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Does any one else notice a difference in mood and behavior with

there little ones that have ? My son has started screaming

uncontrollably during his cycles. We haven't been truely diagnosed

with yet but I am trying to find every thing I can, because it

sounds like this is what he might have. The dr.'s are not listening

to me either and think I am an overly concerned parent.

TIA

Bree

Tyler (husband)

Ethan(2) has been sick every month since 61/2 months

Audrey (4 months)

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Hi Bree,

My son is 2 1/2 and has been diagnosed for over a year, but also had

symptoms very young. He is usually a pretty happy go lucky kid, but

does get moody during an episode. This was worse when he was on the

prednisone, SEVERE mood swings! Welcome to the group, I know it has

been a big help for me!

mom to Drew, age 2 1/2

> Does any one else notice a difference in mood and behavior with

> there little ones that have ? My son has started screaming

> uncontrollably during his cycles. We haven't been truely diagnosed

> with yet but I am trying to find every thing I can, because

it

> sounds like this is what he might have. The dr.'s are not

listening

> to me either and think I am an overly concerned parent.

>

> TIA

> Bree

> Tyler (husband)

> Ethan(2) has been sick every month since 61/2 months

> Audrey (4 months)

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Not sure if this is the same as your little one, but (now

24 months) used to do this on the third or fourth night of her

fevers. She would awake about 2 AM, screaming. Unable to quiet

her, I would take her downstairs, where she would lie in the floor

and scream for about 20-30 minutes. Trying to touch or hold her

would just make her scream louder and pull away. The next day, her

fever would break. After a few months of this, I realized that

(since her fever always broke within a day or so afterwards) perhaps

she was hungry. When she got a fever, she would drink well but ate

NOTHING throughout the entire 4-5 day episode. Perhaps, I thought,

she was just getting well enough at that point to be hungry but

couldn't communicate it. We started giving her Carnation Instant

Breakfast in milk a couple of times a day during her fevers, and she

hasn't had a " hell night " since then (about five months). I know

that the Instant Breakfast is loaded with sugar, but I figure it's

better than having her be hungry and not sleep well. Not sure if

this is the same type of " screaming uncontrollably " that you're

seeing, but I thought I'd mention it just in case.

Jamine

Mom to (24 months, ) and (4.5 years)

> Does any one else notice a difference in mood and behavior with

> there little ones that have ? My son has started screaming

> uncontrollably during his cycles. We haven't been truely diagnosed

> with yet but I am trying to find every thing I can, because

it

> sounds like this is what he might have. The dr.'s are not

listening

> to me either and think I am an overly concerned parent.

>

> TIA

> Bree

> Tyler (husband)

> Ethan(2) has been sick every month since 61/2 months

> Audrey (4 months)

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My daughter drank pediasure during episodes of not eating which seemed to help

with a lot of her crabby and irritable behavior. It didn't eliminate it but it

helped. Which makes sense because if your blood sugar is low you are often

irritable. Christy

>>> JamineLL@... 09/13/04 07:11PM >>>

Not sure if this is the same as your little one, but (now

24 months) used to do this on the third or fourth night of her

fevers. She would awake about 2 AM, screaming. Unable to quiet

her, I would take her downstairs, where she would lie in the floor

and scream for about 20-30 minutes. Trying to touch or hold her

would just make her scream louder and pull away. The next day, her

fever would break. After a few months of this, I realized that

(since her fever always broke within a day or so afterwards) perhaps

she was hungry. When she got a fever, she would drink well but ate

NOTHING throughout the entire 4-5 day episode. Perhaps, I thought,

she was just getting well enough at that point to be hungry but

couldn't communicate it. We started giving her Carnation Instant

Breakfast in milk a couple of times a day during her fevers, and she

hasn't had a " hell night " since then (about five months). I know

that the Instant Breakfast is loaded with sugar, but I figure it's

better than having her be hungry and not sleep well. Not sure if

this is the same type of " screaming uncontrollably " that you're

seeing, but I thought I'd mention it just in case.

Jamine

Mom to (24 months, ) and (4.5 years)

> Does any one else notice a difference in mood and behavior with

> there little ones that have ? My son has started screaming

> uncontrollably during his cycles. We haven't been truely diagnosed

> with yet but I am trying to find every thing I can, because

it

> sounds like this is what he might have. The dr.'s are not

listening

> to me either and think I am an overly concerned parent.

>

> TIA

> Bree

> Tyler (husband)

> Ethan(2) has been sick every month since 61/2 months

> Audrey (4 months)

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We did something similar with Danny. I would go through a case of Ensure

every month with him. He had it with every meal and we'd call it a

milkshake. During fevers, it was sometimes the only thing he'd drink in

addition to water and it seemed to keep him going. Plus, he would lose so

much weight every month, that right when he'd " catch up " , he'd get another

fever and lose it all again, so the calories in the Ensure helped with that

a little.

Rosemarie

Mom to Danny age 10 (fever free since tonsillectomy in 2002)

Denver, CO

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Thank you so much I feel better knowing I am not the only one

dealing with this (screaming). I will give him some pediasure or

instant breakfast the next time this happens. He just got over his

episode today. By the time the next episode hits we will be in

Seattle at the specialists.

I am having panic attack about it.

TIA

Bree

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Hi Bree,

My daughter is 6 1/2 and has had fevers since 10 months. When her fevers start

her mood changes dramaticaly. She is very sweet by nature, but she gets very

whiny and sensitive. I have found through years of dealing with this that the

best thing to do is to be calm with them and have them just be really

comfortable. I try my best to be understanding but I know that sometimes it

gets hard. I have a 4 year old too who sometimes can get on her " nerve " as she

calls it, so I try to separate them and just appease her. Be patient (but I'm

sure you are anyways), I know its hard, but your son is little and tell you how

awful he is feeling. Its hard for a two year old to verbalize just how bad his

tummy hurts etc..

Good luck, and know that we all know how you feel.

Azzie

mom to kianna 6 1/2

bteamills <bteamills@...> wrote:

Does any one else notice a difference in mood and behavior with

there little ones that have ? My son has started screaming

uncontrollably during his cycles. We haven't been truely diagnosed

with yet but I am trying to find every thing I can, because it

sounds like this is what he might have. The dr.'s are not listening

to me either and think I am an overly concerned parent.

TIA

Bree

Tyler (husband)

Ethan(2) has been sick every month since 61/2 months

Audrey (4 months)

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