Re: Hi, I'm Cheryl

[Guest guest]

In a message dated 3/18/01 12:36:22 PM Eastern Standard Time,

magnussen@... writes:

<< I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next week

and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

DS and autistic tendancies. She is the light of our home and is

incredible. >>

Welcome Cheryl. Are you a mom to 4 or 5? LOL I always forget my two oldest

and think I have 3 kids most of the time. Wow, twins! My sister and brother

are twins. Houdini sounds like the name fits her well. What is her real

name? Glad to have you on the list and can't wait to hear more experiences

and what you are doing with school and home with her.

Gail

Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-25,

Grandma to Errick-5

and wife to -my hero

[Guest guest]

Hi cheryl, i am pretty new to this group too and also pretty new to the autism

diagnosis. Nick is 6 and was diagnosed with autism in 12/00...we suspected it

for quite awhile but took lots of time and lots of appts. to get a diagnosis.

nick's " autistic-like behaviors " consist of stimming (favorite object is a

little tykes doll house table! used to be plastic coat hangers), very rigid

diet...not our doing, his..., some head banging when frustrated...altho not

alot, guteral throat scratching sound which gets more pronounced if he is

anxious, social difficulties depending on group, sometimes lack of eye contact,

no idea of safety issues...what's hot, what's dangerous...like the road...that

scares the hell out of me...so far no wandering but who knows what's to come, he

doesn't speak much but is beginning to use more words in the right context, lots

of sensory issues, doesn't usually seek out toys...very addicted to watching

videos and making sure cases are arranged just so! BUT...Nick is very

affectionate, can melt even the coldest of hearts and has a grin that lights up

my darkest moments and surely has an innocence that sometimes i wish we all had!

will lok forward to hearing more from you!

Cheri... mom to nicholas-6, maria-9, ryan-17 and jennifer-21 and for the last 9

months mother-in-law to steve-23! also wife to a very patient man, michael

Re: Hi, I'm Cheryl

In a message dated 3/18/01 12:36:22 PM Eastern Standard Time,

magnussen@... writes:

<< I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next week

and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

DS and autistic tendancies. She is the light of our home and is

incredible. >>

Welcome Cheryl. Are you a mom to 4 or 5? LOL I always forget my two oldest

and think I have 3 kids most of the time. Wow, twins! My sister and brother

are twins. Houdini sounds like the name fits her well. What is her real

name? Glad to have you on the list and can't wait to hear more experiences

and what you are doing with school and home with her.

Gail

Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-25,

Grandma to Errick-5

and wife to -my hero

[Guest guest]

Hi Gail and Sheri, thanks for the welcome. I have 4 kids. Guess I

worded it wrong. 2 of each. Angel is my youngest, short for

. It suits her better. We live on Vancouver Island in British

Columbia, Canada. Angel's behavs are not the behavs one might see in

typical autism. Yet she has some autistic tendancies. She isn't a

spinner with toys and does play with them. She loves to play make

believe and is a great nurturer. She has really bad communication

breakdowns and bites, hits, kicks, hairpulls, spits, yells etc. She

likes routine at school and doesn't like change or transition well

without it. She uses ASL, pics and emerging speech to communicate.

She hasn't lost speech but doesn't have alot. ASL is her strong

point and she is excellent at it. She is learning to print and is

eagar to please. She has incredible fears of household appliances

and it took years to be able to use the vaccuum or hairdryer. She

runs really fast when a scary appliance or lawn mower, electric saw

come out. She freaks out and covers her ears, signing 'all done,

stop'. She will freak out over a vehicle in front of us while we are

driving, she has to drive the same way to school, the same way to

aunties etc. Needs to enter certain buildings the same way, leave

the same way, but not all. Has some tactile defensiveness with

socks, hair and some shirts. Has to constantly have her hand down

the back of her pants, scratching her butt. It's gross, but there is

always a hand there. Lacks eye contact but will make it when I draw

her eyes to my hand and lead her to my eyes. She then acknowledges

me and responds accordingly. She can only play with one person at a

time. The rest can all go to H#$$ as far as she is concerned. She

will get aggressive with anyone else trying to play along. Seems to

be able to focus and plays well in one to one. She can watch the

same movie for weeks. Drives me nuts. Mouths everything, very

oral. She has chronic sinusitis and chokes on the mucous, she lacks

oral sensory awareness and doesn't chew her food well or sense it

there so this adds to her probs and puts her at further risk. She is

a true blessing to our family and is as smart as a whip. Can't

imagine living without her. She is incredible. The true love of our

lives. I thank God for her daily.

