Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hello there! In regards to your questions on the measurements. I'm not sure what you are referring to when you say " measured 9, measured 11, etc." Maybe you could help me out a bit there. However, from what I understand, there can be a lot of variability from measurements to measurement. Depending on who does it (which nurse, if the doctor did it). But, than again, I don't know exactly what they are measuring so I really don't know what I'm talking about C./subscribe/Plagiocephaly ----- Original Message ----- From: jenpin1@... Plagiocephalyegroups Sent: Thursday, April 06, 2000 5:17 PM Subject: Hello to all! I apologize in advance for being so long-winded. I have a few questions, but thought I'd give our background first.I just found this group a few days ago. I wish I'd known about it 7 months ago. At my daughter's 4 mo. checkup I pointed out her flat spot to which the ped. responded that it would correct itself now that she was rolling over (in her sleep much to my dismay). Anyway, when I again pointed it out at 6 months he referred me to a neurosurgeon.Her asymmetry measured 13 and the neuro. diagnosed torticollis and told me to come back in 2 months after doing the exercises. I went home, got on the net and was horrified and scared at what I found. Additionally, she really didn't resist the exercises like she had in the neuro's office. My husband and I decided to go see the neuro again asap which was in 1 month. She measured 14 at that time. He prescribed the band. We got it 2 weeks later. I really don't think she had torticollis. I think the fact that I let her nap in her swing during the day until she was 3 months old contributed to the plagiocephaly. was full term but was in NICU for 3 days at birth. They always put her on her right side. I think this may have predispositioned her. was 7 1/2 months when she got her band and wore it for 3 months at which time she outgrew. The techs at cranialtech and the neuro agreed that she didn't need another. Her forehead and ears (although they were never that bad) now look great, but there is still some flatness. She is greatly improved, though, to the point that if this is where she had started, we would have never done anything about it.After wearing the band for 2 months she went back to the neuro. and measured 9. Two months later, after being out of the band for 3 weeks, she measured 11. The neuro. said this is normal. The first of my questions: has anyone else run into this? Is this really normal?My next questions involve insurance of course. Our insurance paid $1000 of the $2500 (I know, better than many do). We are appealing, trying to get them to pay all of it. After all, they would have paid for all of an operation to correct it. I digress. Anyway, they classify the DOC Band as a brace and classify braces under External Prosthetic Appliances. Has anyone else run into this? Are any other companies calling DOC Bands braces?Any help would be greatly appreciated.I feel for all of you. It is so horrible that many of us are not able to get help for our children as soon as we would have liked because of ignorance. I can't believe that something that is so increasingly common in not publicized more. Even worse, pediatricians do not seem to realize that after 3 or 4 months it will not really correct itself.Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 : Thanks for replying. Asymmetry, as measured by our neurosurgeon, is measure some sort of calipers. He put one side of them next to 's the outer corner of 's eye and measured diagonally to some point on the back of her head. Then he did the same to the other side. The difference is the amount of asymmetry. For example, if one side measured 140 millimeters and the other 130, the amount of asymmetry is 10 mm. " Normal " asymmetry, according to our neurosurgeon, is about 4mm. It's amazing what a difference a few millimeters makes when you look at the back of a head! You're right about the measuring being very subjective. At our second appt. with neuro., he and a student both measured her twice (she was trying to look at them) and finally got the same number twice. -- In Plagiocephalyegroups, " C. " <crain@l...