will be happy to get this behind you and

concentrate on Vegas.

Charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

many prayers for you surgery to be uneventful and for

all to be benign. shawna.

--- Ltb3105@... wrote:

> Hi all,

> Went to surgeon Monday. He couldn't feel the

> suspicious lump at all, so we

> looked at the sono and mammo results and he showed

> me where it was on the

> film. He says it's very tiny, less than 1 cm. and

> because I have lots of

> fibroid cysts in both breasts and a history of

> breast cancer in the family,

> the radiologist was being very cautious about it. I

> asked him if he thought

> it was cancer as it was not clearly defined and

> smooth, like most benign

> cysts are and he said not necessarily, that it could

> be anything, he's seen

> all kinds of things that ended up being benign.

>

> I asked about worst case scenario. He says they

> will take it out regardless

> and do biopsy, frozen section so they will know

> immediately. If it's cancer,

> I'll find out when I wake up; they will do the

> surgery Friday morning on

> outpatient basis and I will go home in the afternoon

> and can go back to work

> next Monday!

>

> Please continue to keep me in your prayers, this

> list works wonder with the

> power of prayers. I am still very apprehensive. In

> the worst case, they got

> it early and I won't lose my breast, maybe some rad

> treatments. But, the

> surgeon said let's not put the cart before the

> horse.

>

> On another note, is doing so well lately, I

> wonder if it's the meds or

> maybe God giving me a " break " knowing I can't

> function too well these days

> and is letting be a little calmer for

> me.....LOL!

>

> Hopefully, I will still be able to take that Vegas

> vacation (boy, will I need

> it after this!!). The boys know what's going on

> (Josh and ) and are

> okay with it. Thank God kids are so resilient.

>

> Take care all,

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>