Cheryl

> Hi cheryl, i am pretty new to this group too and also pretty new to

the autism diagnosis. Nick is 6 and was diagnosed with autism in

12/00...we suspected it for quite awhile but took lots of time and

lots of appts. to get a diagnosis. nick's " autistic-like behaviors "

consist of stimming (favorite object is a little tykes doll house

table! used to be plastic coat hangers), very rigid diet...not our

doing, his..., some head banging when frustrated...altho not alot,

guteral throat scratching sound which gets more pronounced if he is

anxious, social difficulties depending on group, sometimes lack of

eye contact, no idea of safety issues...what's hot, what's

dangerous...like the road...that scares the hell out of me...so far

no wandering but who knows what's to come, he doesn't speak much but

is beginning to use more words in the right context, lots of sensory

issues, doesn't usually seek out toys...very addicted to watching

videos and making sure cases are arranged just so! BUT...Nick is

very affectionate, can melt even the coldest of hearts and has a grin

that lights up my darkest moments and surely has an innocence that

sometimes i wish we all had!

>

> will lok forward to hearing more from you!

>

> Cheri... mom to nicholas-6, maria-9, ryan-17 and jennifer-21 and

for the last 9 months mother-in-law to steve-23! also wife to a very

patient man, michael

>

>

>

> Re: Hi, I'm Cheryl

>

>

> In a message dated 3/18/01 12:36:22 PM Eastern Standard Time,

> magnussen@t... writes:

>

> << I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next

week

> and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

> DS and autistic tendancies. She is the light of our home and is

> incredible. >>

>

> Welcome Cheryl. Are you a mom to 4 or 5? LOL I always forget my

two oldest

> and think I have 3 kids most of the time. Wow, twins! My sister

and brother

> are twins. Houdini sounds like the name fits her well. What is

her real

> name? Glad to have you on the list and can't wait to hear more

experiences

> and what you are doing with school and home with her.

> Gail

> Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-

25,

> Grandma to Errick-5

> and wife to -my hero

>

>

>

>

>

[Guest guest]

In a message dated 3/19/01 1:33:43 AM Eastern Standard Time,

magnussen@... writes:

<< She is

a true blessing to our family and is as smart as a whip. Can't

imagine living without her. She is incredible. The true love of our

lives. I thank God for her daily.

Cheryl

>>

Cheryl,

Angel sounds heavenly! Sorry, couldn't resist! LOL Nice to have you here.

Is she in a reg. ed preschool? What is ASL?

Gail

[Guest guest]

In a message dated 3/19/01 1:30:25 PM Eastern Standard Time,

magnussen@... writes:

<< Hi Gail,

ASL is short for American Sign Language. It is Angel's strongest form of

communication as she is a very visual learner. Thanks for the welcome. She

is a real Angel.

Take care, Cheryl >>

Oh yeah, I knew that! LOL My mind is mush lately. Sorry. I just met a

little 5 year old ds child here whose name is Angel. She really looked like

an angel too. Didn't act like one though! LOL

Gail

[Guest guest]

Hi Gail,

ASL is short for American Sign Language. It is Angel's strongest form of

communication as she is a very visual learner. Thanks for the welcome. She

is a real Angel.

Take care, Cheryl

Re: Re: Hi, I'm Cheryl

> In a message dated 3/19/01 1:33:43 AM Eastern Standard Time,

> magnussen@... writes:

>

> << She is

> a true blessing to our family and is as smart as a whip. Can't

> imagine living without her. She is incredible. The true love of our

> lives. I thank God for her daily.

>

> Cheryl

> >>

> Cheryl,

> Angel sounds heavenly! Sorry, couldn't resist! LOL Nice to have you

here.

> Is she in a reg. ed preschool? What is ASL?

> Gail

>

>

>

>

>

[Guest guest]

Nick also has a problem with oral sensitivity and awareness....big feeding

issues and he does not chew at all...would love to chat with you about what

Angel eats and if she receives therapy for that.

Re: Hi, I'm Cheryl

>

>

> In a message dated 3/18/01 12:36:22 PM Eastern Standard Time,

> magnussen@t... writes:

>

> << I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next

week

> and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

> DS and autistic tendancies. She is the light of our home and is

> incredible. >>

>

> Welcome Cheryl. Are you a mom to 4 or 5? LOL I always forget my

two oldest

> and think I have 3 kids most of the time. Wow, twins! My sister

and brother

> are twins. Houdini sounds like the name fits her well. What is

her real

> name? Glad to have you on the list and can't wait to hear more

experiences

> and what you are doing with school and home with her.

> Gail

> Gail, Mom to; Seth-5 ds/asd/pica, jo-8, Becky-10, -23, Jen-

25,

> Grandma to Errick-5

> and wife to -my hero

>

>

>

>

>

[Guest guest]

Hi Cheryl,

Welcome to the list! We found that the best way to

keep from escaping is to have chimes or alarms

on all of our doors. As soon as we put them on and

that he couldn't get out without us knowing it cut

down tremendously on his running away. He still

manages to get out if I am the only one home and I'm

in the shower or if he goes out a window, but these

incidents are becoming less and less. He's 12 now.