> wrote: > Hello there! > > In regards to your questions on the measurements. I'm not sure what you are referring to when you say " measured 9, measured 11, etc. " Maybe you could help me out a bit there. However, from what I understand, there can be a lot of variability from measurements to measurement. Depending on who does it (which nurse, if the doctor did it). But, than again, I don't know exactly what they are measuring so I really don't know what I'm talking about > > C. > /subscribe/Plagiocephaly > ----- Original Message ----- > From: jenpin1@... > Plagiocephalyegroups > Sent: Thursday, April 06, 2000 5:17 PM > Subject: Hello to all! > > > I apologize in advance for being so long-winded. I have a few > questions, but thought I'd give our background first. > > I just found this group a few days ago. I wish I'd known about it 7 > months ago. At my daughter's 4 mo. checkup I pointed out her flat > spot to which the ped. responded that it would correct itself now > that she was rolling over (in her sleep much to my dismay). Anyway, > when I again pointed it out at 6 months he referred me to a > neurosurgeon. > > Her asymmetry measured 13 and the neuro. diagnosed torticollis and > told me to come back in 2 months after doing the exercises. I went > home, got on the net and was horrified and scared at what I found. > Additionally, she really didn't resist the exercises like she had in > the neuro's office. My husband and I decided to go see the neuro > again asap which was in 1 month. She measured 14 at that time. He > prescribed the band. We got it 2 weeks later. I really don't think > she had torticollis. I think the fact that I let her nap in her > swing during the day until she was 3 months old contributed to the > plagiocephaly. was full term but was in NICU for 3 days at > birth. They always put her on her right side. I think this may have > predispositioned her. > > was 7 1/2 months when she got her band and wore it for 3 > months at which time she outgrew. The techs at cranialtech and the > neuro agreed that she didn't need another. Her forehead and ears > (although they were never that bad) now look great, but there is > still some flatness. She is greatly improved, though, to the point > that if this is where she had started, we would have never done > anything about it. > > After wearing the band for 2 months she went back to the neuro. and > measured 9. Two months later, after being out of the band for 3 > weeks, she measured 11. The neuro. said this is normal. The first > of my questions: has anyone else run into this? Is this really > normal? > > My next questions involve insurance of course. Our insurance paid > $1000 of the $2500 (I know, better than many do). We are appealing, > trying to get them to pay all of it. After all, they would have paid > for all of an operation to correct it. I digress. Anyway, they > classify the DOC Band as a brace and classify braces under External > Prosthetic Appliances. Has anyone else run into this? Are any other > companies calling DOC Bands braces? > > Any help would be greatly appreciated. > > I feel for all of you. It is so horrible that many of us are not > able to get help for our children as soon as we would have liked > because of ignorance. I can't believe that something that is so > increasingly common in not publicized more. Even worse, pediatricians > do not seem to realize that after 3 or 4 months it will not really > correct itself. > > Thanks for listening! > > > > -------------------------------------------------------------------- ---------- > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 , I would be curious if there were a poll to see what everyone's head measurements were. And the results of before and after helmet/ DOC Band therapy and/or just positioning. My son went from 12MM to 9MM in two weeks just by having him sleep on his stomach and keeping off the back of his head. He has a helmet now but we aren't good about keeping it on as much as we are suppose to and when he's sleeping on his stomach we have the helmet off because he can't sleep otherwise. Heidi --- jenpin1@... wrote: > : > Thanks for replying. Asymmetry, as measured by our > neurosurgeon, is > measure some sort of calipers. He put one side of > them next to > 's the outer corner of 's eye and > measured diagonally to > some point on the back of her head. Then he did the > same to the > other side. The difference is the amount of > asymmetry. For example, > if one side measured 140 millimeters and the other > 130, the amount of > asymmetry is 10 mm. " Normal " asymmetry, according > to our > neurosurgeon, is about 4mm. It's amazing what a > difference a few > millimeters makes when you look at the back of a > head! > > You're right about the measuring being very > subjective. At our > second appt. with neuro., he and a student both > measured her twice > (she was trying to look at them) and finally got the > same number > twice. > > > > > > -- In Plagiocephalyegroups, " C. " > <crain@l...