Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 Marie, When was diagnosed, I remember the Neurologist telling us that it was NOT as unusual as people think to have a dual diagnosis. He did however try to discourage us from using the " label " preferring to use " autistic features " or " autistic characteristics " instead of " autism " when related to Education, particularly. I don't know why he said that considering that he used the terms " autism " and " dual diagnosis " in his written report to our Pediatrician. Go figure! He didn't ask us anything about family history issues because is adopted. However, I am in touch with 's birth mother (open adoption) and I know that there is a history of Schizophrenia (her mother) and Bi-Polar Disorder (her father)...scary, huh? She didn't mention anything about alcoholism, so I don't know about that. I'll be interested to see what other replies you get. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 In a message dated 1/24/01 8:38:37 PM Eastern Standard Time, chickiemom1@... writes: << When was diagnosed, the doctor said that ASD is rare in children with Down Syndrome, but that he has seen that often in cases where a child is diagnosed with autism, theres a generational background of mood disorders/alcoholism in the family. >> Marie, I must say that I am appalled. Appalled that any professional would say such a thing. It truly disgusts me because I thought we were beyond this. Do you realize that back in the fifties and sixties, autism was blamed on mothers? Yep. The whole Freudian thing. I had hoped we'd gone beyond that, but this truly frightens me. The whole NEED to blame is what scares me. Maybe I am the odd one out, but when we realized that Maddie had autism, I didn't feel the need to find out what caused it so much as what to do about it. Same as with the DS. This whole frenzy transcends into the DS world as well. I had a friend who had a child with DS 5 years before me. And I remember some of the cruel words. Things like... " Oh, she drank that glass of wine while she was pregnant " ....or " she didn't eat the right foods " . All this came to haunt me when I myself had Maddie. Me, who didn't touch a DROP of alcohol while pg, or caffeine and measured all my proteins/carbs/dairy....yada yada (all FIVE times......ONE turned out to be DS and ASD). Marie, this offends me to the core. Because it essentially places blame on parents where none should be. I've come across plenty of parents of kids with autism where no alcholism, depression, mood disorders of any kind are involved. I've also come across plenty of parents who have kids not dx'd with ANYTHING who have alcoholism, depression, mood disorders, all that. Cept nobody's blaming anything on them. To state that these conditions are related is incredibly upsetting to parents who are dealing with enough issues thrown at them. We dont' need insensitive, ignorant professionals blaming instead of helping. Sorry this sounds loud, but it angers me. I hope you DO indeed mention this to the doc who makes these claims. Let us know how you make out. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 Nahtan's doctors have never said anything like that, once one did ask if any anxiety disorders in the family but that wasnt with autism stuff. shawna. >From: chickiemom1@... >Reply-egroups >egroups >Subject: respond asap! >Date: Thu, 25 Jan 2001 01:33:52 -0000 > > has his evualation tomorrow at Dupont Hospital to determine if >the first ASD diagnosis is correct, as well as to look into possible >meds and behavior modification. I need to ask this question and hope >a few of you will answer, as it is a rather delicate question. > >When was diagnosed, the doctor said that ASD is rare in >children with Down Syndrome, but that he has seen that often in cases >where a child is diagnosed with autism, theres a generational >background of mood disorders/alcoholism in the family. > >If you dont want to say i will understand, but were any of you told >something similar when your children were diagnosed with autism? > >I have growing concerns that could be bi-polar and i have read >that there a strong corealation with mood disorders and alcoholism in >the family there. > >I am not 100 percent convinced that he coulnt be autistic, as some of >his behaviors do indicate it. But due to the lack of professionalism >of the first doctor and his inability to follow up concerning my >child, i am having the 2nd eval done. > >You ladies and gents are wonderful people!! please respond as soon as >you can!! > >Marie > > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 you go girl!!!! Im with donna!! When i had nathan i was in tears for many months and occasionally even get that way nowadays, but after all the research ive found DS is caused right AT conception, there is nothing one can do before during or after pregnancy to cause it, there can be genetically inhereted but is rarely the case. AND that whole age issue is nonsense too, did you know that over 80% of all babies born w/ds are born to parents in thier 20's. As for the Autism, they still arent sure what causes it, and still have a hell of a time treating the behaviors in majority of cases. There have been many many theories from blaming the parents especially the mom, to nuero ect probs and still not sure of anything deffinate. If he continues to discuss issues this way i would find a new doc. shawna. >From: duffey48@... >Reply-egroups >egroups >Subject: Re: respond asap! >Date: Wed, 24 Jan 2001 21:47:58 EST > >In a message dated 1/24/01 8:38:37 PM Eastern Standard Time, >chickiemom1@... writes: > ><< When was diagnosed, the doctor said that ASD is rare in > children with Down Syndrome, but that he has seen that often in cases > where a child is diagnosed with autism, theres a generational > background of mood disorders/alcoholism in the family. >> > >Marie, > I must say that I am appalled. Appalled that any professional would >say >such a thing. It truly disgusts me because I thought we were beyond this. >Do you realize that back in the fifties and sixties, autism was blamed on >mothers? Yep. The whole Freudian thing. I had hoped we'd gone beyond >that, but this truly frightens me. >The whole NEED to blame is what scares me. Maybe I am the odd one out, >but >when we realized that Maddie had autism, I didn't feel the need to find out >what caused it so much as what to do about it. Same as with the DS. >This >whole frenzy transcends into the DS world as well. I had a friend who had >a >child with DS 5 years before me. And I remember some of the cruel words. >Things like... " Oh, she drank that glass of wine while she was >pregnant " ....or > " she didn't eat the right foods " . All this came to haunt me when I myself >had Maddie. Me, who didn't touch a DROP of alcohol while pg, or caffeine >and >measured all my proteins/carbs/dairy....yada yada (all FIVE times......ONE >turned out to be DS and ASD). Marie, this offends me to the core. >Because it essentially places blame on parents where none should be. I've >come across plenty of parents of kids with autism where no alcholism, >depression, mood disorders of any kind are involved. I've also come >across >plenty of parents who have kids not dx'd with ANYTHING who have alcoholism, >depression, mood disorders, all that. Cept nobody's blaming anything on >them. To state that these conditions are related is incredibly upsetting >to parents who are dealing with enough issues thrown at them. We dont' >need >insensitive, ignorant professionals blaming instead of helping. >Sorry this sounds loud, but it angers me. I hope you DO indeed mention >this >to the doc who makes these claims. >Let us know how you make out. >Donna > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2001 Report Share Posted January 24, 2001 I wasn't told anything like that when was diagnosed. But has a cousin who is severely autistic, and a lot of unstable people on both sides of his family. Maybe there is something to it. Mom to 11 --- chickiemom1@... wrote: > has his evualation tomorrow at Dupont Hospital > to determine if > the first ASD diagnosis is correct, as well as to > look into possible > meds and behavior modification. I need to ask this > question and hope > a few of you will answer, as it is a rather delicate > question. > > When was diagnosed, the doctor said that ASD > is rare in > children with Down Syndrome, but that he has seen > that often in cases > where a child is diagnosed with autism, theres a > generational > background of mood disorders/alcoholism in the > family. > > If you dont want to say i will understand, but were > any of you told > something similar when your children were diagnosed > with autism? > > I have growing concerns that could be bi-polar > and i have read > that there a strong corealation with mood disorders > and alcoholism in > the family there. > > I am not 100 percent convinced that he coulnt be > autistic, as some of > his behaviors do indicate it. But due to the lack of > professionalism > of the first doctor and his inability to follow up > concerning my > child, i am having the 2nd eval done. > > You ladies and gents are wonderful people!! please > respond as soon as > you can!! > > Marie > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2001 Report Share Posted January 25, 2001 In a message dated 1/25/01 8:41:02 AM Eastern Standard Time, patricia.mcgovern@... writes: << BUT i have to take issue (politely I hope) with one of your comments, Donna. Both alcoholism AND mental disorders are diseases/conditions - I do not believe that anyone should feel that there is blame associated with them any more than there is with DS or ASD! pat >> Pat, That's exactly what I was saying. Maybe I didn't communicate that well. My point was that it is wrong of this doc to say that a parent who has these conditions is more likely to have a child with autism, Because of their condition. I believe that's what the doc said. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2001 Report Share Posted January 25, 2001 I just wanted to briefly chime in here to say that I dont' doubt that ASD coexists with DS - and I hope that this Dr. can be more open-minded when conducting the evaluation - BUT i have to take issue (politely I hope) with one of your comments, Donna. Both alcoholism AND mental disorders are diseases/conditions - I do not believe that anyone should feel that there is blame associated with them any more than there is with DS or ASD! pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2001 Report Share Posted January 25, 2001 hi, I hope evaluation goes well. I don't know if ASD is rare in children with Down Syndrome. I don't know if they often in cases when a child is diagnosed with autism, but children with autism do have mood disorders I've noticed when I've babysat children with autism. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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