We've been dealing with running ever since he learned

to open a door.

There are also some child locator devices out there

that I want to research but haven't gotten to yet. If

I get some info on this stuff I'll post it on the

list.

Mom to 12

--- magnussen@... wrote:

> I am mom to 4. Two boys ages 23 and 22. Two girls

> ages 13 next week

> and a brand new 5 year old,(birthday 2 days ago).

> My 5 year old has

> DS and autistic tendancies. She is the light of our

> home and is

> incredible. She is the busiest kid going. Smart as

> a whip too. She

> is an excape artist with the best of them. We have

> nick named her

> Houdini. We keep doors locked high, gates up

> everywhere at night,

> and our ears always peeled. she dissapeared from

> daycare a few

> months back and was found at the far exit of the

> school by someone

> from a different program. She has left home in the

> dark of night far

> too many times. We live in the country and there

> are no street

> lights here so it is scary. I forgot to put the

> gates up one night

> and regretted it deeply. Found her out on the back

> porch, leaving to

> feed the farm animals, in the dark, at 6am. Don't

> know what awoke me

> but was very thankful it did. I deeply fear awaking

> to find her long

> gone. In fact when I am really tired I pull her

> into my bed so that

> I know she is near. She excaped sunday school one

> day and was found

> wandering the parking lot. Very scary as she has no

> fear of things

> like cars.

>

> always on the alert here. Cheryl

>

>

__________________________________________________

[Guest guest]

Hi , thanks for the welcome. I like the chime idea. I was also

thinking about installing some type of alarm system to tell us when she is

leaving the house. Caught her trying to excape via a window today. I had

opened it a crack to let some air in while she was at school and forgot to

close and lock it. Bad move. Learning here......

Thanks for the welcome and the ideas.

Cheryl

Re: Hi, I'm Cheryl

> Hi Cheryl,

> Welcome to the list! We found that the best way to

> keep from escaping is to have chimes or alarms

> on all of our doors. As soon as we put them on and

> that he couldn't get out without us knowing it cut

> down tremendously on his running away. He still

> manages to get out if I am the only one home and I'm

> in the shower or if he goes out a window, but these

> incidents are becoming less and less. He's 12 now.

> We've been dealing with running ever since he learned

> to open a door.

> There are also some child locator devices out there

> that I want to research but haven't gotten to yet. If

> I get some info on this stuff I'll post it on the

> list.

>

>

> Mom to 12

> --- magnussen@... wrote:

> > I am mom to 4. Two boys ages 23 and 22. Two girls

> > ages 13 next week

> > and a brand new 5 year old,(birthday 2 days ago).

> > My 5 year old has

> > DS and autistic tendancies. She is the light of our

> > home and is

> > incredible. She is the busiest kid going. Smart as

> > a whip too. She

> > is an excape artist with the best of them. We have

> > nick named her

> > Houdini. We keep doors locked high, gates up

> > everywhere at night,

> > and our ears always peeled. she dissapeared from

> > daycare a few

> > months back and was found at the far exit of the

> > school by someone

> > from a different program. She has left home in the

> > dark of night far

> > too many times. We live in the country and there

> > are no street

> > lights here so it is scary. I forgot to put the

> > gates up one night

> > and regretted it deeply. Found her out on the back

> > porch, leaving to

> > feed the farm animals, in the dark, at 6am. Don't

> > know what awoke me

> > but was very thankful it did. I deeply fear awaking

> > to find her long

> > gone. In fact when I am really tired I pull her

> > into my bed so that

> > I know she is near. She excaped sunday school one

> > day and was found

> > wandering the parking lot. Very scary as she has no

> > fear of things

> > like cars.

> >

> > always on the alert here. Cheryl

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

hi cherly, its great to meet you!! i know exactlyhow you feel, my son,

nathan is quite the hudini himself, he has left the house several times in

the early morning hours, to ride is trike on the road, has gone into

neighbor houses, has wnadered off at walmart, foun dhim out in the parking

lot just wandering around not even noticing cars etc. what we did is first

we put door alarms on our out going doors (you can get fairly inexspensive

at a radio shack) and then we got him a vailbed, and boy that really cured

him of the wandering, it took a good few years of training but now so far

anyways we are free of nightime house wandering, without his vail on, but we

have it stored in case of its need in the future. shawna.

>From: magnussen@...