> wrote: > > Hello there! > > > > In regards to your questions on the measurements. > I'm not sure > what you are referring to when you say " > measured 9, measured > 11, etc. " Maybe you could help me out a bit there. > However, from > what I understand, there can be a lot of variability > from > measurements to measurement. Depending on who does > it (which nurse, > if the doctor did it). But, than again, I don't > know exactly what > they are measuring so I really don't know what I'm > talking about > > > > C. > > /subscribe/Plagiocephaly > > ----- Original Message ----- > > From: jenpin1@... > > Plagiocephalyegroups > > Sent: Thursday, April 06, 2000 5:17 PM > > Subject: Hello to all! > > > > > > I apologize in advance for being so long-winded. > I have a few > > questions, but thought I'd give our background > first. > > > > I just found this group a few days ago. I wish > I'd known about > it 7 > > months ago. At my daughter's 4 mo. checkup I > pointed out her > flat > > spot to which the ped. responded that it would > correct itself now > > that she was rolling over (in her sleep much to > my dismay). > Anyway, > > when I again pointed it out at 6 months he > referred me to a > > neurosurgeon. > > > > Her asymmetry measured 13 and the neuro. > diagnosed torticollis > and > > told me to come back in 2 months after doing the > exercises. I > went > > home, got on the net and was horrified and > scared at what I > found. > > Additionally, she really didn't resist the > exercises like she had > in > > the neuro's office. My husband and I decided to > go see the neuro > > again asap which was in 1 month. She measured 14 > at that time. > He > > prescribed the band. We got it 2 weeks later. > I really don't > think > > she had torticollis. I think the fact that I > let her nap in her > > swing during the day until she was 3 months old > contributed to > the > > plagiocephaly. was full term but was in > NICU for 3 days at > > birth. They always put her on her right side. > I think this may > have > > predispositioned her. > > > > was 7 1/2 months when she got her band > and wore it for 3 > > months at which time she outgrew. The techs at > cranialtech and > the > > neuro agreed that she didn't need another. Her > forehead and ears > > (although they were never that bad) now look > great, but there is > > still some flatness. She is greatly improved, > though, to the > point > > that if this is where she had started, we would > have never done > > anything about it. > > > > After wearing the band for 2 months she went > back to the neuro. > and > > measured 9. Two months later, after being out > of the band for 3 > > weeks, she measured 11. The neuro. said this is > normal. The > first > > of my questions: has anyone else run into this? > Is this really > > normal? > > > > My next questions involve insurance of course. > Our insurance > paid > > $1000 of the $2500 (I know, better than many > do). We are > appealing, > > trying to get them to pay all of it. After all, > they would have > paid > > for all of an operation to correct it. I > digress. Anyway, they > > classify the DOC Band as a brace and classify > braces under > External > > Prosthetic Appliances. Has anyone else run into > this? Are any > other > > companies calling DOC Bands braces? > > > > Any help would be greatly appreciated. > > > > I feel for all of you. It is so horrible that > many of us are not > > able to get help for our children as soon as we > would have liked > > because of ignorance. I can't believe that > something that is so > > increasingly common in not publicized more. Even > worse, > pediatricians > > do not seem to realize that after 3 or 4 months > it will not > really > > correct itself. > > > > Thanks for listening! > > > > > > > > > -------------------------------------------------------------------- > ---------- > > > > > > > > > -------------------------------------------------------------------- > ---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 Thanks for the clarification, . Different doctors measure different ways. I read somewhere a big problem with doing studies on positional plagiocephaly is there isn't a "standard" way of measuring the severity of the problem. Doesn't it seem like it would be a simple thing to figure out? I'm probably oversimplifying it in naiveté. C./subscribe/Plagiocephaly ----- Original Message ----- From: jenpin1@... Plagiocephalyegroups Sent: Friday, April 07, 2000 7:05 PM Subject: Re: Hello to all! :Thanks for replying. Asymmetry, as measured by our neurosurgeon, is measure some sort of calipers. He put one side of them next to 's the outer corner of 's eye and measured diagonally to some point on the back of her head. Then he did the same to the other side. The difference is the amount of asymmetry. For example, if one side measured 140 millimeters and the other 130, the amount of asymmetry is 10 mm. "Normal" asymmetry, according to our neurosurgeon, is about 4mm. It's amazing what a difference a few millimeters makes when you look at the back of a head!You're right about the measuring being very subjective. At our second appt. with neuro., he and a student both measured her twice (she was trying to look at them) and finally got the same number twice.-- In Plagiocephalyegroups, " C." <crain@l...> wrote:> Hello there!> > In regards to your questions on the measurements. I'm not sure what you are referring to when you say " measured 9, measured 11, etc." Maybe you could help me out a bit there. However, from what I understand, there can be a lot of variability from measurements to measurement. Depending on who does it (which nurse, if the doctor did it). But, than again, I don't know exactly what they are measuring so I really don't know what I'm talking about > > C.> /subscribe/Plagiocephaly> ----- Original Message ----- > From: jenpin1@... > Plagiocephalyegroups > Sent: Thursday, April 06, 2000 5:17 PM> Subject: Hello to all! > > > I apologize in advance for being so long-winded. I have a few > questions, but thought I'd give our background first.> > I just found this group a few days ago. I wish I'd known about it 7 > months ago. At my daughter's 4 mo. checkup I pointed out her flat > spot to which the ped. responded that it would correct itself now > that she was rolling over (in her sleep much to my dismay). Anyway, > when I again pointed it out at 6 months he referred me to a > neurosurgeon.> > Her asymmetry measured 13 and the neuro. diagnosed torticollis and > told me to come back in 2 months after doing the exercises. I went > home, got on the net and was horrified and scared at what I found. > Additionally, she really didn't resist the exercises like she had in > the neuro's office. My husband and I decided to go see the neuro > again asap which was in 1 month. She measured 14 at that time. He > prescribed the band. We got it 2 weeks later. I really don't think > she had torticollis. I think the fact that I let her nap in her > swing during the day until she was 3 months old contributed to the > plagiocephaly. was full term but was in NICU for 3 days at > birth. They always put her on her right side. I think this may have > predispositioned her.> > was 7 1/2 months when she got her band and wore it for 3 > months at which time she outgrew. The techs at cranialtech and the > neuro agreed that she didn't need another. Her forehead and ears > (although they were never that bad) now look great, but there is > still some flatness. She is greatly improved, though, to the point > that if this is where she had started, we would have never done > anything about it.> > After wearing the band for 2 months she went back to the neuro. and > measured 9. Two months later, after being out of the band for 3 > weeks, she measured 11. The neuro. said this is normal. The first > of my questions: has anyone else run into this? Is this really > normal?> > My next questions involve insurance of course. Our insurance paid > $1000 of the $2500 (I know, better than many do). We are appealing, > trying to get them to pay all of it. After all, they would have paid > for all of an operation to correct it. I digress. Anyway, they > classify the DOC Band as a brace and classify braces under External > Prosthetic Appliances. Has anyone else run into this? Are any other > companies calling DOC Bands braces?> > Any help would be greatly appreciated.> > I feel for all of you. It is so horrible that many of us are not > able to get help for our children as soon as we would have liked > because of ignorance. I can't believe that something that is so > increasingly common in not publicized more. Even worse, pediatricians > do not seem to realize that after 3 or 4 months it will not really > correct itself.> > Thanks for listening!