>Reply-

>

>Subject: Hi, I'm Cheryl

>Date: Sun, 18 Mar 2001 17:32:51 -0000

>

>I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next week

>and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

>DS and autistic tendancies. She is the light of our home and is

>incredible. She is the busiest kid going. Smart as a whip too. She

>is an excape artist with the best of them. We have nick named her

>Houdini. We keep doors locked high, gates up everywhere at night,

>and our ears always peeled. she dissapeared from daycare a few

>months back and was found at the far exit of the school by someone

>from a different program. She has left home in the dark of night far

>too many times. We live in the country and there are no street

>lights here so it is scary. I forgot to put the gates up one night

>and regretted it deeply. Found her out on the back porch, leaving to

>feed the farm animals, in the dark, at 6am. Don't know what awoke me

>but was very thankful it did. I deeply fear awaking to find her long

>gone. In fact when I am really tired I pull her into my bed so that

>I know she is near. She excaped sunday school one day and was found

>wandering the parking lot. Very scary as she has no fear of things

>like cars.

>

>always on the alert here. Cheryl

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi a,

how old is ? Man, he sounds very busy. Did you prewarn police that

your child goes missing so they would know where to find you when it

happens? I am wondering if this might be a good idea. Wonder what they do

when they find a missing kid who can't talk? My husband is has a moderate

to severe heaing disability and would never hear the alarm or chimes so

these wouldn't work when he is watching over her, or if I slept through it.

I really want to know what a veil bed is. And how and why it worked for

?

Thanks, Cheryl

Hi, I'm Cheryl

> >Date: Sun, 18 Mar 2001 17:32:51 -0000

> >

> >I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next week

> >and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

> >DS and autistic tendancies. She is the light of our home and is

> >incredible. She is the busiest kid going. Smart as a whip too. She

> >is an excape artist with the best of them. We have nick named her

> >Houdini. We keep doors locked high, gates up everywhere at night,

> >and our ears always peeled. she dissapeared from daycare a few

> >months back and was found at the far exit of the school by someone

> >from a different program. She has left home in the dark of night far

> >too many times. We live in the country and there are no street

> >lights here so it is scary. I forgot to put the gates up one night

> >and regretted it deeply. Found her out on the back porch, leaving to

> >feed the farm animals, in the dark, at 6am. Don't know what awoke me

> >but was very thankful it did. I deeply fear awaking to find her long

> >gone. In fact when I am really tired I pull her into my bed so that

> >I know she is near. She excaped sunday school one day and was found

> >wandering the parking lot. Very scary as she has no fear of things

> >like cars.

> >

> >always on the alert here. Cheryl

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

>

>

[Guest guest]

nathan is 9yrs now, and we got his vaibed around 4yrs old for him, everyone

knows of nathan, he has more friends than i could even count i think,

everywhere i go there is someone saying hi to nathan, so he gets around,lol.

your DH haveing a hearing disability will greaten your chances of getting

one, i remember having to writhe all the things and beds we have tried

previously, etc, this will aid in a positive decision for the bed i think.

shawna.

>From: " Cheryl Magnussen " <magnussen@...>

>Reply-

>< >

>Subject: Re: Hi, I'm Cheryl

>Date: Tue, 20 Mar 2001 20:47:51 -0800

>

>Hi a,

>how old is ? Man, he sounds very busy. Did you prewarn police that

>your child goes missing so they would know where to find you when it

>happens? I am wondering if this might be a good idea. Wonder what they do

>when they find a missing kid who can't talk? My husband is has a moderate

>to severe heaing disability and would never hear the alarm or chimes so

>these wouldn't work when he is watching over her, or if I slept through it.

>I really want to know what a veil bed is. And how and why it worked for

>?

>

>Thanks, Cheryl

> Hi, I'm Cheryl

> > >Date: Sun, 18 Mar 2001 17:32:51 -0000

> > >

> > >I am mom to 4. Two boys ages 23 and 22. Two girls ages 13 next week

> > >and a brand new 5 year old,(birthday 2 days ago). My 5 year old has

> > >DS and autistic tendancies. She is the light of our home and is

> > >incredible. She is the busiest kid going. Smart as a whip too. She

> > >is an excape artist with the best of them. We have nick named her

> > >Houdini. We keep doors locked high, gates up everywhere at night,

> > >and our ears always peeled. she dissapeared from daycare a few

> > >months back and was found at the far exit of the school by someone

> > >from a different program. She has left home in the dark of night far

> > >too many times. We live in the country and there are no street

> > >lights here so it is scary. I forgot to put the gates up one night

> > >and regretted it deeply. Found her out on the back porch, leaving to

> > >feed the farm animals, in the dark, at 6am. Don't know what awoke me

> > >but was very thankful it did. I deeply fear awaking to find her long

> > >gone. In fact when I am really tired I pull her into my bed so that

> > >I know she is near. She excaped sunday school one day and was found

> > >wandering the parking lot. Very scary as she has no fear of things

> > >like cars.

> > >

> > >always on the alert here. Cheryl

> > >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at http://explorer.msn.com

> >

> >

> >

> >

> >

> >