> > > > ------------------------------------------------------------------------------> > > > ------------------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 C: I agree that measuring should definitely be a simple thing to do. I'm curious about how your doctor measured your child. > > Hello there! > > > > In regards to your questions on the measurements. I'm not sure > what you are referring to when you say " measured 9, measured > 11, etc. " Maybe you could help me out a bit there. However, from > what I understand, there can be a lot of variability from > measurements to measurement. Depending on who does it (which nurse, > if the doctor did it). But, than again, I don't know exactly what > they are measuring so I really don't know what I'm talking about > > > > C. > > /subscribe/Plagiocephaly > > ----- Original Message ----- > > From: jenpin1@... > > Plagiocephalyegroups > > Sent: Thursday, April 06, 2000 5:17 PM > > Subject: Hello to all! > > > > > > I apologize in advance for being so long-winded. I have a few > > questions, but thought I'd give our background first. > > > > I just found this group a few days ago. I wish I'd known about > it 7 > > months ago. At my daughter's 4 mo. checkup I pointed out her > flat > > spot to which the ped. responded that it would correct itself now > > that she was rolling over (in her sleep much to my dismay). > Anyway, > > when I again pointed it out at 6 months he referred me to a > > neurosurgeon. > > > > Her asymmetry measured 13 and the neuro. diagnosed torticollis > and > > told me to come back in 2 months after doing the exercises. I > went > > home, got on the net and was horrified and scared at what I > found. > > Additionally, she really didn't resist the exercises like she had > in > > the neuro's office. My husband and I decided to go see the neuro > > again asap which was in 1 month. She measured 14 at that time. > He > > prescribed the band. We got it 2 weeks later. I really don't > think > > she had torticollis. I think the fact that I let her nap in her > > swing during the day until she was 3 months old contributed to > the > > plagiocephaly. was full term but was in NICU for 3 days at > > birth. They always put her on her right side. I think this may > have > > predispositioned her. > > > > was 7 1/2 months when she got her band and wore it for 3 > > months at which time she outgrew. The techs at cranialtech and > the > > neuro agreed that she didn't need another. Her forehead and ears > > (although they were never that bad) now look great, but there is > > still some flatness. She is greatly improved, though, to the > point > > that if this is where she had started, we would have never done > > anything about it. > > > > After wearing the band for 2 months she went back to the neuro. > and > > measured 9. Two months later, after being out of the band for 3 > > weeks, she measured 11. The neuro. said this is normal. The > first > > of my questions: has anyone else run into this? Is this really > > normal? > > > > My next questions involve insurance of course. Our insurance > paid > > $1000 of the $2500 (I know, better than many do). We are > appealing, > > trying to get them to pay all of it. After all, they would have > paid > > for all of an operation to correct it. I digress. Anyway, they > > classify the DOC Band as a brace and classify braces under > External > > Prosthetic Appliances. Has anyone else run into this? Are any > other > > companies calling DOC Bands braces? > > > > Any help would be greatly appreciated. > > > > I feel for all of you. It is so horrible that many of us are not > > able to get help for our children as soon as we would have liked > > because of ignorance. I can't believe that something that is so > > increasingly common in not publicized more. Even worse, > pediatricians > > do not seem to realize that after 3 or 4 months it will not > really > > correct itself. > > > > Thanks for listening! > > > > > > > > ---------------------------------------------------------------- ---- > ---------- > > > > > > > > ---------------------------------------------------------------- ---- > ---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 Using the CT scan films. Then, eyeballing it after that. And, I don't even know what her asymmetry measured. Isn't that terrible?! I was just thinking, "yeah, she's crooked, FIX IT!" C. /subscribe/Plagiocephaly ----- Original Message ----- From: jenpin1@... Plagiocephalyegroups Sent: Saturday, April 08, 2000 11:42 AM Subject: Re: Hello to all! C:I agree that measuring should definitely be a simple thing to do. I'm curious about how your doctor measured your child.> > Hello there!> > > > In regards to your questions on the measurements. I'm not sure > what you are referring to when you say " measured 9, measured > 11, etc." Maybe you could help me out a bit there. However, from > what I understand, there can be a lot of variability from > measurements to measurement. Depending on who does it (which nurse, > if the doctor did it). But, than again, I don't know exactly what > they are measuring so I really don't know what I'm talking about > > > > C.> > /subscribe/Plagiocephaly> > ----- Original Message ----- > > From: jenpin1@... > > Plagiocephalyegroups > > Sent: Thursday, April 06, 2000 5:17 PM> > Subject: Hello to all! > > > > > > I apologize in advance for being so long-winded. I have a few > > questions, but thought I'd give our background first.> > > > I just found this group a few days ago. I wish I'd known about > it 7 > > months ago. At my daughter's 4 mo. checkup I pointed out her > flat > > spot to which the ped. responded that it would correct itself now > > that she was rolling over (in her sleep much to my dismay). > Anyway, > > when I again pointed it out at 6 months he referred me to a > > neurosurgeon.> > > > Her asymmetry measured 13 and the neuro. diagnosed torticollis > and > > told me to come back in 2 months after doing the exercises. I > went > > home, got on the net and was horrified and scared at what I > found. > > Additionally, she really didn't resist the exercises like she had > in > > the neuro's office. My husband and I decided to go see the neuro > > again asap which was in 1 month. She measured 14 at that time. > He > > prescribed the band. We got it 2 weeks later. I really don't > think > > she had torticollis. I think the fact that I let her nap in her > > swing during the day until she was 3 months old contributed to > the > > plagiocephaly. was full term but was in NICU for 3 days at > > birth. They always put her on her right side. I think this may > have > > predispositioned her.> > > > was 7 1/2 months when she got her band and wore it for 3 > > months at which time she outgrew. The techs at cranialtech and > the > > neuro agreed that she didn't need another. Her forehead and ears > > (although they were never that bad) now look great, but there is > > still some flatness. She is greatly improved, though, to the > point > > that if this is where she had started, we would have never done > > anything about it.> > > > After wearing the band for 2 months she went back to the neuro. > and > > measured 9. Two months later, after being out of the band for 3 > > weeks, she measured 11. The neuro. said this is normal. The > first > > of my questions: has anyone else run into this? Is this really > > normal?> > > > My next questions involve insurance of course. Our insurance > paid > > $1000 of the $2500 (I know, better than many do). We are > appealing, > > trying to get them to pay all of it. After all, they would have > paid > > for all of an operation to correct it. I digress. Anyway, they > > classify the DOC Band as a brace and classify braces under > External > > Prosthetic Appliances. Has anyone else run into this? Are any > other > > companies calling DOC Bands braces?> > > > Any help would be greatly appreciated.> > > > I feel for all of you. It is so horrible that many of us are not > > able to get help for our children as soon as we would have liked > > because of ignorance. I can't believe that something that is so > > increasingly common in not publicized more. Even worse, > pediatricians > > do not seem to realize that after 3 or 4 months it will not > really > > correct itself.> > > > Thanks for listening!> > > > > > > > --------------------------------------------------------------------> ----------> > > > > > > > --------------------------------------------------------------------> ----------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2000 Report Share Posted April 11, 2000 Hi Heidi! You probably thought I was ignoring you! I'm sorry. I've been chewing on your suggestion for a poll on asymmetry measurements. Some babies aren't being measured before being sent off to get banded or to get helmets. (Banded - sounds like we're banding wild birds for study or something, doesn't it?) If I think of a way to get around the differences doctors have of "measuring" kids, I definitely want to do the poll. If you have any ideas, let me know! C./subscribe/Plagiocephaly ----- Original Message ----- From: heidi bosinger-waldron Plagiocephalyegroups Sent: Friday, April 07, 2000 8:12 PM Subject: Re: Hello to all! ,I would be curious if there were a poll to see whateveryone's head measurements were. And the results ofbefore and after helmet/ DOC Band therapy and/or justpositioning. My son went from 12MM to 9MM in twoweeks just by having him sleep on his stomach andkeeping off the back of his head. He has a helmet nowbut we aren't good about keeping it on as much as weare suppose to and when he's sleeping on his stomachwe have the helmet off because he can't sleepotherwise.Heidi--- jenpin1@... wrote:> :> Thanks for replying. Asymmetry, as measured by our> neurosurgeon, is > measure some sort of calipers. He put one side of> them next to > 's the outer corner of 's eye and> measured diagonally to > some point on the back of her head. Then he did the> same to the > other side. The difference is the amount of> asymmetry. For example, > if one side measured 140 millimeters and the other> 130, the amount of > asymmetry is 10 mm. "Normal" asymmetry, according> to our > neurosurgeon, is about 4mm. It's amazing what a> difference a few > millimeters makes when you look at the back of a> head!> > You're right about the measuring being very> subjective. At our > second appt. with neuro., he and a student both> measured her twice > (she was trying to look at them) and finally got the> same number > twice.> > > > > > -- In Plagiocephalyegroups, " C."> <crain@l...> wrote:> > Hello there!> > > > In regards to your questions on the measurements. > I'm not sure > what you are referring to when you say "> measured 9, measured > 11, etc." Maybe you could help me out a bit there. > However, from > what I understand, there can be a lot of variability> from > measurements to measurement. Depending on who does> it (which nurse, > if the doctor did it). But, than again, I don't> know exactly what > they are measuring so I really don't know what I'm> talking about > > > > C.> > /subscribe/Plagiocephaly> > ----- Original Message ----- > > From: jenpin1@... > > Plagiocephalyegroups > > Sent: Thursday, April 06, 2000 5:17 PM> > Subject: Hello to all! > > > > > > I apologize in advance for being so long-winded.> I have a few > > questions, but thought I'd give our background> first.> > > > I just found this group a few days ago. I wish> I'd known about > it 7 > > months ago. At my daughter's 4 mo. checkup I> pointed out her > flat > > spot to which the ped. responded that it would> correct itself now > > that she was rolling over (in her sleep much to> my dismay). > Anyway, > > when I again pointed it out at 6 months he> referred me to a > > neurosurgeon.> > > > Her asymmetry measured 13 and the neuro.> diagnosed torticollis > and > > told me to come back in 2 months after doing the> exercises. I > went > > home, got on the net and was horrified and> scared at what I > found. > > Additionally, she really didn't resist the> exercises like she had > in > > the neuro's office. My husband and I decided to> go see the neuro > > again asap which was in 1 month. She measured 14> at that time. > He > > prescribed the band. We got it 2 weeks later. > I really don't > think > > she had torticollis. I think the fact that I> let her nap in her > > swing during the day until she was 3 months old> contributed to > the > > plagiocephaly. was full term but was in> NICU for 3 days at > > birth. They always put her on her right side. > I think this may > have > > predispositioned her.> > > > was 7 1/2 months when she got her band> and wore it for 3 > > months at which time she outgrew. The techs at> cranialtech and > the > > neuro agreed that she didn't need another. Her> forehead and ears > > (although they were never that bad) now look> great, but there is > > still some flatness. She is greatly improved,> though, to the > point > > that if this is where she had started, we would> have never done > > anything about it.> > > > After wearing the band for 2 months she went> back to the neuro. > and > > measured 9. Two months later, after being out> of the band for 3 > > weeks, she measured 11. The neuro. said this is> normal. The > first > > of my questions: has anyone else run into this? > Is this really > > normal?> > > > My next questions involve insurance of course. > Our insurance > paid > > $1000 of the $2500 (I know, better than many> do). We are > appealing, > > trying to get them to pay all of it. After all,> they would have > paid > > for all of an operation to correct it. I> digress. Anyway, they > > classify the DOC Band as a brace and classify> braces under > External > > Prosthetic Appliances. Has anyone else run into> this? Are any > other > > companies calling DOC Bands braces?> > > > Any help would be greatly appreciated.> > > > I feel for all of you. It is so horrible that> many of us are not > > able to get help for our children as soon as we> would have liked > > because of ignorance. I can't believe that> something that is so > > increasingly common in not publicized more. Even> worse, > pediatricians > > do not seem to realize that after 3 or 4 months> it will not > really > > correct itself.> > > > Thanks for listening!> > > > > > > >>--------------------------------------------------------------------> ----------> > > > > > > >>--------------------------------------------------------------------> ----------> > Quote Link to comment Share on other sites More sharing options...
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